Self-management

自我管理
  • 文章类型: Journal Article
    探讨追踪联动自我管理模式对初产妇产前检查依从性及分娩方式的影响。选取2021年1月至2022年1月在石家庄市妇产科医院进行产前检查的270例初产妇进行前瞻性研究。分为对照组和观察组,每组135例。对照组给予常规管理模式,观察组给予追踪联动自我管理模式。所有人都进行了干预,直到出院。依从性(产前检查的时间和频率),对产前检查的认知,自我护理能力量表的锻炼得分,焦虑自评量表和抑郁自评量表,比较两组分娩方式及新生儿不良结局的发生情况。干预后,观察组产前检查总达标率(84.44%vs72.59%)高于对照组(P<0.05)。怀孕护理的分数,遗传病咨询,观察组预防出生缺陷和孕期合理营养水平均高于对照组(P<0.05),健康认知得分,自我护理技能,自我护理责任感和自我概念高于对照组(P<0.05),焦虑自评量表、抑郁自评量表评分均低于对照组(P<0.05),自然分娩率高于对照组(85.93%vs74.81%)(P<0.05),新生儿不良结局发生率低于对照组(0.74%vs5.93%)(Fisher确切概率=0.036)。跟踪联动自我管理模式的应用能显著提高对产前检查的认知,提高产前检查的依从性和自我护理能力,缓解焦虑和抑郁,提高初产妇自然分娩率,降低新生儿不良结局发生率。
    To explore the effects of tracking linkage self-management mode on the compliance of prenatal examinations and delivery modes in primiparas. A total of 270 primiparas undergoing prenatal examinations in Shijiazhuang Obstetrics and Gynecology Hospital were enrolled for prospective study between January 2021 and January 2022. They were divided into control group and observation group, 135 cases in each group. The control group was given routine management mode, while observation group was given tracking linkage self-management mode. All were intervened till discharge. The compliance (time and frequency of prenatal examinations), cognition of prenatal examinations, score of exercise of self-care agency scale, self-rating anxiety scale and self-rating depression scale, delivery modes and the occurrence of neonatal adverse outcomes were compared between the 2 groups. After intervention, total compliance rate of prenatal examinations in observation group was higher than that in control group (84.44% vs 72.59%) (P < .05). The scores of pregnancy care, genetic diseases counseling, prevention of birth defects and reasonable nutrition during pregnancy in observation group were higher than those in control group (P < .05), scores of health cognition, self-care skills, self-care responsibility and self-concept were higher than those in control group (P < .05), scores of self-rating anxiety scale and self-rating depression scale were lower than those in control group (P < .05), natural delivery rate was higher than that in control group (85.93% vs 74.81%) (P < .05), and incidence of neonatal adverse outcomes was lower than that in control group (0.74% vs 5.93%) (Fisher exact probability = 0.036). The application of tracking linkage self-management mode can significantly improve cognition to prenatal examinations, improve compliance of prenatal examinations and self-care ability, relieve anxiety and depression, increase natural delivery rate and reduce the incidence of neonatal adverse outcomes in primiparas.
