Access to Care

获得护理
  • 文章类型: Journal Article
    目的:检查COVID-19大流行后远程医疗服务的变化,并探索口腔健康专业人员对各种远程医疗服务方式的利用。
    方法:在这个混合方法案例研究中,从2021年1月至2022年11月,我们从患者电子健康记录(n=78,756)中收集了来自俄勒冈州牙科支持组织(DSO)的各种远程医疗服务数据,这些数据包括临床环境中的各种远程医疗服务利用情况,以及通过社区外展从俄勒冈州的牙科支持组织(DSO)收集的远程医疗服务索赔数据.我们使用描述性统计和逻辑回归分析分析了患者的人口统计学和索赔数据,以确定远程医疗服务的提供模式。定性,我们通过Microsoft团队与口腔健康专业人员进行了虚拟访谈(n=13),了解他们在使用远程医疗方面的经验。我们使用归纳和演绎编码来编码各个成绩单,并确定提供者经验中的共同主题。
    结果:在针对远程医疗的78,756份电子健康记录索赔中,75.7%使用同步音频,13.4%使用同步视频,10.9%的人使用异步远程医疗方法。在研究结束时,我们观察到同步音频远程医疗利用率增加了8.6%,与同步视频增加4.2%和异步远程医疗减少4.4%相比。接受采访的口腔健康专业人员报告说,根据患者和提供者对虚拟远程医疗平台的访问来选择远程医疗交付的类型。
    结论:口腔健康专业人员在制定将远程医疗用于患者护理的政策和最佳实践时,需要考虑远程医疗的知识和经验。
    OBJECTIVE: To examine variations in the delivery of teledentistry after the COVID-19 pandemic and to explore oral health professionals\' utilization of various teledentistry modes of delivery.
    METHODS: In this mixed methods case study, we collected teledentistry claims data from patient electronic health records (n = 78,756) encompassing various types of teledentistry utilization in clinical settings and through community outreach from a Dental Support Organization (DSO) in Oregon from January 2021 to November 2022. We analyzed the patient demographic and claims data using descriptive statistics and logistic regression analyses to identify patterns of teledentistry service delivery. Qualitatively, we conducted virtual interviews (n = 13) through Microsoft Teams with oral health professionals about their experiences with teledentistry utilization. We used inductive and deductive coding to code individual transcripts and identify common themes among provider experiences.
    RESULTS: Out of the 78,756 electronic health record claims for teledentistry, 75.7% used synchronous audio, 13.4% used synchronous video, and 10.9% used asynchronous teledentistry methods. We observed a 8.6% increase in synchronous audio teledentistry utilization at the end of the study period, compared with a 4.2% increase in synchronous video and a 4.4% decrease in asynchronous teledentistry. Oral health professionals interviewed reported choosing the type of teledentistry delivery based on patient and provider access to the virtual teledentistry platform.
    CONCLUSIONS: Oral health professionals\' knowledge of and experiences with teledentistry need to be considered when developing policy and best practices for the use of teledentistry for patient care.
