Disabled Children

残疾儿童
  • 文章类型: Journal Article
    背景:尽管全球有大量残疾或特殊需要,但有特殊医疗保健需求(CSHCN)儿童的口腔保健常常被忽视。本范围审查探讨了牙医在向CSHCN提供口腔保健服务时面临的挑战。
    方法:根据PRISMA-ScR指南进行范围审查,并采用基于人群的搜索策略,干预,比较,和研究问题的结果(PICO)框架。搜索的数据库是PUBMED,谷歌学者,和EBSCOhost。20年内发表的文章和英语被纳入研究。
    结果:该综述包括20项研究,并强调了牙医在为CSHCN提供口腔保健时遇到的几个重大障碍。其中包括牙医在管理特殊需要患者方面的培训不足,对这一人群来说,口头手术的时间密集性,以及CSHCN在牙科就诊期间表现出的不可预测的行为。
    结论:研究结果强调了解决牙医在向CSHCN提供口腔保健服务时面临的挑战的关键需要。
    BACKGROUND: Oral health care for children with special health-care needs (CSHCN) is often overlooked despite a substantial global population with disabilities or special needs. This scoping review delves into the challenges dentists face in delivering oral health care to CSHCN.
    METHODS: The scoping review was conducted as per the guidelines of PRISMA-ScR with a search strategy based on the population, intervention, comparison, and outcome (PICO) framework of the research question. The databases searched were PUBMED, Google Scholar, and EBSCOhost. Articles published within 20 years and in the English language were included in the study.
    RESULTS: The review included 20 studies and highlighted several significant barriers encountered by dentists when providing oral health care for CSHCN. They included inadequate training among dentists in managing special needs patients, the time-intensive nature of oral procedures for this population, and the unpredictable behaviors exhibited by CSHCN during dental visits.
    CONCLUSIONS: The findings underscore the crucial need to address the challenges dentists face in delivering oral health care to CSHCN.
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  • 文章类型: Journal Article
    背景:遵守24小时运动指南(24-HMG:身体活动(PA),屏幕时间(ST),和睡眠)与儿童和青少年的许多有益健康结果有关。然而,对于24-HMG的总体依从性缺乏共识,特别是在残疾儿童和青少年中.因此,本系统综述和荟萃分析旨在研究全球残疾儿童和青少年坚持24-HMG的程度.
    方法:通过搜索七个电子数据库来寻求直到2023年5月以英文发表的定量研究:WebofScience,PubMed,SPORTDiscus,CINAHL,MEDLINE,Scopus,心理学与行为科学合集。这项审查包括将参与者确定为残疾人的研究,并报告了残疾儿童和青少年对24-HMG的总体(不)遵守情况。
    结果:共13项研究,涉及21,101人(65.95%的男性),来自9个国家的6至21岁,包括在分析中。总的来说,7%(95CI:0.05-0.09,p<0.01)的残疾儿童和青少年满足所有三个24-HMG,而16%(95CI:0.13-020,p<0.01)不符合三项建议中的任何一项。关于坚持个人24小时运动行为,PA的依从率为22%(95CI:0.18-0.25,p<0.01),ST的49%(95CI:0.41-0.56,p<0.01),59%(95CI:0.56-0.61,p<0.01)睡眠。关于与24-HMG会面的人数,43%(95CI:0.41-0.45,p<0.01)符合一项准则,而32%(95CI:0.28-0.36,p<0.01)符合两项指南。
    结论:有显著比例的残疾儿童和青少年不符合建议的24-HMG,其中包括PA,ST,和睡眠。这强调了迫切需要制定和执行基于证据的策略,以有效地鼓励和帮助这些残疾人采取和维持这些运动行为。
    BACKGROUND: Compliance with the 24-Hour Movement Guidelines (24-HMG: physical activity (PA), screen time (ST), and sleep) has been associated with numerous beneficial health outcomes among children and adolescents. However, there is a lack of consensus on the overall compliance with the 24-HMG specifically among children and adolescents with disabilities. Therefore, this systematic review and meta-analysis aimed to examine the extent to which children and adolescents with disabilities adhere to the 24-HMG globally.
