hard of hearing

听力困难
  • 文章类型: Journal Article
    背景:医疗工作者(HCWs)通常不准备与D/聋人和听力障碍(HoH)患者进行适当的沟通。由此产生的沟通挑战加剧了这些人群获得和受益于护理质量的现有障碍。作为回应,本研究旨在开发和评估HCW的能力建设干预措施,以提高他们对D/聋人和HoH个人在医疗保健方面的经验的认识,并提高他们与这些人群的沟通能力。
    方法:本研究采用定性和定量方法进行参与式行动研究设计。干预是通过4个迭代阶段开发和测试的。反应(即,对干预内容的满意度和感知,质量,适当性和有用性)在干预后进行定量和定性评估,而与D/聋人和HoH患者沟通的感知知识和自我效能感以及组织回报(使用基本规则和工具改善沟通的频率)之前进行了定量评估,干预后和干预后6个月。
    结果:主要的定性和定量研究结果表明,干预措施的最终版本在参与者中达到了很高的满意度。接下来,接受干预后和6个月后获得的感知知识和自我效能感得分明显高于初始评估中的得分,尽管两个评分在6个月时都显着下降(与干预后刚获得的评分相比)。最后,研究结果表明,在接受干预后,组织收益没有显著变化.呼应这些结果,主要的定性发现表明,在接受干预后,参与者感到更有信心,但没有更有能力与D/聋人和HoH患者进行交流。
    结论:研究结果表明,能力建设干预措施是一种有希望的手段,可以持续地增加医护人员在如何与D/聋人和HoH患者沟通方面的感知知识和自我效能感,虽然补充方法和后续干预提醒可能是必要的,以实现工作环境的实践变化。
    BACKGROUND: Healthcare workers (HCWs) are commonly not prepared to properly communicate with D/deaf and hard of hearing (HoH) patients. The resulting communication challenges reinforce the existing barriers to accessing and benefiting from quality of care in these populations. In response, this study aimed to develop and evaluate a capacity-building intervention for HCWs to raise their awareness of D/deaf and HoH individuals\' experiences in healthcare and improve their capacity to communicate with these populations.
    METHODS: This study featured a participatory action research design using qualitative and quantitative methods. The intervention was developed and tested through 4 iterative phases. Reactions (i.e., satisfaction and perception of the intervention content, quality, appropriateness and usefulness) were assessed quantitatively and qualitatively after the intervention, whereas perceived knowledge and self-efficacy in communicating with D/deaf and HoH patients and organizational payoffs (use frequency of basic rules and tools improving communication) were quantitatively assessed before, after and 6-month post-intervention.
    RESULTS: Main qualitative and quantitative findings showed that the final version of the intervention reached high levels of satisfaction among participants. Next, perceived knowledge and self-efficacy scores obtained after receiving the intervention and 6 months later were significantly higher than those yielded in the initial assessment, although both scores significantly decreased at 6 months (compared to the scores obtained just after the intervention). Finally, findings showed no significant changes in organizational payoffs after receiving the intervention. Echoing these results, main qualitative findings documented that after receiving the intervention, participants felt more confident yet not more equipped to communicate with D/deaf and HoH patients.
    CONCLUSIONS: Findings suggest that the capacity-building intervention is a promising means to sustainably increase HCWs\' perceived knowledge and self-efficacy on how communicating with D/deaf and HoH patients, although complementary approaches and follow-up intervention reminders may be necessary to enable practice changes in the working environment.
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  • 文章类型: Journal Article
    背景:失聪或听力困难(DHH)的儿童面临与不完全语言接触相关的不良发育结果的风险。基于证据的干预措施可以改善早期使用语言的机会。随着对照顾DHH儿童的更好理解,儿科医生将更愿意与家庭合作,改善这一人群的结果。迄今为止,没有关于儿童听力差异教育儿科学员的正式课程。
    方法:作者设计了一个新颖的试点课程,教育儿科学员照顾DHH儿童,包括筛查,诊断,手语,听力技术。课程在1小时的研讨会中交付给儿科实习生。讲座前,讲座后立即进行,并进行了为期6个月的课后调查,以评估课程的有效性。描述性统计用于确定课程干预前后对概念的理解差异。
    结果:在2018年至2019年的14个月学习期间,共有55名居民参加了课程。与居民对儿童耳聋的理解及其对DHH儿童护理能力的信心相关的调查前后的反应存在显着差异。
    结论:儿科受训人员了解了DHH儿童面临的挑战,以及旨在在发育的关键时期为他们提供语言的干预措施。因此,在对听力差异进行新的诊断后,学员将能够更好地照顾患者及其家人,并指导他们进行早期基于语言的干预。
    BACKGROUND: Children who are deaf or hard of hearing (DHH) are at risk for poor developmental outcomes related to incomplete language access. Evidence based interventions are available to improve early access to language. With a better understanding of caring for DHH children, pediatricians will be more prepared to work with families in improving outcomes for this population. To date, there are no formal curricula on educating pediatric trainees on childhood hearing differences.
