Peer support

对等支持
  • 文章类型: Journal Article
    该试点研究了在线同伴支持对COVID-2019急性后遗症患者心理健康问题的影响。
    进行了在线同伴支持设计的单臂pre-post设计,包括每周1小时的八次会议,每组3至6名参与者和2名主持人。参与者是从在线社区招募的,社交媒体,以及2023年5月至8月间PASC的医疗诊所。抑郁的程度,焦虑,孤独,社会退出,在干预前后测量自尊。参与者在会议期间的陈述使用主题分析进行分析。
    在18位参与者中,三个人退出了干预措施,17人(包括两名退出的参与者)完成了干预前后的问卷。在配对t检验和线性混合模型中,抑郁严重程度显着降低。提取了以下互动:传达同样的感受,处理困难,表现出同理心,增强气氛,适应健康状况。从参与干预中提取的印象包括情感支持的感觉,一种结合的感觉,视角的变化,通过参与改变行为或新的行动,会议期间的不足,以及与参与相关的不利影响。
    在线同伴支持可能有助于治疗PASC患者的抑郁症。
    UNASSIGNED: This pilot examined the effect of online peer support on mental health problems among individuals with post-acute sequelae of COVID-2019 (PASC).
    UNASSIGNED: A single-arm pre-post design of online peer-support design consisting of eight sessions of 1 h per week with three to six participants and two facilitators per group was performed. Participants were recruited from online communities, social media, and medical clinics for the PASC between May and August 2023. The degrees of depression, anxiety, loneliness, social withdrawal, and self-esteem were measured pre- and post-intervention. Participants\' statements during the sessions were analyzed using thematic analyses.
    UNASSIGNED: Of the 18 participants, three dropped out of the interventions, and 17 (including two participants who dropped out) completed the pre- and post-intervention questionnaires. Depression severity significantly decreased in the paired t-test and linear mixed model. The following interactions were extracted: conveying the same feelings, dealing with difficulties, showing empathy, enhancing the atmosphere, and adapting to suit health conditions. Impressions extracted from participating in the interventions included feelings of emotional support, a sense of bonding, changes in perspective, changes in behaviors or new actions through participation, inadequacy during sessions, and adverse effects associated with participation.
    UNASSIGNED: Online peer support may be helpful in treating depression in individuals with PASC.
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  • 文章类型: Journal Article
    目的:形式化的同伴支持是解决慢性肾脏病(CKD)患者的情感和实际需求的一种有前途的方法。我们旨在系统地识别和总结在有或没有肾脏替代疗法(KRT)的CKD患者中研究的同伴支持干预措施。
    方法:我们在2023年3月检索了电子数据库和灰色文献来源。
    方法:对于有或没有KRT的CKD成人和/或其照顾者,如果研究报告了足够详细的同伴支持干预措施和结果,则任何设计的研究都是合格的。
    方法:我们提取了有关研究和干预特征的信息,并使用已建立的框架报告了结果。我们对定量数据进行了描述性总结,对定性数据进行了专题总结。我们的方法观察了用于范围审查的系统审查和荟萃分析(PRISMA)扩展的首选报告项目。
    结果:我们纳入了77项研究,描述了56项独特的同伴支持干预措施。大多数报告是在2013年之后发表的计划评估(39%)或随机对照试验(27%)。三分之二的干预措施集中于中心血液透析或混合CKD人群,四分之三被纳入肾脏护理诊所或项目。而大多数同行互动都集中在信息支持上,很少有计划在移植导航或透析方式选择等领域提供重点支持。只有三分之一的结果是针对比较组进行评估的,结果表明,在同伴支持下,心理健康有所改善。
    结论:纳入研究的异质性;缺乏严格的项目评估。
    结论:这篇综述表明,近年来同伴支持计划的发展具有多种形式和交付方法,以满足肾病患者的不同需求。在移植和家庭透析接受者的同伴支持可用性方面存在明显差距,并且缺乏严格的评估为扩大同伴支持在肾脏护理方面的影响提供了机会。
    OBJECTIVE: Formalized peer support is a promising approach for addressing the emotional and practical needs of people living with chronic kidney disease (CKD). We aimed to systematically identify and summarize peer support interventions studied in individuals with CKD with or without kidney replacement therapy (KRT).
