Aftercare

Aftercare
  • 文章类型: Journal Article
    背景:儿科重症监护病房(PICU)入院后坚持随访可能是管理PICU后后遗症的关键组成部分。然而,PICU随访依从性的先前工作有限.这项研究的目的是确定住院特征,出院儿童健康指标,和随访特征与由于呼吸衰竭而入院的PICU后在四级护理中心的建议随访和完全依从性相关。
    方法:我们对2013年1月12日至2014年12月期间入住四级护理PICU的≤18岁呼吸衰竭患者进行了回顾性队列研究。对四元护理中心出院后两年(2013年1月至2017年3月)的住院后完全依从性和推荐随访进行了量化,并通过人口统计学进行了比较。基线儿童健康指标,住院特征,出院儿童健康指标,以及双变量和多变量分析的随访特征。将患者分为非依从随访(在四级护理中心参加少于100%的推荐预约的患者)和完全依从(在四级护理中心参加100%的推荐预约的患者)。
    结果:在出院时存活的155名患者中,140人(90.3%)被建议在四级护理中心进行随访。在四元护理中心推荐随访的140名患者中,32.1%的患者在随访期间未粘附,67.9%的患者完全粘附。在多变量逻辑回归模型中,每次额外推荐的独特随访预约与完全坚持随访的几率较低相关(OR0.74,95%CI0.60-0.91,p=0.005),出院前预约比例每增加10%,与完全坚持随访的机率较高相关(OR1.02,95%CI1.01-1.03,p=0.004).
    结论:急性呼吸衰竭入院后,只有三分之二的儿童完全坚持在四级护理中心进行推荐的随访.我们的研究结果表明,将推荐的随访仅限于关键的基本医疗保健提供者,并在出院前尽可能多地安排预约,可以提高随访依从性。然而,需要更好地了解导致不坚持随访预约的因素,以告知更广泛的系统层面方法有助于提高PICU随访依从性.
    BACKGROUND: Adherence with follow-up appointments after a pediatric intensive care unit (PICU) admission is likely a key component in managing post-PICU sequalae. However, prior work on PICU follow-up adherence is limited. The objective of this study is to identify hospitalization characteristics, discharge child health metrics, and follow-up characteristics associated with full adherence with recommended follow-up at a quaternary care center after a PICU admission due to respiratory failure.
    METHODS: We conducted a retrospective cohort study of patients ≤ 18 years with respiratory failure admitted between 1/2013-12/2014 to a quaternary care PICU. Post-hospitalization full adherence with recommended follow-up in the two years post discharge (1/2013-3/2017) at the quaternary care center was quantified and compared by demographics, baseline child health metrics, hospitalization characteristics, discharge child health metrics, and follow-up characteristics in bivariate and multivariate analyses. Patients were dichotomized into being non-adherent with follow-up (patients who attended less than 100% of recommended appointments at the quaternary care center) and fully adherent (patients who attended 100% of recommended appointments at the quaternary care center).
    RESULTS: Of 155 patients alive at hospital discharge, 140 (90.3%) were recommended to follow-up at the quaternary care center. Of the 140 patients with recommended follow-up at the quaternary care center, 32.1% were non-adherent with follow-up and 67.9% were fully adherent. In a multivariable logistic regression model, each additional recommended unique follow-up appointment was associated with lower odds of being fully adherent with follow-up (OR 0.74, 95% CI 0.60-0.91, p = 0.005), and each 10% increase in the proportion of appointments scheduled before discharge was associated with higher odds of being fully adherent with follow-up (OR 1.02, 95% CI 1.01-1.03, p = 0.004).
    CONCLUSIONS: After admission for acute respiratory failure, only two-thirds of children were fully adherent with recommended follow-up at a quaternary care center. Our findings suggest that limiting the recommended follow-up to only key essential healthcare providers and working to schedule as many appointments as possible before discharge could improve follow-up adherence. However, a better understanding of the factors that lead to non-adherence with follow-up appointments is needed to inform broader system-level approaches could help improve PICU follow-up adherence.
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  • 文章类型: Journal Article
    背景:许多父母报告说,早产儿出生后,从医院到家庭的过渡具有挑战性。这项研究调查了父母对出院后社区后续服务的看法,在家里的最初几个月父母自我效能感的变化,父母中抑郁症状的患病率,以及这些因素与NICU经历和儿童调节行为之间的关系。
    方法:在描述性研究的第二阶段,当他们的孩子因早产而被纠正四个月时,110名父母返回了一份数字问卷。父母是在带着孩子住院时被招募的,在挪威八个新生儿重症监护病房(NICU)之一。因此,这项研究提供了对广泛地理范围内的后续服务的见解。父母对自我效能感的看法是在Karitane育儿信心量表上报告的,采用爱丁堡产后抑郁量表(EPDS)评估抑郁症状。儿童的调节行为在6个月版本的年龄和阶段问卷:社会和情感(ASQ:SE)中报告。使用SPSS,除描述性分析外,还在多元回归分析中调查了变量之间的关联.此外,父母自我效能感的重复测量检查涉及线性混合模型的应用。
    结果:父母报告说,从出院后到4个月大的儿童的自我效能感得到了改善(F(1,167)=1233.2,p<0.001)。平均而言,父亲的自我效能感比母亲的自我效能感有了更大的提高。父母对出院前消息灵通的看法预测了自我效能的改善(F[1,29]=10.4,p=0.003)。抑郁症状的报告与以前在新父母中报告的水平相似,10.4%的母亲和6.7%的父亲报告EPDS评分≥10分。父母在ASQ:SE上的报告显示,有15%的儿童得分高于3至9个月大儿童的建议得分。家长报告的后续服务收益显示出相当大的差异。经常提到公共卫生护士和医生中有关早产的特定知识的重要性,公共卫生护士被视为各种服务的协调员和调解员。
    结论:父母报告自我效能得到改善,一般情况下,抑郁症状与新父母相似,出院后几个月.据报道,儿童的调节行为水平与足月婴儿相当。
    BACKGROUND: Many parents report the transition from hospital to home as challenging after the birth of a preterm-born child. This study investigates parental perceptions of community-based follow-up services after hospital discharge, alterations in parental self-efficacy during the early months at home, the prevalence of depressive symptoms among parents, and the relationship between these factors and both NICU experiences and children\'s regulative behaviors.
