Telephone

电话
  • 文章类型: Journal Article
    背景:在医疗保健系统性能的测量方面已经有了显着扩展。然而,缺乏全面的绩效评估框架来评估电话分诊服务对紧急护理系统的影响。我们的Delphi研究的目的是构建和验证为电话分诊服务明确设计的绩效评估框架。
    方法:这项研究是在芬兰进行的,由来自该国20个最大的联合急诊科的8名经验丰富的高级医师组成,为90%以上的人口提供紧急护理服务。标称组技术(NGT)用于在测量电话分诊性能方面达成共识。最初,绩效指标(PI)通过德尔菲法确定了12月10日至12月27日的轮次,2021年,有8位专家参与,从12月29日开始,2021年1月23日,2022年,其中五位专家做出了回应。NGT进一步深化了这些主题和观点,协助开发全面的绩效评估框架。最终的框架验证从2月13日至3月3日的第一轮开始,2022年,收到5份回复。由于回复数量有限,10月29日至11月7日进行了另一轮验证,2023年,导致了另外两个回应,将验证阶段的受访者总数增加到7人。
    结果:该研究发现,专业人士强烈希望采用统一的框架来衡量电话分诊性能。最终确定的框架从五个方面评估电话分类:服务可访问性,患者体验,质量和安全,过程结果,和每个案例的成本。建立了八个具体的PI,包括呼叫响应指标,服务实用程序,后续护理类型和分布,ICPC-2分类相遇原因,患者对后续护理的依从性,评估期间的病史回顾,和每次通话的服务费用。
    结论:本研究验证了电话分诊服务的性能测量框架,利用现有文献和NGT方法。该框架包括五个关键维度:患者体验,质量和安全,电话分诊过程的结果,每个案例的成本,8个PI它提供了一个结构化和全面的方法来衡量电话分诊服务的整体性能,提高我们有效评估这些服务的能力。
    BACKGROUND: There has been a significant expansion in the measurement of healthcare system performance. However, there is a lack of a comprehensive performance measurement framework to assess the effects of telephone triage services on the urgent care system. The aim of our Delphi study was to construct and validate a performance measurement framework designed explicitly for telephone triage services.
    METHODS: This study was conducted in Finland with a group of eight experienced senior physicians from the country\'s 20 largest joint emergency departments, serving over 90% of the population for urgent care. The Nominal Group Technique (NGT) was utilised to achieve consensus on measuring telephone triage performance. Initially, performance indicators (PIs) were identified through Delphi method rounds from December 10th to December 27th, 2021, with eight experts participating, and from December 29th, 2021, to January 23rd, 2022, where five of these experts responded. NGT further deepened these themes and perspectives, aiding in the development of a comprehensive performance measurement framework. The final framework validation began with an initial round from February 13th to March 3rd, 2022, receiving five responses. Due to the limited number of responses, an additional validation round was conducted from October 29th to November 7th, 2023, resulting in two more responses, increasing the total number of respondents in the validation phase to seven.
    RESULTS: The study identified a strong desire among professionals to implement a uniform framework for measuring telephone triage performance. The finalised framework evaluates telephone triage across five dimensions: service accessibility, patient experience, quality and safety, process outcome, and cost per case. Eight specific PIs were established, including call response metrics, service utility, follow-up care type and distribution, ICPC-2 classified encounter reasons, patient compliance with follow-up care, medical history review during assessment, and service cost per call.
    CONCLUSIONS: This study validated a performance measurement framework for telephone triage services, utilising existing literature and the NGT method. The framework includes five key dimensions: patient experience, quality and safety, outcome of the telephone triage process, cost per case, and eight PIs. It offers a structured and comprehensive approach to measuring the overall performance of telephone triage services, enhancing our ability to evaluate these services effectively.
