Elizabeth Barnes

  • 文章类型: Journal Article
    残疾研究中的一个关键问题,哲学,生物伦理学关注残疾和幸福之间的关系。仅仅是不同的观点,由伊丽莎白·巴恩斯(ElizabethBarnes)认可,声称身体和感官残疾本身并不会使一个人的整体状况恶化-对福利的任何负面影响都是由于社会不公正造成的。本文认为,巴恩斯的价值中立模型并没有扩展到智力残疾。智力残疾(1)本质上是不好的——它本身会让一个人的境况变得更糟,除了不适应的环境;(2)普遍糟糕-它降低了每个智力残疾人的生活质量;(3)全球糟糕-它降低了一个人的整体幸福感。虽然智障人士在功能上处于不利地位,这并不意味着他们在道德上低劣——生活质量较低并不意味着道德地位较低。没有关于基于残疾的选择性流产的临床意义,拒绝挽救生命的治疗,或稀缺资源的配给源于智力残疾是不好的差异。
    A key question in disability studies, philosophy, and bioethics concerns the relationship between disability and well-being. The mere difference view, endorsed by Elizabeth Barnes, claims that physical and sensory disabilities by themselves do not make a person worse off overall-any negative impacts on welfare are due to social injustice. This article argues that Barnes\'s Value Neutral Model does not extend to intellectual disability. Intellectual disability is (1) intrinsically bad-by itself it makes a person worse off, apart from a non-accommodating environment; (2) universally bad-it lowers quality of life for every intellectually disabled person; and (3) globally bad-it reduces a person\'s overall well-being. While people with intellectual disabilities are functionally disadvantaged, this does not imply that they are morally inferior-lower quality of life does not mean lesser moral status. No clinical implications concerning disability-based selective abortion, denial of life-saving treatment, or rationing of scarce resources follow from the claim that intellectual disability is bad difference.
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  • 文章类型: Journal Article
    As reproductive genetic technologies advance, families have more options to choose what sort of child they want to have. Using preimplantation genetic diagnosis (PGD), for example, allows parents to evaluate several existing embryos before selecting which to implant via in vitro fertilization (IVF). One of the traits PGD can identify is genetic deafness, and hearing embryos are now preferentially selected around the globe using this method. Importantly, some Deaf families desire a deaf child, and PGD-IVF is also an option for them. Selection for genetic deafness, however, encounters widespread disapproval in the hearing community, including mainstream philosophy and bioethics. In this paper I apply Elizabeth Barnes\' value-neutral model of disability as mere-difference to the case of selecting for deafness. I draw on evidence from Deaf Studies and Disability Studies to build an understanding of deafness, the Deaf community, and the circumstances relevant to reproductive choices that may obtain for some Deaf families. Selection for deafness, with deafness understood as mere-difference and valued for its cultural identity, need not necessitate impermissible moral harms. I thus advocate that it is sometimes morally permissible to select for deafness in one\'s child.
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