informal caregivers

非正式护理人员
  • 文章类型: Journal Article
    背景:提供了越来越多的技术来减轻老年人非正式护理人员的负担。然而,对技术在负担上的作用和机制知之甚少。这篇综述旨在评估基于技术的干预措施(TBI)在减轻老年人非正式照顾者负担方面的有效性,并通过群体差异区分其有效机制。
    方法:对随机对照试验研究(RCTs)进行了系统评价和荟萃分析。WebofScience,PubMed,EMBASE,Scopus,CINAHL,PsycINFO,万方,CNKI,CQVIP数据库,Cochrane图书馆试验,和ClinicalTrials.gov在1990年1月至2022年10月发表的中英文试验研究和注册。审稿人独立筛选文章和试验,进行质量评估,并提取数据。所有过程均以系统评价和荟萃分析指南的首选报告项目为指导。通过Cochrane系统评价手册评估研究的偏倚风险。Meta分析由RevMan5.13进行。亚组分析,敏感性分析,还进行了发表偏倚.
    结果:最初总共筛选了11,095个随机对照试验,最终纳入了代表1010名非正式护理人员的14项试验.该综述证明TBI可有效减轻老年人的护理负担。亚组分析显示,TBI的影响因干预对对照组和护理接受者的医疗状况而异。
    结论:TBI是减轻老年人非正式照顾者负担的有效方法。对照组的干预措施和护理接受者的医疗状况是有效干预措施的重要因素。未来的研究可能包括更多高质量的试验或探索更有针对性的衰老群体,TBI的模式,或照顾者的结果。
    背景:审查方案已在PROSPERO[CRD42021277865]上注册。
    BACKGROUND: An increasing number of technologies are provided to reduce the burden of older adults\' informal caregivers. However, less is known about the effects and the mechanism of technology to work on burden. This review is to evaluate the effectiveness of technology-based interventions (TBI) in alleviating the burden of older adults\' informal caregivers and to distinguish its effective mechanism via group disparities.
    METHODS: A systematic review and meta-analysis of randomized controlled trials studies (RCTs) has been conducted. Web of Science, PubMed, EMBASE, Scopus, CINAHL, PsycINFO, WANFANG, CNKI, CQVIP databases, Cochrane Library Trials, and ClinicalTrials.gov were searched for trial studies and registry in both English and Chinese published from January 1990 to October 2022. Reviewers independently screened the articles and trials, conducted quality assessments, and extracted the data. All processes were guided by Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. Risk of bias of the studies was evaluated by the Cochrane Systematic Review Handbook. The meta-analysis was conducted by RevMan 5.13. Subgroup analyses, sensitivity analyses, publication bias were also conducted.
    RESULTS: A total of 11,095 RCTs were initially screened, and 14 trials representing 1010 informal caregivers were included finally. This review proved TBI effective in reducing caregiving burden older adults. Subgroup analysis showed effects of TBI differed by interventions on control group and medical conditions of care recipients.
    CONCLUSIONS: TBI is an effective way to alleviate the burden on informal caregivers of aging people. Interventions for control groups and medical conditions of care-recipients are significant factors in effective interventions. Future researches could include more trials with high-quality or to explore more targeted aging groups, modalities of TBI, or caregiver outcomes.
    BACKGROUND: The review protocol was registered on PROSPERO [CRD42021277865].
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  • 文章类型: Meta-Analysis
    远程医疗技术是一个快速发展的领域,显示出改善医疗服务的巨大潜力。在姑息治疗中,非正式护理人员在患者护理中承担主要责任,并且经常面临诸如身心压力增加和健康状况下降等挑战。在这种情况下,远程医疗干预可以提供支持并改善他们的健康结果。然而,关于非正式护理人员使用远程医疗的研究结果是有争议的,远程医疗的疗效尚不清楚。
    本研究旨在评估远程医疗对负担的影响,焦虑,抑郁症,姑息治疗中患者非正式护理人员的生活质量。
    使用PubMed进行了系统的文献检索,Embase,WebofScience,中部,PsycINFO,CINAHLPlus与全文,CBM,CNKI,万方,和VIP数据库,以确定从开始到2023年3月发表的相关随机对照试验。两位作者独立筛选研究并提取相关信息。使用Cochrane偏倚风险工具评估纳入研究的方法学质量。使用ReviewManager5.4评估干预效果并进行敏感性分析,而使用R(4.3.2版)和RStudio计算95%预测间隔(PI)。
    本研究共纳入9项随机对照试验。荟萃分析表明,远程医疗降低了非正式护理人员的护理负担(标准化平均差异[SMD]-0.49,95%CI-0.72至-0.27;P<.001;95%PI-0.86至-0.13)和焦虑(SMD-0.23,95%CI-0.40至-0.06;P=.009;95%PI-0.98至0.39);但是,它不影响抑郁症(SMD-0.21,95%CI-0.47至0.05;P=.11;95%PI-0.94至0.51)或生活质量(SMD0.35,95%CI-0.20至0.89;P=.21;95%PI-2.15至2.85)。
    尽管远程医疗可以减轻非正式护理人员的照顾负担和焦虑,它不会显着减少抑郁或改善他们的生活质量。进一步的高品质,需要大样本研究来验证远程医疗的效果。此外,需要基于理论基础的个性化干预计划来支持护理人员。
    UNASSIGNED: Telemedicine technology is a rapidly developing field that shows immense potential for improving medical services. In palliative care, informal caregivers assume the primary responsibility in patient care and often face challenges such as increased physical and mental stress and declining health. In such cases, telemedicine interventions can provide support and improve their health outcomes. However, research findings regarding the use of telemedicine among informal caregivers are controversial, and the efficacy of telemedicine remains unclear.