    METHODS: In this second phase of a descriptive study, 110 parents returned a digital questionnaire when their child was four months corrected for prematurity. Parents were recruited while hospitalized with their child, in one of eight Norwegian neonatal intensive care units (NICUs). Thus, the study provides insight into follow-up services across a broad geographical range. Parents\' perception of self-efficacy was reported on the Karitane Parenting Confidence Scale, and depressive symptoms were evaluated with the Edinburgh Postnatal Depression Scale (EPDS). Children\'s regulative behavior was reported on the 6-month version of the Ages and Stages Questionnaire: Social and Emotional (ASQ: SE). Using SPSS, associations between variables were investigated in multiple regression analysis in addition to descriptive analysis. Additionally, the examination of repeated measures of parental self-efficacy involved the application of linear mixed models.
    RESULTS: Parents reported improved perception of self-efficacy from postdischarge to the children\'s age of four months (F (1,167) = 1233.2, p < 0.001). On average, fathers\' self-efficacy improved more than that of mothers. Parents\' perception of being well informed prior to discharge from hospital predicted improved self-efficacy (F [1, 29] = 10.4, p = 0.003). Reports of depressive symptoms were at a similar level as previously reported among new parents, as 10.4% of mothers and 6.7% of fathers reported EPDS scores ≥ 10 points. Parents\' reports on ASQ: SE show that 15% of the children scored above the recommended cutoff score for three- to nine-month-old children. The parent-reported benefit of follow-up services showed considerable variation. The importance of specific knowledge about prematurity among public health nurses and physicians was frequently mentioned, and public health nurses were perceived as coordinators and mediators of various services.
    CONCLUSIONS: Parents reported improved self-efficacy, and depressive symptoms at similar levels as new parents in general, a few months after discharge from hospital. Childrens\' regulatory behavior were reported at levels comparable with term-born infants.
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  • 文章类型: Journal Article
    背景:2006年,宪法法院裁定哥伦比亚的堕胎部分合法化,允许强奸案件的程序,对女性健康或生命的风险,胎儿畸形与生命不相容.尽管这项法律不那么禁止性强,一些妇女和孕妇更喜欢在正规医疗保健系统之外自我管理堕胎,往往没有准确的信息。2018年,我们进行了一项研究,以了解是什么促使女性使用非正式获得的药物进行自我管理。此后,哥伦比亚于2022年通过了一项进步法律,允许在怀孕第24周应要求进行堕胎。然而,这项法律的实施仍在进行中。审查2006年后妇女选择非正式自我管理堕胎的原因可能不仅突出了当时法律服务的障碍如何持续存在,但也可以告知战略,以增加对当前堕胎法的了解,并改善未来获得服务的机会。
    方法:2018年对47名年龄在18岁及以上的妇女进行了深入访谈,这些妇女使用在医疗机构以外获得的米索前列醇进行人工流产。他们在两家私人诊所接受堕胎后护理。访谈探讨了妇女对当时生效的2006年堕胎法的了解,以及他们更喜欢非正式的堕胎护理渠道而不是正规的医疗保健服务的原因。
    结果:妇女在正规医疗保健系统之外使用米索前列醇的动机受到对医疗保健系统缺乏信任以及对堕胎法的不完整和不准确了解的影响。相反,女性认为在医疗保健系统之外获得的米索前列醇是有效的,负担得起的,更容易访问。
    结论:在正规医疗保健系统之外获得米索前列醇为一些妇女提供了更容易获得和吸引人的前景,因为他们担心法律会对堕胎产生影响和污名化。尽管堕胎法更加宽松,但这种偏好可能会继续,应实施战略,以扩大对最近法律变化的了解,并打击错误信息和污名化。这将支持那些希望利用这些服务的人了解和获得合法堕胎。
    Enel2006laCorteConstitucionaldeColombiadespenalizoelabortoencasosdeviolación,riesgoparalasaludovidadelamujerymalformacionesfetales.Pesardeello,阿尔古纳斯·穆杰雷斯和人物角色连续出生。Enelaño2018,realizamosunestudioparacomprenderquélasmomomabaahacerlo.Desdeentonces哥伦比亚haadoptadounmarcolegalmásprogresista,permitiendoenelaño2022年elaborttoasolicudhastalasemana24deembarazo.罪恶禁运,马尔科法律和埃斯塔恩·库索。Examinarlasrazonesporlasquelasmujeresrecurriereronaautoinducationunabortodemanerainformaldespuésdel2006nosoloinformasobrelasbarrerasalosservicioslegaleslegaleseneseperiodo,中南南阿尤达:Durante2018年经济计划47名市长,18岁,米索前列醇后托托。Enlasentrevistasexasiamosloquesabiansobreelmarcolegaldeesemomento-eldel2006-,ylasrazonesporlascualesrecorrieronafuentesinformalesparaabortar.
