Disabled Children

残疾儿童
  • 文章类型: Journal Article
    本文重点介绍了印度对假肢和矫形服务的需求,以通过早期识别和干预来提高残疾儿童的生活质量。早期干预是对0-6岁发育迟缓和残疾儿童的最早识别和综合服务和支持,以提高他们适应社会的能力。实际的早期干预可延迟或防止未来的并发症,并为儿童的功能性成人生活做好准备。它可能会对不同能力的人及其家庭成员的生活质量产生积极影响,他们可以过积极的个人和社交生活。此外,这些干预措施促进不同能力的人及其父母的福祉和尊严,这可能会导致国民经济的进步。印度的政府和私人机构需要在合格专业人员的领导下进行假肢和矫形康复设施。
    The article focuses on the need for prosthetic and orthotic services in India to improve the quality of life of children with disabilities through early identification and intervention. Early intervention is the earliest identification and comprehensive service and support for children with developmental delays and disabilities ranging from 0 to 6 years to improve their ability to adapt to society. A practical early intervention delays or prevents future complications and prepares the child for functional adult life. It may positively affect the quality of life of the differently abled and their family members, and they can lead an active personal and social life. Also, such interventions promote the well-being and dignity of the differently abled and their parents, which may result in national economic progress. Prosthetic and orthotic rehabilitation facilities under the leadership of qualified professionals are needed in India\'s government and private setups.
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  • 文章类型: Journal Article
    The aim of this study was to identify factors associated with early identification of disabilities and developmental follow-up of children in primary health care (PHC) services under the Care Network for People with Disabilities (RCPCD). We conducted a cross-sectional study using data from a multicenter study undertaken in eight states. The data were collected using a structured questionnaire answered by PHC professionals with degree-level qualifications selected using random sampling and stratified by state and municipality. Poisson regression with robust variance was performed for the two outcomes. Of the 1,488 workers in the final sample, 63.6% performed early identification of disabilities and 49% provided developmental follow-up. Family health teams performed early identification of disabilities and follow-up more than traditional model teams, and expanded family health teams provided developmental follow-up more than both these teams. The factors that showed the strongest association with identification and developmental follow-up were profession, working in a family health team and knowledge of the RCPCD.
    Objetivou-se identificar fatores associados à atenção à saúde infantil na atenção primária à saúde (APS), na perspectiva das ações preconizadas pela Rede de Cuidados à Pessoa Deficiência (RCPCD), quanto à identificação precoce de deficiências e acompanhamento do desenvolvimento infantil. Trata-se de estudo transversal, multicêntrico, realizado em oito estados brasileiros. A coleta de dados envolveu a aplicação de questionário estruturado com profissionais de saúde de nível superior atuantes na APS, com amostra aleatória estratificada por estado e município. Foram realizadas regressões de Poisson com variância robusta para duas variáveis resposta. Entre os 1.488 trabalhadores que compuseram a amostra final, 63,6% realizam ações de identificação precoce de deficiências e 49% efetuam acompanhamento do desenvolvimento infantil. As equipes de Saúde da Família (eSF) identificam e acompanham mais do que as equipes do modelo tradicional, e os Núcleos Ampliados de Saúde da Família e Atenção Básica realizam mais ações de acompanhamento do que essas equipes. Conclui-se que os fatores mais associados com a identificação e o acompanhamento de crianças com deficiências na APS foram aqueles relativos à formação profissional, à eSF e ao conhecimento de normativas relativas à RCPCD.