    UNASSIGNED: This study aimed to evaluate the impacts of telemedicine on the burden, anxiety, depression, and quality of life of informal caregivers of patients in palliative care.
    UNASSIGNED: A systematic literature search was conducted using the PubMed, Embase, Web of Science, CENTRAL, PsycINFO, CINAHL Plus with Full Text, CBM, CNKI, WanFang, and VIP databases to identify relevant randomized controlled trials published from inception to March 2023. Two authors independently screened the studies and extracted the relevant information. The methodological quality of the included studies was assessed using the Cochrane risk-of-bias tool. Intervention effects were estimated and sensitivity analysis was conducted using Review Manager 5.4, whereas 95% prediction intervals (PIs) were calculated using R (version 4.3.2) and RStudio.
    UNASSIGNED: A total of 9 randomized controlled trials were included in this study. The meta-analysis indicated that telemedicine has reduced the caregiving burden (standardized mean differences [SMD] -0.49, 95% CI -0.72 to -0.27; P<.001; 95% PI -0.86 to -0.13) and anxiety (SMD -0.23, 95% CI -0.40 to -0.06; P=.009; 95% PI -0.98 to 0.39) of informal caregivers; however, it did not affect depression (SMD -0.21, 95% CI -0.47 to 0.05; P=.11; 95% PI -0.94 to 0.51) or quality of life (SMD 0.35, 95% CI -0.20 to 0.89; P=.21; 95% PI -2.15 to 2.85).
    UNASSIGNED: Although telemedicine can alleviate the caregiving burden and anxiety of informal caregivers, it does not significantly reduce depression or improve their quality of life. Further high-quality, large-sample studies are needed to validate the effects of telemedicine. Furthermore, personalized intervention programs based on theoretical foundations are required to support caregivers.
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  • 文章类型: Journal Article
    我们分析了756名家庭护理人员(平均年龄=62.3岁),调查老年护理接受者的情感支持如何通过护理关系质量与护理人员的自我效能感相关联。结果表明,情绪支持和照顾者自我效能感之间存在显著正相关(r=0.207,p<.01)。照顾关系质量与情绪支持(r=0.292,p<.01)和照顾者自我效能(r=0.141,p<.01)呈正相关。控制社会人口和护理相关因素,关系质量部分介导了护理接受者的情绪支持和照顾者的自我效能之间的关联。这表明,支持照顾者自我效能的干预措施可能会从考虑照顾者和二元关系中受益。
    We analyzed 756 family caregivers (mean age = 62.3 years), investigating how emotional support from older care recipients was linked to caregivers\' self-efficacy through caring relationship qualtiy. Results indicate a significant positive association between emotional support and caregivers\' self-efficacy (r = 0.207, p < .01). Caring relationship quality positively correlated with emotional support (r = 0.292, p < .01) and caregivers\' self-efficacy (r = 0.141, p < .01). Controlling for socialdemographic and care-related factors, relationship quality partially mediated the association between emotional support from care recipients and caregivers\' self-efficacy. This suggests that interventions supporting caregivers\' self-efficacy may benefit from considering both care recipients and dyadic relationships.