    METHODS: We searched electronic databases and grey literature sources in March 2023.
    METHODS: Studies of any design were eligible if they reported sufficient detail on peer support interventions and outcomes for adults with CKD with or without KRT and/or their caregivers.
    METHODS: We extracted information on study and intervention characteristics and reported outcomes using established frameworks. We summarized quantitative data descriptively and qualitative data thematically. Our approach observed the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) extension for scoping reviews.
    RESULTS: We included 77 studies describing 56 unique peer support interventions. Most reports were program evaluations (39%) or randomized controlled trials (27%) published after 2013. Two thirds of interventions focused on in-centre hemodialysis or mixed CKD populations, and three quarters were integrated within a kidney care clinic or program. Whereas most peer interactions centered on informational support, few programs offered focused support in areas such as transplant navigation or dialysis modality selection. Only one third of outcomes were assessed against a comparator group, with results suggesting improvements in psychological health with peer support.
    CONCLUSIONS: Heterogeneity of included studies; lack of rigorous program evaluation.
    CONCLUSIONS: This review suggests recent growth in peer support programming with a variety of formats and delivery methods to address the diverse needs of people living with kidney disease. Notable gaps in peer support availability for transplant and home dialysis recipients and the lack of rigorous evaluations present opportunities to expand the reach and impact of peer support in the kidney care context.
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  • 文章类型: Journal Article
    母乳喂养是婴儿和幼儿的最佳营养形式。世界卫生组织建议婴儿在出生后的头6个月完全母乳喂养,以及2岁或以上的辅食。母乳喂养的开始和继续率在全球范围内并不理想,而在爱尔兰共和国则非常低,在爱尔兰共和国,健康促进计划和医疗保健专业支持主要集中在母乳喂养开始的重要阶段和早期几个月。这项定性描述性研究旨在探索爱尔兰共和国选择母乳喂养1岁以上孩子的妇女的经历。14名妇女参加了半结构化面试。访谈进行逐字转录,并进行主题分析。分析产生了三个总体主题:(1)对母乳喂养超过1年的影响,(2)持续母乳喂养和(3)母乳喂养超过1年的好处。家庭,朋友,同行,文化和商业配方奶粉营销对母乳喂养旅程有影响。Support,决心,知识,同床和Covid-19大流行的社会限制有助于将母乳喂养维持在1年以上。母乳喂养超过1年的好处,如营养,加强情感纽带,开发育儿工具,并确定了对儿童和孕产妇健康的保护。我们的研究结果支持需要对爱尔兰共和国超过1年的母乳喂养正常化进行讨论和进一步研究,针对医疗保健专业人员的有针对性的健康促进举措和教育计划,以支持继续母乳喂养。
    Breastfeeding is the optimal form of nutrition for infants and young children. The World Health Organization recommends that babies are breastfed exclusively for the first 6 months of life, and up to the age of 2 years or beyond in combination with complementary food. Breastfeeding initiation and continuation rates are suboptimal globally and very low in the Republic of Ireland where health promotion initiatives and healthcare professional support predominantly focus on the important phase of initiation and early months of the breastfeeding journey. This qualitative descriptive study aimed to explore the experiences of women who chose to breastfeed their children beyond 1 year of age in the Republic of Ireland. Fourteen women participated in semi-structured interviews. Interviews were transcribed verbatim and thematic analysis was conducted. The analysis generated three overarching themes: (1) Influences on breastfeeding beyond 1 year, (2) Sustaining breastfeeding and (3) Benefits of breastfeeding beyond 1 year. Family, friends, peers, culture and commercial milk formula marketing had an influence on breastfeeding journeys. Support, determination, knowledge, bed-sharing and Covid-19 pandemic social restrictions helped to sustain breastfeeding beyond 1 year. Benefits of breastfeeding beyond 1 year such as nutrition, strengthening of emotional bonds, development of a parenting tool, and protection of child and maternal health were identified. Our findings support the need for discussions and further research on the normalization of breastfeeding beyond 1 year in the Republic of Ireland, targeted health promotion initiatives and education programmes for healthcare professionals on supporting the continuation of breastfeeding.
