Patient rights

患者权利
  • 文章类型: Journal Article
    背景:卫生工作者的道德行为是卫生服务的重要组成部分。本研究的目的是确定道德与专业承诺之间的关系及其与医学生对患者权利的尊重程度的关系。
    方法:在护理参与下进行了一项横断面描述性研究,伊兰医科大学的助产和急诊医学学生。采用分层随机方法抽样。数据是使用人口统计收集的,专业承诺,职业道德和一名研究人员就患者权利问卷的遵守情况提出了提问者。
    结果:300名学生参加。结果显示,中学生职业道德平均得分较高(64.07±8.01),专业承诺的平均得分也很高(64.07±8.01),尊重患者权利的得分也很高(10.74).获得±83.46)。职业道德评分与患者维权依从性评分呈正相关,具有统计学意义。只有专业承诺与性别有关,但所有三个变量在不同年龄段和居住类型(宿舍,私人住宅,等。)具有有意义的统计差异。
    结论:研究结果表明,护理中的道德和专业承诺以及对患者权利的尊重水平,助产和急诊医学的学生都很好。希望这项研究的结果将为更好地规划学生的知识发展和尊重患者权利提供基础。
    BACKGROUND: Ethical behavior of health workers is an important part of health services. The aim of the present study was to determine the relationship between ethics and professional commitment and its relationship with the level of respect for patient rights in medical students.
    METHODS: A cross-sectional descriptive study was conducted with the participation of nursing, midwifery and emergency medicine students of Ilam University of Medical Sciences. Sampling was done by stratified random method. The data was collected using Demographic, Professional Commitment, Professional ethics and a researcher made questioner on compliance with patient rights questionnaires.
    RESULTS: 300 students were participated. The results showed that the average score of professional ethics in middle school students is high (64.07 ± 8.01), the average score of professional commitment is also high (64.07 ± 8.01) and the score of respect for patient rights is also high (10.74). ± 83.46) was obtained. The professional ethics score it showed a positive and statistically significant relationship with the patient\'s rights compliance score. only professional commitment is related to gender, but the average of all three variables in different age groups and the type of residence (dormitory, private home, etc.) have meaningful statistical difference.
    CONCLUSIONS: The findings of the study show that the level of ethics and professional commitment and respect for patient rights among nursing, midwifery and emergency medicine students was good. It is hoped that the results of this research will provide a basis for better planning for the development of knowledge and respect for patient rights among students.
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  • 文章类型: Journal Article
    背景:医院,作为医疗保健服务提供的核心要素之一,应该为更有效地遵守《患者权利宪章》(PRC)铺平道路。COVID-19大流行影响了医疗保健提供者和患者之间的相互作用。本研究旨在从COVID-19大流行期间外科病房住院患者的角度探讨PRC的重要性和做法。
    方法:这项横断面研究的参与者是355名在克尔曼南部伊玛目霍梅尼医院接受手术的患者,伊朗,2021年。通过方便采样收集数据。本研究中的数据是使用患者权利的理由和实践(JPPR)收集的。使用Kruskal-Wallis用SPSS-16软件进行数据分析,Wilcoxon,和斯皮尔曼相关测试。
    结果:患者权利证明(PR)的总平均得分为69.12±58.44,明显高于PR实践的总平均得分为(61.02±1.32)(p<0.001)。此外,所有PR理由维度的平均得分均显著高于PR实践的平均得分(p<0.05).PR理由的维度比较显示,服务促进得分最高,处理患者投诉得分最低。此外,对PR实践维度的分析表明,处理患者投诉得分最低,其他维度得分相同.
    结论:这项研究的结果表明,尽管从患者的角度来看,PR非常重要,公关仍未得到最佳实践。这项研究的结果可能具有一些临床意义,并帮助医院管理人员采取措施,通过员工培训和制定强有力的政策来更好地适应中国,尤其是为处理患者投诉铺平道路。
    BACKGROUND: Hospitals, as one of the core elements of healthcare service delivery, should pave the way for more efficient compliance with the Patient Rights Charter (PRC). The COVID-19 pandemic affected the interactions between healthcare providers and patients. The present study aimed to investigate the importance and practice of PRC from the perspective of hospitalized patients in surgical wards during the COVID-19 pandemic.