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  • 文章类型: Journal Article
    背景:尽管有显著减少并发症的潜力,许多患者没有持续接受糖尿病预防护理。我们的研究团队最近应用以用户为中心的设计冲刺方法来开发患者门户干预,使患者能够解决选定的糖尿病护理差距(例如,过去12个月没有糖尿病眼部检查)。
    目的:本研究旨在评估我们的新型糖尿病护理差距干预对完成选定的循证糖尿病预防护理服务和次要结局的影响。
    方法:我们正在进行一项关于干预对糖尿病护理差距影响的务实随机对照试验。从范德比尔特大学医学中心附属的初级保健诊所招募成年糖尿病(DM)患者。参与者有资格,如果他们有1型或2型DM,可以用英语阅读,年龄在18-75岁之间,有一个当前的患者门户帐户,并且可以可靠地访问具有互联网访问功能的移动设备。我们排除了患有无法使用移动设备的医疗状况的患者,视力严重困难,孕妇或计划在研究期间怀孕的妇女,和透析患者.参与者将被随机分配到干预或常规护理中。主要结果衡量标准将是4种糖尿病预防护理服务中糖尿病护理差距的数量(糖尿病眼部检查,肺炎球菌疫苗接种,血红蛋白A1c,和尿微量白蛋白)在随机化后12个月。次要结果将包括糖尿病自我效能,信心管理糖尿病一般,了解糖尿病预防护理,糖尿病困扰,患者入口满意度,以及患者在基线时启动的订单,3个月,6个月,和随机化后12个月。有序逻辑回归模型将用于量化干预对12个月随访时糖尿病护理差距数量的影响。对于二分法的次要结果,根据需要,将使用逻辑回归模型,并对临床和提供者变量进行随机影响.对于连续的次要结果,将使用回归模型。
    结果:这项研究正在进行中。2022年2月结束招募;共有433名患者被随机分配。在那些随机化的人中,大多数(n=288,66.5%)是非西班牙裔白人,33.5%(n=145)是种族或少数民族,33.9%(n=147)年龄在65岁或以上,30.7%(n=133)表示健康素养有限。
    结论:该研究直接检验了以下假设:患者门户干预-提醒患者选择的糖尿病护理差距,促进对其重要性的理解,与常规护理相比,允许患者开始护理将减少糖尿病护理差距。从这项研究中获得的见解可能对制定未来的干预措施以解决各种护理差距具有广泛的意义。比如癌症筛查的差距,并有助于有效的发展,可扩展,以及让患者参与慢性病管理和预防的可持续方法。
    背景:ClinicalTrials.govNCT04894903;https://classic.clinicaltrials.gov/ct2/show/NCT04894903.
    DERR1-10.2196/56123。
    BACKGROUND: Despite the potential to significantly reduce complications, many patients do not consistently receive diabetes preventive care. Our research team recently applied user-centered design sprint methodology to develop a patient portal intervention empowering patients to address selected diabetes care gaps (eg, no diabetes eye examination in last 12 months).
    OBJECTIVE: This study aims to evaluate the effect of our novel diabetes care gap intervention on completion of selected evidence-based diabetes preventive care services and secondary outcomes.
    METHODS: We are conducting a pragmatic randomized controlled trial of the effect of the intervention on diabetes care gaps. Adult patients with diabetes mellitus (DM) are recruited from primary care clinics affiliated with Vanderbilt University Medical Center. Participants are eligible if they have type 1 or 2 DM, can read in English, are aged 18-75 years, have a current patient portal account, and have reliable access to a mobile device with internet access. We exclude patients with medical conditions that prevent them from using a mobile device, severe difficulty seeing, pregnant women or women who plan to become pregnant during the study period, and patients on dialysis. Participants will be randomly assigned to the intervention or usual care. The primary outcome measure will be the number of diabetes care gaps among 4 DM preventive care services (diabetes eye examination, pneumococcal vaccination, hemoglobin A1c, and urine microalbumin) at 12 months after randomization. Secondary outcomes will include diabetes self-efficacy, confidence managing diabetes in general, understanding of diabetes preventive care, diabetes distress, patient portal satisfaction, and patient-initiated orders at baseline, 3 months, 6 months, and 12 months after randomization. An ordinal logistic regression model will be used to quantify the effect of the intervention on the number of diabetes care gaps at the 12-month follow-up. For dichotomous secondary outcomes, a logistic regression model will be used with random effects for the clinic and provider variables as needed. For continuous secondary outcomes, a regression model will be used.
    RESULTS: This study is ongoing. Recruitment was closed in February 2022; a total of 433 patients were randomized. Of those randomized, most (n=288, 66.5%) were non-Hispanic White, 33.5% (n=145) were racial or ethnic minorities, 33.9% (n=147) were aged 65 years or older, and 30.7% (n=133) indicated limited health literacy.
    CONCLUSIONS: The study directly tests the hypothesis that a patient portal intervention-alerting patients about selected diabetes care gaps, fostering understanding of their significance, and allowing patients to initiate care-will reduce diabetes care gaps compared with usual care. The insights gained from this study may have broad implications for developing future interventions to address various care gaps, such as gaps in cancer screening, and contribute to the development of effective, scalable, and sustainable approaches to engage patients in chronic disease management and prevention.
    BACKGROUND: ClinicalTrials.gov NCT04894903; https://classic.clinicaltrials.gov/ct2/show/NCT04894903.
    UNASSIGNED: DERR1-10.2196/56123.