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  • 文章类型: Journal Article
    背景:同伴导师在促进参与方面发挥作用,受外伤的人的健康和福祉。很少有研究探索同伴导师参与创伤后的早期干预职业康复(EIVR)服务。
    目的:本研究旨在从同伴导师本身的角度探索在EIVR服务背景下实施同伴支持的经验,职业治疗师监督他们,以及接受同伴指导的患者。
    方法:对来自三组的20名参与者进行了半结构化访谈:同伴导师(n=4);职业治疗师(n=3);以及接受EIVR干预的患者(n=24)。对数据进行了主题分析。
    结果:确定了三个主题:EIVR服务中对等输入的价值,作为EIVR服务的一部分,影响同伴参与价值的促进者,影响作为EIVR服务一部分的对等输入的挑战。
    结论:在重大创伤后早期纳入同伴导师是EIVR服务的独特和有价值的补充。在康复初期提供同伴支持,使患者对未来抱有希望,期望重返工作岗位是一个现实的选择。精心挑选同伴导师,确保他们得到充分的准备和持续的监督对于在干预期间支持他们的福祉至关重要。旨在将具有相似伤害和工作背景的同伴导师与患者相匹配,这是受训者与导师可能持续参与的重要原因。
    BACKGROUND: Peer mentors have a role in facilitating the participation, health and well-being of people who have had a traumatic injury. Few studies have explored the involvement of peer mentors in an early intervention vocational rehabilitation (EIVR) service following trauma.
    OBJECTIVE: This study aimed to explore the experience of implementing peer support within the context of an EIVR service from the perspectives of the peer mentors themselves, the vocational therapists supervising them, and the patients that received peer mentoring.
    METHODS: Semi-structured interviews were conducted with twenty participants from three groups: peer mentors (n = 4); vocational therapists (n = 3); and patients who received the EIVR intervention (n = 24). Data were thematically analysed.
    RESULTS: Three themes were identified: The value of peer input in an EIVR service, The facilitators impacting the value of peer involvement as part of the EIVR service, The challenges impacting peer input as part of an EIVR service.
    CONCLUSIONS: The inclusion of peer mentors early after major traumatic injury was a unique and valuable addition to the EIVR service. Offering peer support early on in rehabilitation enabled patients to gain a sense of hope for their future, and the expectation that returning to work was a realistic option. The careful selection of peer mentors, and ensuring they receive adequate preparation and ongoing supervision are vital to support their well-being during the intervention. Aiming to match peer mentors with similar injuries and work backgrounds to patients is an important contributor to the likely ongoing engagement of the mentee with the mentor.