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  • 文章类型: Journal Article
    在美国,无家可归是一个重大的公共卫生问题。皮肤病是未定居和庇护人群中最普遍的健康问题。尽管对皮肤病护理的需求越来越大,皮肤科医生的供应仍然不足,导致这一弱势群体获得医疗保健的差距。这篇综述旨在详细介绍无家可归者所经历的皮肤病学状况,确定适当护理的障碍,并探索远程皮肤病学作为弥合这些差距的潜在解决方案。进行了全面的文献综述,分析研究和报告在无家可归人口中普遍存在的皮肤病学问题,以及远程皮肤病学在解决这些问题方面的功效。无家可归的人面临着各种各样的皮肤病,从痤疮和湿疹等常见疾病到蜂窝织炎等严重问题,腿部溃疡,和皮肤癌。药物滥用,家庭和性虐待,和寄生虫感染进一步使这一人群的皮肤病健康复杂化。远程皮肤病学已经成为一种有前途的工具,可以提高获得皮肤病护理的机会,显示临床结果和可及性的显著改善,尤其是在服务不足的城市环境中。然而,挑战依然存在,例如影响老年人和低收入人群的数字鸿沟,这可能会加剧差距。解决无家可归人口的皮肤病需求需要采取多方面的方法。远程皮肤病学提供了一个可行的解决方案,以改善护理访问和效率,但是需要额外的努力来确保包容性和避免进一步的边缘化。志愿者驱动的多学科诊所在提供护理方面也发挥着至关重要的作用,尽管他们在连续性和资源可用性方面面临挑战。未来的策略应侧重于将远程皮肤病学与其他支持性服务相结合,以为服务不足的人群创建全面的护理模式。
    Homelessness in the United States is a significant public health issue, with dermatologic disease being the most prevalent health concern among the undomiciled and sheltered populations. Despite a growing need for dermatologic care, the supply of dermatologists remains insufficient, contributing to disparities in healthcare access for this vulnerable group. This review aims to detail the spectrum of dermatologic conditions experienced by homeless individuals, identify barriers to adequate care, and explore teledermatology as a potential solution to bridge these gaps. A comprehensive literature review was conducted, analyzing studies and reports on dermatologic issues prevalent among the homeless population and the efficacy of teledermatology in addressing these concerns. Homeless individuals face a wide range of dermatologic problems, from common conditions like acne and eczema to severe issues such as cellulitis, leg ulcers, and skin cancer. Drug abuse, domestic and sexual abuse, and parasitic infestations further complicate the dermatologic health of this population. Teledermatology has emerged as a promising tool to enhance access to dermatologic care, showing significant improvements in clinical outcomes and accessibility, especially in underserved urban settings. However, challenges remain, such as the digital divide affecting the elderly and low-income populations, which could potentially exacerbate disparities. Addressing the dermatologic needs of the homeless population requires a multifaceted approach. Teledermatology offers a viable solution to improve care access and efficiency, but additional efforts are necessary to ensure inclusivity and avoid further marginalization. Volunteer-driven multidisciplinary clinics also play a crucial role in providing care, though they face challenges in continuity and resource availability. Future strategies should focus on integrating teledermatology with other supportive services to create a comprehensive care model for this underserved population.
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  • 文章类型: Journal Article
    儿童时期暴露于不利的社会健康决定因素(SDoH)与较差的长期健康结果相关。在结构边缘化的人群中,发育脆弱的儿童比例过高。TheRICHER(Responsive,跨部门,儿童和社区健康,教育和研究)社会儿科模式旨在增加边缘化社区获得护理的机会。这项研究的目的是描述参与RICHER服务模式的儿童和青年,并描述人口的需求。
    对2018年1月1日至2021年4月30日期间通过该计划获得初级保健服务的儿童和青少年进行了回顾性图表审查。使用Statav15.1进行基本描述性数据分析。
    共审查了210张图表。初始评估时的平均年龄为6.32岁。患者通常将其种族/民族确定为土著(33%),而15%是加拿大的新移民。41%的图表中至少有1种不良SDoH的证据;最常见的包括物质贫困(34%),粮食不安全(11%),和儿童福利参与(20%)。每位患者的中位诊断次数为4次。最常见的诊断是神经发育障碍(50%),包括发育迟缓(39%)。ADHD(32%),学习障碍(26%)。该计划将72%的患者转介给普通儿科医生和/或其他专科医生;34%的患者接受三级神经心理学评估,35%的患者接受心理健康服务。
    我们的数据表明,这种低屏障,基于地点的初级保健RICHER模型能够在医学上达到,发展,以及生活在被剥夺权利的城市社区中的社会复杂人口。在我们的审查中确定的患者中有一半有神经发育问题,三分之一有心理健康问题,与估计的17%的心理健康患病率相反,行为,或北美普通儿科老年人群的发育障碍。这突出了对儿童健康的不利影响,以及与社区合作伙伴合作以识别发育脆弱的儿童并支持基于地点的计划与可能被错过的儿童联系的重要性。被忽视,或者通过传统的护理模式处于不利地位。
    UNASSIGNED: Exposure to adverse social determinants of health (SDoH) in childhood is associated with poorer long-term health outcomes. Within structurally marginalized populations, there are disproportionately high rates of developmentally vulnerable children. The RICHER (Responsive, Intersectoral, Child and Community Health, Education and Research) social pediatric model was designed to increase access to care in marginalized neighborhoods. The purpose of this study was to describe the children and youth engaged with the RICHER model of service and characterize the needs of the population.