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  • 文章类型: Journal Article
    背景:低应答率(RR)会影响医院对患者体验调查和基于价值的购买资格的数据收集成本。大多数医院使用单一模式方法,即使序贯混合模式(MM)产生更高的RR和可能更好的患者代表性。一些医院可能不愿意承担MM的潜在额外成本和复杂性,而不知道会增加多少RR。
    目的:本研究的目的是估计MM和单模式方法之间RR和患者表现的差异,并确定与单模式方案MM最大RR差异相关的医院特征(仅邮件,仅限电话)。
    方法:患者在医院内随机分为3种模式之一(仅邮寄,只有电话,MM)。
    方法:来自美国51家全国代表性医院的17,415名患者参与了一项随机HCAHPS模式实验。
    结果:仅邮件RR在18-24岁年龄段最低(7%),在65岁以上年龄段最高(31%-35%)。18-24岁的纯电话RR为24%,到55岁以上时增加到37%-40%。18-24岁的MMRR为28%,到65-84岁增加到50%-60%。较低的医院级别的仅邮件RR强烈预测了MM的更大收益。例如,仅邮件RR为15%的医院的MMRR预测>40%(电话随访中>25%)。
    结论:在所有模式实验医院中,MM增加了难以到达(尤其是年轻成人)患者和医院RR的代表,尤其是在只有邮件的Rs较低的医院。
    BACKGROUND: Low response rates (RRs) can affect hospitals\' data collection costs for patient experience surveys and value-based purchasing eligibility. Most hospitals use single-mode approaches, even though sequential mixed mode (MM) yields higher RRs and perhaps better patient representativeness. Some hospitals may be reluctant to incur MM\'s potential additional cost and complexity without knowing how much RRs would increase.
    OBJECTIVE: The aim of this study was to estimate the differences in RR and patient representation between MM and single-mode approaches and to identify hospital characteristics associated with the largest RR differences from MM of single-mode protocols (mail-only, phone-only).
    METHODS: Patients were randomized within hospitals to one of 3 modes (mail-only, phone-only, MM).
    METHODS: A total of 17,415 patients from the 51 nationally representative US hospitals participating in a randomized HCAHPS mode experiment.
    RESULTS: Mail-only RRs were lowest for ages 18-24 (7%) and highest for ages 65+ (31%-35%). Phone-only RRs were 24% for ages 18-24, increasing to 37%-40% by ages 55+. MM RRs were 28% for ages 18-24, increasing to 50%-60% by ages 65-84. Lower hospital-level mail-only RRs strongly predicted greater gains from MM. For example, a hospital with a 15% mail-only RR has a predicted MM RR >40% (with >25% occurring in telephone follow-up).
    CONCLUSIONS: MM increased representation of hard-to-reach (especially young adult) patients and hospital RRs in all mode experiment hospitals, especially in hospitals with low mail-only RRs.
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  • 文章类型: Journal Article
    背景:诊断的中位年龄为70岁,肺癌仍然是美国老年人面临的重大公共卫生挑战。手术是治疗大多数非转移性肺癌患者的关键组成部分。这些患者经历术后疼痛,疲劳,呼吸能力的丧失,身体机能下降。接受肺癌手术的老年人的生活质量(QOL)数据有限,很少有干预措施旨在针对老年人及其家庭护理人员(FCG)的需求。这项比较有效性试验的主要目的是确定手术前后基于电话的身体活动指导是否比单独进行身体活动自我监测对老年人及其FCG更有益。
    方法:在这项多中心有效性比较试验中,382名患有肺癌的老年人(≥65岁)及其FCG将在手术前招募,并随机分配到基于电话的身体活动指导或单独的身体活动自我监测。分配到基于电话的教练比较器的参与者将获得与教练的五次电话会议(1个手术前和4个手术后),干预资源手册,还有一个腕带计步器.仅自我监测臂的参与者将获得美国临床肿瘤学会(ASCO)的身体活动信息和腕带计步器。所有参与者将在手术前(基线)进行评估,在放电时,出院后第30、60和180天。主要终点是出院后30天的6分钟步行测试(6MWT)。老年评估,下肢功能,自我报告的身体机能,自我效能感,和QOL也将被评估。
    结论:该试验将确定这种基于电话的体力活动指导方法是否可以提高患有肺癌的老年人及其FCG的术后功能能力和QOL结果。试验结果将提供重要的发现,为患有癌症的老年人及其FCG的术后护理模型提供信息。
    背景:ClinicalTrials.gov标识符:NCT06196008。
    BACKGROUND: With a median age at diagnosis of 70, lung cancer remains a significant public health challenge for older Americans. Surgery is a key component in treating most patients with non-metastatic lung cancer. These patients experience postoperative pain, fatigue, loss of respiratory capacity, and decreased physical function. Data on quality of life (QOL) in older adults undergoing lung cancer surgery is limited, and few interventions are designed to target the needs of older adults and their family caregivers (FCGs). The primary aim of this comparative effectiveness trial is to determine whether telephone-based physical activity coaching before and after surgery will be more beneficial than physical activity self-monitoring alone for older adults and their FCGs.