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  • 文章类型: Journal Article
    背景:过度使用短效β2-激动剂(SABA)与哮喘控制不良相关。因此,全球哮喘倡议(GINA)2019年更新的指南在缓解治疗建议方面发生了范式转变。
    目的:(I)调查荷兰哮喘中SABA过度使用和药物调配方式的状况(II)验证SABA过度使用的调配数据,以及(III)了解患者对SABA的看法-服用行为,以指导未来的改进策略。
    方法:从2017年至2021年,在现实世界中使用药房配药数据进行了每年重复的横断面研究,包括18-45岁的哮喘患者,吸入器≥1。通过问卷调查和半结构化访谈,对已识别的SABA过度使用患者进行了以下定性研究。在理论框架的支持下。
    结果:2017年所有社区药房的87%(n=1,994)和2021年的95%(n=2,005)提供了分配数据。SABA过度使用的患病率在五个研究年中保持不变,为20.6%(±0.5%)。在2021年的吸入疗法开始者中观察到ICS-福莫特罗增加和SABA分配减少。53名哮喘患者完成了问卷,其中43名患者确认SABA过度使用,产生81%的阳性预测值。关键行为驱动因素涵盖了关于能力的7个主题(知识;技能;记忆,注意力和决策过程)动机(情感;关于能力的信念;后果)和机会(环境背景)。
    结论:荷兰五分之一的哮喘患者仍然过度使用SABA,需要医疗保健专业人员的认真关注。分配数据是SABA在临床环境中过度使用的有效措施,便于患者选择。为了满足患者不同的支持需求,整合量身定制的行为干预措施至关重要。
    BACKGROUND: Short-acting β2-agonists (SABA) overuse is associated with poor asthma control. The Global Initiative for Asthma (GINA) 2019-updated guideline has therefore taken a paradigm shift in reliever therapy recommendations.
    OBJECTIVE: (I) To investigate the status of SABA overuse and medication dispensing patters in asthma in the Netherlands (II) validate dispensing data for SABA overuse identification and (III) understand patients\' perspectives towards this SABA-taking behavior to inform future improvement strategies.
    METHODS: An annually repeated cross-sectional study was conducted from 2017-2021 using pharmacy dispensing data in a real-world setting, including asthma patients aged 18-45 with ≥ 1 inhaler. A following qualitative study was performed in identified SABA overusing patients with a questionnaire and semi-structured interviews, supported by theoretical frameworks.
    RESULTS: Dispensing data was available from 87% of all community pharmacies (n=1,994) in 2017 and 95% (n=2,005) in 2021. SABA overuse prevalence was constant for the five study-years with 20.6% (±0.5%). Increased ICS-formoterol and decreased SABA dispenses were observed in starters of inhalation therapy in 2021. 53 asthma patients completed the questionnaire of whom 43 patients confirmed SABA overuse, generating a positive predictive value of 81%. Key behavioral drivers covered 7 themes regarding capability (knowledge; skills; memory, attention and decision process) motivation (emotion; beliefs about- capabilities; consequences) and opportunity (environmental context).
    CONCLUSIONS: SABA overuse remains in one-fifth of asthma patients across the Netherlands, requiring careful attention from healthcare professionals. Dispensing data is a valid measure for SABA overuse in a clinical setting, facilitating patient selection. To meet patients\' varied supporting needs, integration of tailored behavioral interventions is essential.