    METHODS: The participants in this cross-sectional study were 355 patients who underwent surgery at Imam Khomeini Hospital in southern Kerman, Iran, in 2021. Data was collected by convenience sampling. The data in this study were collected using Justification and Practice of Patient Rights (JPPR). Data analysis was performed with SPSS-16 software using the Kruskal-Wallis, Wilcoxon, and Spearman correlation tests.
    RESULTS: The total mean score for the justification of patient rights (PR) was 69.12 ± 58.44, which was significantly higher than the total mean score of PR practice (61.02 ± 1.32) (p < 0.001). In addition, the mean scores for all PR justification dimensions were significantly higher than the mean scores for PR practice (p < 0.05). A comparison of the dimensions of the PR justification showed service facilitation had the highest score and handling patient complaints had the lowest score. Furthermore, an analysis of the dimensions of PR practice indicated that handling patient complaints had the lowest score and other dimensions had the same score.
    CONCLUSIONS: The results of this study showed that despite the great importance of PR from the patients\' perspective, PR is not still practiced optimally. The findings from this study can have some clinical implications and help hospital managers to take measures to better adapt to the PRC with staff training and developing a strong policy to comply with the PRC, especially by paving the way for handling patient complaints.
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  • 文章类型: Journal Article
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  • 文章类型: Journal Article
    背景:儿童是一个独特的弱势患者群体,自我倡导和自主能力受到限制,冒着侵犯他们尊严的风险。然而,相对于成人文学和其他结果指标,儿科中的尊严概念仍未得到充分探索。
    目的:为了描述尊严是如何定义的,评估,和/或在儿科测量。
    方法:我们在以下数据库中遵循PRISMA指南进行了系统综述:MEDLINE,Embase,护理和相关健康的累积指数,PsycINFO,全球卫生,社会科学高级收藏,和论文和论文。我们包括从数据库开始到2023年4月的出版物,英文,涉及0-18岁的儿童,把尊严作为一个中心主题,重点是定义,评估,或衡量尊严。使用预定义的形式提取和合成研究描述和相关特征。
    结果:44篇文章符合纳入标准;不到一半包含原始研究(20/44,45%)。大多数研究(38/44,86%)包括对尊严含义的描述,随着围绕尊重的突出主题的出现,通信,代理/自治,和隐私。不到一半(19/44,43%)包括尊严的测量或评估;大约三分之一描述了尊严疗法。超过三分之一的出版物侧重于生命终结时的尊严(17/44,39%),并包括姑息治疗和临终关怀的讨论(15/44,34%)。
    结论:关于儿科尊严的研究相对较少。与患者合作,有机会扩大有关该主题的奖学金,家庭,和临床医生,目的是评估和加强整个疾病过程和生命终点以尊严为中心的护理。
    BACKGROUND: Children are a uniquely vulnerable patient population with restricted abilities for self-advocacy and autonomy, risking infringement upon their dignity. Yet the concept of dignity in pediatrics remains underexplored relative to the adult literature and other outcome measures.
    OBJECTIVE: To characterize how dignity is defined, evaluated, and/or measured in pediatrics.
    METHODS: We conducted a systematic review following PRISMA guidelines across the following databases: MEDLINE, Embase, Cumulative Index of Nursing and Allied Health, PsycINFO, Global Health, Social Science Premium Collection, and Dissertation and Theses. We included publications from database inception through April 2023, in English, involving children aged 0-18 years, and prioritizing dignity as a central theme with a focus on defining, evaluating, or measuring dignity. Study descriptions and pertinent characteristics were extracted and synthesized using a predefined form.
    RESULTS: Forty-four articles met inclusion criteria; fewer than half comprised original research (20/44, 45%). Most studies (38/44, 86%) included description of the meaning of dignity, with emergence of salient themes around respect, communication, agency/autonomy, and privacy. Less than half (19/44, 43%) included a measurement or evaluation of dignity; approximately one-third described dignity therapy. More than one-third of publications focused on dignity at end of life (17/44, 39%) and included discussions of palliative medicine and hospice (15/44, 34%).
    CONCLUSIONS: Relatively few published studies describe dignity in pediatrics. Opportunities exist to broaden scholarship on this topic in partnership with patients, families, and clinicians, with the goal of assessing and strengthening dignity-centered care across the illness course and at the end of life.
