■女性生殖健康被认为是发病率的预测因子,死亡率,和生活质量,尽管慢性肾脏病(CKD)的数据有限。
■采用混合方法研究。第一阶段是匿名的,基于互联网的调查。第二阶段是在调查完成时向所有受访者提供的半结构化访谈。
■该调查于2021年10月4日至2022年1月7日在国际上传播给18-50岁同时诊断为子宫和CKD的个体。
■CKD阶段的月经健康和避孕药具使用(透析,非透析CKD,和移植)。
■使用描述性统计分析调查数据。采用框架分析法对访谈数据进行分析。
■在152名受访者中,98(平均年龄33±0.7岁;n=20透析,n=59非透析CKD,n=19移植)满足纳入标准,代表三大洲。调查受访者中最常见的CKD原因是透析中的遗传性原因(n=6,30%)和非透析CKD中的肾小球肾炎(n=22,37%)和移植(n=6,32%)。大多数报告月经大量出血(n=12,86%透析;n=46,94%非透析CKD;n=14,100%移植)。不到一半的参与者始终能够负担得起周期产品。据报道,避孕套是最常见的避孕药。大多数参与者报告没有使用避孕药具(n=10,50%透析;n=37,63%非透析CKD;n=7,37%移植),主要是因为“恐惧”。访谈(n=6)揭示了肾功能与月经健康之间的关系,对避孕药具使用的担忧,以及对更多多学科护理以改善肾脏和生殖健康的愿望。
■自我报告的结果,需要互联网接入和设备。
■月经异常和经期贫困(即,买不起经期产品和月经的社会经济后果)很常见,女性CKD患者的避孕药具使用率较低,强调了这一人群在性别特定护理方面的重要差距。
■女性的慢性肾脏病(CKD)伴有月经紊乱和低避孕药使用。然而,大多数数据仅限于透析和移植人群。因此,这项混合方法研究旨在描述CKD各个阶段自我评估的月经和避孕药使用情况.18-50岁患有子宫和CKD诊断的人被邀请参加国际共享的在线调查以及可选的电话采访。月经异常和经期贫困(即,买不起经期产品和月经的社会经济后果)很常见,女性CKD患者的避孕药具使用率较低,强调了这一人群在性别特定护理方面的重要差距。
UNASSIGNED: Female reproductive health is recognized as a predictor of morbidity, mortality, and quality of life, although data in the setting of chronic kidney disease (CKD) are limited.
UNASSIGNED: A mixed-methods study was employed. Phase 1 was an anonymous, internet-based survey. Phase 2 was semistructured interviews offered to all respondents upon survey completion.
UNASSIGNED: The survey was disseminated internationally from October 4, 2021, to January 7, 2022, to individuals aged 18-50 years with both a uterus and CKD diagnosis.
UNASSIGNED: Menstrual health and contraceptive use by CKD stage (dialysis, nondialysis CKD, and transplant).
UNASSIGNED: Survey data were analyzed using descriptive statistics. Interview data were analyzed using the framework method of analysis.
UNASSIGNED: Of 152 respondents, 98 (mean age 33 ± 0.7 years; n = 20 dialysis, n = 59 nondialysis CKD, n = 19 transplant) satisfied the inclusion criteria, representing 3 continents. The most common causes of CKD among survey respondents were hereditary causes in dialysis (n = 6, 30%) and glomerulonephritis in nondialysis CKD (n = 22, 37%) and transplant (n = 6, 32%). The majority reported heavy menstrual bleeding (n = 12, 86% dialysis; n = 46, 94% nondialysis CKD; n = 14, 100% transplant). Less than half of participants were consistently able to afford period products. Condoms were the most common contraceptive reported. Most participants reported no contraceptive use (n = 10, 50% dialysis; n = 37, 63% nondialysis CKD; n = 7, 37% transplant), primarily because of \"fear\". Interviews (n = 6) revealed a perception of a relationship between kidney function and menstrual health, concerns about contraceptive use, and a desire for greater multidisciplinary care to improve kidney and reproductive health.
UNASSIGNED: Self-reported outcomes, need for internet access and a device.
UNASSIGNED: Abnormal menstruation and period poverty (ie, inability to afford period products and the socioeconomic consequences of menstruation) were common, and contraceptive use was low among female individuals with CKD, highlighting an important gap in the sex-specific care of this population.
UNASSIGNED: Chronic kidney disease (CKD) in female individuals is accompanied by menstrual disorders and low contraceptive use. However, most data are limited to the dialysis and transplant populations. Therefore, this mixed-methods study aimed to describe self-assessed menstruation and contraceptive use across all stages of CKD. People aged 18-50 years with a uterus and CKD diagnosis were invited to participate in an online survey shared internationally as well as an optional telephone interview. Abnormal menstruation and period poverty (ie, inability to afford period products and the socioeconomic consequences of menstruation) were common, and contraceptive use was low among female individuals with CKD, highlighting an important gap in the sex-specific care of this population.