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  • 文章类型: Journal Article
    在一般糖尿病中已发现轻度-中度认知障碍,早期证据表明,糖尿病相关足部并发症(DRFC)患者的认知功能下降可能更为明显.认知困难可能会阻碍治疗参与和自我管理。这需要进一步解释以优化患者护理和结果。当前的研究旨在使用综合认知措施来表征DRFC患者的认知功能。
    这项横断面队列研究招募了80名来自维多利亚皇家墨尔本医院糖尿病足病房的成年参与者(年龄=63.38,SD=11.40,范围=30-89)。澳大利亚,所有与DRFC。每完成一个全面的认知电池(记忆,注意,执行功能)和分数是使用年龄匹配的人口规范计算的,可用的地方。
    在大多数任务中,DRFC参与者的表现明显差于年龄匹配的标准,在抑制控制中看到最大的递减,口头记忆,口头抽象推理和工作记忆。在视觉学习中也看到了小到中等的减少,口语流利,处理速度和病前功能。人口统计学(教育水平较低,男性)和临床因素(较高的HbA1c,大血管和微血管疾病,糖尿病病程较长)与认知功能较差相关。
    在DRFC患者中发现认知功能明显下降,主要在语言记忆和执行功能领域。教育水平较低,男性和糖尿病严重程度的指标,比如血管疾病,与认知功能较差的风险增加有关。由于DRFC是一个严重的并发症,如果没有成功管理,会带来毁灭性的后果,必须解决自我管理的认知障碍,以优化治疗。
    在线版本包含补充材料,可在10.1007/s40200-023-01381-4获得。
    UNASSIGNED: Mild-moderate cognitive impairment has been identified in general diabetes, and early evidence indicates cognitive reductions may be more pronounced in those with diabetes-related foot complications (DRFC). Cognitive difficulties may impede treatment engagement and self-management. This requires further explication to optimise patient care and outcomes. The current study aimed to characterise cognitive function in people with DRFC using comprehensive cognitive measures.
    UNASSIGNED: This cross-sectional cohort study recruited 80 adult participants (M age  = 63.38, SD = 11.40, range = 30 - 89) from the Royal Melbourne Hospital Diabetic Foot Unit in Victoria, Australia, all with DRFC. Each completed a comprehensive cognitive battery (memory, attention, executive functions) and scores were calculated using age-matched population norms, where available.
    UNASSIGNED: On the majority of tasks, DRFC participants performed significantly worse than age-matched norms, with the largest decrements seen in inhibition control, verbal memory, verbal abstract reasoning and working memory. Small to moderate reductions were also seen in visual learning, verbal fluency, processing speed and premorbid functioning. Demographic (lower education, male gender) and clinical factors (higher HbA1c, macrovascular and microvascular disease, longer diabetes duration) were associated with poorer cognitive functioning.
    UNASSIGNED: Marked reductions in cognitive functioning were found in individuals with DRFC, predominantly in the domains of verbal memory and executive functioning. Lower education, male gender and indicators of diabetes severity, such as vascular disease, are associated with heightened risk for poorer cognitive functioning. As DRFCs are a serious complication with devastating outcomes if not successfully managed, cognitive barriers to self-management must be addressed to optimise treatment.
    UNASSIGNED: The online version contains supplementary material available at 10.1007/s40200-023-01381-4.
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  • 文章类型: Journal Article
    糖尿病被认为是全球增长最快的疾病之一。特别是在2型糖尿病的治疗中,生活方式干预已被证明是有效的。然而,在现实世界中的长期研究很少见,这就是为什么需要进一步的研究。本研究的目的是调查在长期生活方式干预的背景下取得的效果是否可以由患者长期维持。
    在一项双臂随机试验中,我们将糖尿病照例护理与结合远程医疗支持和基于个人需求的电话指导的生活方式干预进行了比较。该研究包括151名2型糖尿病患者,随机分为干预组或对照组。干预组(IG;N=86,80.2%男性,平均年龄:59.7)在12个月内接受了远程医疗设备和电话辅导,对照组(CG;N=65,男性83.1%,平均年龄:58,8)照常接受护理。主要结果是HbA1c的机会。24个月后进行跟踪调查。
    在12个月和24个月时,干预组的HbA1c值明显优于对照组(12M:-0.52(-0.73;-0.32),p<.000;24M:-0.38(-0.61;-0.15),p=.001)。最强烈的变化出现在前三个月,在6个月时获得最佳值,此后稳定。
    将电话指导与远程医疗支持相结合可以改善2型糖尿病患者的长期血糖控制。在未来,应在现实环境中进行更多的长期研究,并应更广泛地提供生活方式干预措施.
    UNASSIGNED: Diabetes is considered one of the fastest growing diseases worldwide. Especially in the treatment of type 2 diabetes, lifestyle interventions have proven to be effective. However, long-term studies in real-world contexts are rare, which is why further research is needed. The aim of the present study is to investigate whether effects achieved in the context of a long-term lifestyle intervention can be sustained by patients in the long term.