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  • 文章类型: Journal Article
    儿童保育中心(CC)可以通过健康促进干预措施提供实施体育锻炼(PA)的机会,以预防幼儿肥胖和相关的慢性疾病风险因素。这项研究评估了健康照顾者健康儿童(HC2)干预对一个学年为残疾儿童(CWD)的CCC中体重指数百分位数(PBMI)和PA环境的影响。十个CCC被分组随机分配到(1)接受适用于CWD的HC2课程的干预组或(2)注意力控制组。混合效应线性回归模型通过实验条件和一个学年的儿童残疾状况分析了儿童PBMI变化与CCC儿童保育中心PA环境之间的关系。研究结果表明,在一个学年中,HC2中心的儿童(-6.74,p=0.007)与控制中心的儿童(-1.35,p=0.74)的PBMI显着降低。在同一时期,干预中心显示PA工作人员行为增加(平均变化3.66,p<0.001)和PA政策增加(平均变化6.12,p<0.001)。相反,控制中心的久坐机会显著增加(平均变化4.45,p<0.001),便携式游戏环境(平均变化-3.16,p=0.03)和固定游戏环境(平均变化-2.59,p=0.04)减少.无残疾儿童和无残疾儿童之间的体重指数变化无显著差异(β=1.62,95%CI[-7.52,10.76],p=0.73),这表明干预措施的疗效并没有因残疾状况而不同。这些结果强调了(1)包括年轻的CWD和(2)PA以及支持环境在CCC健康促进和肥胖预防干预措施中的重要性。
    Childcare centers (CCCs) can provide opportunities to implement physical activity (PA) via health promotion interventions to prevent obesity and associated chronic disease risk factors in young children. This study evaluated the impact of the Healthy Caregivers-Healthy Children (HC2) intervention on body mass index percentile (PBMI) and the PA environment in CCCs serving children with disabilities (CWD) over one school year. Ten CCCs were cluster-randomized to either (1) an intervention arm that received the HC2 curriculum adapted for CWD or (2) an attention control arm. Mixed-effect linear regression models analyzed the relationship between change in child PBMI and CCC childcare center PA environment by experimental condition and child disability status over one school year. Findings showed a significant decrease in PBMI among children in the HC2 centers (-6.74, p = 0.007) versus those in control centers (-1.35, p = 0.74) over one school year. Increased PA staff behaviors (mean change 3.66, p < 0.001) and PA policies (mean change 6.12, p < 0.001) were shown in intervention centers during the same period. Conversely, there was a significant increase in sedentary opportunities (mean change 4.45, p < 0.001) and a decrease in the portable play environment (mean change -3.16, p = 0.03) and fixed play environment (mean change -2.59, p = 0.04) in control centers. No significant differences were found in PBMI changes between CWD and children without disabilities (beta = 1.62, 95% CI [-7.52, 10.76], p = 0.73), suggesting the intervention\'s efficacy does not differ by disability status. These results underscore the importance of (1) including young CWD and (2) PA and the supporting environment in CCC health promotion and obesity prevention interventions.
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  • 文章类型: Journal Article
    背景:客户参与儿科康复的兴趣与日俱增。本文研究了服务提供者对情感的感知的心理测量特性,残疾儿童及其父母在儿科康复治疗中的认知和行为参与。
    方法:使用60个服务提供者对77名儿童和73名父母的参与评分,对参与服务提供者版本(PRIME-SP)的儿科康复干预措施的重测可靠性进行了检验。使用已知组效度技术检查结构效度,利用服务提供商对与服务提供商参加同一会议的父母及其子女的参与度进行评级。我们假设会有很大的不同,然而,儿童及其父母的参与度等级是适度相关的。
    结果:有证据表明儿童评分的重测可靠性中等,指示跨场合的动态性,还有一定程度的一致性,符合我们的期望。服务提供者对父母和孩子参与的评分没有显着相关,配对t检验表明父母的参与得分明显高于孩子。
    结论:该研究提供了初步证据来支持PRIME-SP作为服务提供商记录的工具的可靠性和有效性,反映和监控孩子和/或父母的参与。
    BACKGROUND: There is growing interest in client engagement in pediatric rehabilitation. This article investigated the psychometric properties of a measure of service providers\' perceptions of the affective, cognitive and behavioural engagement of both children with disabilities and their parents in pediatric rehabilitation therapy sessions.
    METHODS: Test-retest reliability of the Pediatric Rehabilitation Intervention Measure of Engagement-Service Provider version (PRIME-SP) was examined using engagement ratings made by 60 service providers for 77 children and 73 parents. Construct validity was examined using the known-group validity technique, utilizing service providers\' ratings of the engagement of parents and their children attending the same session with the service provider. We hypothesized that there would be significantly different, yet moderately correlated engagement ratings for children and their parents.
    RESULTS: There was evidence of moderate test-retest reliability for the child ratings, indicative of dynamicity across occasions, but also a degree of consistency, as aligned with our expectations. Service providers\' ratings of parent and child engagement were not significantly correlated and paired t-tests indicated significantly higher engagement scores for parents than children.
    CONCLUSIONS: The study provides preliminary evidence to support the reliability and validity of the PRIME-SP as a tool for service providers to document, reflect on and monitor child and/or parent engagement.