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  • 文章类型: Journal Article
    背景:同伴支持者的培训至关重要,因为整个同伴支持干预的成功取决于同伴支持者可以与其他患者分享的知识和经验。这项研究的目的是评估在斯洛文尼亚的初级医疗保健水平上,针对患有或不患有高血压(HTN)的2型糖尿病(T2DM)的同伴支持者的专科护士主导的自我管理培训计划的试点实施。在可行性方面,可接受性,和有效性。
    方法:从2021年5月至2022年8月,在斯洛文尼亚的两个社区卫生中心(CHC)进行了一项前瞻性的干预前试点研究。目的抽样被用来招募大约40名合格的志愿者成为训练有素的同伴支持者。在2个月的时间里,进行了由专业护士主导的结构化培训,持续15小时,包括四个小组和两个单独的会议。综合课程以互动的语言和视觉学习经验为基础,利用糖尿病对话地图™。数据是从医疗记录中收集的,通过临床测量,使用社会人口统计学和临床数据问卷,可接受性的理论框架,T2DM和HTN的知识,和糖尿病量表的评估,和评估表格。
    结果:在36名参与者中,31人成为训练有素的同伴支持者(保留率为86.1%)。其中,21名(67.7%)是女性,平均年龄63.9岁(SD8.9)。培训被评估为令人满意且高度可接受。与基线相比,同伴支持者对T2DM(p<0.001)和HTN(p=0.024)的知识显着提高。六个月的培训后,生活质量没有明显改善(p=0.066),但体重指数(BMI)(p=0.020)从基线时的30.4(SD6.2)显著下降至29.8(SD6.2).
    结论:对同伴支持者实施专科护士主导的自我管理培训试点是可行的,可接受,并且有效(在研究组中)。它导致了知识的提高,保持疾病控制,并在同伴支持者中促进积极的自我管理行为,他们的BMI在六个月内下降证明了这一点。这项研究强调了有效招聘的必要性,培训,和保留策略。
    背景:该研究是国际研究项目SCUBY:扩大对柬埔寨弱势群体的糖尿病和高血压护理的一部分,斯洛文尼亚和比利时,它在ISRCTN注册表中注册(https://www.isrctn.com/ISRCTN41932064).
    BACKGROUND: The training of peer supporters is critical because the success of the entire peer support intervention depends on the knowledge and experience that peer supporters can share with other patients. The objective of this study was to evaluate the pilot implementation of a specialist nurse-led self-management training programme for peer supporters with type 2 diabetes mellitus (T2DM) with or without comorbid hypertension (HTN) at the primary healthcare level in Slovenia, in terms of feasibility, acceptability, and effectiveness.
    METHODS: A prospective pre-post interventional pilot study was conducted in two Community Health Centres (CHC) in Slovenia from May 2021 to August 2022. Purposive sampling was employed to recruit approximately 40 eligible volunteers to become trained peer supporters. A specialist nurse-led structured training lasting 15 h over a 2-month period was delivered, comprising four group and two individual sessions. The comprehensive curriculum was based on interactive verbal and visual learning experience, utilising the Diabetes Conversation Maps™. Data were collected from medical records, by clinical measurements, and using questionnaires on sociodemographic and clinical data, the Theoretical Framework of Acceptability, knowledge of T2DM and HTN, and the Appraisal of Diabetes Scale, and evaluation forms.
    RESULTS: Of the 36 participants, 31 became trained peer supporters (retention rate of 86.1%). Among them, 21 (67.7%) were women, with a mean age of 63.9 years (SD 8.9). The training was evaluated as satisfactory and highly acceptable. There was a significant improvement in knowledge of T2DM (p < 0.001) and HTN (p = 0.024) among peer supporters compared to baseline. Six months post-training, there was no significant improvement in the quality of life (p = 0.066), but there was a significant decrease in body mass index (BMI) (p = 0.020) from 30.4 (SD 6.2) at baseline to 29.8 (SD 6.2).
    CONCLUSIONS: The pilot implementation of a specialist nurse-led self-management training for peer supporters was found to be feasible, acceptable, and effective (in the study group). It led to improvements in knowledge, maintained disease control, and promoted positive self-management behaviours among peer supporters, as evidenced by a decrease in their BMI over six months. The study emphasises the need for effective recruitment, training, and retention strategies.
    BACKGROUND: The research is part of the international research project SCUBY: Scale up diabetes and hypertension care for vulnerable people in Cambodia, Slovenia and Belgium, which is registered in ISRCTN registry ( https://www.isrctn.com/ISRCTN41932064 ).