    METHODS: Quantitative studies published in English until May 2023 were sought by searching seven electronic databases: Web of Science, PubMed, SPORTDiscus, CINAHL, MEDLINE, Scopus, Psychology and Behavioural Sciences Collection. This review included studies that identified participants as individuals with disabilities and reported the overall (non) compliance with the 24-HMG among children and adolescents with disabilities.
    RESULTS: A total of 13 studies, involving 21,101 individuals (65.95% males), aged 6 to 21 years from 9 countries, were included in the analysis. In general, 7% (95%CI: 0.05-0.09, p < 0.01) of children and adolescents with disabilities met all three 24-HMG, while 16% (95%CI: 0.13-020, p < 0.01) did not meet any of the three recommendations. Regarding adherence to individual 24-hour movement behaviour, the rates of compliance were 22% (95%CI: 0.18-0.25, p < 0.01) for PA, 49% (95%CI: 0.41-0.56, p < 0.01) for ST, and 59% (95%CI: 0.56-0.61, p < 0.01) sleep. In relation to numbers of those meeting the 24-HMG, 43% (95%CI: 0.41-0.45, p < 0.01) met one guideline, while 32% (95%CI: 0.28-0.36, p < 0.01) met two guidelines.
    CONCLUSIONS: There is a notable percentage of children and adolescents with disabilities who do not meet the recommended the 24-HMG, which encompasses PA, ST, and sleep. This underscores the pressing requirement to create and execute evidence-based strategies that effectively encourage and assist these individuals with disabilities in adopting and maintaining these movement behaviours.
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  • 文章类型: Journal Article
    背景:残疾儿童口腔健康状况较差,经常有复杂的需求。为残疾儿童提供口腔保健服务对于促进口腔健康和整体福祉至关重要。本研究旨在系统地回顾文献,以确定残疾儿童口腔保健服务的障碍和促进因素。并为规划和提供牙科服务提出优先研究领域,以满足他们的需求。
    方法:这是一个混合方法的系统综述。搜索的多个数据库包括MEDLINE,Scopus,PsycINFO,EMBASE,和CINAHL。搜索策略包括与儿童相关的医学主题标题(MeSH)术语,残疾人,并获得口腔健康。资格标准侧重于残疾儿童的研究,讨论口腔保健的可及性。
    结果:使用Levesque的访问框架确定的障碍,如专业不愿意,对牙医的恐惧,治疗费用,牙科设施不足。获取的促进者提供了有关改善残疾儿童获得口腔保健的策略的见解。
    结论:使用Levesque的访问框架或其他已建立的框架进行口腔医疗访问研究有积极的好处,或实施牙科公共卫生干预措施,以确定差距,提高认识,促进更好的口腔健康实践。证据表明,将残疾人纳入共同发展的服务提供可以改善无障碍环境,除了使用量身定制的方法和干预措施,促进对牙科护理重要性的理解,并提高专业人员的认识,照顾者和残疾儿童。
    背景:协议已于2023年6月9日在PROSPERO数据库上在线注册,ID为CRD42023433172。
    BACKGROUND: Children with disabilities experience poorer oral health and frequently have complex needs. The accessibility of oral health care services for children with disabilities is crucial for promoting oral health and overall well-being. This study aimed to systematically review the literature to identify the barriers and facilitators to oral health care services for children with disabilities, and to propose priority research areas for the planning and provision of dental services to meet their needs.
    METHODS: This was a mixed methods systematic review. Multiple databases searched included MEDLINE, Scopus, PsycINFO, EMBASE, and CINAHL. The search strategy included Medical Subject Heading (MeSH) terms related to children, disabilities, and access to oral health. Eligibility criteria focused on studies about children with disabilities, discussing the accessibility of oral health care.
    RESULTS: Using Levesque\'s framework for access identified barriers such as professional unwillingness, fear of the dentist, cost of treatment, and inadequate dental facilities. Facilitators of access offered insight into strategies for improving access to oral health care for children with disabilities.
    CONCLUSIONS: There is a positive benefit to using Levesque\'s framework of access or other established frameworks to carry out research on oral healthcare access, or implementations of dental public health interventions in order to identify gaps, enhance awareness and promote better oral health practices. The evidence suggests that including people with disabilities in co-developing service provision improves accessibility, alongside using tailored approaches and interventions which promote understanding of the importance of dental care and increases awareness for professionals, caregivers and children with disabilities.