    UNASSIGNED: In a two-arm randomized trial we compared diabetes care as usual to a lifestyle intervention combining telemedically support and individual needs-based telephone coaching. The study included 151 patients with type 2 diabetes randomized to either the intervention or control group. Intervention Group (IG; N = 86, 80.2% male, mean age: 59.7) received telemedical devices and telephone coaching over a period of 12 months, Control Group (CG; N = 65, 83.1% male, mean age: 58,8) received care as usual. The primary outcome was chance in HbA1c. A follow-up survey was conducted after 24 months.
    UNASSIGNED: The intervention group showed significantly better HbA1c- values compared to the control group at both 12 and 24 months (12 M: - 0.52 (-0.73; - 0.32), p < .000; 24 M: - 0.38 (-0.61; - 0.15), p = .001). The strongest change was seen in the first three months, with the best value obtained at 6 months and stable thereafter.
    UNASSIGNED: Combined telephone coaching with telemedicine support could lead to better long-term glycemic control in people with type 2 diabetes. In the future, more long-term studies should be conducted in real-world settings and lifestyle interventions should be offered more widely.
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  • 文章类型: Journal Article
    背景:由于慢性疼痛的复杂性,尤其是老年人,生物心理社会方法比孤立的方法更有效。此外,当患者积极参与疼痛管理时,他们比完全依赖别人更有可能成功。
    目的:分析老年慢性疼痛患者目前使用的自我管理策略。
    方法:通过七个在线数据库进行了综合审查,寻找过去10年发表的关于这个主题的科学研究。
    结论:58项研究纳入最终样本。近年来,有关老年人慢性疼痛自我管理的研究有所增加。尽管正在研究各种慢性身体疼痛状况,许多情况仍未得到充分调查。目前采取网上和当面策略,证明了类似的结果。包括健康促进在内的战略证明了积极的结果,精神控制,社会参与和行动领域。主要结果来自针对疼痛管理的生物心理社会方面的策略组合。结果不仅包括减轻疼痛本身,但是自我效能感增强了,采用健康行为和改善功能,其中,即,改进的QoL,尽管疼痛。
    BACKGROUND: Due to the complex nature of chronic pain, especially in older adults, a biopsychosocial approach is more effective than an isolated approach for its management. Furthermore, when patients are actively engaged in their pain management, they are more likely to be successful than relying totally on others.
    OBJECTIVE: To analyze the self-management strategies currently used by older adults with chronic pain.
    METHODS: An integrative review was conducted through seven online databases, searching for scientific studies on this topic published in the last 10 years.
    CONCLUSIONS: Fifty-eight studies were included in the final sample. Research on chronic pain self-management for older adults has increased in recent years. Although a diversity of chronic physical painful conditions are being investigated, many conditions are still under-investigated. Online and in-person strategies are currently adopted, demonstrating similar results. Positive results are evidenced by strategies including health promotion, mind control, social participation and take-action fields. Major results come from a combination of strategies focusing on biopsychosocial aspects of pain management. Results include not only the reduction of pain itself, but increased self-efficacy, adoption of health behaviors and improvement of functionality, among others, i.e., improved QoL, despite pain.
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  • 文章类型: Journal Article
    纵向设计用于检查诊断为1型糖尿病(T1D)的儿童和青少年的糖尿病自我管理自我效能(SEDM)的心理测量特性。SEDM适用于西班牙语,并选择了最佳阶乘解决方案来测试年龄和性别度量的不变性。诊断为T1D的年龄在10至19岁之间的个体完成了自我报告的问卷(在时间1时167人[平均年龄=14.49,SD=2.76;56.9%男孩]和在时间2时122人[平均年龄=14.77,SD=2.58;56.6%男孩])。测试了两种单因子溶液。量表的心理测量特性得到了验证。建议的验证获得了优异的可靠性指数(χ2(26)=25.59,p>0.49,RMSEA=0.00,95%CI[0.00,0.07],CFI=1.00,GFI=0.96,AGFI=0.92,TLI=1.00,CMIN=0.98),对于性别和年龄组来说,它似乎是不变的。克朗巴赫的α为0.85。重测可靠性高(r=0.69[p<0.001])。Convergent,判别式,外部有效性得到了证明。九项SEDM是具有令人满意的结构效度的简短度量。根据我们的知识,这项研究为评估西班牙儿童和青少年T1D治疗中的自我效能提供了第一个可靠的工具.
