Self-management

自我管理
  • 文章类型: Journal Article
    背景:与糖尿病相关的并发症给个人和社会带来了巨大的健康和经济负担。虽然临床实践指南改善了初级保健机构的糖尿病管理,遵守这些指南的差异仍然存在.因此,有必要全面审查有关影响护士坚持实施临床实践指南的因素的现有证据,以改善临床护理和患者安全.
    目的:本综合综述旨在调查基层医疗机构护士对糖尿病管理临床指南的依从性,并探讨影响有效实施的因素。关注护士的角色和对患者预后的影响。
    方法:于2023年3月在六个电子数据库中进行了全面搜索。该搜索有针对性的研究,研究了初级医疗机构护士对2型糖尿病指南的使用,重点是与糖尿病护理或患者安全相关的临床管理结果。纳入的研究使用有效的护理实践和组织分类法进行分类,叙事综合和主题呈现。审查报告遵循PRISMA准则。(PROSPEROIDCRD42023394311)。
    结果:该综述包括2000年至2020年间进行的十项研究,结果分为三个主题。这些是:(I)促进临床实践指南依从性的实施策略,包括健康专业发展,提醒临床医生,患者介导的干预措施,卫生信息系统,角色拓展,和全面的一揽子护理。多方面的教育方法成为最有效的策略。(ii)指南依从性的影响:这些策略持续改善了临床管理,降低HbA1c水平,改善血压和血脂,提高病人的自我护理参与度,随着护士对糖尿病临床指南的依从性增加。(三)护士在指南实施中的作用,在多学科团队中实现独立实践。他们的角色包括患者教育,与其他医疗保健专业人员合作实践,计划的规划和执行,和全面的文件审查。护士主导的干预措施有效地改善了患者的预后,强调赋予护士更大自主权提供初级糖尿病护理的必要性。
    结论:实施各种策略,专注于医疗保健提供者的全面教育,对于提高糖尿病护理的指南依从性至关重要,改善临床管理,以实现最佳患者健康结果。定制这些策略以满足当地需求增加了准则的相关性。授权护士在初级保健中发挥主导作用,不仅提高了患者的安全性,而且提高了护理质量,改善总体结果。
    结论:在初级保健中,授权护士进行糖尿病指南教育,并根据当地需求调整策略,提高指南依从性,改善患者预后.
    BACKGROUND: Complications related to diabetes mellitus impose substantial health and economic burdens to individuals and society. While clinical practice guidelines improve diabetes management in primary care settings, the variability in adherence to these guidelines persist. Hence, there is a need to comprehensively review existing evidence regarding factors influencing nurses\' adherence to implementation of clinical practice guidelines to improve clinical care and patient safety.
    OBJECTIVE: This integrative review seeks to investigate nurses\' adherence to clinical guidelines for diabetes management in primary healthcare settings and to explore factors influencing effective implementation, focusing on the role of nurses and impacts on patient outcomes.
    METHODS: A comprehensive search was conducted in March 2023 across six electronic databases. The search targeted studies that examined the use of Type 2 diabetes mellitus guidelines by nurses in primary healthcare settings with a focus on clinical management outcomes related to diabetes care or patient safety. Included studies were classified using the Effective Practice and Organisation of Care taxonomy, synthesised narratively and presented thematically. Reporting of the review adhered to PRISMA guidelines. (PROSPERO ID CRD42023394311).
    RESULTS: The review included ten studies conducted between 2000 and 2020, and the results were categorised into three themes. These were: (i) Implementation strategies to promote clinical practice guidelines adherence, including health professional development, reminders for clinicians, patient-mediated interventions, health information systems, role expansion, and comprehensive package-of-care. A multifaceted educational approach emerged as the most effective strategy. (ii) Impact of guidelines adherence: These strategies consistently improved clinical management, lowering HbA1c levels, improving blood pressure and lipid profiles, and enhancing patient self-care engagement, along with increased nurses\' adherence to diabetes clinical guidelines. (iii) The role of nurses in guideline implementation, enabling independent practice within multidisciplinary teams. Their roles encompassed patient education, collaborative practice with fellow healthcare professionals, program planning and execution, and comprehensive documentation review. Nurse-led interventions were effective in improving patient outcomes, underscoring the necessity of empowering nurses with greater autonomy in providing primary diabetes care.