    UNASSIGNED: A retrospective chart review was conducted on children and youth who accessed primary care services through the program between January 1, 2018 and April 30, 2021. Basic descriptive data analysis was done using Stata v15.1.
    UNASSIGNED: A total of 210 charts were reviewed. The mean age in years at initial assessment was 6.32. Patients most commonly identified their race/ethnicity as Indigenous (33%) and 15% were recent newcomers to Canada. Evidence of at least 1 adverse SDoH was noted in 41% of charts; the most common included material poverty (34%), food insecurity (11%), and child welfare involvement (20%). The median number of diagnoses per patient was 4. The most frequently documented diagnoses were neurodevelopmental disorders (50%) including developmental delay (39%), ADHD (32%), and learning disability (26%). The program referred 72% of patients to general pediatricians and/or other subspecialists; 34% were referred for tertiary neuropsychological assessments and 35% for mental health services.
    UNASSIGNED: Our data suggests that this low-barrier, place-based primary care RICHER model was able to reach a medically, developmentally, and socially complex population living in disenfranchised urban neighborhoods. Half of the patients identified in our review had neurodevelopmental concerns and a third had mental health concerns, in contrast to an estimated 17% prevalence for mental health, behavioral, or developmental disorders in North American general pediatric aged populations. This highlights the impact adverse SDoH can have on child health and the importance of working with community partners to identify developmentally vulnerable children and support place-based programs in connecting with children who may be missed, overlooked, or disadvantaged through traditional models of care.
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  • 文章类型: Journal Article
    背景:头痛障碍是由于神经系统疾病而导致残疾的所有年份的最大原因。在撒哈拉以南非洲(SSA),有12亿居民,头痛的患病率与西方国家相似,但获得护理的机会普遍不足。到医疗机构的运输成本阻碍了获得护理的机会,导致放弃和低保留。马拉维的这项观察性研究的目的是调查运输成本及其对实施世卫组织部门间全球行动计划(IGAP)的可能影响,需要治疗,一种活动性头痛症。
    方法:这项研究是在布兰太尔通过优秀和先进手段(DREAM)中心进行的,马拉维,与全球头痛运动合作,作为先前研究的延伸。关于距离和旅行费用的查询被添加到先前发布的问卷中。
    结果:我们纳入了495名年龄在6-65岁的连续HIV+患者,随访时间至少1年。任何头痛的一年患病率为76.6%;由于交通费用,28.7%的人至少错过了一次预约。较高的运输成本与较高的错访概率相关(p<0.001),而生活在农村地区的人的成本高于城市地区的人(p<0.001)。
    结论:对SSA中运输的成本和可负担性的认识可能建议改善头痛治疗的策略。鉴于头痛导致的残疾,如果要实现IGAP战略目标和指标,这是必要的。
    BACKGROUND: Headache disorders are the largest contributor to all years lived with disability attributed to neurological disorders. In sub-Saharan Africa (SSA), with 1.2 billion inhabitants, headache prevalence is similar to that of Western countries but with widely inadequate access to care. Cost of transport to healthcare facilities hampers access to care, leading to abandonment and low retention. The aim of this observational study in Malawi was to investigate cost of transport and its likely impact on implementation of WHO\'s-Intersectoral Global Action Plan (IGAP) in an HIV+ population also complaining of, and requiring treatment for, an active headache disorder.