    结果:对米索前列醇的信息分析结果:恩对比,研究人员认为,米索前列醇治疗是一种无性系,yesmásfácildeobtener.
    结论:对米索前列醇进行正式评估。Aunqueestapreferenciapersistapesardelcambiodelmarcolegal,我们的目标是扩大经济利益,打击经济利益,打击经济利益。Estogarantizaríaquelasmujeresesteninformadasypuedanacadedeaservicioslegalesdeabortodecalidadsiasílodesan.
    尽管有法律服务,哥伦比亚的孕妇继续在正规医疗保健系统之外寻求堕胎。了解他们对堕胎法的了解以及他们对合法堕胎服务的看法,可以深入了解他们寻求替代堕胎途径的动机。2018年,在哥伦比亚部分堕胎合法化12年后(2022年,堕胎完全非刑事化长达24周),在正规医疗保健系统之外获得米索前列醇的妇女接受了采访。综合因素导致妇女以这种方式寻求米索前列醇:对堕胎法的不完全了解,害怕法律后果,对社会污名的恐惧,以及对更快和私有流程的渴望。通过非正式获得的药物进行自我管理可以为怀孕的人提供根据自己的条件进行堕胎的机会,尤其是当正规医疗体系中的堕胎似乎无法实现时,证明很难进入,或伴随着社会和法律风险。虽然人们越来越意识到堕胎在哥伦比亚是合法的,可能会使孕妇有能力寻求正规护理,来自他们社区的判断,医疗保健提供者,除非还努力打击堕胎耻辱,否则执法部门仍可能成为获得这些服务的强大障碍。
    BACKGROUND: In 2006, a Constitutional Court ruling partially decriminalized abortion in Colombia, allowing the procedure in cases of rape, risk to the health or life of the woman, and fetal malformations incompatible with life. Despite this less prohibitive law, some women and pregnant people preferred self-managing their abortions outside the formal healthcare system, often without accurate information. In 2018, we undertook a study to understand what motivated women to self-manage using medications that they acquired informally. Colombia has since adopted a progressive law in 2022, permitting abortion on request through the 24th week of pregnancy. However, the implementation of this law is still underway. Examining the reasons why women chose to informally self-manage an abortion after 2006 may not only highlight how barriers to legal services persisted at that time, but also could inform strategies to increase knowledge of the current abortion law and improve access to services going forward.
    METHODS: In-depth interviews were conducted in 2018 with 47 women aged 18 and older who used misoprostol obtained outside of health facilities to induce an abortion, and who were receiving postabortion care in two private clinics. Interviews explored what women knew about the 2006 abortion law which was then in effect, and the reasons why they preferred informal channels for abortion care over formal healthcare services.
    RESULTS: Women\'s motivations to use misoprostol obtained outside the formal healthcare system were influenced by lack of trust in the healthcare system along with incomplete and inaccurate knowledge of the abortion law. Conversely, women considered misoprostol obtained outside the healthcare system to be effective, affordable, and easier to access.
    CONCLUSIONS: Obtaining misoprostol outside the formal healthcare system offered a more accessible and appealing prospect for some women given fears of legal repercussion and stigma toward abortion. Though this preference will likely continue despite the more liberal abortion law, strategies should be implemented to broaden knowledge of the recent change in law and to combat misinformation and stigma. This would support knowledge of and access to legal abortion for those who wish to avail themselves of these services.
    UNASSIGNED: En el 2006 la Corte Constitucional de Colombia despenalizó el aborto en casos de violación, riesgo para la salud o vida de la mujer y malformaciones fetales. A pesar de ello, algunas mujeres y personas con capacidad de gestar continuaron obteniendo abortos fuera del sistema de salud. En el año 2018, realizamos un estudio para comprender qué las motivaba a hacerlo. Desde entonces Colombia ha adoptado un marco legal más progresista, permitiendo en el año 2022 el aborto a solicitud hasta la semana 24 de embarazo. Sin embargo, la implementación de este marco legal aún está en curso. Examinar las razones por las que las mujeres recurrieron a auto inducirse un aborto de manera informal después del 2006 no solo informa sobre las barreras a los servicios legales en ese periodo, sino también ayuda a desarrollar estrategias para aumentar el conocimiento del marco legal actual y mejorar el acceso a los servicios MéTODOS: Durante el 2018 entrevistamos a 47 mujeres mayores de 18 años que compraron misoprostol fuera del sistema de salud para inducirse un aborto, y que recibieron atención postaborto. En las entrevistas exploramos lo que sabían sobre el marco legal de ese momento –el del 2006–, y las razones por las cuales recurrieron a fuentes informales para abortar.