    CONCLUSIONS: Implementing a diverse range of strategies, focusing on comprehensive education for healthcare providers, is paramount for enhancing guideline adherence in diabetes care, to improve clinical management towards optimal patient health outcomes. Tailoring these strategies to meet local needs adds relevance to the guidelines. Empowering nurses to take a leading role in primary care not only enhances patient safety but also promotes quality of care, resulting in improved overall outcomes.
    CONCLUSIONS: In primary care, empowering nurses with diabetes guideline education and tailoring strategies to local needs enhance guideline adherence and improve patient outcomes.
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  • 文章类型: Journal Article
    背景:本研究的目的是在炎症性肠病(IBD)导致造口的年轻人中就与造口相关的痛苦的自我管理的干预内容的优先级达成共识。目前对患有造口的年轻人的痛苦的识别和管理在临床环境中通常是次优的,并且需要改进的支持资源。
    方法:通过在线视频会议进行了两次共识小组会议,使用名义分组技术。参与者生成,在李克特量表上进行评级并进行了讨论,纳入未来自我管理干预的主题。
    结果:19名年轻人,年龄在19至33岁之间,因IBD而有造口,参加了两个小组会议之一。参与者分布在英格兰各地,苏格兰,和北爱尔兰。与会者提出了29个主题,其中七项达成共识≥80%,也就是说,7分Likert量表的平均值≥5.6。这些是:接受有造口手术经验的年轻人的建议;关于/解决有关浪漫关系的问题的建议,性和亲密关系;与造口手术有关的生育能力和怀孕信息;造口“黑客”,例如,关于服装的有用的日常提示,使袋子的变化更容易等等;反思和识别自己对手术的情绪反应;在夜间管理造口的技巧;以及处理与疾病和手术旅程有关的创伤。
    结论:研究结果扩展了以前对年轻人造口手术经验的研究,通过就年轻人处理与手术相关的痛苦和与造口生活的优先事项达成共识。这些优先事项包括以前文献中没有报道的主题,包括对生育和怀孕信息的需求。研究结果将为患有IBD造口的年轻人提供自我管理资源的开发,并与该人群中与造口相关的困扰的临床管理有关。
    三位患者贡献者是本文的合著者,为研究设计做出了贡献,结果的解释和手稿的写作。该研究的患者和公众参与和参与咨询小组也在研究中发挥了不可或缺的作用。他们与研究小组进行了四次2小时的虚拟会议,对研究的目的和目的提供意见,招聘方法,和对发现的解释。该小组还就参与者的年龄范围提出了建议。有造口的年轻人的观点是本文报道的研究的核心组成部分,其目的是在患有IBD造口的年轻人中就自我管理造口手术相关痛苦的资源内容的优先事项达成共识。
    BACKGROUND: The aim of this study was to gain consensus among young people with a stoma due to inflammatory bowel disease (IBD) on the priorities for the content of an intervention for the self-management of stoma-related distress. The current identification and management of distress in young people with a stoma is often suboptimal in clinical settings and there is a need for improved support resources.
    METHODS: Two consensus group meetings were carried out via online video conferencing, using nominal group technique. Participants generated, rated on a Likert scale and discussed, topics for inclusion in a future self-management intervention.
    RESULTS: Nineteen young people, aged 19-33, with a stoma due to IBD took part in one of two group meetings. Participants were located across England, Scotland, and Northern Ireland. Twenty-nine topics were generated by participants, seven of which reached consensus of ≥80%, that is, a mean of ≥5.6 on a 7-point Likert scale. These were: receiving advice from young people with lived experience of stoma surgery; advice on/addressing concerns about romantic relationships, sex and intimacy; information about fertility and pregnancy related to stoma surgery; stoma \'hacks\', for example, useful everyday tips regarding clothing, making bag changes easier and so forth; reflecting on and recognising own emotional response to surgery; tips on managing the stoma during the night; and processing trauma related to the illness and surgery journey.