    METHODS: In this multicenter comparative effectiveness trial, 382 older adults (≥ 65 years) with lung cancer and their FCGs will be recruited before surgery and randomized to either telephone-based physical activity coaching or physical activity self-monitoring alone. Participants allocated to the telephone-based coaching comparator will receive five telephone sessions with coaches (1 pre and 4 post surgery), an intervention resource manual, and a wristband pedometer. Participants in the self-monitoring only arm will receive American Society of Clinical Oncology (ASCO) physical activity information and wristband pedometers. All participants will be assessed at before surgery (baseline), at discharge, and at days 30, 60, and 180 post-discharge. The primary endpoint is the 6-minute walk test (6MWT) at 30 days post-discharge. Geriatric assessment, lower extremity function, self-reported physical function, self-efficacy, and QOL will also be assessed.
    CONCLUSIONS: The trial will determine whether this telephone-based physical activity coaching approach can enhance postoperative functional capacity and QOL outcomes for older adults with lung cancer and their FCGs. Trial results will provide critical findings to inform models of postoperative care for older adults with cancer and their FCGs.
    BACKGROUND: ClinicalTrials.gov Identifier: NCT06196008.
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  • 文章类型: Journal Article
    背景:在COVID-19紧急情况的前9个月,如果临床工作人员认为没有必要进行当面护理,我们鼓励患者使用虚拟访视与临床访视.这项研究调查了在同一医疗保健系统中获得护理的美国拉丁裔和中国成年患者使用视频与电话虚拟访问的口语偏好和种族之间的关系。
    方法:我们分析了四组26-85岁成年人的电子健康记录数据,这些成年人在2020年4月至12月期间有≥1次初级或专科护理门诊临床医师就诊:80,869名拉丁裔成年人更喜欢西班牙语(LEPLatino);214,765名拉丁裔成年人更喜欢英语(非LEPLatino);23,430名中国成年人更喜欢汉语通过种族内的语言偏好(LEP/非LEP)和四个年龄亚组的语言偏好内的种族(26-39岁,40-64y,65-75y,和76-85y):≥1次虚拟(视频或电话)访问,≥1次视频访问,≥1次电话访问,≥1次临床就诊,仅限视频访问,只有电话访问。我们还使用绝对差异和从控制年龄和性别的改良log-Poisson回归模型得出的调整后的患病率比,比较了年龄亚组中的种族x语言组差异。
    结果:在虚拟用户中,LEP拉丁裔和中国成年人使用视频访问的可能性明显低于同一年龄段的非LEP拉丁裔和中国成年人使用电话访问的可能性。LEP/非LEP在视频访问使用方面的差异在拉丁裔患者中明显大于中国患者,在电话访问中没有观察到类似的种族差异。在LEP和非LEP语言组中,中国成年人比拉丁裔成年人更有可能使用视频访问,而不太可能使用电话访问。
    结论:在COVID-19大流行的前9个月,拉丁美洲人和中国成年人对视频和电话虚拟访问的吸收在种族中的LEP/非LEP地位以及LEP/非LEP语言组中的种族之间存在显着差异。这些发现强调了在尝试理解和研究患者对不同虚拟访问方式的使用时,按种族和语言偏好分类数据的重要性。
    BACKGROUND: During the first nine months of the COVID-19 emergency, patients were encouraged to use virtual versus clinic visits if in-person care was not deemed necessary by clinical staff. This study examined the association of spoken language preference and ethnicity with use of video versus phone virtual visits by US Latino and Chinese adult patients who got care in the same healthcare system.