    METHODS: The study was conducted at the Disease Relief through Excellent and Advanced Means (DREAM) centre in Blantyre, Malawi, in collaboration with the Global Campaign against Headache as an extension of a previous study. Enquiries about distance and costs of travel were added to the previously published questionnaire.
    RESULTS: We included 495 consecutive HIV+ patients aged 6-65 years who had been followed for at least 1 year. One-year prevalence of any headache was 76.6%; 28.7% missed at least one appointment because of transport costs. Higher costs of transport were associated with higher probability of missing visits (p < 0.001), while costs were higher for those living in rural areas than for those in urban (p < 0.001).
    CONCLUSIONS: Awareness of cost and affordability of transport in SSA may suggest strategies to improve access to headache care. Given the disability attributable to headache, this is necessary if the IGAP strategic objectives and targets are to be achieved.
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  • 文章类型: Journal Article
    背景:在COVID-19大流行期间放宽了对远程医疗使用的许可限制,允许广泛使用,而不考虑就诊类型。随着这些远程医疗豁免的到期,必须评估远程医疗的最佳用途,以告知政策和临床护理。我们评估了与远程医疗和亲自新就诊或已就诊相关的患者体验。
    方法:从2019年8月至2022年6月,通过现场和远程医疗进行泌尿外科癌症护理的患者接受了一项关于护理满意度的调查,他们访问期间对交流的看法,旅行时间,差旅费,错过了几天的工作。我们用描述性统计评估了调查的回答。
    结果:完成了1,031例患者访视的调查(N=494例新访视,N=537次既定访问)。新患者和已确诊患者对所有就诊方式的满意度均较高(平均得分范围为59.9-60.7[最大63],P>0.05)。患者评估的就诊质量因就诊类型和方式而异(几乎所有比较均P>0.05)。与新的远程医疗就诊(平均26.60美元,141美元;P<0.001)相比,新的面对面患者就诊的旅行费用显着增加(平均496.10美元,SD$1021);新的面对面患者中有27%需要飞机旅行,而41%需要酒店住宿(P<0.001vs.0.8%和3.2%的新远程医疗患者,分别)。
    结论:接受新患者远程医疗护理的泌尿系癌症患者的满意度结果与接受当面护理的新患者的满意度结果相当,而费用却明显降低。提供超越COVID-19许可豁免的远程医疗豁免,包括新的患者就诊,将允许无论地理位置如何,持续提供高质量的泌尿系癌症护理。
    BACKGROUND: Relaxed licensing restrictions on telehealth use during the COVID-19 pandemic allowed broad use irrespective of visit type. As these telehealth waivers expire, optimal uses of telehealth must be assessed to inform policy and clinical care. We evaluated patient experience associated with telehealth and in-person new or established visits.
    METHODS: Patients seen in-person and via telehealth for urologic cancer care from August 2019 to June 2022 received a survey on satisfaction with care, perceptions of communication during their visit, travel time, travel costs, and days of work missed. We assessed survey responses with descriptive statistics.
    RESULTS: Surveys were completed for 1,031 patient visits (N = 494 new visits, N = 537 established visits). Satisfaction rates were high for all visit modalities among new and established patients (mean score range 59.9-60.7 [maximum 63], P > 0.05). Patient-rated quality of the encounter did not differ by visit type and modality (P > 0.05, for nearly all comparisons). New in-person patient visits were associated with significantly higher travel costs (mean $496.10, SD $1021) compared with new telehealth visits (mean $26.60, SD $141; P < 0.001); 27% of new in-person patients required plane travel and 41% required a hotel stay (P < 0.001 vs. 0.8% and 3.2% of new telehealth patients, respectively).
    CONCLUSIONS: Satisfaction outcomes among patients with urologic cancer receiving new patient telehealth care equaled those of new patients cared for in-person while costs were significantly lower. Offering telehealth exemption beyond COVID-19 licensing waivers to include new patient visits would allow for ongoing delivery of high-quality urologic cancer care irrespective of geographic location.
