OBJECTIVE: To evaluate care patterns and patient attitudes among women with PCOS in the US before and after IEBG.
METHODS: Cross-sectional.
METHODS: A population-based community sample of women in the US.
METHODS: Women with PCOS confirmed by a care provider.
METHODS: None.
METHODS: Standardized questionnaires on care patterns and satisfaction in care.
RESULTS: 1056 respondents, aged 23±6 years at diagnosis were included. 69.2% had to wait >1 year and 72.9% saw >1 provider prior to receiving a diagnosis. <45% strongly agreed or agreed with statements regarding trusting their doctor. <27% were very or somewhat satisfied with care across all questions. In multivariable analyses, composite outcome of trusting your physician was associated with insurance type (uninsured vs private) (OR (95% CI), 0.5 (0.3-0.9), p=0.020)), race (Hispanic vs Caucasian) (0.6 (0.5-0.9), p=0.007), (Black vs Caucasian) (1.6 (1.0-2.4), p=0.045) and timing of diagnosis (within 5 years vs >5 years) (1.3 (1.0-1.7), p=0.038). Care satisfaction was associated with insurance type (public vs private) (0.6 (0.4-0.9), p=0.010), (uninsured vs private) (0.5 (0.3-0.9), p=0.021), and timing of diagnosis (within 5 years vs >5 years) (1.4 (1.1-1.9), p=0.010).
CONCLUSIONS: Satisfaction and trust in care is overall poor among patients with PCOS in the US. Higher scores among those diagnosed within the past 5 years, compared to those with a more remote diagnosis, may indicate an improving trend in care.
目的:评估IEBG前后美国PCOS女性的护理模式和患者态度。
方法:横断面。
方法:美国基于人群的女性社区样本。
方法:经护理提供者证实患有PCOS的女性。
方法:无。
方法:关于护理模式和护理满意度的标准化问卷。
结果:1056名受访者,纳入诊断时年龄23±6岁.69.2%必须等待>1年,72.9%在接受诊断之前看到>1个提供者。<45%的人强烈同意或同意有关信任医生的声明。<27%的人对所有问题的护理非常或有点满意。在多变量分析中,信任医生的综合结局与保险类型(无保险vs私人)相关(OR(95%CI),0.5(0.3-0.9),p=0.020)),种族(西班牙裔与高加索人)(0.6(0.5-0.9),p=0.007),(黑人与高加索人)(1.6(1.0-2.4),p=0.045)和诊断时间(5年内vs>5年内)(1.3(1.0-1.7),p=0.038)。护理满意度与保险类型(公共与私人)相关(0.6(0.4-0.9),p=0.010),(无保险vs私人)(0.5(0.3-0.9),p=0.021),和诊断时间(5年内vs>5年)(1.4(1.1-1.9),p=0.010)。
结论:美国PCOS患者对护理的满意度和信任度总体较差。在过去5年内确诊的患者中得分较高,与那些更远程诊断的人相比,可能表明护理有改善的趋势。