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  • 文章类型: Journal Article
    背景:在德国和国际研究网络中,应用了关于患者同意的不同方法。到目前为止,找出来自这些网络的数据可以在多大程度上用于特定的研究项目是耗时的。为了使同意书的内容可查询,我们的目标是基于权限的方法(选择加入),可以映射许可和撤回同意内容,并使其可查询超出项目边界。
    方法:从方法和可重用性方面分析了研究的现状。在下一步中抽象了用于定义同意策略的选定过程模型。在此基础上,制定了用于描述同意政策的标准化语义术语,并最初与专家达成了共识。在最后一步,对产生的代码进行了不同方面的适用性评估。
    结果:基于3轴的语义同意代码(SCC)的第一个可扩展版本(CLASS,ACTION,目的)被开发,合并并出版。以大型国家研究协会(医学信息学计划和NUMNAPKON/NUKLEUS)的真实同意为例,说明了SCC实现的附加值。根据经过简短培训的人员对同意进行手动语义映射以及根据SCC对同意策略的自动可解释性,成功地评估了SCC的适用性(反之亦然)。此外,提出了在异构研究场景中使用SCC简化同意书查询的概念.
    结论:语义同意代码已经成功地进行了初步评估。由于已发布的3轴代码,SCC是标准化最初不同的同意文本和内容的基本初步工作,并且可以在内容和技术添加方面以多种方式迭代扩展。它应该与潜在用户社区合作扩展。
    BACKGROUND: In German and international research networks different approaches concerning patient consent are applied. So far it is time-consuming to find out to what extent data from these networks can be used for a specific research project. To make the contents of the consents queryable, we aimed for a permission-based approach (Opt-In) that can map both the permission and the withdrawal of consent contents as well as make it queryable beyond project boundaries.
    METHODS: The current state of research was analysed in terms of approach and reusability. Selected process models for defining consent policies were abstracted in a next step. On this basis, a standardised semantic terminology for the description of consent policies was developed and initially agreed with experts. In a final step, the resulting code was evaluated with regards to different aspects of applicability.
    RESULTS: A first and extendable version for a Semantic Consent Code (SCC) based on 3-axis (CLASS, ACTION, PURPOSE) was developed, consolidated und published. The added value achieved by the SCC was illustrated using the example of real consents from large national research associations (Medical Informatics Initiative and NUM NAPKON/NUKLEUS). The applicability of the SCC was successfully evaluated in terms of the manual semantic mapping of consents by briefly trained personnel and the automated interpretability of consent policies according to the SCC (and vice versa). In addition, a concept for the use of the SCC to simplify consent queries in heterogeneous research scenarios was presented.
    CONCLUSIONS: The Semantic Consent Code has already successfully undergone initial evaluations. As the published 3-axis code SCC is an essential preliminary work to standardising initially diverse consent texts and contents and can iteratively be extended in multiple ways in terms of content and technical additions. It should be extended in cooperation with the potential user community.
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    文章类型: Journal Article
    远程医疗,定义为使用信息和通信技术远程提供医疗保健服务的做法,提出了过多的伦理考虑。随着远程医疗的发展,它的道德维度在平衡先进技术的利益方面发挥着越来越重要的作用,确保远程医疗环境中负责任的医疗保健实践,维护患者权利。医疗保健提供者,病人,政策制定者,参与远程医疗的技术开发人员遇到了许多需要解决的道德挑战。关键的道德主题包括优先保护患者权利和隐私,这需要确保公平获得远程医疗服务,并在虚拟环境中维护医患关系。其他重点领域包括数据安全问题和医疗保健交付质量,强调在数字领域坚持道德标准的重要性。对这些道德层面的严格审查强调了建立具有约束力的道德准则和法律法规的必要性。这些措施可以帮助利益攸关方制定有效的战略和方法,以适应复杂的远程医疗环境,确保遵守最高的道德标准并促进患者福利。远程医疗伦理的平衡方法应将远程医疗的好处与积极措施相结合,以应对新出现的伦理挑战,并应建立在精心准备和受人尊敬的伦理框架中。
    Telemedicine, defined as the practice of delivering healthcare services remotely using information and communications technologies, raises a plethora of ethical considerations. As telemedicine evolves, its ethical dimensions play an increasingly pivotal role in balancing the benefits of advanced technologies, ensuring responsible healthcare practices within telemedicine environments, and safeguarding patient rights. Healthcare providers, patients, policymakers, and technology developers involved in telemedicine encounter numerous ethical challenges that need to be addressed. Key ethical topics include prioritizing the protection of patient rights and privacy, which entails ensuring equitable access to remote healthcare services and maintaining the doctor-patient relationship in virtual settings. Additional areas of focus encompass data security concerns and the quality of healthcare delivery, underscoring the importance of upholding ethical standards in the digital realm. A critical examination of these ethical dimensions highlights the necessity of establishing binding ethical guidelines and legal regulations. These measures could assist stakeholders in formulating effective strategies and methodologies to navigate the complex telemedicine landscape, ensuring adherence to the highest ethical standards and promoting patient welfare. A balanced approach to telemedicine ethics should integrate the benefits of telemedicine with proactive measures to address emerging ethical challenges and should be grounded in a well-prepared and respected ethical framework.