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  • 文章类型: Journal Article
    目标:当学生进出学校或在幼儿园内的年级或部门之间移动到12年级(K-12)学校系统时,会发生较大的教育过渡。对于残疾学生,大型教育转型的质量会影响学术和毕业后的成绩,这与学校职业治疗师密切相关。
    目的:探索以学校为基础的职业治疗文献,以描述职业治疗师在支持大型教育转变中的作用,并确定相关术语。
    方法:我们搜索了六个数据库(CINAHL,EMCare,Embase,ERIC,MEDLINE,和PsycINFO)用于同行评审的英文出版物,没有日期限制。
    方法:我们收录了有关残疾儿童和青少年以及以学校为基础的职业治疗服务的文章,这些服务支持K到12教育的大规模过渡。使用定向内容分析,我们报道了出版物的特点,职业治疗角色,和术语。
    结果:我们纳入了46篇37年的出版物,涉及过渡到学校(n=3),在K到12个年级或部门(n=10)内,或退出中等教育(n=33)。职业治疗师承担了许多支持大转变的角色,有些比其他更频繁;125个过渡术语被用于包含的文章,很少有明确定义的术语。
    结论:以学校为基础的职业治疗师在教育转型中的参与是广泛的,有扩张的潜力。术语的一致性将支持未来的研究和实践。简单的语言摘要:当学生在学校之间移动时,会发生很大的教育转变,grade,或者作为他们K到12教育的一部分。对于残疾学生,大型教育转型的质量会影响他们的学术和毕业后的成绩。这篇评论提供了对学校职业治疗师如何支持残疾青年教育转型的理解。审查发现职业治疗师承担了许多角色,有可能扩大他们的角色。该综述还确定了文献综述中使用的125个过渡术语,发现很少有术语被明确定义。术语的一致性将支持该领域未来的研究和扩大的职业治疗实践。
    OBJECTIVE: Large educational transitions occur when students enter and exit school or move between grades or divisions within the kindergarten to Grade 12 (K-12) school system. For students with disabilities, the quality of large educational transitions affects academic and postschool outcomes, which is germane to school-based occupational therapists.
    OBJECTIVE: To explore the school-based occupational therapy literature to describe the roles of occupational therapists in supporting large educational transitions and to identify relevant terminology.
    METHODS: We searched six databases (CINAHL, EMCare, Embase, ERIC, MEDLINE, and PsycINFO) for peer-reviewed publications in English with no date limitations.
    METHODS: We included articles focused on children and youth with disabilities and school-based occupational therapy services supporting large transitions within K to 12 education. Using directed content analysis, we reported on publication characteristics, occupational therapy roles, and terminology.
    RESULTS: We included 46 publications spanning 37 yr that addressed transitions into school (n = 3), within K to 12 grades or divisions (n = 10), or to exit secondary education (n = 33). Occupational therapists assumed many roles in supporting large transitions, some much more frequently than others; 125 transition terms were used across included articles with few terms explicitly defined.
    CONCLUSIONS: School-based occupational therapists\' involvement in educational transitions is extensive, with potential for expansion. Consistency in terminology would support future research and practice. Plain-Language Summary: A large educational transition occurs when students move between a school, grade, or division as part of their K to 12 education. For students with disabilities, the quality of a large educational transition affects their academic and postschool outcomes. This review provides an understanding of how school-based occupational therapists support educational transitions for youth with disabilities. The review found that occupational therapists took on many roles, with the potential for expanding their roles. The review also identified 125 transition terms that were used across the literature review and found that few terms were explicitly defined. Consistency in terminology would support future research and expanded occupational therapy practice in this area.
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  • 文章类型: Journal Article
    目的:确定儿童和青少年的父母表现出需要特别健康关注的可能影响其心理健康的表现。
    方法:探索性,定性研究,基于脆弱性的概念,通过对18名具有特殊医疗保健需求的儿童和青少年父母的访谈进行数据收集,在巴拉那州一家医院的儿科病房住院,2017年5月至2018年5月。采用归纳专题分析法对数据进行分析。
    结果:父母在家中提供护理时遇到了脆弱的情况,对他们的心理健康产生影响,表现为缺乏保护,焦虑和抑郁。
    结论:卫生专业人员寻求扩大行动以促进护理并减少产生威胁的情况非常重要,不安全,对父母健康的担忧和损害,这可能会影响并进一步削弱对需要特别是健康关注的儿童和青少年的护理。
    OBJECTIVE: To identify the manifestations presented by parents of children and adolescents who require special health attention that can impact their mental health.
    METHODS: exploratory, qualitative research, based on the concept of vulnerability, with data collection carried out through interviews with 18 parents of children and adolescents with special health care needs, hospitalized in the pediatric ward of a hospital in Paraná, between May/2017 and May/ 2018. Data analyzed by inductive thematic analysis.
