背景:超过90%的聋儿出生在对耳聋知之甚少的听力家庭中。出生时听力筛查的好处往往会丢失,因为家庭发现关于聋哑儿童的途径的信息很少,但对于确保聋哑儿童获得相关的语言和沟通支持至关重要。围绕聋儿和家庭成员的系统对于儿童的健康和社会发展至关重要。听力父母抚养聋哑儿童的经验以及影响家庭通过健康和教育服务为聋哑儿童导航途径的经验的理解因素目前被低估。
方法:在威尔士进行了一项探索性研究,英国。20名参与者接受了采访,包括10名聋哑儿童的听力父母和10名使用半结构化访谈与聋哑儿童一起工作的人。布朗芬布伦纳的生态系统理论被用作探索微观的透镜,中观-,exo-,围绕儿童和家庭的宏观和时间系统。本研究探讨了这些系统中潜在的支持和障碍。
结果:调查结果在两个广泛的标题下报告:推动者和障碍。在启用程序下,发现提供资源,支持人和知识是关键因素。在障碍之下,缺乏知识,缺乏提供和对抗服务和态度是需要解决的关键问题。
结论:威尔士聋哑儿童家长的听力,英国报告说,经历了一系列的推动者和障碍,影响了他们抚养聋哑儿童的经历。政策制定者和政府需要进一步提供资金,以认识到改善聋哑儿童成果的支持需求。
■该项目是从与利益相关者参考小组的初步讨论中发展起来的,并与该小组的聋人小组和听力父母有聋儿一起进行。该项目的指导小组参与了研究设计,在研究过程的所有阶段进行招聘和持续反馈。
More than 90% of deaf children are born to hearing families who know little about deafness. Benefits from hearing screening at birth are often lost, as families find little information about pathways for deaf children but are key to ensuring deaf children receive relevant language and communication support. Systems surrounding deaf children and family members are crucial for children\'s health and social development. Experiences of hearing parents raising deaf children and understanding factors that influence families\' experience of navigating pathways for deaf children through health and education services are currently underreported.
An exploratory study was conducted in Wales, UK. Twenty participants were interviewed, including 10 hearing parents of deaf children and 10 people who work with deaf children using semistructured interviews. Bronfenbrenner\'s ecological systems theory was used as a lens to explore the micro-, meso-, exo-, macro- and chronosystems that surround children and families. This study explores potential supports and barriers in those systems.
Findings are reported under two broad headings: enablers and barriers. Under enablers, it was found that provision of resources, supporting people and knowledge were key factors. Under barriers, a lack of knowledge, lack of provision and battling services and attitudes were key issues that need addressing.
Hearing parents of deaf children in Wales, UK reported experiencing a range of enablers and barriers that impact upon their experiences of raising a deaf child. Further provision is needed by policymakers and governments to recognise support needs to improve the outcomes for deaf children.
This project was developed from initial discussions with the stakeholder reference group and progressed with the group\'s deaf panel and hearing parents with deaf children. The project\'s steering group was involved in study design, recruitment and continuous feedback on all stages of the research process.