Activity and Participation

  • 文章类型: Journal Article
    脊髓损伤(SCI)是一种改变生活的疾病,几乎总是导致残疾。目的是确定活动限制的时期流行率,参与限制,肯尼亚社区居住的创伤性脊髓损伤(TSCI)患者的环境障碍。
    对90名居住在TSCI中超过1年的社区成年人的横断面调查,从唯一的专业康复数据库中招募,在病人中,在肯尼亚的设施。使用的国际脊髓损伤社区调查(InSCI)的模块是人口统计学和损伤特征;活动和参与;和环境因素。
    总样本中最普遍的活动限制和参与限制是使用公共交通工具(90%),站立无支撑(83%),到达目的地(76%),(76%)。最大的环境障碍是资金不足(96%),公共场所无法进入(92%),以及长途运输问题(90%)。与截瘫患者相比,四肢瘫痪患者受活动限制和参与限制的影响更大。
    在肯尼亚患有TSCI的成年人中普遍存在功能问题和环境障碍。尽管这是医疗保健服务的最佳情况,个人以前接受过住院康复治疗,有必要审查康复的原则和模式,并探索初级保健/社区一级康复的价值主张,以进一步优化独立性和功能。
    肯尼亚脊髓损伤(SCI)患者的功能问题在本质上似乎是多种多样的,这要求对目前的康复服务和模式进行评估,目的是通过将循证干预措施纳入标准治疗方案来加强独立性和参与度。发现了高度的环境挑战,呼吁采取全政府的方法,以增强社会中与SCI人员的包容性。由于四肢瘫痪者的严重残疾经历和负面环境因素,似乎向他们分配了额外的资源或公平措施。
    UNASSIGNED: Spinal cord injury (SCI) is a life-changing condition, almost always leading to disability. The aim was to determine the period-prevalence of activity limitations, participation restrictions, and environmental barriers in community-dwelling persons with traumatic spinal cord injury (TSCI) in Kenya.
    UNASSIGNED: A cross-sectional survey of 90 community-dwelling adult persons living with TSCI for more than 1 year, recruited from the database of the only specialised rehabilitation, in-patient, facility in Kenya. Modules of the International Spinal Cord Injury community survey (InSCI) used were demographic and injury characteristics; activity and participation; and environmental factors.
    UNASSIGNED: Most prevalent activity limitations and participation restrictions in the total sample were using public transportation (90%), standing unsupported (83%), getting to destination (76%), and toileting (76%). The top environmental barriers were inadequate finances (96%), inaccessibility of public places (92%), and problems with long distance transportation (90%). Participants with tetraplegia were more affected with activity limitations and participation restrictions than those with paraplegia.
    UNASSIGNED: Functioning problems and environmental barriers are prevalent among adults living with TSCI in Kenya. Although this is the best-case scenario with respect to healthcare services, where individuals received inpatient rehabilitation previously, a need exists to examine the principles and models of rehabilitation and explore the value proposition of primary care/community level rehabilitation to further optimise independence and functioning.
    The functioning problems of persons with spinal cord injury (SCI) in Kenya appear to be diverse in nature, which calls for the evaluation of current rehabilitation services and models with the aim of bolstering independence and participation by including evidence-based interventions to standard treatment packages.A high degree of experiencing environmental challenges was found, calling for a whole-of-government approach to enhance inclusivity of persons with SCIs in society.It appears that additional resources or equity measures are allocated to persons with tetraplegia due to their accentuated experience of disability and negative environmental factors.