    METHODS: We analyzed electronic health record data for four groups of adults aged 26-85y who had ≥ 1 primary or specialty care outpatient clinician visits during April-December 2020: 80,869 Latino adults preferring Spanish (LEP Latino); 214,765 Latino adults preferring English (non-LEP Latino); 23,430 Chinese adults preferring a Chinese dialect (LEP Chinese); and 49,710 Chinese adults preferring English (non-LEP Chinese). Prevalence of the following utilization outcomes were compared by language preference (LEP/non-LEP) within ethnicity and by ethnicity within language preference for four age subgroups (26-39y, 40-64y, 65-75y, and 76-85y): ≥ 1 virtual (video or phone) visit, ≥ 1 video visit, ≥ 1 phone visit, ≥ 1 clinic visit, video visits only, and phone visits only. We also compared ethnicity x language group differences within age subgroups using absolute difference and adjusted prevalence ratios derived from modified log-Poisson regression models that controlled for age and sex.
    RESULTS: Among virtual users, LEP Latino and Chinese adults were significantly less likely to use video visits and more likely to use phone visits than non-LEP Latino and Chinese adults in the same age strata. The LEP/non-LEP difference in video visit use was significantly larger among Latino than Chinese patients, with no similar ethnic group difference observed for phone visits. Within the LEP and non-LEP language groups, Chinese adults were significantly more likely than Latino adults to use video visits and less likely to use phone visits.
    CONCLUSIONS: During the first nine months of the COVID-19 pandemic, uptake of video and phone virtual visits by Latino and Chinese adults significantly differed by LEP/non-LEP status within ethnicity and by ethnicity within LEP/non-LEP language group. These findings underscore the importance of disaggregating data by ethnicity and language preference when attempting to understand and study patient use of different virtual visit modalities.
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  • 文章类型: Journal Article
    背景:远程(数字和/或电话)访问和咨询模型是由国家政策驱动的,目标是到2029年,国家卫生服务在远程优先(数字优先)的基础上运行。先前的研究表明,远程获得护理和咨询的方法可能会扩大某些患者和/或群体的健康不平等,例如少数民族。南亚(SA)患者是英格兰最大的少数民族。了解这一群体的经验和需求对于确保一般做法能够提供公平、优质的医疗保健。
    方法:定性研究。37名参与者(来自印度人,巴基斯坦和/或孟加拉国背景)被招募参加面对面的首选语言焦点小组或英语远程半结构化面试。进行了专题分析,以确定定性数据中的主题。
    结果:确定了三个相互关联的主要主题:(1)减少访问,(2)减少患者的选择和(3)质量和安全方面的关注。调查结果强调了以下问题:(i)通过任何远程方式进行预约访问的一般问题,以及(ii)与语言障碍有关的具体问题,为访问和护理带来了额外的障碍。一些患者重视远程访问的便利性,但也提出了有关预约可用性和减少患者选择的担忧。面对面的协商是可取的,但较少。这些发现强调了参与者如何认为远程护理质量较低且安全性较低。对于英语水平有限(LEP)的人来说,问题最大。消除了沟通的非语言方面和“动手”护理,导致人们对心理社会安全性降低的看法。
    结论:SA患者对远程主导的初级保健服务和护理服务的体验是负面的,只有少数人积极地看待它,并且在某些有限的情况下。面对面的护理模式仍然是首选的咨询模式,特别是对于那些有LEP。混合接入模式为患者提供了最大的选择,并可能满足未来南亚患者人群的不同需求。作为一种理想的服务,远程初级保健方法可能是可以实现的,但它的局限性需要得到承认和考虑,以确保初级保健可以是公平的服务,现在和将来。
    公众参与了研究的所有阶段。这包括在整个研究过程中共同合作,包括,查看面向患者的文件,招募参与者,数据促进,翻译工作,本手稿的数据解释和合著者。我们研究成功的关键是团队合作,其中涉及经验丰富的公众成员,他们具有SA文化知识,与研究团队一起工作并成为所有组件的组成部分。
    BACKGROUND: Remote (digital and/or telephone) access and consultation models are being driven by national policy with the goal being that the National Health Service operate on a remote-first (digital-first) basis by 2029. Previous research has suggested that remote methods of access to care and consulting may act to widen health inequalities for certain patients and/or groups such as those from ethnic minorities. South Asian (SA) patients comprise the largest ethnic minority group in England. Understanding the experiences and needs of this group is critical to ensuring that general practice can deliver equitable, quality health care.