    BACKGROUND: Protocol has been registered online on the PROSPERO database with an ID CRD42023433172 on June 9, 2023.
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  • 文章类型: Journal Article
    目标:当学生进出学校或在幼儿园内的年级或部门之间移动到12年级(K-12)学校系统时,会发生较大的教育过渡。对于残疾学生,大型教育转型的质量会影响学术和毕业后的成绩,这与学校职业治疗师密切相关。
    目的:探索以学校为基础的职业治疗文献,以描述职业治疗师在支持大型教育转变中的作用,并确定相关术语。
    方法:我们搜索了六个数据库(CINAHL,EMCare,Embase,ERIC,MEDLINE,和PsycINFO)用于同行评审的英文出版物,没有日期限制。
    方法:我们收录了有关残疾儿童和青少年以及以学校为基础的职业治疗服务的文章,这些服务支持K到12教育的大规模过渡。使用定向内容分析,我们报道了出版物的特点,职业治疗角色,和术语。
    结果:我们纳入了46篇37年的出版物,涉及过渡到学校(n=3),在K到12个年级或部门(n=10)内,或退出中等教育(n=33)。职业治疗师承担了许多支持大转变的角色,有些比其他更频繁;125个过渡术语被用于包含的文章,很少有明确定义的术语。
    结论:以学校为基础的职业治疗师在教育转型中的参与是广泛的,有扩张的潜力。术语的一致性将支持未来的研究和实践。简单的语言摘要:当学生在学校之间移动时,会发生很大的教育转变,grade,或者作为他们K到12教育的一部分。对于残疾学生,大型教育转型的质量会影响他们的学术和毕业后的成绩。这篇评论提供了对学校职业治疗师如何支持残疾青年教育转型的理解。审查发现职业治疗师承担了许多角色,有可能扩大他们的角色。该综述还确定了文献综述中使用的125个过渡术语,发现很少有术语被明确定义。术语的一致性将支持该领域未来的研究和扩大的职业治疗实践。
    OBJECTIVE: Large educational transitions occur when students enter and exit school or move between grades or divisions within the kindergarten to Grade 12 (K-12) school system. For students with disabilities, the quality of large educational transitions affects academic and postschool outcomes, which is germane to school-based occupational therapists.
    OBJECTIVE: To explore the school-based occupational therapy literature to describe the roles of occupational therapists in supporting large educational transitions and to identify relevant terminology.
    METHODS: We searched six databases (CINAHL, EMCare, Embase, ERIC, MEDLINE, and PsycINFO) for peer-reviewed publications in English with no date limitations.
    METHODS: We included articles focused on children and youth with disabilities and school-based occupational therapy services supporting large transitions within K to 12 education. Using directed content analysis, we reported on publication characteristics, occupational therapy roles, and terminology.
    RESULTS: We included 46 publications spanning 37 yr that addressed transitions into school (n = 3), within K to 12 grades or divisions (n = 10), or to exit secondary education (n = 33). Occupational therapists assumed many roles in supporting large transitions, some much more frequently than others; 125 transition terms were used across included articles with few terms explicitly defined.
    CONCLUSIONS: School-based occupational therapists\' involvement in educational transitions is extensive, with potential for expansion. Consistency in terminology would support future research and practice. Plain-Language Summary: A large educational transition occurs when students move between a school, grade, or division as part of their K to 12 education. For students with disabilities, the quality of a large educational transition affects their academic and postschool outcomes. This review provides an understanding of how school-based occupational therapists support educational transitions for youth with disabilities. The review found that occupational therapists took on many roles, with the potential for expanding their roles. The review also identified 125 transition terms that were used across the literature review and found that few terms were explicitly defined. Consistency in terminology would support future research and expanded occupational therapy practice in this area.
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  • 文章类型: Journal Article
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  • 文章类型: Journal Article
    背景:踝足矫形器(AFO)通常用于治疗身体残疾儿童的步态障碍,重要的是要规定并适当地安装AFO,以最大限度地提高潜在利益。AFO调谐,通过视频矢量分析对AFO鞋类组合(AFO-FC)进行操纵,通常用于优化AFO的使用。然而,这种类型的矫正检查后实施的改变的发生率或类型是未知的.