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  • 文章类型: Journal Article
    背景:NASEM初级保健报告和初级保健记分卡强调了初级保健医师(PCP)能力和具有常规护理来源(USC)的重要性。然而,研究发现,PCP容量和USC并不总是相关的。这项探索性研究比较了PCP容量相似但USC比率不同的县的地理格局和特征。
    方法:我们的县级,横断面方法包括罗伯特·格雷厄姆中心的估计和罗伯特·伍德·约翰逊县健康排名(CHR)的数据。我们利用条件映射方法首先确定了美国社会剥夺率最高的县(SDI)。接下来,县根据初级保健医生(PCP)能力和常规护理来源(USC)进行分层,允许我们识别4种类型的县:(1)高-低(高PCP容量,低USC);(2)高-高(高PCP容量,高USC);(3)低-高(低PCP容量,高USC);和(4)低-低(低PCP容量,USC低)。我们使用t检验来探讨初级保健能力相似率的县的特征差异。
    结果:结果显示出明显的地理格局:高-高县主要位于美国北部和东北部;高-低县主要位于美国西南部和南部。低高县集中在阿巴拉契亚和大湖地区;低低县集中在美国东南部和德克萨斯州。描述性结果显示,种族和族裔少数群体的比率,没有保险的人,在高PCP和低PCP地区,USC比率低的县,社会贫困程度最高。
    结论:认识到PCP短缺和提高USC的比率是增加获得高质量产品的关键策略,初级保健。按地理区域确定战略目标将允许制定量身定制的模式,以改善初级保健的获取和连续性。例如,我们发现,许多南加州大学患病率最低的县都存在于非医疗补助扩张州(德克萨斯州,格鲁吉亚,和佛罗里达州)没有保险的人口比例很高,这表明扩大医疗补助和改善获得医疗保险是这些州增加南加州大学的关键策略。
    BACKGROUND: The NASEM Primary Care Report and Primary Care scorecard highlighted the importance of primary care physician (PCP) capacity and having a usual source of care (USC). However, research has found that PCP capacity and USC do not always correlate. This exploratory study compares geographic patterns and the characteristics of counties with similar rates of PCP capacity but varying rates of USC.
    METHODS: Our county-level, cross-sectional approach includes estimates from the Robert Graham Center and data from the Robert Wood Johnson County Health Rankings (CHR). We utilized conditional mapping methods to first identify US counties with the highest rates of social deprivation (SDI). Next, counties were stratified based on primary care physician (PCP) capacity and usual source of care (USC) terciles, allowing us to identify 4 types of counties: (1) High-Low (high PCP capacity, low USC); (2) High-High (high PCP capacity, high USC); (3) Low-High (low PCP capacity, high USC); and (4) Low-Low (low PCP capacity, low USC). We use t test to explore differences in the characteristics of counties with similar rates of primary care capacity.
    RESULTS: The results show clear geographic patterns: High-High counties are located primarily in the northern and northeastern US; High-Low counties are located primarily in the southwestern and southern US. Low-High counties are concentrated in the Appalachian and Great Lakes regions; Low-Low counties are concentrated in the southeastern US and Texas. Descriptive results reveal that rates of racial and ethnic minorities, the uninsured, and social deprivation are highest in counties with low rates of USC for both high PCP and low PCP areas.
    CONCLUSIONS: Recognizing PCP shortages and improving rates of USC are key strategies for increasing access to high-quality, primary care. Targeting strategies by geographic region will allow for tailored models to improve access to and continuity of primary care. For example, we found that many of the counties with the lowest rates of USC are found in non-Medicaid expansion states (Texas, Georgia, and Florida) with high rates of uninsured populations, suggesting that expanding Medicaid and improving access to health insurance are key strategies for increasing USC in these states.