    RESULTS: Las motivaciones de las mujeres para usar misoprostol obtenido de fuentes informales resultan de la desconfianza hacia el sistema de salud y un conocimiento incompleto del marco legal. En contraste, las mujeres consideran que el misoprostol obtenido por fuentes alternativas ofrece eficacia y asequibilidad, y es más fácil de obtener.
    CONCLUSIONS: Obtener misoprostol fuera del sistema de salud formal es una alternativa más llamativa para algunas mujeres dadas las preocupaciones sobre las repercusiones legales y el estigma asociado al aborto. Aunque esta preferencia persista a pesar del cambio del marco legal, se deben implementar estrategias para ampliar el conocimiento sobre la despenalización y combatir la desinformación y el estigma. Esto garantizaría que las mujeres estén informadas y puedan acceder a servicios legales de aborto de calidad si así lo desean.
    Despite the availability of legal services, pregnant individuals in Colombia have continued to seek abortion outside of the formal healthcare system. Understanding their knowledge of the abortion law and their perceptions of legal abortion services may provide insight into what motivates them to seek alternative routes of abortion.Women who obtained misoprostol outside of the formal healthcare system were interviewed in 2018, twelve years after abortion was partially decriminalized in Colombia (and prior to the full decriminalization of abortions up to 24 weeks in 2022). A combination of factors led women to seek misoprostol in this manner: incomplete knowledge of the abortion law, fear of legal consequences, fear of social stigma, and a desire for a faster and private process.Self-management with informally obtained medication can offer pregnant individuals the opportunity to have an abortion on their own terms, especially when abortion in the formal healthcare system appears to be unavailable, proves difficult to access, or is accompanied by social and legal risks. While increasing awareness that abortion is legal in Colombia might empower pregnant people to seek formal care, judgment from their community, healthcare providers, and law enforcement may still serve as powerful hindrances to obtaining these services unless there are efforts made to combat abortion stigma as well.
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  • 文章类型: Journal Article
    青年再次犯罪的高比率表明,年轻的监护离开者在重新融入社区时面临挑战。善后和安置计划可以发生在前,during,和释放后,通常提供多种形式的支持服务,以满足青年的过渡需求。
    本审查审查了(1)青年善后/重新安置计划对犯罪相关结果的影响,(2)参与者如何调节治疗效果,程序,研究特点,(3)某些类型的干预措施是否比其他类型的干预措施更有效,(4)有效计划实施的障碍/促进者,(5)移民干预潜在的变化理论,(6)关于干预成本的现有研究。
    在26个电子数据库的布尔搜索中组合了一组全面的关键字和同义词。还搜索了多个灰色文献来源,包括23种期刊,4个会议档案,11个组织网站,3个开放获取期刊网站,以及该领域8名知名研究人员的简历。搜索于2023年1月完成。
    对于目标1-3,如果研究采用随机对照设计或准实验比较组设计,其中参与者至少在一些基线变量上进行匹配,并包括至少一种定量个人犯罪测量,则将其包括在内。对于目标4,包括对善后/重返计划进行过程评估的研究,明确说明了他们的研究目标,并以适当的方式使用定性方法来回答所提出的研究问题。对于目标5和6,不需要特定的方法;包括满足目标1-4标准的任何研究,这些研究提供了关于变化理论或成本数据的发现。对于所有结果,只有在西化国家进行的研究,1991年后以英文出版,法语,或者德国人被考虑。
    两名编码人员对纳入的研究进行了原始数据提取。将数据输入到MicrosoftExcel数据库中。数据提取后,两位编码人员通过将数据库与每份研究报告进行交叉检查来验证编码。在达成共识之前,讨论了程序员之间的差异。如果无法达成共识,咨询了第三个编码器。使用ROBINS-I解决了研究偏倚风险(Sterne等人。,2016),ROB-2(Higgins等人,2019),和批判性评估技能计划(CASP,2018)。目标1-3通过使用随机效应模型和元回归对善后干预的严格影响评估综合定量结果来解决。进行了专题和叙述分析,以实现目标4-6。
    搜索产生了15项影响研究,代表21个项目网站的4,718名参与者,和35个效果尺寸。21个影响评估被评为具有低/中等偏差(k=11)或严重偏差(k=10)。对15项影响研究的综合发现,对逮捕没有显著影响(k=14;OR=1.044,95%预测区间[0.527,2.075],t=0.335)或监禁(k=8,OR=0.806,95%预测间隔[2.203,1.433],t=-1.674)。发现定罪有显著的合并效应(k=13,OR=1.209,95%预测区间[1.000,1.462],t=2.256),但结果对纳入具体研究高度敏感.在关于研究的主持人分析中没有出现有意义的结果模式,样品,程序组件,或程序交付特征。19个工艺研究被评为高质量(k=12)或中等质量(k=7)。过程评估的主题综合显示了与计划实施的优势/挑战有关的15个主题。对项目成本的评估(k=7)确定了文献中缺乏数据,防止任何总结性分析。
    目前的证据在定罪结果方面是有希望的,但总体上没有发现善后/重新安置干预措施对犯罪的年轻人有可靠的积极影响。结果和报告数据之间的高度差异导致每个结果的样本量较小,主持人分析有限。计划实施存在多种挑战;迫切需要进行更严格的研究,以进一步研究计划效果的细微差别。
    UNASSIGNED: High rates of youth re-offending indicate that young custody-leavers face challenges when reintegrating into their communities. Aftercare and resettlement programs can occur pre-, during, and post-release and generally provide multiple forms of support services to address youths\' transitional needs.