    目的:研究多学科视频矢量诊所对身体残疾儿童AFO提供的影响。
    方法:所有在诊所建立10年的视频矢量诊所就诊的儿童都被纳入研究。临床结果分为5类:(1)AFO-FC无变化;(2)改变/调整的AFO-FC;(3)停用AFO-FC;(4)重铸AFO;(5)改变处方。数据进行了叙述性总结。
    结果:共纳入141名独立行走儿童。诊断为双侧脑瘫(39%,n=55),单侧脑瘫(38%,n=54),脊柱裂(9%,n=13),遗传性痉挛性轻瘫(2%,n=3)和其他(11%,n=16)。52%的病例(n=74)没有变化,在22%的病例中进行调谐(n=31),13%的病例(n=19)的AFO被重铸,10%的病例(n=14)的AFO被终止。3%的病例(n=4)建议改变处方。
    结论:我们的研究结果表明,视频矢量诊所是评估AFO患儿步态功能的一种时间有效和有效的手段。没有诊所的评估,大多数被评估的儿童很可能会被转诊以进行全面且耗时更多的3维步态分析.在初始AFO拟合处的视频矢量分析可以改善对准并且可能在较早阶段减少不顺应性。
    BACKGROUND: Ankle Foot Orthoses (AFOs) are frequently prescribed to manage gait impairments in children with physical disability, and it is important that AFOs are prescribed and fitted appropriately to maximize potential benefits. AFO tuning, manipulation of the AFO footwear combination (AFO-FC) by means of video vector analysis, is routinely used to optimize AFO use. However, the incidence or types of changes that are implemented after this type of orthotic review are unknown.
    OBJECTIVE: To investigate the impact of a multi-disciplinary video vector clinic on AFO provision in children with physical disability.
    METHODS: All children who attended a video vector clinic over a period of 10-years from the establishment of the clinic were included in the study. Outcomes of the clinic were grouped into 5 categories: (1) No change to AFO-FC; (2) Altered/tuned AFO-FC; (3) Discontinued AFO-FC; (4) Recast AFO; (5) Change in prescription. Data were summarised narratively.
    RESULTS: 141 independently ambulant children were included. The diagnoses were bilateral cerebral palsy (39 %, n=55), unilateral cerebral palsy (38 %, n=54), spina bifida (9 %, n=13), hereditary spastic paraparesis (2 %, n=3) and other (11 %, n=16). No changes were made in 52 % of cases (n=74), tuning in 22 % of cases (n=31), the AFO was recast in 13 % of cases (n=19) and discontinued in 10 % of cases (n=14). A prescription change was recommended in 3 % of cases (n=4).
    CONCLUSIONS: Our findings suggest that the video vector clinic is a time efficient and effective means of assessing gait function in children with AFOs. Without assessment at the clinic, most of the children assessed would likely have been referred for a full and more time consuming 3-dimensional gait analysis. Video vector analysis at the initial AFO fitting may improve alignment and possibly reduce non-compliance at an earlier stage.
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  • 文章类型: Journal Article
    目的本范围审查旨在按生命阶段概述具有医学复杂性的儿童及其家庭的协作实践。方法本范围审查是根据JBI范围审查手册使用PubMed进行的,CINAHL,和医学期刊数据库。搜索词包括“合作,“”部门间合作,“\”有医疗复杂性的儿童,“和”有特殊医疗保健需求的儿童,“而控制词包括”有特殊医疗保健需求的儿童,“\”有医疗护理的儿童,有严重精神和身体残疾的儿童,“和”有严重精神和身体残疾的儿童。“纳入标准是日本的文章,报告了具有医疗保健需求和其他多种职业合作的儿童(0-18岁)的做法,研究文章,不包括审查和协议条款,和英语或日语文章。为了分析,从精选的论文中提取了与合作相关的实践,根据内容的相似性进行分类,并根据人生阶段进一步总结。三位研究人员讨论了论文的选择,数据提取,和分析,直到达成共识。结果分析包括30篇论文(27篇日语论文和3篇英语论文)。关于出版年份,在过去3年中发表了14篇论文。此外,19个案例和26个实践报告以及11个研究(定量研究;一个,定性研究;10)由专业人士发表。关于合作实践,抽取160例,分为9例。在“放电支持”中,“所有子类别的做法都是为学龄前儿童报告的,而五个子类别中只有两个是学龄儿童的报告。相反,在学龄前的“维护阶段”,托儿所,和学校,“学龄前儿童报告了七个子类别中的两个类别的做法。此外,来自医学领域的各种专业人士,福利,教育,和行政部门参与了合作。结论各生命阶段协作实践报告存在差异。虽然有很多专业人士参与,它们之间的合作实践报告分布不均。最终,有必要调查各种专业人员之间合作实践的性质,关注儿童和他们的家庭。