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  • 文章类型: Journal Article
    睡眠质量差已经成为大学生中普遍存在的健康问题。本研究旨在通过构建调节中介模型,探讨大学生睡眠质量的影响机制。
    对等支持量表,体育锻炼氛围量表,采用电子健康素养量表和匹兹堡睡眠质量指数对1085份问卷进行调查分析,分布在西北四所大学的学生中,中国东北和中部地区。
    (1)对等支持之间存在显著的成对相关性,体育锻炼的氛围,健康素养与睡眠质量(P<0.001);(2)体育锻炼氛围在同伴支持与睡眠质量之间起中介作用,中介效应占28.08%;(3)eHealth素养能显著调节同伴支持与运动氛围之间的关系强度,在同伴支持和睡眠质量之间,以及体育锻炼氛围和睡眠质量之间的关系。本研究揭示了大学生同伴支持与睡眠质量的关系及其影响机制,从同伴支持的角度为提高大学生睡眠质量提供了理论和实践依据,体育锻炼的氛围,和电子健康素养。
    UNASSIGNED: Poor sleep quality has emerged as a prevalent health issue among college students. This study aims to explore the mechanism of sleep quality among college students by constructing a moderated mediation model.
    UNASSIGNED: The Peer Support Scale, Physical Exercise Atmosphere Scale, eHealth Literacy Scale and Pittsburgh Sleep Quality Index were used to conduct a survey and analysis on 1,085 questionnaires, which were distributed among students from four universities in the northwest, northeast and central regions of China.
    UNASSIGNED: (1) A significant pairwise correlation exists between peer support, physical exercise atmosphere, eHealth literacy and sleep quality (P < 0.001); (2) Physical exercise atmosphere plays a mediating role between peer support and sleep quality, with a mediating effect accounting for 28.08%; (3) eHealth literacy can significantly moderate the strength of the relationships between peer support and exercise atmosphere, between peer support and sleep quality, and between physical exercise atmosphere and sleep quality. This study revealed the relationship between peer support and sleep quality among college students and its influencing mechanism, and provided theoretical and practical basis for improving college students\' sleep quality from the perspectives of peer support, physical exercise atmosphere, and eHealth literacy.
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  • 文章类型: Journal Article
    背景:在全球范围内,每两个孩子中就有一个经历过暴力;这可能会导致以后的危险行为,如物质使用。在低收入和中等收入国家(LMICs),然而,儿童暴力和药物使用之间的关联仍未得到充分探索.
    目的:本研究评估了儿童暴力与药物使用之间的关联。
    方法:分析了8个低收入国家(2017-2019年)的暴力侵害儿童和青少年调查(VACS)的数据,包括33,408名儿童和年轻人(13-24岁)。
    方法:暴露变量包括童年暴力的经历(身体,性,情感)和多重伤害(两种或两种以上类型的体验)。结果是当前吸烟以及过去一个月的酒精和药物使用。估计了具有国家固定效应的多变量逻辑回归。根据参与者的性别和年龄进行分层分析,和效果修改分析检查了关联是否因同伴支持的存在而有所不同。
    结果:儿童身体暴力是最普遍的暴力类型(40.7%),约10%的参与者经历过多重伤害。所有类型的暴力都增加了吸烟的几率,暴饮暴食,和吸毒,和多重伤害大大增加了风险。与年轻男性相比,在有儿童期性暴力史的年轻女性中观察到了更强的关联(当前吸烟aOR:1.5,95%CI:1.2-1.9;暴饮暴食aOR:2.1,95%CI:1.7-2.5;吸毒aOR:2.3,95%CI:1.5-3.5)。此外,儿童时期的性暴力与药物使用之间的关联在青少年中更为明显(当前吸烟aOR:1.7,95%CI:1.2-2.2;暴饮暴食aOR:2.3,95%CI:1.8-2.9;吸毒aOR:2.4,95%CI:1.5-3.9),相对于年轻人。缺乏同伴支持大大增加了吸毒的可能性。
    结论:儿童暴力预防计划可以减少LMIC的药物使用,他们应该考虑到幸存者的性别和年龄。我们的发现表明,同伴支持可以减轻儿童暴力幸存者的危险行为。
    BACKGROUND: Globally, one in two children experience violence; experiences which may lead to later risky behaviors such as substance use. In low- and middle-income countries (LMICs), however, the association between childhood violence and substance use remains underexplored.
