目的:构建儿童白血病诊断后第一年家庭弹性过程的概念框架。
方法:纵向定性访谈研究。
方法:采用了扎根理论方法的纵向定性研究。在综合医院对白血病儿童的父母进行了半结构化访谈。通过目的和理论抽样招募参与者,并在白血病诊断后1、3、6和12个月进行访谈,实现纵向参与。在白血病儿童的父母入学后,核心类别和类别已饱和。同时进行数据收集和分析。
结果:有16名白血病患儿的父母参加。“患有儿童白血病的家庭”的核心类别是指儿童白血病诊断后第一年的家庭韧性过程。包括三个阶段:(1)破坏和恢复期;(2)调整和巩固期;(3)增长和计划期。
结论:本研究探索了动态,在诊断后的第一年,家庭应对儿童白血病的复杂和连续的弹性过程。进一步的研究应该设计量身定制的家庭干预措施,以描述家庭复原力的不同阶段,旨在支持家庭幸福,完整性和功能。
■家庭和医疗保健专业人员都必须创造一个有利的环境,以支持家庭应对困难。了解家庭韧性的不同阶段,使医疗保健专业人员能够提供满足儿童白血病家庭需求的整体护理。
结论:在面对儿童白血病时,出现了关于家庭复原过程的独特知识,建议在理解和管理儿童白血病方面进行家庭主导的革命。因此,阶段性的发展,基于弹性的家庭干预势在必行。
■本研究使用COREQ检查表报告。
■患者通过参与研究做出了贡献。
OBJECTIVE: To construct a conceptual framework on the process of family
resilience during the first year following childhood leukaemia diagnosis.
METHODS: A longitudinal qualitative interview study.
METHODS: A longitudinal qualitative study following a grounded theory methodology was employed. Semi-structured interviews were conducted with parents of children with leukaemia in a general hospital. The participants were recruited through purposive and theoretical sampling and longitudinal engagement was achieved by conducting interviews at 1, 3, 6, and 12 months after the leukaemia diagnosis. The core category and categories were saturated following the enrolment of parents of children with leukaemia. Data collection and analyses were performed simultaneously.
RESULTS: Sixteen parents of children with leukaemia participated. The core category of \'families living with childhood leukaemia\' refers to the process of family
resilience during the first year following childhood leukaemia diagnosis, which includes three phases: (1) destruction and resiliency period; (2) adjustment and consolidation period; and (3) growth and planning period.
CONCLUSIONS: This study explored the dynamic, complex and continuous processes of
resilience among families coping with childhood leukaemia during the first year following diagnosis. Further research should design tailored family interventions that characterise the different phases of family resilience, aiming to support family well-being, integrity and functioning.
UNASSIGNED: Both families and healthcare professionals must create an enabling environment that supports families coping with difficulties. Understanding the different phases of family
resilience allows healthcare professionals to provide holistic care that meets the demands of families with childhood leukaemia.
CONCLUSIONS: Unique knowledge emerged about the family\'s resiliency process when facing childhood leukaemia, suggesting a family-led revolution in understanding and managing childhood leukaemia. Therefore, the development of phased,
resilience-based family interventions is imperative.
UNASSIGNED: This study was reported using the COREQ checklist.
UNASSIGNED: Patients contributed via study participation.