    Objective This scoping review aimed to provide an overview of collaborative practices for children with medical complexities and their families by life stage.Methods This scoping review was conducted based on the JBI scoping review manual using the PubMed, CINAHL, and Medical Journal databases. Search terms included \"collaboration,\" \"intersectoral collaboration,\" \"children with medical complexity,\" and \"children with special healthcare needs,\" whereas control words included \"children with special healthcare needs,\" \"children with medical care,\" \"children with severe mental and physical disabilities,\" and \"children with severe mental and physical disabilities.\" The inclusion criteria were articles in Japan that reported on practices for children (aged 0-18 years) with medical care needs and collaboration among other multiple professions, research articles, excluding review and protocol articles, and English or Japanese articles. For the analysis, collaboration-related practices were extracted from selected papers, categorized based on similarities in content, and further summarized according to the life stage. Three researchers discussed the selection of papers, data extraction, and analysis until a consensus was reached.Results The analysis included 30 papers (27 Japanese and three English papers). Regarding publication year, 14 papers were published within the last 3 years. Additionally, 19 case and 26 practice reports and 11 studies (quantitative research; one, qualitative research; 10) were published by professionals. Regarding collaborative practices, 160 cases were extracted and classified into nine. In \"discharge support,\" practices in all subcategories were reported for preschoolers, whereas only two of the five subcategories were reported for school-aged children. Contrastingly, in the \"maintenance phase in preschool, daycare, and school,\" preschoolers reported practices in two of the seven subcategories. Additionally, various professionals from the fields of medicine, welfare, education, and administration were involved in the collaboration.Conclusion There were differences in the reporting of collaborative practices at each life stage. Although numerous professionals were involved, reports of collaborative practices among them were unevenly distributed. Eventually, it will be necessary to investigate the nature of collaborative practices among various professionals, focusing on children and their families.
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  • 文章类型: Journal Article
    目的:物理环境与儿童游戏之间的交易尚未得到很好的研究。负担能力理论提供了一种更好地了解环境特征如何为游戏职业提供机会的方法。
    目的:研究户外游戏空间的环境特征与儿童户外游戏的关系,并建立环境分类法,以支持社区游戏空间中游戏负担能力的分析。
    方法:同行评审的文献(1974-2023年)来自先前发表的范围界定综述(Morgenthaler,Schulze,etal.,2023年)。学术搜索完成,建筑期刊艾弗里索引,CINAHL,MEDLINE,PsycINFO,Scopus,使用游乐场的关键字和同义词搜索了科学网数据库,环境质量,以及有残疾和无残疾的儿童。
    方法:对先前发表的范围界定综述进行了二次分析。包括的研究是提供物理环境-游戏活动交易描述的研究。
    结果:对45篇文章进行了定性内容分析,并用于形成环境分类法。此分类法由14个空间和对象类别组成,这些类别由它们的功能品质定义,并与游戏能力相关联。以不同的形式确定了284种游戏职业。随后确定了空间和对象类别及其功能环境质量的游戏能力。
    结论:这项研究提供了证据来支持对物理环境如何影响儿童户外游戏职业的理解。该研究的作者开发了户外游戏空间特征的环境分类,作为职业治疗师可以用来更好地理解和描述物理环境如何塑造游戏机会的工具。该工具还可以用于证明学校和公共游乐场的环境干预是合理的,以创造空间,支持更多儿童的游戏。
    OBJECTIVE: The transactions between the physical environment and children\'s play have not been well studied. The theory of affordances provides a way to better understand how environmental characteristics offer opportunities for play occupation.
    OBJECTIVE: To investigate the relationship between environmental characteristics of outdoor play spaces and children\'s outdoor play and to develop an environmental taxonomy to support the analysis of play affordances in community play spaces.
