背景:多发性硬化症(MS)是一种神经系统疾病,需要采用多学科方法来帮助MS患者控制其疾病。健康行为,或者改变生活方式,是一种新兴的MS自我管理方法。MS研究人员利用测量工具来确保干预措施最适合结果,从而可能影响实践。这项研究的目的是调查哪些工具正在用于MS患者的健康行为管理研究,并为工具选择提供帮助。
方法:在PRISMA-Sc检查表和JBI证据综合手册的指导下进行范围审查,并在四个科学数据库中执行系统搜索策略:Medline,PubMed,CINAHL,和Cochrane图书馆。使用的评估工具的类型是从纳入的研究中提取的。每个工具都被归类为健康行为干预学科(营养,锻炼,和心理学),然后根据工具的目的进行分类。确定每种工具的使用频率。对评估工具的验证报告进行了整理,以告知工具选择清单。
结果:审查确定了总共248种工具(12种营养,55练习,和119份心理学独特报告)来自166项研究。确定了77个多维工具,包括生活质量的衡量标准,疲劳,和功能尺度。只有88项研究(53%)提到了这些工具的有效性。最常报告的工具是饮食习惯问卷(n=4,营养),6分钟步行测试(n=17,锻炼),符号数字和模式测试,医院焦虑和抑郁量表(每组n=15,心理学)与扩展残疾状况量表报告43次。
结论:来自干预措施的证据可以为卫生专业人员的实践提供信息。这篇综述提供了对MS健康行为干预研究报告的工具范围的见解,并为更一致的研究方法报告提供了指导。
BACKGROUND: Multiple sclerosis (MS) is a neurological condition that necessitates a multidisciplinary approach to aid those living with MS in managing their disease. Health behavior, or lifestyle modification, is an emerging approach to MS self-management. MS researchers utilize measurement tools to ensure that interventions are best suited to the outcomes, thereby potentially influencing practice. The aim of this study was to investigate which tools are being used for health behavior management studies in people living with MS and develop an aid for tool selection.
METHODS: A scoping
review guided by the PRISMA-Sc checklist and the JBI manual for evidence synthesis was employed with a systematic search strategy executed across four scientific databases: Medline, PubMed, CINAHL, and Cochrane Libraries. The types of assessment tools used were extracted from the included studies. Each tool was categorized into the health behavior intervention discipline (nutrition, exercise, and psychology) and then subcategorized by the tool\'s purpose. The frequency of use was determined for each tool. Reporting of validation of the assessment tools were collated to inform a tool selection checklist.
RESULTS: The
review identified a total of 248 tools (12 nutrition, 55 exercise, and 119 psychology unique reports) from 166 studies. Seventy-seven multidimensional tools were identified including measures of quality of life, fatigue, and functional scales. Only 88 studies (53%) referred to the validity of the tools. The most commonly reported tools were the dietary habits questionnaire (n = 4, nutrition), 6-minute walk test (n = 17, exercise), Symbol Digits and Modalities Test, and Hospital Anxiety and Depression Scale (n = 15 each, psychology) with the Expanded Disability Status Scale reported 43 times.
CONCLUSIONS: Evidence from interventions may inform practice for health professionals. This
review provides insights into the range of tools reported across health behavior intervention studies for MS and offers a guide toward more consistent reporting of study methods.