Abstract：
BACKGROUND: The 2018 International Evidence Based Guidelines (IEBG) for PCOS were created, in part, in response to poor patient satisfaction on international surveys. Patient satisfaction in the US, before and after these guidelines has not yet been characterized.
OBJECTIVE: To evaluate care patterns and patient attitudes among women with PCOS in the US before and after IEBG.
METHODS: Cross-sectional.
METHODS: A population-based community sample of women in the US.
METHODS: Women with PCOS confirmed by a care provider.
METHODS: None.
METHODS: Standardized questionnaires on care patterns and satisfaction in care.
RESULTS: 1056 respondents, aged 23±6 years at diagnosis were included. 69.2% had to wait >1 year and 72.9% saw >1 provider prior to receiving a diagnosis. <45% strongly agreed or agreed with statements regarding trusting their doctor. <27% were very or somewhat satisfied with care across all questions. In multivariable analyses, composite outcome of trusting your physician was associated with insurance type (uninsured vs private) (OR (95% CI), 0.5 (0.3-0.9), p=0.020)), race (Hispanic vs Caucasian) (0.6 (0.5-0.9), p=0.007), (Black vs Caucasian) (1.6 (1.0-2.4), p=0.045) and timing of diagnosis (within 5 years vs >5 years) (1.3 (1.0-1.7), p=0.038). Care satisfaction was associated with insurance type (public vs private) (0.6 (0.4-0.9), p=0.010), (uninsured vs private) (0.5 (0.3-0.9), p=0.021), and timing of diagnosis (within 5 years vs >5 years) (1.4 (1.1-1.9), p=0.010).
CONCLUSIONS: Satisfaction and trust in care is overall poor among patients with PCOS in the US. Higher scores among those diagnosed within the past 5 years, compared to those with a more remote diagnosis, may indicate an improving trend in care.
OBJECTIVE: To evaluate care patterns and patient attitudes among women with PCOS in the US before and after IEBG.
METHODS: Cross-sectional.
METHODS: A population-based community sample of women in the US.
METHODS: Women with PCOS confirmed by a care provider.
METHODS: None.
METHODS: Standardized questionnaires on care patterns and satisfaction in care.
RESULTS: 1056 respondents, aged 23±6 years at diagnosis were included. 69.2% had to wait >1 year and 72.9% saw >1 provider prior to receiving a diagnosis. <45% strongly agreed or agreed with statements regarding trusting their doctor. <27% were very or somewhat satisfied with care across all questions. In multivariable analyses, composite outcome of trusting your physician was associated with insurance type (uninsured vs private) (OR (95% CI), 0.5 (0.3-0.9), p=0.020)), race (Hispanic vs Caucasian) (0.6 (0.5-0.9), p=0.007), (Black vs Caucasian) (1.6 (1.0-2.4), p=0.045) and timing of diagnosis (within 5 years vs >5 years) (1.3 (1.0-1.7), p=0.038). Care satisfaction was associated with insurance type (public vs private) (0.6 (0.4-0.9), p=0.010), (uninsured vs private) (0.5 (0.3-0.9), p=0.021), and timing of diagnosis (within 5 years vs >5 years) (1.4 (1.1-1.9), p=0.010).
CONCLUSIONS: Satisfaction and trust in care is overall poor among patients with PCOS in the US. Higher scores among those diagnosed within the past 5 years, compared to those with a more remote diagnosis, may indicate an improving trend in care.
摘要：
背景：创建了针对PCOS的2018年国际循证指南（IEBG），在某种程度上,针对国际调查中患者满意度差的问题。美国的患者满意度，之前和之后，这些指南尚未被描述。
目的：评估IEBG前后美国PCOS女性的护理模式和患者态度。
方法：横断面。
方法：美国基于人群的女性社区样本。
方法：经护理提供者证实患有PCOS的女性。
方法：无。
方法：关于护理模式和护理满意度的标准化问卷。
结果：1056名受访者，纳入诊断时年龄23±6岁.69.2%必须等待>1年，72.9%在接受诊断之前看到>1个提供者。<45％的人强烈同意或同意有关信任医生的声明。<27%的人对所有问题的护理非常或有点满意。在多变量分析中，信任医生的综合结局与保险类型(无保险vs私人)相关(OR(95%CI)，0.5（0.3-0.9），p=0.020)),种族（西班牙裔与高加索人）（0.6（0.5-0.9），p=0.007),（黑人与高加索人）（1.6（1.0-2.4），p=0.045）和诊断时间（5年内vs>5年内）（1.3（1.0-1.7），p=0.038)。护理满意度与保险类型(公共与私人)相关(0.6(0.4-0.9)，p=0.010),（无保险vs私人）（0.5（0.3-0.9），p=0.021),和诊断时间（5年内vs>5年）（1.4（1.1-1.9），p=0.010)。
结论：美国PCOS患者对护理的满意度和信任度总体较差。在过去5年内确诊的患者中得分较高，与那些更远程诊断的人相比，可能表明护理有改善的趋势。
目的：评估IEBG前后美国PCOS女性的护理模式和患者态度。
方法：横断面。
方法：美国基于人群的女性社区样本。
方法：经护理提供者证实患有PCOS的女性。
方法：无。
方法：关于护理模式和护理满意度的标准化问卷。
结果：1056名受访者，纳入诊断时年龄23±6岁.69.2%必须等待>1年，72.9%在接受诊断之前看到>1个提供者。<45％的人强烈同意或同意有关信任医生的声明。<27%的人对所有问题的护理非常或有点满意。在多变量分析中，信任医生的综合结局与保险类型(无保险vs私人)相关(OR(95%CI)，0.5（0.3-0.9），p=0.020)),种族（西班牙裔与高加索人）（0.6（0.5-0.9），p=0.007),（黑人与高加索人）（1.6（1.0-2.4），p=0.045）和诊断时间（5年内vs>5年内）（1.3（1.0-1.7），p=0.038)。护理满意度与保险类型(公共与私人)相关(0.6(0.4-0.9)，p=0.010),（无保险vs私人）（0.5（0.3-0.9），p=0.021),和诊断时间（5年内vs>5年）（1.4（1.1-1.9），p=0.010)。
结论：美国PCOS患者对护理的满意度和信任度总体较差。在过去5年内确诊的患者中得分较高，与那些更远程诊断的人相比，可能表明护理有改善的趋势。