    CONCLUSIONS: Findings extend previous research on young people\'s experiences of stoma surgery, by generating consensus on young people\'s priorities for managing distress related to surgery and living with a stoma. These priorities include topics not previously reported in the literature, including the need for information about fertility and pregnancy. Findings will inform the development of a self-management resource for young people with an IBD stoma and have relevance for the clinical management of stoma-related distress in this population.
    UNASSIGNED: Three patient contributors are co-authors on this paper, having contributed to the study design, interpretation of results and writing of the manuscript. The study\'s Patient and Public Involvement and Engagement advisory group also had an integral role in the study. They met with the research team for four 2-h virtual meetings, giving input on the aims and purpose of the study, recruitment methods, and interpretation of findings. The group also advised on the age range for participants. The views of young people with a stoma are the central component of the study reported in this paper, which aims to gain consensus among young people with an IBD stoma on their priorities for the content of a resource to self-manage distress related to stoma surgery.
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  • 文章类型: Journal Article
    背景:心血管疾病(CVDs)是世界范围内的主要死亡原因。大多数与心血管疾病相关的死亡可以通过对不健康饮食和缺乏运动等风险因素的最佳管理来预防。CVDs的临床实践指南(CPGs),提供一些基于证据的建议,帮助医疗保健专业人员为心血管疾病患者实现最佳护理。本系统综述旨在系统地评估CPGs的方法学质量,并总结所选指南提供的自我管理的非药物干预措施预防和管理CVD的建议。
    方法:通过六个数据库(PubMed,Medline,科克伦图书馆,Embase,CINAHL,和WebofScience),七个专业心脏协会网站,和九个指南库。准则的评估,采用了研究与评估II(AGREEII)工具来严格评估所选指南的方法学质量。内容分析用于总结推荐的自我管理非药物干预措施。
    结果:包括关于不同CVD的23个CPG,其中CVD的四个准则,三个用于冠心病,七例心力衰竭,两个用于心房颤动,三个中风,三个用于外周动脉疾病,一个是肥厚型心肌病.20个CPG被评估为高质量,和三个CPG作为中等质量。建议使用所有23个CPG,可进行或不进行修改。“编辑独立性”领域的标准化百分比最高(93.47%),而“适用性”领域的平均领域得分最低,为75.41%。内容分析结果总结了一些常见的自我管理的非药物干预措施,其中包括健康的饮食,身体活动,戒烟,酒精控制,和体重管理。健康饮食和身体酸度是最常见的,并且是对CVD患者进行自我管理干预的共识。在建议的干预措施的细节中发现了一些不一致之处,干预本身,推荐等级,和支持的证据水平。
    结论:强烈建议大多数总结的非药物干预措施具有中等至高质量的证据水平。医疗保健专业人员和研究人员可以采用本综述的结果,为CVD患者设计自我管理的非药物干预措施。
    BACKGROUND: Cardiovascular diseases (CVDs) are the leading cause of death around the world. Most CVDs-related death can be prevented by the optimal management of risk factors such as unhealthy diet and physical inactivity. Clinical practice guidelines (CPGs) for CVDs, provide some evidence-based recommendations which help healthcare professionals to achieve the best care for patients with CVDs. This systematic review aims to appraise the methodological quality of CPGs systematically and summarize the recommendations of self-managed non-pharmacological interventions for the prevention and management of CVDs provided by the selected guidelines.
    METHODS: A comprehensive electronic literature search was conducted via six databases (PubMed, Medline, The Cochrane Library, Embase, CINAHL, and Web of Science), seven professional heart association websites, and nine guideline repositories. The Appraisal of Guidelines, Research and Evaluation II (AGREE II) instrument was adopted to critically appraise the methodological quality of the selected guidelines. Content analysis was used to summarise recommended self-managed non-pharmacological interventions for CVDs.
    RESULTS: Twenty-three CPGs regarding different CVDs were included, in which four guidelines of CVDs, three for coronary heart diseases, seven for heart failure, two for atrial fibrillation, three for stroke, three for peripheral arterial disease, and one for hypertrophic cardiomyopathy. Twenty CPGs were appraised as high quality, and three CPGs as moderate quality. All twenty-three CPGs were recommended for use with or without modification. The domain of \"Editorial Independence\" had the highest standardized percentage (93.47%), whereas the domain of \"Applicability\" had the lowest mean domain score of 75.41%. The content analysis findings summarised some common self-managed non-pharmacological interventions, which include healthy diet, physical activity, smoking cessation, alcohol control, and weight management. Healthy diet and physical acidity are the most common and agreed on self-managed interventions for patients with CVDs. There are some inconsistencies identified in the details of recommended interventions, the intervention itself, the grade of recommendation, and the supported level of evidence.