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  • 文章类型: Journal Article
    牛津参与和活动问卷是为评估参与和活动水平而开发的。然而,它在中文中没有,也没有在中风人群中进行过测试。牛津参与和活动问卷被翻译成中文和文化适应。在100名中风患者中检查了其心理测量特性。还比较了中风患者和健康人的参与和活动水平。内容效度和内部一致性(Cronbach'sα=0.86-0.91)非常好。重测可靠性(组内相关系数=0.91-0.94)也令人满意。测量的标准误差为4.10-5.31,最小可检测变化为11.37-14.71。假设检验支持了收敛有效性和发散有效性。该仪器具有五因素结构,没有天花板效应。它的常规活动和社会参与度得分将中风患者与健康人区分开。总之,中文版的牛津参与和活动问卷对于评估卒中人群的参与和活动水平是可靠和有效的。
    The Oxford Participation and Activities Questionnaire was developed for generic use in the assessment of participation and activity levels. However, it is not available in Chinese and has not been tested in the stroke population. The Oxford Participation and Activities Questionnaire was translated into Chinese and culturally adapted. Its psychometric properties were examined in 100 people with stroke. The participation and activity levels of people with stroke and healthy people were also compared. Content validity and internal consistency (Cronbach\'s α = 0.86-0.91) were excellent. The test-retest reliability (intraclass correlation coefficient = 0.91-0.94) was also satisfactory. The standard error of the measurement was 4.10-5.31, and the minimal detectable change was 11.37-14.71. Convergent and divergent validity were supported by hypothesis testing. The instrument had a five-factor structure without a ceiling effect. Its routine activity and social engagement scores discriminated people with stroke from healthy people. In conclusion, the Chinese version of the Oxford Participation and Activities Questionnaire is reliable and valid for assessing participation and activity levels in the stroke population.
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  • 文章类型: Journal Article
    UASSIGNED:海马疗法(HPOT)是一种物理疗法(PT)治疗工具,使用马运动来改善有运动障碍的儿童的活动能力。尽管研究表明HPOT可以改善身体结构和功能,关于其对临床活动和参与结局的影响的证据有限.儿童残疾评估清单计算机自适应测试(PEDI-CAT)可能在HPOT设置中有用,以突出活动和参与的变化。
    UNASSIGNED:1)评估PEDI-CAT对使用HPOT接受PT的儿童活动和参与变化的敏感性;2)确定在HPOT环境中使用PEDI-CAT的可行性;3)检查PEDI-CAT评分如何影响临床决策。
    UNASSIGNED:参与者(N=34)是使用HPOT每周参加PT6个月的儿童。在初始治疗(T1)和6个月后(T2),所有参与者的父母或照顾者完成了PEDI-CAT。线性混合效应模型用于评估分数随时间的变化。每月举行一次团队会议,讨论PEDI-CAT评分如何影响治疗。
    UNASSIGNED:对于效应大小较小的所有儿童,T1和T2之间的3个PEDI-CAT域均有显著改善,并且在两个效应大小为小到中等的诊断亚组中注意到无显著变化。PEDI-CAT由所有参与者完成,没有中断治疗流程。PEDI-CAT评分报告丰富了治疗师与客户的对话,从而增加了共同的决策。
    UNASSIGNED:使用HPOT治疗儿童的PT可以使用PEDI-CAT来评估活动水平结果的变化并协助临床决策。
    UNASSIGNED: Hippotherapy (HPOT) is a physical therapy (PT) treatment tool using equine movement to improve mobility for children with movement impairments. Although research suggests HPOT improves body structure and function, there is limited evidence regarding its impact on activity and participation outcomes in a clinical setting. The Pediatric Evaluation of Disability Inventory Computer Adaptive Test (PEDI-CAT) may be useful in HPOT settings to highlight changes in activity and participation.
    UNASSIGNED: 1) Evaluate the PEDI-CAT\'s sensitivity to changes in activity and participation among children receiving PT using HPOT; 2) determine feasibility of administering the PEDI-CAT in a HPOT setting; and 3) examine how PEDI-CAT scores influence clinical decision-making.
    UNASSIGNED: Participants (N = 34) were children who attended weekly PT using HPOT for 6 months. The PEDI-CAT was completed for all participants by a parent or caregiver at initial treatment (T1) and 6 months later (T2). A linear mixed effects model was used to evaluate changes in scores over time. Team meetings occurred monthly to discuss how PEDI-CAT scores impacted treatment.
    UNASSIGNED: There were significant improvements across 3 PEDI-CAT domains between T1 and T2 for all children with small effect sizes and nonsignificant changes noted within two diagnostic subgroups with small-to-medium effect sizes. The PEDI-CAT was completed by all participants without interrupting treatment flow. PEDI-CAT score reports enriched therapist-client conversations increasing shared decision-making.