    UNASSIGNED: The present review examines (1) the impact of youth aftercare/resettlement programs on crime-related outcomes, (2) how treatment effect is moderated by participant, program, and study characteristics, (3) whether some types of interventions are more effective than others, (4) barriers/facilitators to effective program implementation, (5) the theory of change underlying resettlement interventions, and (6) available research on intervention cost.
    UNASSIGNED: A comprehensive set of keywords and synonyms was combined in a Boolean search across 26 electronic databases. Multiple gray literature sources were also searched, including 23 journals, 4 meeting archives, 11 organization websites, 3 open access journal websites, and the CVs of 8 well-known researchers in the field. The search was completed in January 2023.
    UNASSIGNED: For objectives 1-3, studies were included if they utilized a randomized controlled design or quasi-experimental comparison group design in which participants were matched on at least some baseline variables and included at least one quantitative individual-measure of crime. For objective 4, included studies presented process evaluations of aftercare/reentry programs, clearly stated their research goals, and used qualitative methods in an appropriate way to answer the stated research question. For objectives 5 and 6, no specific methods were required; any study meeting the criteria for objectives 1-4 which presented findings on theory of change or cost data were included. For all outcomes, only studies conducted in a westernized country, and published after 1991 in English, French, or German were considered.
    UNASSIGNED: Two coders conducted primary data extraction for the included studies. Data were entered into a Microsoft Excel database. After data extraction, the two coders validated the coding by cross-checking the database with each research report. Discrepancies between coders were discussed until consensus was reached. Where consensus could not be reached, a third coder was consulted. Study risk of bias was addressed using the ROBINS-I (Sterne et al., 2016), ROB-2 (Higgins et al., 2019), and the critical appraisal skills programme (CASP, 2018). Objectives 1-3 were addressed by synthesizing quantitative outcomes from rigorous impact evaluations of aftercare interventions using random effects models and meta-regression. Thematic and narrative analysis was conducted to address objectives 4-6.
    UNASSIGNED: The search resulted in 15 impact studies, representing 4,718 participants across 21 program sites, and 35 effect sizes. The 21 impact evaluations were rated as having either low/moderate bias (k = 11) or serious bias (k = 10). The synthesis of 15 impact studies found no significant effects for arrest (k = 14; OR = 1.044, 95% prediction interval [0.527, 2.075], t = 0.335) or incarceration (k = 8, OR = 0.806, 95% prediction interval [2.203, 1.433], t = -1.674). A significant pooled effect was found for conviction (k = 13, OR = 1.209, 95% prediction interval [1.000, 1.462], t = 2.256), but results were highly sensitive to the inclusion of specific studies. No meaningful pattern of results emerged in moderator analyses with respect to study, sample, program component, or program delivery characteristics. The 19 process studies were rated as either high quality (k = 12) or moderate quality (k = 7). Thematic synthesis of the process evaluations revealed 15 themes related to the strengths/challenges of program implementation. The assessment of program cost (k = 7) determined a lack of data within the literature, preventing any summative analysis.
    UNASSIGNED: Current evidence is promising with respect to conviction outcomes but overall does not find that aftercare/resettlement interventions have a reliably positive impact on crime-related outcomes for young people who have offended. High variability across outcomes and reported data resulted in small sample sizes per outcome and limited moderator analyses. Multiple challenges for program implementation exist; additional rigorous research is sorely needed to further investigate the nuances of the program effects.
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  • 文章类型: Editorial
    近几十年来,肿瘤治疗对各种肿瘤的疗效显着增加,提高了癌症治疗的总体结果和生存率[。..].
    In recent decades, there has been a noteworthy increase in the efficacy of oncological treatments for a variety of neoplasms, which has improved the overall results and survival rates in cancer therapy [...].
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  • 文章类型: Journal Article
    目标:在德国,被诊断患有癌症的儿童在他们最初的疾病中存活了80%以上,大多数人将成为长期幸存者。在18岁左右,幸存者被转移到成人医疗保健。过渡可能是护理过程中的关键时期,许多儿童癌症幸存者停止参加定期随访护理。因此,本论文的目的是探讨(a)幸存者对儿科随访护理的态度,以及(b)他们对过渡过程的担忧,从而得出结论,以优化儿科护理和过渡过程.