    OBJECTIVE: This study assessed the association between childhood violence and substance use among LMIC youth.
    METHODS: Data from the Violence Against Children and Youth Surveys (VACS) in eight LMICs (2017-2019) were analyzed, comprising 33,408 children and young adults (ages 13-24).
    METHODS: Exposure variables included the experience of childhood violence (physical, sexual, emotional) and polyvictimization (experience of two or more types). Outcomes were current smoking and past-month alcohol and drug use. Multivariable logistic regressions with country-fixed effects were estimated. Stratified analyses were performed based on participant\'s sex and age, and effect modification analyses examined whether associations differ by the presence of peer support.
    RESULTS: Childhood physical violence was the most prevalent type of violence (40.7 %), and about 10 % of the participants experienced polyvictimization. All types of violence increased the odds of smoking, binge drinking, and drug use, and polyvictimization elevated the risk substantially. Stronger associations were observed in young women with a history of childhood sexual violence (current smoking aOR: 1.5, 95 % CI: 1.2-1.9; binge-drinking aOR: 2.1, 95 % CI: 1.7-2.5; and drug-use aOR: 2.3, 95 % CI: 1.5-3.5) compared to young men. Additionally, the associations between childhood sexual violence and substance use were more pronounced among adolescents (current smoking aOR: 1.7, 95 % CI: 1.2-2.2; binge-drinking aOR: 2.3, 95 % CI: 1.8-2.9; and drug-use aOR: 2.4, 95 % CI: 1.5-3.9), relative to young adults. Lack of peer support significantly increased the likelihood of drug use.
    CONCLUSIONS: Childhood violence prevention programs can reduce substance use in LMICs, and they should take into account the survivor\'s sex and age. Our findings suggest that peer support can mitigate risky behaviors among the survivors of childhood violence.
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  • 文章类型: Journal Article
    背景:全球,同龄人的支持已被证明在支持精神病患者的个人康复过程和重返日常生活中起着至关重要的作用。已经审查了支持同伴支持变化机制的合格研究。然而,这些发现最初是基于从事精神卫生服务的同伴支持工作者的观点。因此,在独立于公民社会的精神卫生服务环境中,从受援者的角度阐明变革机制的有资格研究是非常需要的,以进一步为同伴支持的证据做出贡献.在一项随机试验中评估了“通往日常生活的途径”(PEER),并通过定性研究从接受者和同伴支持促进者的角度调查PEER的经验来证实。ThepurposeofthisqualitativestudybaspedbycriticalrealismwastosubstantiatethePEERinterventionprogramtheorybygainingdeeperinsightintothechangemechanismsandexteninghow,when,以及在何种情况下,从同伴支持的接收者的角度来看,同伴支持小组可能对个人康复产生影响或没有影响。
    方法:在为期10周的小组课程结束时,对11名个体进行了访谈。半结构化的现实主义启发采访被录音和逐字转录。分析以反思性主题分析和基于程序理论的绑架框架为指导。在Nvivo软件中对数据进行编码和分析。
    结果:确定了四个总体主题,这些主题使程序理论得到了启发和细致入微:1)将连通性作为参与的先决条件;2)通过制定新的恢复途径来产生希望感;3)看到自己的新一面;4)为变革而发芽。
    结论:本研究通过从基于小组的同伴支持接受者的角度阐述个人康复过程中必不可少的机制,证实了程序理论和PEER试验的定量结果。此外,该研究指出,在日常生活中采取行动的机会取决于个人背景和小组参与者在康复过程中的位置。
    背景:ClinicalTrials.gov标识符:NCT04639167。
    BACKGROUND: Worldwide, peers support has been shown to play a crucial role in supporting people with mental illness in their personal recovery process and return to everyday life. Qualitiative studies underpinning the mechanisms of change in peer support has been reviewed. However, the findings are primeraly based on the perspectives of peer support workers employed in mental health services. Thus, qualitiative studies elucidating the mechanisms of change from the recipient perspective in mental health service independent civil society settings are higly needed to further contribute to the evidence of peer support. The \'Paths to every day life\' (PEER) is evaluated in a randomized trial and is substantiated by qualitative studies investigating the experiences of PEER from the perspectives of the recipients and the facilitators of peer support. The purpose of this qualitative study underpinned by critical realism was to substantiate the PEER intervention program theory by gaining deeper insight into the change mechanisms and elaborate how, when, and under what circumstances the peer support groups potentially had or did not have an impact on personal recovery from the perspectives of the recipients of peer support.