    CONCLUSIONS: The majority of the summarized non-pharmacological interventions were strongly recommended with moderate to high-quality levels of evidence. Healthcare professionals and researchers can adopt the results of this review to design self-managed non-pharmacological interventions for patients with CVDs.
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  • 文章类型: Review
    目的:本文提供了2018年脊柱裂协会向成人护理指南过渡的更新。
    方法:召集了一个主题专家工作组,其中包括初始指南工作组的作者。工作组审查并更新了主,次要,和三级成果目标,临床问题,和基于文献综述的指南建议。
    结果:从文献检索中发现了另外22篇文章。更新的参考文献包括描述向成人护理结果过渡的观察性研究,过渡护理模式倡议,和经过验证的自我管理评估工具。
    结论:结构化过渡计划增加了建立成人护理的可能性,减少对患有脊柱裂的年轻人的急性护理使用,并有可能改善生活质量和优化慢性病管理。然而,仍然需要使用这些推荐的指南更广泛地针对该人群实施结构过渡实践。
    This article provides an update to the 2018 Spina Bifida Association\'s Transition to Adult Care Guidelines.
    A workgroup of topic experts was convened including authors from the initial guideline workgroup. The workgroup reviewed and updated the primary, secondary, and tertiary outcome goals, clinical questions, and guideline recommendations based on a literature review.
    Twenty-two additional articles were identified from the literature search. Updated references included observational studies describing transition to adult care outcomes, transition care model initiatives, and a validated self-management assessment tool.
    Structured transition initiatives increase the likelihood of establishing with adult care, decrease acute care use for young adults with spina bifida, and have the potential to improve quality of life and optimize chronic condition management. However, there is still a need to implement structure transition practices more broadly for this population using these recommended guidelines.
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  • 文章类型: Journal Article
    目的:开发了慢性病自我管理分析(SMACC)清单,作为支持开发的指导工具,比较和评估慢性病患者的自我管理支持计划。该检查表基于先前进行的自我管理概念分析。这项研究的目的是使用国际Delphi研究验证其内容并提供最终版本。
    方法:在2022年10月至2023年1月之间进行了两轮Delphi研究。利用研究人员的网络,在自我管理支持和慢性病方面具有研究或临床专业知识的专业人员通过在线目的雪球抽样招募.要求参与者对清单的每个项目(总共16个项目)在3个内容有效性指标上进行评分:(1)清晰度和可理解性,(2)相关性和重要性;(3)与清单总体目标的一致性程度,以促进充分和全面的自我管理支持计划。使用75%的共识阈值。还向参与者询问了有关整个清单的一般性问题,并要求他们在完善清单的情况下提供反馈。
    结果:54名具有平均14.5年经验的专业人员参加了第1轮,48名具有平均12.5年经验的专业人员参加了第2轮。大多数专业人士来自西欧。对于大多数项目,在第一轮之后达成了共识。在第二轮中,剩下的4个项目中的3个达成共识,最后一项是根据高度重复的反馈保留的。
    结论:SMACC清单被认为是一种有效而全面的工具,可以帮助开发。自我管理支持计划的评估和比较。它被认为是补充现有框架的有用工具,并且在研究和临床环境中都被认为是可行的。在现场进一步验证,根据患者和同行专家的意见,将是有价值的。
    The Self-Management Analysis in Chronic Conditions (SMACC) checklist was developed as a guidance tool to support the development, comparison and evaluation of self-management support programmes for persons with a chronic condition. The checklist was based on a previously performed concept analysis of self-management. The aim of this study was to validate its content using an international Delphi study and to deliver a final version.
