关键词: Dementia caregiving empathy interpersonal relationships review

来  源:   DOI:10.1080/13607863.2024.2390603

Abstract:
UNASSIGNED: Frontotemporal Degeneration (FTD) is a common cause of early onset dementia with symptoms often presenting before 65 years of age and adding tremendous burden on caregivers. FTD caregiving research describes patient behavioral symptoms such as apathy and disinhibition as primary sources of poor caregiver psychological health; however, little attention has been paid to other common patient behaviors, such as loss of empathy. To better understand the relationship between empathy loss and FTD caregiver outcomes, this integrative review aimed to address the question: How does the loss of empathy in a person living with FTD (PLwFTD) impact the caregiver?
UNASSIGNED: Quantitative and qualitative articles were found in PubMed, the Cumulative Index to Nursing and Allied Health Literature (CINAHL), and Scopus and were assessed for quality using the Crowe Critical Appraisal Tool (CCAT). Through constant comparative analysis, articles were assessed to abstract common themes in the literature.
UNASSIGNED: From 333 citations, 8 qualitative and 8 quantitative studies published between 2010 and 2022 were included. Three main themes were uncovered: 1) caregiver emotional reactions to the PLwFTD; 2) caregiver psychological distress; 3) changes in the relationship.
UNASSIGNED: This review emphasizes the detrimental impact of empathy loss on FTD caregivers. Understanding these underexplored consequences is critical in understanding the well-being of caregivers and promoting ways to support caregivers.
摘要:
额颞叶变性(FTD)是早发性痴呆的常见原因,症状通常在65岁之前出现,给护理人员增加了巨大的负担。FTD护理研究将患者行为症状(如冷漠和抑制)描述为照顾者心理健康不良的主要来源;然而,很少关注其他常见的患者行为,比如失去同理心。为了更好地理解移情丧失和FTD照顾者结果之间的关系,这篇综合综述旨在解决以下问题:患有FTD(PLwFTD)的人失去同理心如何影响护理人员?
在PubMed中找到了定量和定性文章,护理和相关健康文献累积指数(CINAHL),和Scopus,并使用Crowe关键评估工具(CCAT)进行质量评估。通过不断的比较分析,文章被评估为抽象文献中的共同主题。
来自333次引用,纳入了2010年至2022年间发表的8项定性研究和8项定量研究。发现了三个主要主题:1)护理人员对PLwFTD的情绪反应;2)护理人员的心理困扰;3)关系的变化。
这篇综述强调了移情丧失对FTD护理人员的不利影响。了解这些开发不足的后果对于了解护理人员的福祉和促进支持护理人员的方式至关重要。
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