    METHODS: Eleven individuals were interviewed at the end of the ten-week group course. The semi-structured realist-inspired interviews were audio recorded and transcribed verbatim. The analysis was guided by reflective thematic analysis and through an abductive framework based on the program theory. Data were coded and analysed in Nvivo software.
    RESULTS: Four overarching themes were identified that informed and nuanced the program theory: 1) Connectedness as a prerequisite for engagement; 2) A sense of hope by working out new paths to recovery; 3) Seeing new sides of oneself; and 4) Sprout for change.
    CONCLUSIONS: This study substantiates the program theory and the quantitative results of the PEER trial by elaborating on mechanisms that were felt to be essential for the personal recovery process from the perspectives of the recipients of the group-based peer support. In addition, the study points out that the opportunities to act in everyday life depended on individual context and where the group participants were on their recovery journey.
    BACKGROUND: ClinicalTrials.gov identifier: NCT04639167.
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  • 文章类型: Journal Article
    Mayer-Rokitansky-Küster-Hauser综合征(MRKH)是一种先天性疾病,其特征是子宫和阴道上部发育不足或完全缺失。诊断通常在青春期,心理生理发展的敏感时期,在没有月经之后。有MRKH综合征可以有一个深刻的和多方面的社会心理影响,表征这些妇女的主观经验,尽管它在质量上仍然被低估。本文探讨了在在线支持论坛上自发叙述的MRKH女性的生活经历。目的是深入了解综合症经历的特征,以深刻理解病情的情感和社会影响以及在线表达的个人需求。
    使用自然主义的观察立场,数据收集自MRKH女性在线支持论坛,并使用主题分析进行了系统分析.
    确定了四个主要的相互关联的主题:被诊断为MRKH的影响,与医疗环境的艰难互动,挑战社会关系,以及MRKH妇女未满足的需求。
    多学科和以人为中心的方法,对病情及其心理社会影响提供有效和敏感的管理,是必不可少的。提出了对未来研究的建议以及对医疗保健专业人员的实际临床意义。
    UNASSIGNED: Mayer-Rokitansky-Küster-Hauser syndrome (MRKH) is a congenital condition characterized by the underdevelopment or complete absence of the uterus and the upper part of the vagina. Diagnosis is commonly made during adolescence, a sensitive period for psychophysical development, following the absence of menstruation. Having MRKH syndrome can have a profound and multifaceted psychosocial impact that characterizes these women\'s subjective experiences, although it continues to be qualitatively understudied. This article explores the lived experience of women with MRKH spontaneously recounted on an online support forum. The aim was to gain insight into the features of the syndrome experience to understand deeply the emotional and social impact of the condition and the individual needs expressed online.
    UNASSIGNED: Using a naturalistic observation stance, data was collected from an online support forum for MRKH women and systematically analyzed using thematic analysis.
    UNASSIGNED: Four main interconnected themes are identified: the impact of being diagnosed with MRKH, the difficult interaction with the medical environment, challenging social relationships, and the unmet needs of MRKH women.