    METHODS: Qualitative study. 37 participants (from Indian, Pakistani and/or Bangladeshi background) were recruited to take part in either in-person preferred language focus groups or remote semistructured interviews in the English language. Thematic analysis was conducted to identify themes in the qualitative data.
    RESULTS: Three major interlinked themes were identified: (1) reduced access, (2) reduced patient choice and (3) quality and safety concerns. The findings highlight access issues split by (i) general issues with appointment access via any remote means and (ii) specific issues related to language barriers creating additional barriers to access and care. Some patients valued the convenience of remote access but also raised concerns regarding appointment availability and reduced patient choice. Face-to-face consultations were preferable but less available. The findings underscore how participants perceived remote care to be of lesser quality and less safe. Concerns were greatest for those with limited English proficiency (LEP), with the removal of non-verbal aspects of communication and \'hands-on\' care leading to perceptions of reduced psycho-social safety.
    CONCLUSIONS: SA patients\' experiences of remote-led primary care access and care delivery were negative with only a minority viewing it positively and for certain limited scenarios. Face-to-face models of care remain the preferred mode of consultation, particularly for those with LEP. Hybrid models of access offer patients the greatest choice, and are likely to meet the varying needs of the South-Asian patient population going forwards. The remote first approach to primary care may be achievable as a service ideal, but its limitations need to be recognised and accounted for to ensure that primary care can be an equitable service, both now and in the future.
    UNASSIGNED: Members of the public were involved in all phases of research in the study. This included co-working in partnership throughout the study including, reviewing patient-facing documents, recruiting participants, data facilitation, translation work, interpretation of the data and co-authors on this manuscript. The key to the success of our study was collaborative teamwork, which involved experienced members of the public with SA cultural knowledge working together with and integral to the research team for all components.
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  • 文章类型: Journal Article

    早期干预服务可以改善发育迟缓儿童的预后。卫生保健提供者,然而,经常努力确保及时的推荐和服务。我们通过211LA测试了基于电话的幼儿发育护理协调的有效性,为洛杉矶县服务的健康和人类服务呼叫中心,增加转诊和服务注册。
    与4个临床系统合作,我们招募并随机分配了12至42个月的儿童,即将进行良好的儿童访问,并且没有已知的发育延迟,干预与常规护理。所有儿童均接受发育筛查和常规临床护理。干预儿童还获得了211名洛杉矶早期儿童护理协调员的电话连接,该协调员进行了转诊并进行了随访。6个月随访的主要结果包括父母报告的转诊和发展服务登记。次要结果包括早期护理和教育(ECE)的转诊和入学。Logistic回归模型用于估计结果的几率,针对关键协变量进行调整。
    565个家庭(282个干预,283控制),512(90.6%)提供了随访数据。在所有参与者中,参考的干预比对照组儿童多(25%vs16%,调整后的赔率比[AOR]2.25,P=0.003),并登记在(15%对9%,AOR2.35,P=.008)≥1个服务,和更多的干预比对照组儿童(58%和15%,AOR9.06,P<.001)并注册(26%vs10%,AOR3.75,P<.001)ECE。
    通过211LA进行电话护理协调,可以有效地将幼儿与发展服务和欧洲经委会联系起来,为差距和差距提供潜在的可扩展解决方案。

    OBJECTIVE: Early intervention services can improve outcomes for children with developmental delays. Health care providers, however, often struggle to ensure timely referrals and services. We tested the effectiveness of telephone-based early childhood developmental care coordination through 211 LA, a health and human services call center serving Los Angeles County, in increasing referral and enrollment in services.
    METHODS: In partnership with 4 clinic systems, we recruited and randomly assigned children aged 12 to 42 months with upcoming well-child visits and without a known developmental delay, to intervention versus usual care. All children received developmental screening and usual clinic care. Intervention children also received telephone connection to a 211 LA early childhood care coordinator who made referrals and conducted follow-up. Primary outcomes at a 6-month follow-up included parent-reported referral and enrollment in developmental services. Secondary outcomes included referral and enrollment in early care and education (ECE). Logistic regression models were used to estimate the odds of outcomes, adjusted for key covariates.