    METHODS: The authors designed a novel pilot curriculum to educate pediatric trainees on caring for DHH children, including screening, diagnosis, signed languages, and hearing technologies. The curriculum was delivered to pediatric interns in a 1-hour seminar. Pre-lecture, immediate post-lecture, and 6-month post-lecture surveys were developed and conducted to evaluate the effectiveness of the curriculum. Descriptive statistics were used to determine differences in understanding concepts before and after the curricular intervention.
    RESULTS: A total of 55 residents participated in the curriculum over a 14-month study period from 2018 to 2019. There were significant differences in responses between the pre- and post- surveys related to residents\' understanding of childhood deafness and their confidence in their ability to care for DHH children.
    CONCLUSIONS: Pediatric trainees gained an understanding of the challenges faced by DHH children and of the interventions that aim to provide them with access to language during the critical period of development. As a result, trainees will be in a better position to care for patients and their families after a new diagnosis of a hearing difference and guide them through early language-based interventions.
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  • 文章类型: Journal Article
    婴儿与父母的互动是语言学习的基础。对于大多数聋哑婴儿来说,听力损失会影响,以及交流互动的质量,将语言发展置于危险之中。在联合王国,对家庭应对互动中面临的挑战的支持差异很大。朝着更标准化但可定制的家庭支持迈出了一步,我们共同制作了一个指导性的,基于视频的干预,测试七种交际策略中行为改变的可行性和9名父母的可接受性,形成研究1。父母增加了对大多数行为的使用,发现内容和交付可以接受。然而,需要进一步发展:(a)支持使用语义上偶然的谈话和注意力获取策略来引起婴儿的注意力,(b)确保以适合个别家庭的一口大小的格式提供信息。在研究2中,根据研究1的结果改进了干预措施,并评估了9位父母和17位专业人士的可接受性。报告了相似的高可接受性分数。最后的改进和修改可以在未来的干预措施中解决。当前的研究为标准化干预提供了积极的早期步骤,以支持可用于常规实践的交流。
    Infant-parent interaction forms the foundation for language learning. For the majority of deaf infants, hearing loss can impact access to, and the quality of communicative interactions, placing language development at risk. Support for families to meet the challenges faced during interaction is highly variable in the United Kingdom. In a step towards more standardized but tailorable family support, we co-produced an instructional, video-based intervention, testing for feasibility in terms of behavior change in seven communicative strategies and acceptability with 9 parents, forming study 1. Parents increased their use of the majority of behaviors and found content and delivery acceptable. However, further development was required to: (a) support use of semantically contingent talk and attention getting strategies to elicit infant attention, and (b) ensure the information was provided in a bite-size format that could be tailored to individual families. In study 2, the intervention was refined based on findings from study 1 and assessed for acceptability with 9 parents and 17 professionals, who reported similar high acceptability scores. Final refinements and modifications could be addressed in future interventions. The current studies provide a positive early step towards a standardized intervention to support communication that could be used in routine practice.
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  • 文章类型: Journal Article
    背景:心理健康问题是聋人和听力障碍(D/HH)社区中的一个重要问题,但是社区成员在访问适当的资源方面可能面临几个独特的挑战。
    目的:本研究的目的是调查D/HH社区的心理健康需求以及心理健康应用程序如何能够支持这些需求。
    方法:D/HH社区共有10名成员参加了一个焦点小组和调查,以提供他们的观点和经验。参与者是内陆帝国耳聋中心团队的成员,其中包括具有生活经验的人,他们是D/HH社区的成员和倡导者。
    结果:调查结果确定了对心理健康应用程序的一系列需求,包括提供美国手语和英语支持,加强心理健康教育,减少围绕心理健康的污名,与聋人直接沟通,以及一系列社区成员在文化方面可以访问的应用程序,所需资源,和位置。
    结论:这些发现可以为适合D/HH社区的数字心理健康资源和外展策略的开发提供信息。
    BACKGROUND: Mental health concerns are a significant issue among the deaf and hard of hearing (D/HH) community, but community members can face several unique challenges to accessing appropriate resources.
    OBJECTIVE: The aim of this study was to investigate the mental health needs of the D/HH community and how mental health apps may be able to support these needs.