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  • 文章类型: Journal Article
    背景:随着付款人和提供者寻求更高的效率,美国的医疗保健提供和融资安排正在迅速变化,有效性,和安全。医疗保险和医疗补助服务中心使用赠款和技术援助通过创新的示范计划来推动这种发展,包括口腔保健。作者回顾了这些牙科演示,以确定共同的主题,并确定实施的障碍和促进者。
    方法:作者比较了6个领域的12个确定的演示:赠款和技术援助,利益相关者,内部护理设置,外部上下文设置,干预措施,和结果。他们为每个演示制定了计划摘要,并使用半结构化指南进行了审查,正确,澄清,并扩展计划摘要。
    结果:所有计划的共同点是非传统提供商的参与,在非传统环境中的护理,支付作为项目采用的关键外部性,整合医疗和口腔保健的干预措施,使用替代支付模式,和跟踪过程措施。收养促进者包括一名参与的口腔健康倡导者,并获得使命支持和利益相关者之间的协调。常见的障碍包括意外的组织中断,信息技术基础设施差,文化对非传统护理模式的抵制,以及在高需求领域缺乏提供者。
    结论:描述性研究结果表明,口腔保健可能会演变为更负责任的,集成,和可获得的医疗服务,扩大劳动力;提供者和付款人之间的合作将仍然是创造创新的关键,口腔保健的可持续模式。
    结论:医疗保险和医疗补助服务中心努力推进健康公平,扩大覆盖范围,和改善健康结果将继续推动口腔保健方面的类似举措。
    BACKGROUND: US health care delivery and financing arrangements are changing rapidly as payers and providers seek greater efficiency, effectiveness, and safety. The Centers for Medicare & Medicaid Services uses grants and technical assistance to drive such development through innovative demonstration programs, including for oral health care. The authors reviewed these dental demonstrations to identify common themes and identify barriers to and facilitators of implementation.
    METHODS: The authors compared 12 identified demonstrations across 6 domains: grant and technical assistance, stakeholders, inner care settings, outer contextual settings, interventions, and outcomes. They developed program summaries for each demonstration and interviewed key informants using a semistructured guide to review, correct, clarify, and expand on program summaries.
    RESULTS: Common across all programs were engagement of nontraditional providers, care in nontraditional settings, payment as a critical externality for program adoption, interventions that integrate medical and oral health care, use of alternative payment models, and tracking process measures. Adoption facilitators included an engaged oral health champion and obtaining mission support and alignment among stakeholders. Common barriers included unanticipated organizational disruptions, poor information technology infrastructure, cultural resistance to nontraditional care models, and lack of providers in high-need areas.
    CONCLUSIONS: Descriptive findings suggest that oral health care may evolve as a more accountable, integrated, and accessible health service with an expanded workforce; collaboration between providers and payers will remain key to creating innovative, sustainable models of oral health care.
    CONCLUSIONS: The Centers for Medicare & Medicaid Services\' efforts to advance health equity, expand coverage, and improve health outcomes will continue to drive similar initiatives in oral health care.
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  • 文章类型: Journal Article
    在巴西亚马逊,蛇咬伤毒液(SBE)不成比例地影响土著居民,并且在非土著人口中具有显著更高的发病率和致死率。这项定性研究从玛瑙斯土著医学和护理学生的角度描述了SBE护理的土著和生物医学医疗保健领域,巴西西部亚马逊。对亚马逊州立大学的五名土著学生进行了深入采访,2021年1月至12月。访谈采用归纳内容分析进行分析。我们组织了一个具有五个主题的解释性模型:(1)参与者身份;(2)土著和生物医学系统中的因果关系水平;(3)土著和生物医学系统中的治疗路线;(4)在土著愈合系统中添加生物医学设备的意识形态含义;(5)土著和生物医学系统的治疗失败和功效。从非殖民地的角度来看,并寻求提高巴西亚马逊原住民的医疗保健质量和可接受性,培训土著卫生专业人员是一项有前途的战略。为了这个目标,大学应该成为土著健康学生的赋权环境,支持他们的成长和发展,提高他们对不公正的认识,并促进向为用户提供文化适应和有效服务的转变。
    In the Brazilian Amazon, snakebite envenomations (SBEs) disproportionately affect Indigenous populations, and have a significantly higher incidence and lethality than in non-Indigenous populations. This qualitative study describes the Indigenous and biomedical healthcare domains for SBE care from the perspective of the Indigenous medical and nursing students in Manaus, Western Brazilian Amazon. In-depth interviews were conducted with five Indigenous students from the Amazonas State University, between January and December 2021. The interviews were analyzed using inductive content analysis. We organized an explanatory model with five themes: (1) participants\' identities; (2) causality levels in Indigenous and biomedical systems; (3) therapeutic itineraries in Indigenous and biomedical systems; (4) ideological implications of adding biomedical devices to Indigenous healing systems; and (5) therapeutic failure in and efficacy of Indigenous and biomedical systems. From a noncolonial perspective and seeking to increase the quality and acceptability of health care for the Indigenous populations of the Brazilian Amazon, the training of Indigenous health professionals presents itself as a promising strategy. For this goal, universities should serve as empowering settings for Indigenous health students that support them in their growth and development, raise their awareness of injustice, and catalyze change toward a culturally adapted and effective service for the users.