    RESULTS: Of 565 families (282 intervention, 283 control), 512 (90.6%) provided follow-up data. Among all participants, more intervention than control children were referred to (25% vs 16%, adjusted odds ratio [AOR] 2.25, P = .003) and enrolled in (15% vs 9%, AOR 2.35, P = .008) ≥1 service, and more intervention than control children were referred to (58% vs 15%, AOR 9.06, P < .001) and enrolled in (26% vs 10%, AOR 3.75, P < .001) ECE.
    CONCLUSIONS: Telephone-based care coordination through 211 LA is effective in connecting young children to developmental services and ECE, offering a potentially scalable solution for gaps and disparities.
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  • 文章类型: Journal Article
    背景:在2020年COVID-19封锁期间,西班牙心理学总理事会,与区域官方心理学院一起,启动了心理护理电话计划(PCTP),为人口提供心理健康服务。
    方法:本研究的目的是通过分析封锁期间和12个月随访时收集的数据,对PCTP进行描述性分析。并制定旨在标准化数据收集程序的简要协议。
    结果:从2020年3月至5月,总共向PCTP拨打了10,119个呼入电话,在12个月时进行了337次随访。接触PCTP的最常见原因是咨询焦虑症状(66.8%),抑郁症(30.5%),和/或家庭问题(13.9%)。在12个月的随访中,许多用户经历了焦虑(38%),抑郁(35%),和恐慌(34%)症状。超过一半的用户报告使用精神药物。
    结论:这项研究表明,在危机时期需要为人群提供基于电话的心理健康咨询。它还显示了对未来危机进行干预和数据收集程序系统化的重要性。我们提出了一种用于紧急电话心理援助计划的数据收集协议。
    During the COVID-19 lockdown in 2020, the General Council of Psychology in Spain, together with the regional Official Colleges of Psychology, launched the Psychological Care Telephone Program (PCTP) to provide mental health services to the population.
    The aim of the present study was to perform a descriptive analysis of the PCTP by analysing the data collected during the lockdown and at the 12-month follow-up, and to develop a brief protocol designed to standardise data collection procedures.
    A total of 10,119 inbound telephone calls were made to the PCTP from March to May 2020, and 337 follow-up calls at 12 months. The most common reasons for contacting the PCTP were to consult for symptoms of anxiety (66.8%), depression (30.5%), and/or family problems (13.9%). At the 12-month follow-up, many users experienced anxiety (38%), depressive (35%), and panic (34%) symptoms. More than half of users reported using psychopharmacological medicines.
    This study demonstrates the need to offer the population telephone-based mental health consultations during times of crisis. It also shows the importance of systematising intervention and data collection procedures for future crises. We propose a data collection protocol for use with emergency telephone psychological assistance programmes.
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  • 文章类型: Journal Article
    尽管电话频段(0.3-3kHz)为语音识别提供了足够的信息,非电话频段(<0.3和>3kHz)的贡献尚不清楚。为了调查它的贡献,使用辅音评估语音清晰度和说话者识别,元音,和句子。非电话频段对辅音(76.0%)和句子(77.4%)产生了相对较好的清晰度,但不是元音(11.5%)。非电话频段仅支持句子的良好说话者识别(74.5%),但不是元音(45.8%)或辅音(10.8%)。此外,非电话频段在句子级别的噪声中不能产生令人满意的语音清晰度,暗示了全波段接入在现实听力中的重要性。
    Although the telephone band (0.3-3 kHz) provides sufficient information for speech recognition, the contribution of the non-telephone band (<0.3 and >3 kHz) is unclear. To investigate its contribution, speech intelligibility and talker identification were evaluated using consonants, vowels, and sentences. The non-telephone band produced relatively good intelligibility for consonants (76.0%) and sentences (77.4%), but not vowels (11.5%). The non-telephone band supported good talker identification only with sentences (74.5%), but not vowels (45.8%) or consonants (10.8%). Furthermore, the non-telephone band cannot produce satisfactory speech intelligibility in noise at the sentence level, suggesting the importance of full-band access in realistic listening.
