背景:互联网技术的发展大大提高了慢性阻塞性肺疾病(COPD)患者获取健康信息的能力,在患者-医生决策过程中给予患者更多的主动性。然而,对网站健康信息质量的担忧会影响患者网站搜索行为的积极性。因此,有必要对我国COPD网络信息现状进行评价。
目的:本研究旨在评估中国互联网上COPD治疗信息的质量。
方法:使用标准疾病名称\"\"(\"慢性阻塞性肺疾病\"中文)和常用的公共检索词\"\"(\"COPD\")和\"\"(\"肺气肿\")结合关键词\"\"(\"治疗\"),我们搜索了百度的PC客户端网页,搜狗,和360搜索引擎,并于2021年7月至8月筛选了该网站的前50个链接。所有网站的语言仅限于中文。DISCERN工具用于评估网站。
结果:共纳入96个网站并进行分析。所有网站的平均总体DISCERN评分为30.4(SD10.3;范围17.3-58.7;低质量),没有一个网站达到DISCERN的最高评分75分,每个项目的平均评分为2.0分(SD0.7;范围1.2-3.9).术语之间的平均DISCERN得分存在显着差异,“慢性阻塞性肺疾病”的平均得分最高。
结论:中国互联网上的COPD信息质量较差,主要表现在COPD治疗信息的可靠性和相关性较低,这很容易导致消费者做出不恰当的治疗选择。术语“慢性阻塞性肺疾病”在常用疾病搜索词中具有最高的DISCERN评分。建议消费者在搜索网站信息时使用标准疾病名称,因为获得的信息相对可靠。
BACKGROUND: The development of internet technology has greatly increased the ability of patients with chronic obstructive pulmonary disease (COPD) to obtain health information, giving patients more initiative in the patient-physician decision-making process. However, concerns about the quality of website health information will affect the enthusiasm of patients\' website search behavior. Therefore, it is necessary to evaluate the current situation of Chinese internet information on COPD.
OBJECTIVE: This study aims to evaluate the quality of COPD treatment information on the Chinese internet.
METHODS: Using the standard disease name \"\" (\"chronic obstructive pulmonary disease\" in Chinese) and the commonly used public search terms \"\" (\"COPD\") and \"\" (\"emphysema\") combined with the keyword \"\" (\"treatment\"), we searched the PC client web page of Baidu, Sogou, and 360 search engines and screened the first 50 links of the website from July to August 2021. The language was restricted to Chinese for all the
websites. The DISCERN tool was used to evaluate the
websites.
RESULTS: A total of 96
websites were included and analyzed. The mean overall DISCERN score for all
websites was 30.4 (SD 10.3; range 17.3-58.7; low quality), no website reached the maximum DISCERN score of 75, and the mean score for each item was 2.0 (SD 0.7; range 1.2-3.9). There were significant differences in mean DISCERN scores between terms, with \"chronic obstructive pulmonary disease\" having the highest mean score.
CONCLUSIONS: The quality of COPD information on the Chinese internet is poor, which is mainly reflected in the low reliability and relevance of COPD treatment information, which can easily lead consumers to make inappropriate treatment choices. The term \"chronic obstructive pulmonary disease\" has the highest DISCERN score among commonly used disease search terms. It is recommended that consumers use standard disease names when searching for website information, as the information obtained is relatively reliable.