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  • 文章类型: Journal Article
    背景:创建了针对PCOS的2018年国际循证指南(IEBG),在某种程度上,针对国际调查中患者满意度差的问题。美国的患者满意度,之前和之后,这些指南尚未被描述。
    目的:评估IEBG前后美国PCOS女性的护理模式和患者态度。
    方法:横断面。
    方法:美国基于人群的女性社区样本。
    方法:经护理提供者证实患有PCOS的女性。
    方法:无。
    方法:关于护理模式和护理满意度的标准化问卷。
    结果:1056名受访者,纳入诊断时年龄23±6岁.69.2%必须等待>1年,72.9%在接受诊断之前看到>1个提供者。<45%的人强烈同意或同意有关信任医生的声明。<27%的人对所有问题的护理非常或有点满意。在多变量分析中,信任医生的综合结局与保险类型(无保险vs私人)相关(OR(95%CI),0.5(0.3-0.9),p=0.020)),种族(西班牙裔与高加索人)(0.6(0.5-0.9),p=0.007),(黑人与高加索人)(1.6(1.0-2.4),p=0.045)和诊断时间(5年内vs>5年内)(1.3(1.0-1.7),p=0.038)。护理满意度与保险类型(公共与私人)相关(0.6(0.4-0.9),p=0.010),(无保险vs私人)(0.5(0.3-0.9),p=0.021),和诊断时间(5年内vs>5年)(1.4(1.1-1.9),p=0.010)。
    结论:美国PCOS患者对护理的满意度和信任度总体较差。在过去5年内确诊的患者中得分较高,与那些更远程诊断的人相比,可能表明护理有改善的趋势。
    BACKGROUND: The 2018 International Evidence Based Guidelines (IEBG) for PCOS were created, in part, in response to poor patient satisfaction on international surveys. Patient satisfaction in the US, before and after these guidelines has not yet been characterized.
    OBJECTIVE: To evaluate care patterns and patient attitudes among women with PCOS in the US before and after IEBG.
    METHODS: Cross-sectional.
    METHODS: A population-based community sample of women in the US.
    METHODS: Women with PCOS confirmed by a care provider.
    METHODS: None.
    METHODS: Standardized questionnaires on care patterns and satisfaction in care.
    RESULTS: 1056 respondents, aged 23±6 years at diagnosis were included. 69.2% had to wait >1 year and 72.9% saw >1 provider prior to receiving a diagnosis. <45% strongly agreed or agreed with statements regarding trusting their doctor. <27% were very or somewhat satisfied with care across all questions. In multivariable analyses, composite outcome of trusting your physician was associated with insurance type (uninsured vs private) (OR (95% CI), 0.5 (0.3-0.9), p=0.020)), race (Hispanic vs Caucasian) (0.6 (0.5-0.9), p=0.007), (Black vs Caucasian) (1.6 (1.0-2.4), p=0.045) and timing of diagnosis (within 5 years vs >5 years) (1.3 (1.0-1.7), p=0.038). Care satisfaction was associated with insurance type (public vs private) (0.6 (0.4-0.9), p=0.010), (uninsured vs private) (0.5 (0.3-0.9), p=0.021), and timing of diagnosis (within 5 years vs >5 years) (1.4 (1.1-1.9), p=0.010).