    METHODS: Peer-reviewed literature (1974-2023) was sourced from a previously published scoping review (Morgenthaler, Schulze, et al., 2023). The Academic Search Complete, Avery Index to Architectural Periodicals, CINAHL, MEDLINE, PsycINFO, Scopus, and Web of Science databases were searched using the keywords and synonyms of playground, environmental qualities, and children with and without disabilities.
    METHODS: A secondary analysis of the previously published scoping review was conducted. Included studies were those that provided descriptions of physical environment-play activity transactions.
    RESULTS: A qualitative content analysis of 45 articles was conducted and used to form an environmental taxonomy. This taxonomy consisted of 14 space and object categories defined by their functional qualities and linked to play affordances. An array of 284 play occupations were identified in different forms. Play affordances of spaces and object categories and their functional environmental qualities were subsequently identified.
    CONCLUSIONS: This study provides evidence to support the understanding of how the physical environment shapes children\'s outdoor play occupations. Plain-Language Summary: The study authors developed the Environmental Taxonomy of Outdoor Play Space Features as a tool that occupational therapists can use to better understand and describe how the physical environment shapes opportunities for play. The tool could also be useful to justify environmental intervention in schools and public playgrounds to create spaces that support more play for a diversity of children.
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  • 文章类型: Journal Article
    以家庭为中心的护理(FCC)是一种医疗保健计划方法,交付和评估,基于卫生专业人员之间的有益伙伴关系,患者和家属。FCC可能与有智力障碍(ID)儿童的家庭特别相关,考虑到他们需要持续的护理。
    确定FCC的哪些组成部分在有ID儿童的家庭中被实践以及哪些健康结果被认为是有效的。
    在PRISMASTATEMENT2020方法和STROBE报告指南的指导下,通过EBSCOhostWeb平台对特定数据库进行了系统审查:MEDLINE全文,CINAHL加上全文,学术搜索完成和心理学与行为科学合集。检索了2018年至2023年9月以英语或葡萄牙语发表的同行评审文章。方法质量是使用质量评估工具建立的,用于观察,队列和横断面研究-NHLBI,NIH.
    10项研究符合资格标准并进行了综合。结果显示了九种成分,反映了FCC的发展方式:共同决策;家庭教育;尊重文化;家庭参与;承认家庭的需求,特点和兴趣;专业护理支持;社会和情感支持;家庭功能;和家庭视为一个单位。健康结果显示,通过家庭对卫生服务的满意度,在改善儿童健康方面取得了有效进展。还取得了心理和社会效益,随着家庭幸福和生活质量的提高,有利于家庭赋权。
    证据表明,FCC组成部分涉及家庭和卫生专业人员之间的有效伙伴关系,这是制定护理计划的主要关键,以及家庭单位为提供护理带来的经验。FCC的方法包括所有家庭成员作为决策者,提供情感,物理和仪器水平的支持。健康结果出现在三个方面;对于有身份证的儿童,家庭和卫生服务。
    UNASSIGNED: Family-Centered Care (FCC) is an approach to healthcare planning, delivery and evaluation, based on beneficial partnerships between health professionals, patients and families. FCC may be particularly relevant for families with children with intellectual disability (ID), given their needs of continuum care.
    UNASSIGNED: To identify which components of the FCC are practiced and which health outcomes are considered effective in families with children with ID.
    UNASSIGNED: A systematic review guided by the PRISMA STATEMENT 2020 approach and the STROBE reporting guidelines was performed on specific databases through the EBSCOhost Web platform: MEDLINE with Full Text, CINAHL PLUS with Full Text, Academic Search Complete and Psychology and Behavioral Sciences Collection. Peer-reviewed articles published in English or Portuguese languages from 2018 to September 2023 were retrieved. Methodological quality was established using the Quality Assessment Tool for Observational, Cohort and Cross-Sectional Studies - NHLBI, NIH.
    UNASSIGNED: Ten studies met the eligibility criteria and were synthetized. The results revealed nine components, reflecting the way FCC was developed: shared decision-making; family education; respect for culture; family engagement; recognition of the family\'s needs, characteristics and interests; specialized care support; social and emotional support; family functionality; and family seen as a unit. The health outcomes demonstrate effective gains in improving children\'s health through family satisfaction with health services. Also achieved psychological and social benefits, with improved family well-being and quality of life, favoring family empowerment.