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  • 文章类型: Journal Article
    剖腹产的要求,我们最近遇到了越来越多的请求。这可以解释为根据母亲的要求进行的初次剖腹产,而没有任何相关的产科或其他医学适应症,以避免阴道分娩。母亲要求剖腹产的最常见原因是害怕分娩和相关的疼痛。目前,医学承认患者积极参与选择治疗程序的权利,包括交货方法。我们已经接受了患者对各种美容手术干预的要求,如果他们提供知情同意。应要求剖腹产应保持相同的原则。
    Caesarean section on request, a request that we have been encountering more and more recently. This can be interpreted as a primary caesarean section performed as a request of the mother without any relevant obstetrical or other medical indications in order to avoid vaginal delivery. The most common reason for mothers\' requests for caesarean section is the fear of childbirth and the associated pain. Currently, medicine recognises the patient\'s right to actively participate in the choice of treatment procedures, including methods of delivery. We have accepted patients\' claim for various aesthetic surgical interventions, in case they provide informed consent. The same principle should be maintained for caesarean sections on request.
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  • 文章类型: Journal Article
    The purpose of this paper is to delve into the ethical aspects experienced by the healthcare team when they receive the directive to limit therapeutic effort or a do-not-resuscitate order. From an interpretative, qualitative paradigm with a content analysis approach, a process based on three phases was conducted: pre-analysis in which categories were identified, the projection of the analysis, and inductive analysis. During 2023, interviews were conducted in the clinical setting of a high-complexity hospital in Chile with 56 members of the healthcare teams from critical and emergency units, from which four categories emerged: a) the risk of violating patients\' rights by using do-not-resuscitate orders and limiting therapeutic effort; b) the gap in the interpretation of the legal framework addressing the care and attention of patients at the end of life or with terminal illnesses by the healthcare team; c) ethical conflicts in end-of-life care; and d) efficient care versus holistic care in patients with terminal illness. There are significant gaps in bioethics training and aspects of a good death in healthcare teams facing the directive to limit therapeutic effort and not resuscitate. It is suggested to train personnel and work on a consensus guide to address the ethical aspects of a good death.
    El propósito de este trabajo es profundizar en los aspectos éticos que experimenta el equipo de salud cuando reciben la indicación de limitar el esfuerzo terapéutico o la orden de no reanimar. Desde un paradigma interpretativo, cualitativo y con un enfoque de análisis de contenido, se realizó un proceso basado en tres fases: preanálisis en el que se identificaron las categorías, la proyección del análisis y el análisis inductivo. Durante 2023, se realizaron entrevistas en el entorno clínico de un hospital de alta complejidad en Chile a 56 miembros de equipos de salud de unidades críticas y urgencias, de las que emergieron cuatro categorías: a) riesgo de vulnerar los derechos de los pacientes al utilizar la orden de no reanimar, y limitación del esfuerzo terapéutico; b) brecha en la interpretación del marco legal que aborda la atención y cuidado de pacientes al final de la vida, o con enfermedades terminales por parte del equipo de salud; c) conflictos éticos de la atención al final de la vida; y d) el cuidado eficiente o el cuidado holístico en pacientes con enfermedad terminal. Existen brechas importantes en la formación en bioética y aspectos del buen morir en los equipos de salud que se enfrentan a la orden de limitar el esfuerzo terapéutico y no reanimar. Se sugiere capacitar al personal, y trabajar una guía de consenso para abordar los aspectos éticos del buen morir.