    方法:我们对21名年龄在14至20岁之间的青少年儿童癌症幸存者进行了半结构化访谈。幸存者是通过德国一所大学医院的儿科肿瘤科招募的。基于定性内容分析法的原则,采用了Kuckartz的演绎归纳法。
    结果:基于访谈指南并从探索性研究问题中得出,产生了两个关键类别:(A)幸存者对儿科随访护理的态度,其中包括幸存者关于后续护理的所有形式和情感方面,以及(b)他们对从儿科医疗向成人医疗过渡的担忧,发生成功过渡的阻碍和促进因素。我们的结果显示,幸存者对后续护理的满意度很高。然而,他们希望更多地融入流程和组织后续护理。大多数青少年幸存者都没有准备好过渡。
    结论:将幸存者整合到组织流程和例程中,以及促进儿科卫生保健专业人员(HCPs)的情绪脱离对于减少青少年幸存者对过渡过程的担忧和不确定性以及促进过渡的主观准备是重要的。为了获得对成人医疗保健的信心,至关重要的是,根据个人要求和需求提供量身定制的教育,并在幸存者和成人HCPs之间建立信任关系。
    OBJECTIVE: In Germany, children diagnosed with cancer survive their initial disease in more than 80%, and the majority will become long-term survivors. Around the age of 18, survivors are transferred to adult healthcare. The transition can be a critical period in the process of care at which many childhood cancer survivors discontinue to participate in regular follow-up care. Hence, the objective of the paper was to explore (a) survivors\' attitudes towards pediatric follow-up care and (b) their concerns regarding the transition process to draw conclusions for optimizing pediatric care and transition processes.
    METHODS: We conducted semi-structured interviews with 21 adolescent childhood cancer survivors between the ages of 14 and 20. The survivors were recruited via a pediatric oncology department of a university hospital in Germany. Based on the principles of qualitative content analysis, a deductive-inductive method according to Kuckartz was applied.
    RESULTS: Based on the interview guide and derived from the exploratory research questions, two key categories were generated: (a) Survivors\' attitudes towards pediatric follow-up care, which encompasses all formal and emotional aspects of survivors regarding follow-up care, and (b) their concerns regarding transition from pediatric to adult healthcare, where hindering and facilitating factors for a successful transition occur. Our results show high satisfaction among survivors with follow-up care. Nevertheless, they wish to be more integrated into processes and the organization of their follow-up care. Most adolescent survivors do not feel ready for transition.
    CONCLUSIONS: The integration of survivors into the organization processes and routines, and the promotion of emotional detachment from pediatric health care professionals (HCPs) are important to reduce concerns and uncertainties of adolescent survivors regarding the transition process and to promote subjective readiness for transition. To gain confidence in the adult healthcare, it is crucial to provide tailored education depending on individual requirements and needs and to build trusting relationships between survivors and adult HCPs.
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  • 文章类型: Journal Article
    背景:增加的创伤存活率导致患者出院时对后续护理的更高需求。目前尚不清楚如何为患者提供重大创伤后的后续护理,以及如何,when,以及向谁提供后续服务。这项研究的目的是描述目前为在澳大利亚和新西兰(ANZ)遭受重大外伤的患者及其家人提供的后续护理。
    方法:由Donabedian的“评估医疗质量”模型和医学研究所的医疗质量六个领域告知,我们与创伤专家联合开展了一项横断面在线调查.他们的答复为最终调查提供了信息,该调查分发给澳大利亚和新西兰71家医院的关键人员:(i)为患者提供创伤护理,(ii)向澳大拉西亚创伤登记处提供数据,或(iii)是创伤中心。
    结果:数据来自38/71(53.5%)医院。大多数是1级创伤中心(n=23,60.5%);76%(n=16)的后续服务得到了永久资助。后续服务由一系列卫生专业人员领导,超过60%(n=19)被确定为创伤专家。患者纳入标准各不相同;只有一项服务允许自我转诊(3.3%)。53%(n=16)的服务在急性护理出院后两周内进行了随访。护理活动侧重于身体健康;心理社会评估是最不常见的。大多数服务为成人和儿科创伤提供护理(60.5%,n=23);没有为家庭成员提供后续服务。对后续护理的评估在很大程度上是卫生服务计划的一部分;只有三个地点表示评估是针对创伤随访的。
    结论:后续护理由创伤专家提供,主要关注受严重创伤影响的患者的身体健康。在患者选择方面存在差异,在确定提供社会心理和家庭保健服务方面存在差距的情况下,开展后续和护理活动的原因。目前,对创伤后续护理的评估是有限的,表明需要进一步发展,以确保提供的护理是安全的,对患者有效和有益,家庭和医疗机构。
    BACKGROUND: Increased survival from traumatic injury has led to a higher demand for follow-up care when patients are discharged from hospital. It is currently unclear how follow-up care following major trauma is provided to patients, and how, when, and to whom follow-up services are delivered. The aim of this study was to describe the current follow-up care provided to patients and their families who have experienced major traumatic injury in Australia and New Zealand (ANZ).
    METHODS: Informed by Donabedian\'s \'Evaluating the Quality of Medical Care\' model and the Institute of Medicine\'s Six Domains of Healthcare Quality, a cross-sectional online survey was developed in conjunction with trauma experts. Their responses informed the final survey which was distributed to key personnel in 71 hospitals in Australia and New Zealand that (i) delivered trauma care to patients, (ii) provided data to the Australasian Trauma Registry, or (iii) were a Trauma Centre.
    RESULTS: Data were received from 38/71 (53.5%) hospitals. Most were Level 1 trauma centres (n = 23, 60.5%); 76% (n = 16) follow-up services were permanently funded. Follow-up services were led by a range of health professionals with over 60% (n = 19) identifying as trauma specialists. Patient inclusion criteria varied; only one service allowed self-referral (3.3%). Follow-up was within two weeks of acute care discharge in 53% (n = 16) of services. Care activities focused on physical health; psychosocial assessments were the least common. Most services provided care for adults and paediatric trauma (60.5%, n = 23); no service incorporated follow-up for family members. Evaluation of follow-up care was largely as part of a health service initiative; only three sites stated evaluation was specific to trauma follow-up.