    UNASSIGNED: PTs who treat children using HPOT may feasibly use the PEDI-CAT to assess changes in activity level outcomes and to assist clinical decision-making.
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  • 文章类型: Journal Article
    背景:本研究试图确定一个专注于提高日常生活识字能力的项目是否能有效预防身体虚弱,并比较身体虚弱的标准治疗方法。方法:本研究设计为试点干预研究,涉及两组。A区25名年龄在65至85岁之间的老年人,东京,按地区随机分配到扫盲组或锻炼组,每月两次接受60至90分钟的课程,四个月八次.扫盲小组主要利用影像资料来监督学习,运动组使用了多因素运动计划。结果:LSI-Z,GAS-L,最长5米步行时间,和TUG测试显示两组干预前后的主要作用(p<0.05,p<0.01)。WHOQOL26,最大步行时间5m,和TUG测试也显示了两组的主要影响(p<0.05)。结论:这两个方案,当独立实施时,对主观幸福感有特定影响,职业表现,和身体健康。然而,运动组的QOL和身体素质明显高于识字组。由于本试验研究的样本量有限,因此应谨慎考虑这些结果。
    Background: This study attempts to determine whether a program focused on improving literacy in daily living is effective in preventing physical frailty, and to compare standard treatments for physical frailty. Methods: This study was designed as a pilot intervention study involving two groups. Twenty-five older adults aged 65 to 85 in Ward A, Tokyo, were randomly assigned to the literacy group or the exercise group on a regional basis and were given a 60- to 90-minute program twice a month, eight times over four months. The literacy group mainly used video materials to monitor learning, and the exercise group used a multifactor exercise program. Results: The LSI-Z, GAS-L, Maximum 5 m walking time, and TUG tests showed the main effects before and after the intervention in both groups (p < 0.05, p < 0.01). The WHOQOL26, Maximum 5 m walking time, and TUG tests also showed the main effects across both groups (p < 0.05). Conclusion: Both programs, when implemented independently, showed specific effects on subjective well-being, occupational performance, and physical fitness. However, QOL and physical fitness were significantly higher in the exercise group than in the literacy group. These results should be considered with caution because of the limited sample size of this pilot study.
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  • 文章类型: Journal Article
    这项研究的目的是翻译和文化适应的恐惧下降回避行为问卷(FFABQ)到巴西葡萄牙语(FFABQ-B),并检验其在巴西老年人中的信度和效度。FFABQ-B在10名巴西老年人中进行了翻译和测试。我们评估了52名社区居民,68.7(±6.2)年,使用FFABQ-B,BERG平衡秤,特定活动的平衡信心量表,跌倒功效量表,6分钟步行测试,计时和测试,和活动监视器。内部一致性,测试-重测可靠性,构造效度,并对地板和天花板效应进行了分析。FFABQ-B具有足够的内部一致性(Cronbach'sα=.90)和重测可靠性(组内相关系数=.81;95%置信区间[.68,.90])。FFABQ-B与6分钟步行测试有关,定时和去,BERG平衡秤,身体活动时间(p<0.05),特定活动的平衡信心量表,和跌倒功效量表(p<.001)。由于担心在巴西社区居住的老年人中跌倒,FFABQ-B既可靠又有效,可以评估活动和参与中的回避行为。
    The aim of this study was to translate and culturally adapt the Fear of Falling Avoidance Behavior Questionnaire (FFABQ) into Brazilian-Portuguese (FFABQ-B), and to examine its reliability and validity in Brazilian older adults. The FFABQ-B was translated and tested in 10 Brazilian older adults. We assessed 52 community-dwellers, 68.7 (±6.2) years, using the FFABQ-B, BERG Balance Scale, Activities-specific Balance Confidence Scale, Falls Efficacy Scale, 6-Minute Walk Test, Timed Up and Go test, and activity monitor. Internal consistency, test-retest reliability, construct validity, and floor and ceiling effects were analyzed. The FFABQ-B had adequate internal consistency (Cronbach\'s α = .90) and test-retest reliability (intraclass correlation coefficient = .81; 95% confidence interval [.68, .90]). The FFABQ-B was associated with 6-Minute Walk Test, Timed Up and Go, BERG Balance Scale, physical activity time (p < .05), Activities-specific Balance Confidence scale, and Falls Efficacy Scale (p < .001). The FFABQ-B is both reliable and valid to assess avoidance behavior in activities and participation due to fear of falling in Brazilian community-dwelling older adults.