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  • 文章类型: Journal Article
    背景:大多数痴呆症患者的照顾者将在10年内经历丧亲,但是在他们的护理接受者去世后,对他们需求的研究和支持很少持续存在。利用理论见解和生活经验观察的单一模型可能有助于确定谁在痴呆相关的丧亲后会遇到更大的困难,并提出核心机制以减轻临床和亚临床后果。数百万现有的失去亲人的痴呆症护理人员可能对改善体验的方法有相当深入的了解。而不是从头开始创建干预措施,研究人员可能会利用这些见解来更快地改善失去亲人的痴呆症护理人员的生活。
    方法:本研究采用变革性的混合方法方法来探讨阿尔茨海默病(AD)和AD相关痴呆患者的照顾者的需求,将定量调查(n=400)和定性半结构化访谈(n=45)纳入不同亚组。该协议中描述的研究旨在定量测试基于自决理论的新模型,以帮助了解何时以及为什么丧亲的痴呆症照顾者在丧亲后会经历更好和更差的结果。该研究还旨在定性地探索失去亲人的痴呆症护理人员可能满足其需求的方式,以告知未来的干预措施。
    背景:该研究遵循机构指南,通过口头同意程序和从调查答复中删除个人标识符,确保参与者同意并将风险降至最低。研究小组将通过学术出版物广泛分享发现,会议和有针对性的宣传团体和医疗保健专业人员,同时还向参与者提供简明的结果摘要,并使其可以通过实验室的网站访问。
    BACKGROUND: Most caregivers of people living with dementia will experience bereavement within 10 years, but study of and support for their needs rarely persists following the death of their care recipients. A single model that leverages theoretical insights as well as observation from lived experience might help identify who will have greater difficulty following dementia-related bereavement and suggest core mechanisms to target to relieve clinical and subclinical consequences. The millions of existing bereaved dementia caregivers likely have considerable insight into ways to improve experience. Rather than creating interventions from scratch, researchers might leverage those insights to more rapidly improve the lives of bereaved dementia caregivers.
    METHODS: This study uses a transformative mixed methods approach to explore the needs of caregivers for individuals with Alzheimer\'s disease (AD) and AD-related dementias, incorporating both quantitative surveys (n=400) and qualitative semistructured interviews (n=45) across diverse subgroups. The study described in this protocol aims to quantitatively test a new model based on self-determination theory to help understand when and why bereaved dementia caregivers experience better and worse outcomes following bereavement. The study also aims to qualitatively explore the ways that bereaved dementia caregivers might meet their needs to inform future interventions.
    BACKGROUND: The study adheres to institutional guidelines, ensuring participant consent and minimising risks through verbal consent procedures and the removal of personal identifiers from survey responses. The study team will share findings widely through academic publications, conferences and targeted outreach to advocacy groups and healthcare professionals, while also providing concise summaries of results to participants and making them accessible through the lab\'s website.
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  • 文章类型: Journal Article
    这项研究认为,白人技术现代性的广泛含义是象征性和系统性排斥的一种模式。黑人电话用户在大众市场广告中的视觉缺失-以及使他们可见的斗争-突显了技术白度的排他性及其对黑人技术用户概念的持久影响,社区,和创新。在二十世纪上半叶,美国电话电报公司(AT&T)孜孜不倦地推广其全国电话网络,成为技术进步和普遍服务的典范,但这一愿景并不包括非洲裔美国人。本文研究了20世纪50年代和60年代,非洲裔美国人在贝尔系统广告中的历史排斥以及黑人电话用户在广告图像中的出现,提请注意RamonS.Scruggs的民权工作,第一个上升到贝尔系统高层管理的非洲裔美国人。
    This study considers the broad implications of white technological modernity as a mode of symbolic and systemic exclusion. The visual absence of Black telephone users in mass-market advertising-and the struggle to make them visible-underscores the exclusionary power of technological whiteness and its lasting effects on conceptions of Black technology users, communities, and innovation. In the first half of the twentieth century, American Telephone and Telegraph (AT&T) tirelessly promoted its national telephone network as a model of technological progress and universal service, but this vision did not include African Americans. This article examines the historical exclusion of African Americans in Bell System advertising and the emergence of Black telephone users in advertising imagery during the 1950s and 1960s, drawing attention to the civil rights work of Ramon S. Scruggs, the first African American to rise to Bell System upper management.
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