    A two-round Delphi study was conducted between October 2022 and January 2023. Using the researchers\' networks, professionals with research or clinical expertise in self-management support and chronic conditions were recruited via online purposive snowball sampling. Participants were asked to score each item of the checklist (16 items total) on 3 content validity indicators: (1) clarity and comprehensibility, (2) relevance and importance and (3) degree of alignment with the overall goal of the checklist to promote adequate and comprehensive self-management support programmes. A consensus threshold of 75% agreement was used. The participants were also asked general questions about the checklist as a whole and were asked to provide feedback considering its refinement.
    Fifty-four professionals with an average 14.5 years of experience participated in round 1, 48 with an average 12.5 years of experience participated in round 2. The majority of professionals were from Western Europe. For the majority of items consensus was reached after round 1. In round 2, 3 of the 4 remaining items reached consensus, 1 last item was retained based on highly recurring feedback.
    The SMACC checklist was considered a valid and comprehensive tool to aid the development, evaluation and comparison of self-management support programmes. It was acknowledged as a useful instrument to supplement existing frameworks and was seen as feasible to implement in both research and clinical settings. Further validation in the field, with input from patients and peer experts, will be valuable.
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  • 文章类型: Review
    背景:患有结核病-人类免疫缺陷病毒合并感染的成年人需要专业护士的支持来管理他们的疾病,治疗及其对日常生活的影响。本范围审查在临床或最佳实践指南中绘制建议,指导专业护士在初级医疗机构中为患有结核病-人类免疫缺陷病毒合并感染的成年人提供自我管理支持。
    方法:我们通过在六个在线数据库中搜索指南进行了范围审查,指南清算所和搜索引擎从2022年4月16日至2022年5月25日。标题,指南的摘要和全文筛选由两名评审员根据预定的资格标准独立进行,一式两份.通过评估准则研究与评估(AGREE)II工具对准则进行了严格评估。有关指南特征的相关数据,提取了建议和基础证据,分析和报告。
    结果:在四个高收入国家制定了六项自我管理支持指南。在AGREEII仪器的所有六个领域中,有五个指南的记录<60%。一个高质量的指南在所有AGREEII领域得分>60%,但从1977年至2010年之间产生的过时证据获悉。二十五练习,教育和组织/政策建议是从高质量的指导方针中提取出来的。准则没有报告决定框架的证据和建议的力度。该指南还缺乏有关自我管理支持的有效性和成本的直接基础证据。最后,审查发现缺乏背景(公平,可接受性和可行性)指南中结核病-人类免疫缺陷病毒成人自我管理支持的证据。
    结论:缺乏更新和相关的高质量指南,指导医疗保健专业人员在初级医疗机构中为患有结核病-人类免疫缺陷病毒合并感染的成年人提供自我管理支持。有效性的系统评价,制定指南需要与自我管理支持干预措施相关的经济和背景证据。
    Adults with tuberculosis-human immunodeficiency virus coinfection require professional nurses\' support to manage their illness, treatment and its effect on their daily lives. This scoping review maps recommendations in clinical or best practice guidelines that guide professional nurses to provide self-management support to adults with tuberculosis-human immunodeficiency virus coinfection in primary healthcare settings.
    We conducted a scoping review by searching for guidelines in six online databases, guideline clearing houses and search engines from 16th April 2022 to 25th May 2022. The title, abstract and full-text screening of guidelines were conducted independently and in duplicate by two reviewers based on predetermined eligibility criteria. The guidelines were critically appraised with the Appraisal of Guidelines Research and Evaluation (AGREE) II instrument. Relevant data regarding the characteristics of the guideline, recommendations and underlying evidence were extracted, analysed and reported.
    The six guidelines on self-management support found were developed in four high-income countries. Five of the guidelines recorded <60% across all six domains of the AGREE II instrument. One high-quality guideline scored >60% in all AGREE II domains but was informed by outdated evidence produced between 1977 to 2010. Twenty-five practice, education and organisational/policy recommendations were extracted from the high-quality guideline. The guidelines did not report evidence-to-decision frameworks and the strength of the recommendations. The guidelines also lacked direct underlying evidence on the effectiveness and cost of self-management support. Lastly, the review found a paucity of contextual (equity, acceptability and feasibility) evidence on self-management support among adults with tuberculosis-human immunodeficiency virus in the guidelines.