    UNASSIGNED: The evidence suggests that FCC components involves an effective partnership between the family and health professionals as the main key in developing care plans, as well as the experience that the family unit brings to the delivery of care. FCC approach include all family members as decision-makers, providing emotional, physical and instrumental levels of support. Health outcomes emerged in three strands; for children with ID, families and health services.
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  • 文章类型: Systematic Review
    目的:本系统评价旨在评估口腔健康政策的有效性,在COVID-19期间保护有特殊医疗保健需要的儿童口腔健康的建议和指南。
    背景:这项系统评价评估了在COVID-19大流行期间,针对有特殊医疗保健需求(SHCN)的儿童的全球口腔健康政策的适应性,在持续的全球健康危机中,提供基于证据的见解,为政策制定者和医疗保健提供者提供信息。该研究的重点是评估这些适应措施在确保这一弱势群体公平获得优质牙科护理方面的有效性。
    方法:通过LILIACS进行PRISMA指导的在线搜索,PubMed,Scopus,进行了COCHRANE和灰色文献。该搜索策略结合了主题词(MeSH术语)和与“口腔健康”相关的自由文本术语,“\”牙齿健康,\"\"政策,“\”效力,“\”牙科诊所指南,口腔健康政策,\"和\"特殊护理需要儿童。“资格标准包括口腔健康政策,针对有特殊护理需求的个人/儿童的建议和指南。包括2008年至2023年以英文发表的定性和定量研究。
    结果:十六个指南,建议和政策,从六个当局被确认。这些文件涉及六个不同的领域,被广泛提及为全面护理,伦理考虑,预防和治疗措施,股本,以病人为中心的治疗,缩小差距标志着范式的转变。国际合作和准则标准化表明了统一的方法。审查还强调了通过质量衡量持续改进的承诺,系统的转诊管理,需要评估。除了两份文件,其余指南没有针对COVID-19,也没有对其进行具体调整。缺乏对个体状况的重视是值得注意的,因为该指南通常对有特殊医疗保健需求的个人采取更广泛的方法。
    结论:结论:本综述评估了COVID-19对有特殊需求个体口腔保健的影响.它强调了全球和地方为公平获得,以患者为中心的护理,和预防措施。吸取的教训倡导有韧性的,能够满足不同需求的包容性医疗保健框架。
    CRD42023452475。
    OBJECTIVE: This systematic review aims to assess effectiveness of oral health policies, recommendations and guidelines in safeguarding oral health of children with special healthcare needs during COVID-19.
    BACKGROUND: This systematic review evaluated the adaptation of global oral health policies for children with special healthcare needs (SHCN) during the COVID-19 pandemic, to provide evidence-based insights to inform policymakers and healthcare providers amid the ongoing global health crisis. The study focused on assessing the effectiveness of these adaptations in ensuring equitable access to quality dental care for this vulnerable group.
    METHODS: A PRISMA guided online search through LILIACS, PubMed, Scopus, COCHRANE and grey literature was conducted. The search strategy incorporated a combination of subject headings (MeSH terms) and free-text terms related to \"oral health,\" \"dental health,\" \"policy,\" \"effectiveness,\" \"dental practice guidelines,\" \"oral health policies,\" and \"special care needs children.\" Eligibility criteria included oral health policies, recommendations and guidelines targeting individuals/children with special care needs. Both qualitative and quantitative studies published in English from 2008 to 2023 were included.
    RESULTS: Sixteen guidelines, recommendations and policies, from six authorities were identified. These documentations addressed six different areas mentioned broadly as comprehensive care, ethical considerations, preventive and therapeutic measures, equity, patient-centric treatment, and reducing disparities signaling a paradigm shift. International collaborations and standardization of guidelines indicated a unified approach. The review also emphasized on a commitment to continuous improvement through quality measurement, systematic referral management, and needs assessment. With the exception of two documents, the remaining guidelines did not address COVID-19 or provide specific adaptations for it. The lack of emphasis on individual condition was notable, as the guidelines generally took a more generalized approach toward individuals with special healthcare needs.
    CONCLUSIONS: In conclusion, this review assessed the impact of COVID-19 on oral healthcare for individuals with special needs. It underscores global and local efforts for equitable access, patient-centric care, and preventive measures. The lessons learned advocate for a resilient, inclusive healthcare framework capable of meeting diverse needs.
    UNASSIGNED: CRD 42023452475.
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