    METHODS: A total of 10 members of the D/HH community participated in a focus group and survey to provide their perspectives and experiences. Participants were members of the Center on Deafness Inland Empire team, which comprises people with lived experience as members of and advocates for the D/HH community.
    RESULTS: Findings identified a spectrum of needs for mental health apps, including offering American Sign Language and English support, increased education of mental health to reduce stigma around mental health, direct communication with a Deaf worker, and apps that are accessible to a range of community members in terms of culture, resources required, and location.
    CONCLUSIONS: These findings can inform the development of digital mental health resources and outreach strategies that are appropriate for the D/HH community.
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  • 文章类型: Journal Article
    背景:与听力人群相比,D/聋人和听力障碍人群遭受身心健康问题的风险更高。此外,他们通常在获得和受益于卫生服务方面遇到障碍,这在很大程度上源于他们在与医疗保健提供者沟通时面临的挑战。医疗保健提供者通常缺乏量身定制的沟通技巧来照顾D/聋人和听力障碍人群,这导致工作人员和D/聋人和重听社区的困难和不满。该研究项目旨在开发和评估医疗保健提供者的能力建设干预措施,目的是提高他们对D/聋人和听力困难的人的认识,他们独特的需求,并提高他们与该患者人群进行有效沟通的能力。方法:本研究项目采用定性和定量方法进行参与式行动研究设计。与参与性行动研究一致,这项研究将积极参与目标人群,主要利益相关者和代表协会。干预措施将通过迭代阶段进行开发和测试。培训评估和有效性的综合模型将指导干预措施的前瞻性评估。后者将涉及在干预前后和6个月随访时对参与者进行定性和定量评估。讨论:结果将有助于旨在减少D/聋人和听力困难人获得和受益于医疗保健服务的障碍的研究。调查结果将提交给有代表性的协会和政治当局,以及在研究会议和同行评审期刊上传播。
    Background: D/deaf and hard of hearing populations are at higher risk for experiencing physical and mental health problems compared to hearing populations. In addition, they commonly encounter barriers to accessing and benefiting from health services, which largely stem from challenges they face in communicating with healthcare providers. Healthcare providers commonly lack tailored communication skills in caring for D/deaf and hard of hearing populations, which lead to difficulties and dissatisfaction for both staff and D/deaf and hard of hearing communities. This research project aims to develop and evaluate a capacity-building intervention for healthcare providers with the goal of increasing their awareness of D/deaf and hard of hearing individuals\' experiences with the healthcare system, their distinct needs, and improving their capacity to communicate effectively with this patient population. Methods: This research project features a participative action research design using qualitative and quantitative methods. Consistent with participative action research, the study will actively involve the target populations, key stakeholders and representative associations. The intervention will be developed and tested through iterative phases. The Integrated Model of Training Evaluation and Effectiveness will guide prospective evaluation of the intervention. The latter will involve qualitative and quantitative assessments in participants before and after the intervention and at 6-months follow-up. Discussion: Results will contribute to research aimed at decreasing barriers to accessing and benefiting from healthcare services for D/deaf and hard of hearing individuals. Findings will be presented to representative associations and political authorities, as well as disseminated at research conferences and in peer-reviewed journals.
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  • 文章类型: Journal Article
    BACKGROUND: Hearing loss is an important public health issue, since it has a very negative impact on peoples\' lives, irrespective of the age at which it develops. However, globally there is a noticeable lack of epidemiological data for health outcomes for people who are deaf and hard of hearing. In Greece, people with hearing disabilities are systematically not included in health policy and planning processes, despite there being a marked tendency for global efforts aimed at improving their quality of life.
    METHODS: The sample consisted of 140 adults with hearing loss (86 d/Deaf and 54 hard of hearing) and 97 normal hearing as the control group. We run data collection from April to June 2015, using the Greek version of the 36-Item Short Form Health Survey (SF-36v2). Socio-demographic and characteristics about non-medical determinants of health (tobacco and alcohol consumption levels, BMI and physical activity).were also collected and were analysed as possible determinants. Data analysis included bivariate and multivariate analyses such as linear regression models.
    RESULTS: Multivariate analyses identified that in all the SF-36v2 dimensions, the scores among deaf people were lower than those with normal hearing. Determinants included the hearing loss degree, educational level, body mass index, levels of physical activity, and alcohol consumption levels, while the variable \"number of family members per household\" was inversely associated with physical health summary scale score.
    CONCLUSIONS: Improving knowledge of the health-related determinants that affect quality of life for the population with hearing loss is an important step in designing targeted services and interventions. In light of these findings, a special effort must be made to ensure the wellbeing of this population.
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