    RESULTS: parents experienced situations of vulnerability when providing care at home, with repercussions on their mental health, expressed by manifestations of lack of protection, anxiety and depression.
    CONCLUSIONS: It is important that health professionals seek to expand actions to promote care and reduce situations that generate threats, insecurities, concerns and damage to the health of parents, which can impact and further weaken care for children and adolescents who need attention especially health.
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  • 文章类型: Journal Article
    目的:评估利雅得有特殊需要的儿童样本中儿童的OHRQoL和相关因素,沙特阿拉伯。
    方法:从康复中心使用便利抽样获得了6至12岁儿童的样本。通过问卷调查和牙科检查收集数据。问卷包括与儿童及其家庭特征相关的项目,口腔健康相关生活质量量表(父母-照顾者感知问卷[P-CPQ]和家庭影响量表[FIS]),感知的健康状况,和牙科护理的利用。临床检查由经过训练和校准的牙医进行。使用SPSS分析数据;还使用SPSS进行描述性和推断性数据分析。
    结果:平均P-CPQ为1.10±0.74,平均FIS为1.39±0.88。P-CPQ与龋齿之间有统计学意义的相关性(r=0.36,p=0.02)。在控制了混杂因素之后,龋齿与P-CPQ差相关(B=0.06,p=0.024).与低收入家庭相比,高收入家庭P-CPQ较好(4000-8000SAR:B=-1.36,p=0.001).
    结论:沙特儿童口腔健康相关生活质量差与龋齿和低收入有关。解决社会决定因素的预防措施对于控制龋齿和促进有特殊保健需求的儿童的口腔健康至关重要。
    OBJECTIVE: To assess children\'s OHRQoL and associated factors among a sample of children with special needs in Riyadh, Saudi Arabia.
    METHODS: A sample of 6- to 12-year-old children was obtained using convenience sampling from rehabilitation centers. Data were collected through a questionnaire and dental examination. The questionnaire included items related to the children\'s and their families\' characteristics, oral health-related quality of life scales (Parental-Caregivers Perceptions Questionnaire [P-CPQ] and Family Impact Scale [FIS]), perceived health status, and dental care utilisation. Clinical examination was performed by a trained and calibrated dentist. The data were analysed using SPSS; descriptive and inferential data analyses were also performed using SPSS.
    RESULTS: The mean P-CPQ was 1.10 ± 0.74, and the mean FIS was 1.39 ± 0.88. There was a statistically significant correlation between P-CPQ and caries (r = 0.36, p = 0.02). After controlling for confounders, caries was associated with poor P-CPQ (B = 0.06, p = 0.024). Compared to low-income families, higher-income families had better P-CPQ (4000-8000 SAR: B = -1.36, p = 0.001).
    CONCLUSIONS: Poor oral health-related quality of life in Saudi children is associated with caries and low income. Preventive measures addressing social determinants are vital to control caries and promote oral health in children with special health-care needs.
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  • 文章类型: Journal Article
    目的:描述使用地面体重支持(BWS)系统的医疗复杂性儿童的家庭程序。
    结论:由于常规治疗的挑战,医疗复杂性的儿童经常使用家庭项目。在这种情况下,有效的家庭程序组件,包括以儿童为中心的设计,家庭领导,最佳实践原则优先考虑PUMA(儿童便携式行动援助)。该BWS系统每天使用1小时以支持移动性和主动游戏。
    结论:CMC和家庭表现出较高的依从性,使用地面BWS135天中有87%可以使用,平均每天使用59分钟,每天1-3次发作。使用期间的平均每日乐趣指数为7/10。
    结论:这个家庭项目证明了地面BWS技术是可行的,有趣的平台,为具有显著医学和身体限制的儿童提供功能流动性和社会化。
    OBJECTIVE: To describe a home program for a child with medical complexity using an over-ground body weight support (BWS) system.
    CONCLUSIONS: Children with medical complexity often use home programs due to challenges with regular therapy attendance. In this case, effective home program components including child centered design, family leadership, and best practice principles were prioritized around the PUMA (portable mobility aid for children). This BWS system was to be used for 1 hour per day to support mobility and active play.
    CONCLUSIONS: The CMC and family demonstrated high adherence, using over-ground BWS 87% of the 135 days it was accessible with an average daily usage of 59 min spread across 1-3 bouts per day. The average daily fun index during usage was 7/10.
    CONCLUSIONS: This home program demonstrated over-ground BWS technology as a feasible, fun platform for functional mobility and socialization in a child with significant medical and physical limitations.
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  • 文章类型: Journal Article
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