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    文章类型: Journal Article
    《荷兰患者权利法》要求医生将所有形式的治疗记录在有关患者的医疗档案中。一旦病人死亡,这项义务就结束了。死者的家属是否有权查阅医疗档案?当家属质疑死者的能力时,这个问题经常出现,尤其是当后者在死亡前改变了它的意志。根据《患者权利法》,亲属访问死者的医疗档案仅限于三种情况。在这些情况下,治疗医师需要提供访问。家庭成员无权要求主治医师回顾性报告死者的能力。家庭成员只能要求独立医生就死者的能力提出建议。
    The Dutch Act on Patients Rights requires that physicians record all forms of treatment in the medical file of the patient concerned. This obligation ends once the patient dies. Do family members of the deceased patient then have the right to consult the medical file? This question regularly emerges when family members question the competence of a deceased person, notably when the latter before its death changed its will. According to the Act on Patients Rights access to the medical file of a deceased person by relatives is restricted to three situations. In these cases the treating physicians is required to provide access. Family members do not have the right to require the treating physician to retrospectively report on the competence of the deceased person. Family members can only ask an independent physician to advice on the competence of the deceased individual.
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  • 文章类型: Journal Article
    背景:承认患者权利是基本人权,全球医疗保健界,包括世界卫生组织和各种护理组织,强调了护士在通过道德实践和以患者为中心的护理维护这些权利方面的关键作用。然而,在复杂的医疗保健环境中,越南的护士面临各种道德问题和挑战,可能会阻碍他们有效保护患者权利的能力,需要更好的道德决策和实践工具。
    目的:本研究旨在将护士保护患者权利的道德行为量表(NEBPPR)翻译成越南语,并评估V-NEBPPRS的有效性和可靠性。
    方法:原始量表经历了跨文化翻译过程,以适应越南语。使用验证性因子分析(CFA)评估结构效度。收敛有效性,判别效度,并对V-NEBPPRS的可靠性进行了评估。
    结果:删除因子载荷低于0.5的四个项目后,V-NEBPPRS包含24个项目,分为五个因子。CFA模型拟合良好(χ2/df=2.86;GFI=0.87;FI=0.85;CFI=0.84;RMSEA=0.07)。收敛和判别效度得到证实,提取的平均方差为0.54至0.67,0.54至0.67,综合信度为0.73至0.81。Cronbach的α系数在总量表中为0.85,在五个子量表中为0.70至0.79。
    结论:V-NEBPPRS是一种可靠的工具,为护理领导者和研究人员提供利用V-NEBPPRS评估和促进护士维护患者权利的意识和行为的手段,从而有助于改善整体健康结果。
    BACKGROUND: Recognizing patients\' rights as fundamental human rights, the global healthcare community, including the World Health Organization and various nursing organizations, has emphasized the critical role of nurses in upholding these rights through ethical practice and patient-centered care. However, in the complex landscape of healthcare, nurses in Vietnam face various ethical issues and challenges that may impede their ability to protect patient rights effectively, necessitating tools for better ethical decision-making and practice.
    OBJECTIVE: This study aims to translate the Nurses\' Ethical Behaviours for Protecting Patient Rights Scale (NEBPPR) into Vietnamese and evaluate the validity and reliability of the V-NEBPPRS.
    METHODS: The original scale underwent a cross-cultural translation process to be adapted into Vietnamese. Construct validity was assessed using confirmatory factor analysis (CFA). The convergent validity, discriminant validity, and reliability of the V-NEBPPRS were evaluated.
    RESULTS: After removing four items with factor loading below 0.5, the V-NEBPPRS comprises 24 items divided into five factors. CFA demonstrated a good model fit (χ2/df = 2.86; GFI = 0.87; IFI = 0.85; CFI = 0.84; RMSEA = 0.07). Convergent and discriminant validity were confirmed with extracted mean variance ranging from 0.54 to 0.67, 0.54 to 0.67, and composite reliability from 0.73 to 0.81. Cronbach\'s α coefficient was 0.85 for the total scale and ranged from 0.70 to 0.79 for five subscales.
    CONCLUSIONS: The V-NEBPPRS is a reliable tool, providing nursing leaders and researchers with the means to utilize the V-NEBPPRS for assessing and promoting nurses\' awareness and behaviour in safeguarding patients\' rights, thereby contributing to improved overall health outcomes.
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