    A longitudinal design was used to examine the psychometric properties of the Self-Efficacy for Diabetes Self-Management (SEDM) for children and adolescents with a diagnosis of type 1 diabetes (T1D). The SEDM was adapted to Spanish and the best factorial solution was selected to test the invariance of the measures of age and gender. Individuals between the ages of 10 and 19 years old with a diagnosis of T1D completed a self-reported questionnaire (167 at Time 1 [mean age = 14.49, SD = 2.76; 56.9% boys] and 122 at Time 2 [mean age = 14.77, SD = 2.58; 56.6% boys]). Two unifactorial solutions were tested. The psychometric properties of the scale were validated. The proposed validation obtained excellent reliability indices (χ2 (26) = 25.59, p > 0.49, RMSEA = 0.00, 95% CI [0.00, 0.07], CFI = 1.00, GFI = 0.96, AGFI = 0.92, TLI = 1.00, and CMIN = 0.98), and it appeared to be invariant for gender and for age groups. The Cronbach\'s α was 0.85. The test-retest reliability was high (r = 0.69 [p < 0.001]). Convergent, discriminant, and external validity were proven. The nine-item SEDM is a brief measure with satisfactory structural validity. From our knowledge, this study provides the first reliable tool to assess self-efficacy in the management of T1D for Spanish children and adolescents.
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  • 文章类型: Journal Article
    糖尿病在美国迅速增加。糖尿病预防和自我管理需要创新策略。这项研究评估了可用性,可接受性,以及对电子健康记录(EHR)工具的认识,该工具可将患者转介给基于社区的糖尿病自我管理支持计划。使用了混合方法,使用EHR数据和关键线人访谈来评估此质量改进(QI)过程干预的实施情况。EHR中智能短语工具的实施导致对糖尿病健康扩展(HED)计划的转诊(773)大幅增加。临床卫生保健专业人员积极使用转诊机制;他们报告说使用智能短语来提高患者护理效率。缺乏培训和计划意识被认为是采用的障碍。对HED计划的认识和。HEDREF聪明的短语是有限的,但通过有针对性的QI和培训干预措施有所改善。The.HEDREF智能短语证明了在增加HED计划的患者转诊方面的有效性,强调EHR工具在简化文档和促进患者参与糖尿病自我管理方面的潜力。未来的研究应该集中在更广泛的医疗保健环境上,患者观点,以及整合技术以实现最佳患者治疗效果。
    UNASSIGNED: Diabetes in the United States is increasing rapidly. Innovative strategies are needed for diabetes prevention and self-management. This study assessed the usability, acceptability, and awareness of an electronic health record (EHR) tool for referring patients to a community-based diabetes self-management support program. Mixed-methods approaches were used, using EHR data and key informant interviews to assess the implementation of this quality improvement (QI) process intervention. The implementation of a smart phrase tool within the EHR led to a substantial increase in referrals (773) to the Health Extension for Diabetes (HED) program. Clinical health care professionals have actively used the referral mechanism; they reported using smart phrases to increase efficiency in patient care. Lack of training and program awareness was identified as a barrier to adoption. Awareness of the HED program and .HEDREF smart phrase was limited, but improved with targeted QI and training interventions. The .HEDREF smart phrase demonstrated effectiveness in increasing patient referrals to the HED program, highlighting the potential of EHR tools to streamline documentation and promote patient engagement in diabetes self-management. Future research should focus on broader health care contexts, patient perspectives, and integration of technology for optimal patient outcomes.