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  • 文章类型: Journal Article
    This study compared activity participation, and mental and physical functions of two different groups of adults with chronic cardiac conditions. Eleven participants were assessed at the immediate post-acute stage and 26 participants were at the distant post-acute stage. Participants at distant post-acute were significantly more physically active (p < .001), more activity-limited in cognition-related activities (p = .035) and reported more depressive symptoms than immediate post-acute (p = .046). No significant difference in participation level was found. More attention to functional cognition and depressive symptoms at immediate post-acute and individualized approaches to remove participation barriers in complex activities at distant post-acute are likely needed for adults with chronic cardiac conditions.
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  • 文章类型: Journal Article
    面肩肱肌营养不良症(FHSD)是一种使人衰弱的遗传性肌肉疾病,正在研究各种治疗策略。到目前为止,FSHD很少关注制定符合监管机构要求的科学上合理的结果措施。这项研究的目的是设计患者报告的Rasch构建的FSHD活动和参与间隔量表。
    阶段前FSHD-Rasch建立的总体残疾量表(前FSHD-RODS;包括159项活动/参与项目),根据世界卫生组织的疾病相关功能后果国际分类,762例FSHD患者完成(荷兰:n=171;英国:n=287;美国:n=221;法国:n=52;澳大利亚:n=32)。患者队列的一部分完成了两次(n=230;间隔2-4周;可靠性研究)。对预FSHD-RODS进行Rasch分析以创建满足其要求的模型。通过与运动功能测量的相关性进行有效性研究。
    前FSHD-RODS没有达到Rasch模型的预期。基于失配统计和失配残差等决定因素,差分项目功能,和本地依赖,我们系统地删除了项目,直到构建了最终的38项调查(来自32项;6项拆分)FSHD-RODS,达到了Rasch模型的预期.获得了足够的重测信度和(跨文化和外部)效度分数。
    FSHD-RODS是一种疾病特异性间隔测量,适用于检测FSHD患者的活动和参与限制,具有良好的项目/人员信度和效度评分。建议在不久的将来使用这种秤,确定FSHD每年的功能恶化斜率,为即将进行的FSHD临床干预试验做准备。
    Facioscapulohumeral muscular dystrophy (FHSD) is a debilitating inherited muscle disease for which various therapeutic strategies are being investigated. Thus far, little attention has been given in FSHD to the development of scientifically sound outcome measures fulfilling regulatory authority requirements. The aim of this study was to design a patient-reported Rasch-built interval scale on activity and participation for FSHD.
    A pre-phase FSHD-Rasch-built overall disability scale (pre-FSHD-RODS; consisting of 159 activity/participation items), based on the World Health Organization international classification of disease-related functional consequences was completed by 762 FSHD patients (Netherlands: n = 171; UK: n = 287; United States: n = 221; France: n = 52; Australia: n = 32). A proportion of the patient cohort completed it twice (n = 230; interval 2-4 weeks; reliability studies). The pre-FSHD-RODS was subjected to Rasch analyses to create a model fulfilling its requirements. Validity studies were performed through correlation with the motor function measure.
    The pre-FSHD-RODS did not meet the Rasch model expectations. Based on determinants such as misfit statistics and misfit residuals, differential item functioning, and local dependency, we systematically removed items until a final 38-inquiry (originating from 32 items; six items split) FSHD-RODS was constructed achieving Rasch model expectations. Adequate test-retest reliability and (cross-cultural and external) validity scores were obtained.
    The FSHD-RODS is a disease-specific interval measure suitable for detecting activity and participation restrictions in patients with FSHD with good item/person reliability and validity scores. The use of this scale is recommended in the near future, to determine the functional deterioration slope in FSHD per year as a preparation for the upcoming clinical intervention trials in FSHD.