    CONCLUSIONS: Follow-up care is provided by trauma specialists and predominantly focuses on the physical health of the patients affected by major traumatic injury. Variations exist in terms of patient selection, reason for follow-up and care activities delivered with gaps in the provision of psychosocial and family health services identified. Currently, evaluation of trauma follow-up care is limited, indicating a need for further development to ensure that the care delivered is safe, effective and beneficial to patients, families and healthcare organisations.
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  • 文章类型: Journal Article
    背景:由于患有酒精使用障碍(AUD)的个体在治疗和恢复过程中通常会恢复使用酒精,在这种严重的事件发生后,保持禁欲动机是很重要的。我们的研究旨在探讨在住院治疗后参与电话指导的基于应用程序的干预的AUD个体在恢复饮酒后如何感知他们的禁欲动机,他们的应用程序使用行为是否受到影响,并找出有助于保持禁欲动机的因素。
    方法:使用混合方法方法,来自随机对照试验SmartAssistEntz的干预组的10名参与者返回酒精使用并在应用程序Appstinence中记录了这一点,为AUD个人设计的带有电话教练的智能手机应用程序,采访了他们的经历。采访被记录下来,使用定性内容分析进行转录和编码。另外通过使用日志数据来检查应用使用行为。
    结果:在十个受访者中,七人报告说,在重新饮酒后,他们的禁欲动机增加了。原因包括提醒人们饮酒的负面后果,渴望重新控制自己的情况以及应用程序提供的感知支持。应用程序数据显示,在恢复使用酒精后,应用程序使用保持稳定,平均使用时间为58.70天(SD=25.96,Mdn=58.50,范围=24-96,IQR=44.25)。
    结论:该研究的结果初步表明,该应用程序可以在恢复饮酒后为个人提供支持,以维持和增加发病后的动机。未来的研究应(1)专注于加强对高风险情况的识别,并在此类关键事件中达到,(2)积极将回归酒精使用的经验整合到基于应用程序的干预措施中,以更好地支持个人实现其个人AUD行为改变目标,(3)调查退出研究和干预并完全停止使用应用程序的个人可能需要哪种类型的支持。
    背景:主要评估研究已在德国临床试验注册(DRKS,注册号DRKS00017700),并获得弗里德里希-亚历山大大学埃尔兰根-纽伦堡(193_19B)道德委员会的批准。
    As the return to alcohol use in individuals with alcohol use disorder (AUD) is common during treatment and recovery, it is important that abstinence motivation is maintained after such critical incidences. Our study aims to explore how individuals with AUD participating in an app-based intervention with telephone coaching after inpatient treatment perceived their abstinence motivation after the return to alcohol use, whether their app use behavior was affected and to identify helpful factors to maintain abstinence motivation.
    Using a mixed-methods approach, ten participants from the intervention group of the randomized controlled trial SmartAssistEntz who returned to alcohol use and recorded this in the app Appstinence, a smartphone application with telephone coaching designed for individuals with AUD, were interviewed about their experiences. The interviews were recorded, transcribed and coded using qualitative content analysis. App use behavior was additionally examined by using log data.
    Of the ten interviewees, seven reported their abstinence motivation increased after the return to alcohol use. Reasons included the reminder of negative consequences of drinking, the desire to regain control of their situation as well as the perceived support provided by the app. App data showed that app use remained stable after the return to alcohol use with an average of 58.70 days of active app use (SD = 25.96, Mdn = 58.50, range = 24-96, IQR = 44.25) after the return to alcohol use which was also indicated by the participants\' reported use behavior.
    The findings of the study tentatively suggest that the app can provide support to individuals after the return to alcohol use to maintain and increase motivation after the incidence. Future research should (1) focus on specifically enhancing identification of high risk situations and reach during such critical incidences, (2) actively integrate the experience of the return to alcohol use into app-based interventions to better support individuals in achieving their personal AUD behavior change goals, and (3) investigate what type of support individuals might need who drop out of the study and intervention and discontinue app use altogether.
    The primary evaluation study is registered in the German Clinical Trials Register (DRKS, registration number DRKS00017700) and received approval of the ethical committee of the Friedrich-Alexander University Erlangen-Nuremberg (193_19 B).
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  • 文章类型: Journal Article
    目的:乳腺癌随访(监测和善后护理)从一刀切到更个性化的方法各不相同。进行了系统评价,以深入了解个性化随访(成本)有效性的现有证据。
    方法:PubMed,Scopus和Cochrane在2010年1月1日至2022年10月10日之间进行了搜索(在PROSPERO中注册的评论:CRD42022375770)。纳入人群包括≥18岁的非转移性乳腺癌患者,完成治愈治疗后。包括所有干预控制研究,研究在整个随访期间使用的个性化监视和/或护理。包括偏见风险评估在内的所有审查过程均由两名审查者进行。描述了纳入研究的特点。
    结果:总体而言,确定了3708种出版物,阅读了64篇全文出版物,其中16篇用于数据提取。一项研究评估了个性化监测。研究了各种个性化的护理干预措施和结果。个性化护理计划中包含的最常见元素是治疗总结(75%),后续指南(56%),可用的支持性护理资源列表(38%)和专业人员(25%)。控制条件主要包括常规护理。七项研究中有四项(57%)报告个性化后生活质量有所改善。六项研究(38%)没有发现个性化效果,对于评估的多个结果(例如,痛苦,满意度)。一项(6.3%)研究被判定为低,4例(25%)为高偏倚风险,11例(68.8%)为担忧风险。
    结论:纳入的研究在干预措施方面有所不同,测量工具和结果,使得无法就个性化随访的有效性得出结论。需要定义个性化监控和善后护理,之后可以根据统一标准来衡量结果。
    OBJECTIVE: Breast cancer follow-up (surveillance and aftercare) varies from one-size-fits-all to more personalised approaches. A systematic review was performed to get insight in existing evidence on (cost-)effectiveness of personalised follow-up.
