背景:痴呆症患者的姑息治疗研究不如其他患者组,尽管人们对其姑息治疗和临终关怀需求的认识正在提高。缺乏姑息治疗服务中痴呆症患者的经验数据分析。
目的:根据ICD标准,探讨各种姑息治疗机构使用者中痴呆诊断的患病率,并比较姑息治疗服务的使用情况,护理途径,以及有和没有痴呆症诊断的人的结果。
方法:我们对2009年至2021年德国国家临终关怀和姑息治疗登记册中的痴呆诊断(F00-F03/G30)进行了回顾性分析。分析采用描述性统计和推理统计的方法,包括对阿尔法误差膨胀的Bonferroni修正。
方法:我们将分析限于64岁以上人群的子样本。
结果:在不同的姑息治疗环境中,痴呆的患病率低于年龄相当的人群:在分析中包含的69,116个数据集中,一小部分(3.3%)被编码为痴呆的主要诊断.在住院姑息治疗病房的患者中,0.8%(19,161人中的148人)诊断为痴呆症,2.2%(2,380人中的52人)的医院姑息治疗支持小组和4.3%(46,803人中的2,014人)的家庭接受专门姑息治疗.
结论:德国国家临终关怀和姑息治疗登记册的记录表明,痴呆症的患病率低于一般人群数据的预期。尽管数字与接受姑息治疗的痴呆症患者比例的国际研究一致。未来的研究可以有效地检查这种差异是否源于在将痴呆编码为患者的主要诊断时的遗漏,分别是由于以前对痴呆诊断的记录中的失误。或从障碍到获得姑息治疗服务,甚至在尝试获得姑息治疗时被排除在姑息治疗之外。
背景:无需注册。
BACKGROUND: People with dementia are less in focus of palliative care research than other patient groups even though the awareness of their palliative and end-of-life care needs is rising. Empirical data analyses on people with dementia in palliative care services are lacking.
OBJECTIVE: To explore the prevalence of dementia diagnoses as per the ICD criteria among users of various palliative care settings and to compare use of palliative services, care pathways, and outcomes in people with and without a dementia diagnosis.
METHODS: We conducted retrospective analysis of dementia diagnoses as per ICD (F00-F03/G30) in the German National Hospice and Palliative Care Register between 2009 and 2021. The analysis used methods of descriptive and inferential statistics, including the Bonferroni correction for alpha error inflation.
METHODS: We limited the analysis to the subsample of people aged over 64.
RESULTS: The prevalence of dementia in the different settings of palliative care was lower than in the age-comparable population: Of the 69,116 data sets included in the analysis, a small minority (3.3%) was coded with dementia as the principal diagnosis. Among patients on inpatient palliative care wards, 0.8% (148 of 19,161) had a dementia diagnosis, as did 2.2% (52 of 2,380) of those under hospital palliative care support teams and 4.3% (2,014 of 46,803) of those receiving specialized palliative care at home.
CONCLUSIONS: The records of the German National Hospice and Palliative Care Register suggest that the prevalence of dementia is lower than one might expect from general population data, though numbers are in line with international studies on proportion of dementia patients receiving palliative care. Future research could usefully examine whether this discrepancy stems either from omissions in coding dementia as patients\' principal diagnosis respectively from lapses in documentation of a dementia diagnosis previously made, or from barriers to accessing palliative care services or even displays being excluded from palliative care when trying to access it.
BACKGROUND: No registration.