    There is a dearth of updated and relevant high-quality guidelines that guide healthcare professionals to provide self-management support to adults with tuberculosis-human immunodeficiency virus coinfection in primary healthcare settings. Systematic reviews of effectiveness, economic and contextual evidence related to self-management support interventions are required for guideline production.
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  • 文章类型: Journal Article
    当父母死于艾滋病毒/艾滋病相关原因时,孩子们经常经历情绪不稳定,并被赋予额外的义务,比如照顾兄弟姐妹。年轻人的反应可能多种多样,包括增加酒精消费,他们与兄弟姐妹的关系可能会发生积极或消极的变化。
    本文的目的是研究年轻人在失去家庭成员后管理自己的生活经验,并为护士提供制定的指南,以建议年轻人在失去家庭成员后进行自我管理。
    Khayelitsha,西开普省,南非。
    遵循本研究的描述性现象学设计。研究人员对参与者进行了11次半结构化访谈。这项研究是针对年龄在18至25岁之间的年轻人进行的。
    该研究表明,家庭供养者的死亡对于留守青年来说很难应对日常生活的变化。
    研究结果表明,家庭成员的死亡对家庭有重大影响。一位更资深的家庭成员必须承担起责任,并保持坚强,以帮助他们的兄弟姐妹专注于未来。家庭成员的死亡可能导致一连串的强迫变化,需要新的行为来维持稳定。
    本研究基于背景的数据集中在社区卫生中心(CHC)如何在家庭提供者死于艾滋病毒/艾滋病后帮助年轻人管理自己,使用制定的指导方针。
    UNASSIGNED: When parents die from HIV/AIDS-related causes, children often experience emotional instability and are given additional obligations, such as caring for siblings. Youths may react in a variety of ways, including increasing alcohol consumption, and their relationships with their siblings may be altered positively or negatively.
    UNASSIGNED: The purpose of this article is to examine the lived experiences of youths in managing themselves after losing a family member to HIV/AIDS and suggest developed guidelines for nurses to advise youths on self-management after losing a family member to HIV/AIDS.
    UNASSIGNED: Khayelitsha, Western Cape province, South Africa.
    UNASSIGNED: A descriptive phenomenological design for this study was followed. The researcher conducted 11 semi-structured interviews with participants. The study was conducted with participants that were youth aged between 18 and 25 years.
    UNASSIGNED: The study revealed that the death of a family provider can be difficult for the youth left behind to deal with the changes in their daily lives.
    UNASSIGNED: The findings demonstrated that the death of a family member has a significant impact on the family. One of the more senior family members must assume charge and remain strong to help their siblings focus on the future. The death of a family member might result in a cascade of forced changes that necessitate new behaviours to maintain stability.
    UNASSIGNED: This study\'s context-based data focuses on how the Community Health Centre (CHC) may assist young people in managing themselves after a family provider has died from HIV/AIDS, using the developed guidelines.
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  • 文章类型: Systematic Review
    背景:患者教育(PE)是护士的关键作用,其中包括提供信息,培训,并支持甲氨蝶呤(MTX),风湿病学中的锚定药物。然而,在欧洲,获得风湿病护士咨询的机会差异很大,在交付方面缺乏共识,在这些情况下,PE的背景和时机。本研究旨在全面概述现有的关于儿童/青年和成人风湿病和肌肉骨骼疾病(RMDs)的MTX护士教育的研究。
    方法:本范围审查是根据Arksey和O\'Malley的框架进行的。在PubMed(MEDLINE)上搜索,Scopus和Cochrane数据库,和CINAHL,从成立到2022年3月进行。包括专门针对MTX的PE文章。已发表和未发表的研究,来自世界任何地区,进行了定性的,定量,或混合方法设计,专注于定义的研究问题,有资格列入。如果针对患有RMD的人(PE或患者参与,自我管理,用药知识,或患者的健康素养)。报告遵循系统审查和荟萃分析的首选报告项目-范围审查的扩展(PRISMA-ScR)清单。两名独立的审阅者进行了标准化的数据提取和合成。
    结果:从确定的292篇参考文献中,符合纳入标准的研究总数相对较少(n=14).结果确定,当护士提供教育时,MTX的知识会有所改善。
    结论:这项范围审查表明,对于患有RMD的儿童/青少年和成人,没有普遍的全球MTX教育策略。然而,关于MTX的PE可以以不同的形式交付,带来更好的满意度和依从性。需要更多具有动力样本的随机对照试验。
    BACKGROUND: Patient education (PE) is a key role of nurses, which includes providing information, training, and support about methotrexate (MTX), an anchor drug in rheumatology. However, there is a wide variation in the access to rheumatology nurse consultations in Europe, and there is a lack of consensus regarding the delivery, context and timing of PE in these cases. This study aimed to provide a comprehensive overview of the existing research on nurse education of MTX for children/youth and adults with Rheumatic and Musculoskeletal Diseases (RMDs).