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  • 文章类型: Journal Article
    People with disabilities display less use of preventive health services, such as health examinations, flu vaccinations, Pap smears and breast screening, but evidence has shown that preventive health services can detect or even prevent serious diseases and medical problems. Therefore, identifying the factors associated with the use of preventive health services is important for people with disabilities. This study examined the use of preventive health services by people with disabilities and identified other associated factors for people with disabilities. The research used social demographics and the World Health Organization Disability Assessment Schedule 2.0 (WHODAS 2.0) 12 items to measure activity and participation (AP) and other factors; there were 742 people with disabilities recruited with stratified proportional sampling. The data were collected through face-to-face interviews. The findings revealed that the common types of preventive services accessed by people with disabilities were health examinations and flu vaccinations; most of them had only used one preventive health service in the past year. The factors of having caregivers of spouses (OR = 1.74), perceived good health (OR = 1.26), and less limitation of AP (OR = 0.99) were significantly associated with the use of preventive services (p < 0.01). The study found a significant association between having children as caregivers and the non-use of Pap smears and breast screening services among women, providing valuable evidence for the distribution of the use of preventive health services for people with disabilities. Furthermore, the study highlighted the present status of disparities in the use of preventive services for people with disabilities and should encourage a boost in the adjustment of the medical environment and service resource allocation by the Taiwanese government for people with disabilities.
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  • 文章类型: Journal Article
    To cross-culturally translate and validate the Chinese versions of the Oxford Knee Score (OKS) and the Activity and Participation Questionnaire (APQ) in patients with end-stage knee osteoarthritis who are also candidates for knee replacement.
    The Chinese version of the OKS and APQ was completed by standard forward-backward translation and adaption. The feasibility was validated by a pretest in 30 patients. The final version together with the Short Form-36 (SF-36), EQ-5D, and EQ visual analog scale were assessed in 150 patients, and the OKS and APQ were repeated in 30 patients after a 2-week interval. The psychometric properties of the OKS and APQ were evaluated for test-retest reliability using intraclass correlation coefficients (ICCs), internal consistency using Cronbach\'s α, and construct validity using Spearman\'s correlation analysis.
    All patients were able to understand and complete both the OKS and APQ without difficulty (i.e. no missing data). The ICCs were 0.959 for the OKS, 0.956 for the APQ for total scores, and >0.7 for each item. Cronbach\'s α was greater than 0.7, and the corrected item-total correlation was greater than 0.4 for each item of both questionnaires. The OKS and APQ showed better correlations with questions from the pain and function domains than with those from the mental status domains of the SF-36 and EQ-5D. No floor or ceiling effect was identified in either questionnaire.
    The Chinese versions of the OKS and APQ are easy to understand and complete and showed good reliability and validity. They can be used to assess patient-reported outcomes after undergoing knee replacement in mainland China.
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  • 文章类型: Journal Article
    METHODS: This is a cross-sectional clinical measurement.
    BACKGROUND: There are currently no Dupuytren\'s contracture (DC)-specific, patient-reported outcomes (PROs) that can provide a thorough clinical portrait of the patients\' perceptions with regard to the execution of regular activities.
    OBJECTIVE: The purpose of this study was to present the development of the Dupuytren\'s contracture Impact on Function-Centre Hospitalier de l\'Université de Montréal (DIF-CHUM), a DC-specific PRO.
    METHODS: The development process involved consultation of 45 individuals with DC and 7 health professionals, existing literature, and DC-specific PRO.
    RESULTS: The DIF-CHUM is composed of 2 sections: section 1, Activity and Participation includes 8 items per hand, scored on Difficulty and Change scales; section 2, General Impact includes up to 18 items, scored on Difficulty, Importance, Change and Satisfaction scales. Preliminary evidence suggests that the DIF-CHUM demonstrates good content validity.
    CONCLUSIONS: The DIF-CHUM is designed to be a patient-centered measure of Activity and Participation and Functional Competence for individuals with DC that will provide hand therapists with a unique perspective of the impact of DC on patients\' lives.
    CONCLUSIONS: Further validation of the DIF-CHUM, including its scoring, is under way.
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