■初步证据表明气功(QG),身心疗法,可能有助于解决多发性硬化症(MS)的症状,但QG内容和交付的异质性可能会影响其可行性,可接受性,和功效。
■要调查研究人员,临床医生,具有与MS人员合作经验的QG讲师,以确定特定于MS的QG指南和协议的关键组成部分。
■我们进行了一项在线调查,以确定被认为对MS有帮助的QG表格和动作,选择的原因,有效学习环境的特点,和推荐的剂量和频率的做法。使用汇总统计学分析定量数据。定性数据采用反身性主题分析。
■47位专家,包括QG教练,临床医生,以及QG和MS研究人员,完成了调查。受访者平均(SD)有20(11)年的QG教学经验,26(12)年的临床实践,24(9)年的QG研究经验,13(5)年的MS研究经验,并与至少3(2)名女士一起工作。建议使用大约125个QG表格/动作。特别建议使用一些表格来解决MS症状(例如,情绪调节,平衡与协调,肌肉力量和灵活性,免疫调节,和流通)。一些受访者认为,如果满足基本原则,任何QG形式都可能是有益的(例如,有意运动,姿势,专注的意识,有节奏的呼吸/运动,和放松的身心)。教师素质包括清晰传达信息的能力,关心和富有同情心,精通QG,具有MS的基本知识为了促进学习QG的信心,建议包括有简单的,易于学习的运动与基于身体能力的修改。我们根据这些建议提供了示例协议。
■本研究为开发MS人群的QG协议提供了专家指导,包括内容和交付建议。
UNASSIGNED: Preliminary evidence suggests that Qigong (QG), a mind-body therapy, may help address symptoms of multiple sclerosis (MS), but the heterogeneity of QG content and delivery may affect its feasibility, acceptability, and efficacy.
UNASSIGNED: To survey researchers, clinicians, and QG instructors with experience working with people with MS to identify key components of MS-specific QG guidelines and protocols.
UNASSIGNED: We conducted an online survey to identify QG forms and movements considered helpful for MS, reasons for selection, characteristics of effective learning environments, and recommended dosage and frequency of practice. Quantitative data were analyzed using summary statistics. Qualitative data were analyzed using reflexive thematic analysis.
UNASSIGNED: Forty-seven experts, including QG instructors, clinicians, and QG and MS researchers, completed the survey. Respondents had a mean (SD) of 20 (11) years of QG teaching experience, 26 (12) years of clinical practice, 24 (9) years of QG research experience, 13 (5) years of MS research experience, and worked with at least 3 (2) people with MS. Approximately 125 QG forms/movements were recommended. Some forms were specifically recommended to address MS symptoms (e.g., emotional regulation, balance and coordination, muscle strength and flexibility, immune regulation, and circulation). Some respondents felt that any QG form could be beneficial if basic principles were met (e.g., intentional movement, posture, focused awareness, rhythmic breathing/movement, and a relaxed mind and body). Instructor qualities included the ability to convey information clearly, being caring and compassionate, proficient in QG, and having basic knowledge of MS. To promote confidence in learning QG, recommendations included having simple, easy-to-learn movements with modifications based on physical ability. We provide a sample protocol based on these recommendations.
UNASSIGNED: This study provides expert guidance for developing a QG protocol for an MS population, including content and delivery recommendations.