    METHODS: This scoping review was conducted in accordance with Arksey and O\'Malley\'s framework. A search on PubMed (MEDLINE), Scopus and Cochrane Database, and CINAHL, from inception until March 2022 was conducted. Articles on PE with a focus on MTX exclusively were included. Published and unpublished studies, from any world region, conducted with a qualitative, quantitative, or mixed-methods design and focused on defined research questions, were eligible for inclusion. Broad inclusion criteria were used if a research paper on PE focused on MTX for people with RMDs (PE or patient engagement, self-management, medication knowledge, or health literacy in patients). The reporting followed the Preferred Reporting Items for Systematic Reviews and Meta-Analyses - Extension for Scoping Reviews (PRISMA-ScR) checklist. Two independent reviewers performed standardized data extraction and synthesis.
    RESULTS: From 292 references identified, the total number of studies which met the inclusion criteria was relatively small (n = 14). The results identified that knowledge of MTX improves when education by nurses is provided.
    CONCLUSIONS: This scoping review showed that there is no universal worldwide strategy for MTX education of children/youths and adults with RMDs. However, PE regarding MTX can be delivered in different forms, resulting in better satisfaction and adherence. More randomized controlled trials with powered samples are required.
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  • 文章类型: Systematic Review
    目的:这是2023年国际糖尿病足工作组关于预防糖尿病足患者足部溃疡的指南,它更新了2019年的指导方针。本指南针对临床医生和其他医疗保健专业人员。
    方法:我们遵循建议的分级,评估,开发和评估方法,以设计PICO格式的临床问题和至关重要的结果,对医学科学文献进行系统的审查,包括,在适当的情况下,荟萃分析,写建议和他们的理由。这些建议是基于系统审查中发现的证据质量,在没有(充分)证据的情况下的专家意见,并权衡干预的期望和不期望的影响,以及患者的偏好,成本,股本,可行性和适用性。
    结果:我们建议每年对足部溃疡风险非常低的糖尿病患者进行筛查,以发现患者丧失保护性感觉和外周动脉疾病。并以更高的频率筛查高风险人群的其他风险因素。为了预防足部溃疡,教育有风险的人适当的足部自我保健,教育在没有适当的足部保护的情况下不要走路,并治疗足部任何溃疡前病变。教育中高风险糖尿病患者穿适当的衣服,住宿,治疗鞋,并考虑指导他们监测足部皮肤温度。规定在行走过程中具有足底压力缓解作用的治疗鞋,有助于防止足底溃疡复发。考虑建议处于低到中等风险的人进行一项,最好有监督,足踝锻炼计划,以减少溃疡的危险因素,并考虑告知负重活动总增加1000步/天对于溃疡风险可能是安全的。在患有溃疡前病变的非刚性锤状趾患者中,考虑屈肌腱肌腱切开术。我们建议不要使用神经减压手术来帮助预防足部溃疡。为中度至高危糖尿病患者提供综合足部护理,以帮助预防(复发)溃疡。
    结论:这些建议应有助于医疗保健专业人员为有足部溃疡风险的糖尿病患者提供更好的护理。增加无溃疡天数,减少与糖尿病相关的足部疾病的患者和医疗负担。
    OBJECTIVE: This is the 2023 International Working Group on the Diabetic Foot guideline on the prevention of foot ulcers in persons with diabetes, which updates the 2019 guideline. This guideline is targeted at clinicians and other healthcare professionals.