    CONCLUSIONS: Satisfaction and trust in care is overall poor among patients with PCOS in the US. Higher scores among those diagnosed within the past 5 years, compared to those with a more remote diagnosis, may indicate an improving trend in care.
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  • 文章类型: Journal Article
    在美国,心源性休克的住院人数有所增加。临时机械循环支持(tMCS)可用于急性稳定患者。我们试图评估种族的存在,民族,以及美国心源性休克患者在获得MCS方面的社会经济不平等。
    Medicare数据用于识别在25个最大的基于核心的统计范围内,入院的心源性休克患者具有高级tMCS(微轴左心室辅助装置[mLVAD]或体外膜氧合[ECMO])功能,所有大城市。我们模拟了患者种族之间的联系,种族,以及mLVAD或ECMO的社会经济地位和使用。
    调整年龄和临床合并症后,双重医疗补助资格与心源性休克患者接受mLVAD的几率降低19.9%(95%CI,11.5%-27.4%)相关(P<.001).在调整了年龄之后,临床合并症,和医疗补助的双重资格,在心源性休克患者中,黑人种族与36.7%(95%CI,28.4%-44.2%)的接受mLVAD的几率较低相关。双重医疗补助资格与心源性休克患者接受ECMO的几率降低62.0%(95%CI,60.8%-63.1%)相关(P<.001)。在心源性休克患者中,黑人种族与36.0%(95%CI,16.6%-50.9%)的接受ECMO的几率较低相关。在调整医疗补助资格后。
    我们确定了庞大而重要的种族,民族,和社会经济上的不平等的mLVAD和ECMO患者出现心源性休克的大都市医院积极先进的tMCS计划。这些发现凸显了在获得潜在救生疗法方面的系统性不平等。
    UNASSIGNED: Hospital admissions for cardiogenic shock have increased in the United States. Temporary mechanical circulatory support (tMCS) can be used to acutely stabilize patients. We sought to evaluate the presence of racial, ethnic, and socioeconomic inequities in access to MCS in the United States among patients with cardiogenic shock.
    UNASSIGNED: Medicare data were used to identify patients with cardiogenic shock admitted to hospitals with advanced tMCS (microaxial left ventricular assist device [mLVAD] or extracorporeal membranous oxygenation [ECMO]) capabilities within the 25 largest core-based statistical areas, all major metropolitan areas. We modeled the association between patient race, ethnicity, and socioeconomic status and use of mLVAD or ECMO.
    UNASSIGNED: After adjusting for age and clinical comorbidities, dual eligibility for Medicaid was associated with a 19.9% (95% CI, 11.5%-27.4%) decrease in odds of receiving mLVAD in a patient with cardiogenic shock (P < .001). After adjusting for age, clinical comorbidities, and dual eligibility for Medicaid, Black race was associated with 36.7% (95% CI, 28.4%-44.2%) lower odds of receiving mLVAD in a patient with cardiogenic shock. Dual eligibility for Medicaid was associated with a 62.0% (95% CI, 60.8%-63.1%) decrease in odds of receiving ECMO in a patient with cardiogenic shock (P < .001). Black race was associated with 36.0% (95% CI, 16.6%-50.9%) lower odds of receiving ECMO in a patient with cardiogenic shock, after adjusting for Medicaid eligibility.
    UNASSIGNED: We identified large and significant racial, ethnic, and socioeconomic inequities in access to mLVAD and ECMO among patients presenting with cardiogenic shock to metropolitan hospitals with active advanced tMCS programs. These findings highlight systematic inequities in access to potentially lifesaving therapies.
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