    METHODS: PubMed, Scopus and Cochrane were searched between 01-01-2010 and 10-10-2022 (review registered in PROSPERO:CRD42022375770). The inclusion population comprised nonmetastatic breast cancer patients ≥ 18 years, after completing curative treatment. All intervention-control studies studying personalised surveillance and/or aftercare designed for use during the entire follow-up period were included. All review processes including risk of bias assessment were performed by two reviewers. Characteristics of included studies were described.
    RESULTS: Overall, 3708 publications were identified, 64 full-text publications were read and 16 were included for data extraction. One study evaluated personalised surveillance. Various personalised aftercare interventions and outcomes were studied. Most common elements included in personalised aftercare plans were treatment summaries (75%), follow-up guidelines (56%), lists of available supportive care resources (38%) and PROs (25%). Control conditions mostly comprised usual care. Four out of seven (57%) studies reported improvements in quality of life following personalisation. Six studies (38%) found no personalisation effect, for multiple outcomes assessed (e.g. distress, satisfaction). One (6.3%) study was judged as low, four (25%) as high risk of bias and 11 (68.8%) as with concerns.
    CONCLUSIONS: The included studies varied in interventions, measurement instruments and outcomes, making it impossible to draw conclusions on the effectiveness of personalised follow-up. There is a need for a definition of both personalised surveillance and aftercare, whereafter outcomes can be measured according to uniform standards.
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  • 文章类型: Journal Article
    背景:尽管对冠状病毒病患者急性治疗后出现的并发症进行了适度的研究和记录,其影响和区域差异尚未得到明确理解。撒哈拉以南非洲的进展,尤其是尼日利亚,由于患者脱离护理以及随访安排不足或不存在而受到阻碍。这项研究的目的是描述尼日利亚从COVID-19护理途径出院后后续服务的障碍和促成因素。
    方法:直接参与COVID-19患者护理的17名专家在一次全国性研讨会上使用名义分组技术进行了头脑风暴,以审查尼日利亚的COVID-19病例管理新指南。参与者讨论了COVID-19途径出院患者急性护理后随访的障碍和促进因素,并对他们的建议进行了排序,以得出每个问题的三个主要因素。
    结果:参与者大多是中年人,主要是临床医生。前三个障碍是患者对其症状严重程度的感知,缺乏出院后后续护理的组织清晰度/结构/政策,和财政限制。同样,参与者确定了提供者\'启动了出院时随访原因的教育,书面组织政策/结构和清晰度以及作为前三名主持人的免费后续服务。
    结论:这项研究列举了冠状病毒病患者出院后后续护理的障碍,并强调了提供者,机构和政府的反应将促进COVID-19患者出院后的后续护理。言下之意是,需要有明确的机构指南来跟踪和记录COVID后的病情。在未来,有必要通过使用实施科学结果来评估尼日利亚COVID后病情跟踪的成就和不足。
    BACKGROUND: Despite modest efforts to study and document the complications that arise after acute treatment of patients with coronavirus disease, its ramifications and regional variations are yet to be clearly understood. Progress in sub-Saharan Africa, notably Nigeria, has been impeded by patient disengagement from care and insufficient or non-existent follow-up arrangements. The aim of this study was to describe the barriers and enablers for follow-up services after discharge from COVID-19 care pathway in Nigeria.
    METHODS: Seventeen experts involved directly in the care of patients with COVID-19 participated in brainstorming using the nominal group technique during a national workshop to review the new guidelines for COVID-19 case management in Nigeria. Participants discussed the barriers and facilitators of post-acute care follow-up of patients discharged from COVID-19 pathway and ranked their recommendations to arrive at three major factors per question.
    RESULTS: Participants were mostly middle aged and predominantly clinicians. The top three barriers were patients\' perception of their symptom severity, lack of organizational clarity/structure/policies on follow-up care after discharge, and financial constraints. Similarly, participants identified providers\' initiated education on the reasons for follow-up at discharge, written organizational policies/structure and clarity and free follow-up services as the top three facilitators.
    CONCLUSIONS: This study has enumerated barriers to follow-up care after discharge patients with coronavirus disease and highlighted providers, institutional and governmental responses that will facilitator follow-up care after discharge of patients with COVID-19. The implication is that, there is need for clear institutional guidelines for tracking and documenting post-COVID condition. In the future, it would be necessary to assess the achievements and shortcomings of post-COVID condition tracking in Nigeria through the use of implementation science outcomes.
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