    METHODS: We followed the Grading of Recommendations, Assessment, Development and Evaluations methodology to devise clinical questions and critically important outcomes in the PICO format, to conduct a systematic review of the medical-scientific literature including, where appropriate, meta-analyses, and to write recommendations and their rationale. The recommendations are based on the quality of evidence found in the systematic review, expert opinion where (sufficient) evidence was not available, and a weighing of the desirable and undesirable effects of an intervention, as well as patient preferences, costs, equity, feasibility and applicability.
    RESULTS: We recommend screening a person with diabetes at very low risk of foot ulceration annually for the loss of protective sensation and peripheral artery disease, and screening persons at higher risk at higher frequencies for additional risk factors. For preventing a foot ulcer, educate persons at-risk about appropriate foot self-care, educate not to walk without suitable foot protection, and treat any pre-ulcerative lesion on the foot. Educate moderate-to-high risk people with diabetes to wear properly fitting, accommodative, therapeutic footwear, and consider coaching them to monitor foot skin temperature. Prescribe therapeutic footwear that has a demonstrated plantar pressure relieving effect during walking, to help prevent plantar foot ulcer recurrence. Consider advising people at low-to-moderate risk to undertake a, preferably supervised, foot-ankle exercise programme to reduce ulcer risk factors, and consider communicating that a total increase in weight-bearing activity of 1000 steps/day is likely safe with regards to risk of ulceration. In people with non-rigid hammertoe with pre-ulcerative lesion, consider flexor tendon tenotomy. We suggest not to use a nerve decompression procedure to help prevent foot ulcers. Provide integrated foot care for moderate-to-high-risk people with diabetes to help prevent (recurrence of) ulceration.
    CONCLUSIONS: These recommendations should help healthcare professionals to provide better care for persons with diabetes at risk of foot ulceration, to increase the number of ulcer-free days and reduce the patient and healthcare burden of diabetes-related foot disease.
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  • 文章类型: Journal Article
    多囊卵巢综合征(PCOS)是一种复杂的内分泌疾病,影响13%的育龄妇女。虽然生活方式管理是改善并发症的一线治疗方法,妇女在实施方面面临挑战。这项横断面研究旨在确定PCOS女性实施的饮食和身体活动(PA)干预措施的类型和来源,并了解他们如何使用自我管理策略来支持生活方式的改变。通过基于消费者的PCOS网站(2015年5月至2016年)分发了一份在线问卷。女性(n=1167)年龄在18-45岁,主要在美国出生(70%)。四分之一或更少的女性(饮食25%,PA14%)寻求健康专业人员(医学临床医生或营养师)的生活方式建议,而超过一半(饮食59%,PA67%)使用替代来源,即从在线平台。虽然只有33%和16%的女性报告遵循正式的饮食或PA指南,分别,57%的人实施了“特殊饮食”来管理他们的病情,其中许多与PCOS的循证实践不一致.参与者对重要的自我管理行为的参与度也很低,包括目标设定和积极的自我对话。这些发现表明,在线信息可能会促进不准确和无效的生活方式建议,并强调需要增加与合格的卫生专业人员的接触。
    Polycystic ovary syndrome (PCOS) is a complex endocrine disorder, affecting 13% of reproductive-aged women. While lifestyle management is the first-line treatment for improving complications, women experience challenges with implementation. This cross-sectional study aims to identify the types and sources of dietary and physical activity (PA) interventions implemented by women with PCOS and understand how they use self-management strategies to support lifestyle change. An online questionnaire was disseminated via a consumer-based PCOS website (May 2015-2016). Women (n = 1167) were aged 18-45 years and primarily born within the United States (70%). A quarter or less of women (diet 25%, PA 14%) sought lifestyle advice from health professionals (medical clinicians or dietitians) compared to over half (diet 59%, PA 67%) using alternative sources, namely from online platforms. While only 33% and 16% of women reported following formal dietary or PA guidelines, respectively, 57% had implemented a \'special diet\' to manage their condition, many of which were inconsistent with evidence-based practice in PCOS. Participants also displayed a low level of engagement with important self-management behaviors, including goal setting and positive self-talk. These findings suggest that online information may promote inaccurate and ineffective lifestyle advice and emphasize the need to increase engagement with qualified health professionals.
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