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  • 文章类型: Journal Article
    在没有外部支持的情况下,家庭护理人员可能会被他们在家庭中提供的护理所淹没。因此,自我管理技能的发展以及积极和负责任地管理自己的健康或疾病状况的相关能力在痴呆症患者的家庭护理中起着至关重要的作用。作为对土耳其裔痴呆症患者的家庭照顾者进行个性化干预的一部分,通过定性访谈检查了现有的自我管理技能,以深入了解健康素养和在护理和受访者自己的实践中的赋权,以维持他们的健康。使用以问题为中心的访谈采访了十名土耳其裔护理人员,他们负责痴呆症患者的家庭成员。我们发现目标群体的自我管理能力非常不同,基于,一方面,在现有的支持资源上,另一方面,在不同的特定护理上,家庭内护理中的社会心理和生活世界挑战尚未克服。家庭护理人员的自我管理技能受到支持这些技能的可用资源和具有挑战性的护理情况的复杂相互作用的影响。这种资源和挑战的动态组合导致家庭护理人员的自我管理能力水平不同。加强资源可以帮助护理人员应对护理带来的挑战,并扩大他们的自我管理能力。非常需要采取行动,提高家庭护理中痴呆症患者的土耳其护理人员的自我管理技能。促进自我管理技能的干预措施必须考虑到受影响者的个人资源以及他们的社会和文化多样性。
    Family caregivers can be overwhelmed by the care they provide within the family without external support. The development of self-management skills and the associated ability to actively and responsibly manage one\'s own health or illness situation therefore plays a vital role in the home care of people living with dementia. As part of an individualized intervention for family caregivers of people of Turkish origin with dementia, existing self-management skills were examined through qualitative interviews to gain insight into health literacy and empowerment in caregiving and in interviewees\' own practices to maintain their health. Ten caregivers of Turkish origin who were responsible for family members living with dementia were interviewed using problem-centered interviews. We found that the target group has very heterogeneous self-management competencies, which are based, on the one hand, on existing supportive resources and, on the other hand, on diverse care-specific, psychosocial and life-world challenges in intrafamily care that have not been overcome. Self-management skills in family caregivers are influenced by a complex interplay of both available resources that support these skills and challenging caregiving situations. This dynamic combination of resources and challenges results in varying levels of self-management ability among family caregivers. Strengthening resources can help caregivers to meet the challenges resulting from caregiving and to expand their self-management competencies. There is great need for action in promoting self-management skills among Turkish caregivers of people living with dementia in home care. Interventions to promote self-management skills must take into account the individual resources of those affected as well as their social and cultural diversity.
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  • 文章类型: Journal Article
    癌症以外的健康计划是安大略省三级护理医院的一部分,加拿大。它为癌症幸存者提供自我管理后续护理所需的信息和资源(即,学习相关信息和技能,以适应患有慢性疾病的生活),在积极的癌症治疗后(即,化疗,辐射)。对两个小时的生存教育课程(整个癌症健康计划的一个组成部分)进行了计划评估,目的是评估出勤是否增加了幸存者的感知知识和自我管理后续护理的意图。参加课程的乳腺癌(n=107)和结直肠癌(n=38)幸存者完成了有关信息需求和意愿的问卷调查。感知到的知识增加和自我管理后续护理的意图与年龄无关,性别,或诊断后的时间。上课后,幸存者报告了增加的知识(F(1,11)=144.6,p<.001)和参与其随访护理自我管理的意愿(F(1,103)=57.3,p<.001).知识的提高预示着自我管理的意愿增加(R2=.64;F(4,86)=38.5,p<.001)。结直肠癌幸存者比乳腺癌幸存者在自我管理意愿方面表现出更大的改善(β=.14,t=2.2,p<.05)。这些结果可以为幸存者未来教育课程的开发和实施提供信息。
    The Wellness Beyond Cancer Program is part of a tertiary care hospital in Ontario, Canada. It provides cancer survivors with information and resources needed to self-manage their follow-up care (i.e., learn relevant information and skills to adapt to life with a chronic illness) after active cancer treatment (i.e., chemotherapy, radiation). A program evaluation was conducted on the two-hour survivorship education class (one component of the overall Wellness Beyond Cancer Program) with the purpose of evaluating whether attendance increased survivors\' perceived knowledge and intent to self-manage follow-up care. Breast (n = 107) and colorectal (n = 38) cancer survivors who attended classes completed questionnaires on information needs and intent to self-manage pre- and postclass. Perceived increase in knowledge and intent to self-manage follow-up care were unrelated to age, gender, or time since diagnosis. After attending the class, survivors reported increased knowledge (F(1,11) = 144.6, p < .001) and intent to participate in self-management of their follow-up care (F(1,103) = 57.3, p < .001). Improvements in knowledge predicted increased intent to self-manage (R2 = .64; F(4,86) = 38.5, p < .001). Colorectal cancer survivors showed greater improvement in intent to self-manage than breast cancer survivors (β = .14, t = 2.2, p < .05). These results can inform the development and implementation of future education classes for survivors.
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