%0 Journal Article
%T Going beyond Activity and Participation: Development of the DIF-CHUM-A patient-reported outcome measure for individuals with Dupuytren's contracture.
%A Forget NJ
%A Higgins J
%A Rivard M
%A Harris PG
%J J Hand Ther
%V 33
%N 3
%D Jul 2020 0
%M 31492480
%F 1.908
%R 10.1016/j.jht.2019.03.013
%X <B>METHODS: </B>This is a cross-sectional clinical measurement.<BR><B>BACKGROUND: </B>There are currently no Dupuytren's contracture (DC)-specific, patient-reported outcomes (PROs) that can provide a thorough clinical portrait of the patients' perceptions with regard to the execution of regular activities.<BR><B>OBJECTIVE: </B>The purpose of this study was to present the development of the Dupuytren's contracture Impact on Function-Centre Hospitalier de l'Université de Montréal (DIF-CHUM), a DC-specific PRO.<BR><B>METHODS: </B>The development process involved consultation of 45 individuals with DC and 7 health professionals, existing literature, and DC-specific PRO.<BR><B>RESULTS: </B>The DIF-CHUM is composed of 2 sections: section 1, Activity and Participation includes 8 items per hand, scored on Difficulty and Change scales; section 2, General Impact includes up to 18 items, scored on Difficulty, Importance, Change and Satisfaction scales. Preliminary evidence suggests that the DIF-CHUM demonstrates good content validity.<BR><B>CONCLUSIONS: </B>The DIF-CHUM is designed to be a patient-centered measure of Activity and Participation and Functional Competence for individuals with DC that will provide hand therapists with a unique perspective of the impact of DC on patients' lives.<BR><B>CONCLUSIONS: </B>Further validation of the DIF-CHUM, including its scoring, is under way.