    UNASSIGNED: A multidisciplinary and person-centered approach that provides effective and sensitive management of the condition and its psychosocial implications, is essential. Recommendations for future research and practical clinical implications for healthcare professionals are proposed.
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  • 文章类型: Journal Article
    背景:同伴支持已在基于社区的初级保健的特定领域进行了广泛研究,例如心理健康,物质使用,艾滋病毒,无家可归,土著健康。这些计划通常建立在这样的假设之上,即同龄人必须分享相似的社会身份或疾病的生活经历才能有效。然而,目前尚不清楚如何将同龄人整合到为不同健康状况和社会背景的人群提供服务的一般初级保健环境中.
    方法:在2020年至2022年之间进行了一项参与式定性研究,以探索可行性,可接受性,以及在蒙特利尔的初级保健环境中整合同伴支持工作者的感知效果,加拿大。主题分析是基于对患者的半结构化访谈(n=18)进行的,亲戚,临床医生,和同行支持工作者。
    结果:研究结果表明,同龄人通过分享自己的困难以及如何克服这些困难来与患者建立联系,而不是分享类似的健康或社会条件。同行提供超出护理轨迹的社会支持和指导,并将确定的需求与社区中的可用资源联系起来。弥合健康与社会保健之间的差距。初级保健临床医生受益于同伴支持工作,因为它有助于克服治疗上的障碍,并促进患者需求的沟通。然而,由于临床医生对同伴支持工作的性质和局限性的理解,将同伴纳入初级保健团队可能具有挑战性,经济补偿,以及在医疗保健系统中缺乏正式地位。
    结论:我们的结果表明,要建立信任关系,同龄人不需要分享类似的健康或社会条件。相反,他们利用他们的经验知识,优势,以及建立有意义的关系和可靠联系的能力,弥合健康和社会护理之间的差距。这个,反过来,给病人灌输对美好生活的希望,使他们能够在自己的照顾中发挥积极作用,并帮助他们实现医疗保健以外的生活目标。最后,将同龄人融入初级保健有助于克服预防和护理的障碍,减少对机构的不信任,优先考虑需求,并帮助患者驾驭复杂的医疗服务。
    BACKGROUND: Peer support has been extensively studied in specific areas of community-based primary care such as mental health, substance use, HIV, homelessness, and Indigenous health. These programs are often built on the assumption that peers must share similar social identities or lived experiences of disease to be effective. However, it remains unclear how peers can be integrated in general primary care setting that serves people with a diversity of health conditions and social backgrounds.
    METHODS: A participatory qualitative study was conducted between 2020 and 2022 to explore the feasibility, acceptability, and perceived effects of the integration of a peer support worker in a primary care setting in Montreal, Canada. A thematic analysis was performed based on semi-structured interviews (n = 18) with patients, relatives, clinicians, and a peer support worker.
    RESULTS: Findings show that peers connect with patients through sharing their own hardships and how they overcame them, rather than sharing similar health or social conditions. Peers provide social support and coaching beyond the care trajectory and link identified needs with available resources in the community, bridging the gap between health and social care. Primary care clinicians benefit from peer support work, as it helps overcome therapeutic impasses and facilitates communication of patient needs. However, integrating a peer into a primary care team can be challenging due to clinicians\' understanding of the nature and limits of peer support work, financial compensation, and the absence of a formal status within healthcare system.
    CONCLUSIONS: Our results show that to establish a relationship of trust, a peer does not need to share similar health or social conditions. Instead, they leverage their experiential knowledge, strengths, and abilities to create meaningful relationships and reliable connections that bridge the gap between health and social care. This, in turn, instills patients with hope for a better life, empowers them to take an active role in their own care, and helps them achieve life goals beyond healthcare. Finally, integrating peers in primary care contributes in overcoming obstacles to prevention and care, reduce distrust of institutions, prioritize needs, and help patients navigate the complexities of healthcare services.
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