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  • 文章类型: Journal Article
    目的:(1)描述评估癌症患者非正式照顾者负担的现有工具,(2)描述这些工具是如何被验证的;(3)描述现有评估工具条目的兴趣领域。
    背景:癌症患者的非正式护理人员的护理人员负担极大地影响了他们的生活。有各种各样的相关评估工具可用,但是没有研究可以帮助研究人员选择工具。
    方法:使用关键字\'cancer\'进行搜索,\'看护者\',Medline(PubMed)中的\'负担\'和\'量表\',CINAHL和EMBASE包括开发或应用工具来评估癌症患者非正式护理人员负担的文章。一旦确定了合格的工具,我们搜索了他们的“主要参考”研究。如果原始量表是在癌症患者非正式照顾者以外的人群中评估的,我们再次在癌症患者照顾者的人群中搜索心理测量。
    结果:本研究检索到938篇关于开发或应用癌症患者非正式照顾者负担工具的文章,包括42个尺度。原始量表的内部一致性范围为0.53至0.96。最初开发的十九个量表用于评估痴呆症患者的照顾者负担,中风和其他疾病后来被用于癌症患者的照顾者,其中八个尚未验证。重新分类所有关注的量表领域表明,量表评估更侧重于护理人员的身体健康,情绪状态和护理任务。
    结论:本综述确定了许多评估癌症患者非正式照顾者负担的量表,并给出了推荐的量表。然而,一部分仍然需要验证。制定新的比额表建议以理论框架为基础,并考虑评估支助资源的维度。
    结论:研究解决了什么问题?:本文整理了非正式癌症患者护理负担的评估工具。它还提供了有关适用人口的信息,信度和效度。主要发现是什么?:可以考虑使用41种量表,其中八个尚未验证。量表更侧重于评估护理人员的身体健康,情绪状态和护理任务,在支持资源方面较少。这项研究将在哪里以及对谁产生影响?:对医院或社区中癌症患者的非正式护理人员有影响,以及相关研究人员。
    参照系统评价检索。
    没有患者或公众捐款。
    OBJECTIVE: (1) To describe existing tools to assess the burden of informal caregivers of people with cancer, (2) to describe how these tools have been validated and (3) to describe the areas of interest of existing assessment tool entries.
    BACKGROUND: The caregiver burden of informal caregivers of people with cancer greatly affects their lives. There is a wide variety of relevant assessment tools available, but there are no studies to help researchers to select tools.
    METHODS: A search was conducted using the keywords \'cancer\', \'caregiver\', \'burden\' and \'scale\' in Medline (PubMed), CINAHL and EMBASE to include articles that developed or applied tools to assess the burden on informal caregivers of cancer patients. Once eligible tools were identified, we searched their \'primary reference\' studies. If the original scale was assessed in a population other than informal caregivers of cancer patients, we again searched for psychometric measures in the population of caregivers of cancer patients.
    RESULTS: This study retrieved 938 articles on developing or applying the informal caregiver burden instrument for cancer patients, including 42 scales. Internal consistency of the original scales ranged from 0.53 to 0.96. Nineteen scales initially developed to assess caregiver burden for patients with dementia, stroke and other disorders were later used for caregivers of cancer patients, eight of which have not yet been validated. Reclassifying all scale domains of concern revealed that scale assessments focused more on caregivers\' physical health, emotional state and caregiving tasks.
    CONCLUSIONS: This review identifies many scales for assessing informal caregiver burden in cancer patients and gives scales recommended. However, a portion still needs to be validated. The development of a new scale proposes to be based on a theoretical framework and to consider dimensions for assessing support resources.
    CONCLUSIONS: What problem did the study address?: This paper collates assessment tools on the burden of informal carers of people with cancer. It also provides information on the applicable population, reliability and validity. What were the main findings?: 41 scales could be considered for use, eight of which have not been validated. The scales focus more on assessing caregivers\' physical health, emotional state and caregiving tasks, and less on the dimension of support resources. Where and on whom will the research have an impact?: There are implications for informal carers of cancer patients in hospitals or in the community, as well as for relevant researchers.
    UNASSIGNED: Retrieved with reference to systematic evaluation.
    UNASSIGNED: No patient or public contribution.
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  • 文章类型: Journal Article
    精神疾病患病率的增加导致非正式护理人员的负担越来越大。基于正念的干预措施,作为一种心理治疗,在缓解心理压力和增强情绪和身体健康方面表现出功效。然而,基于正念的干预措施对精神病患者的非正式护理人员的利用仍然有限.荟萃分析的目的是评估基于正念的干预措施对精神疾病患者非正式护理人员的心理健康和福祉的影响。在七个电子数据库(PubMed,Scopus,WebofScience,科克伦图书馆,Embase,APAPsycINFO和CINAHLUltimate)从这些数据库的建立到2023年7月20日。两位作者独立筛选研究并提取相关数据。Meta分析采用Stata12.0软件,并且使用标准化平均差(SMD)及其相应的95%置信区间(CI)计算效应大小。荟萃分析包括13项研究,1007名参与者,结果表明,基于正念的干预措施对减轻压力有效(SMD=-0.80,95%CI[-1.33,-0.28],p=0.003),抑郁症(SMD=-0.43,95%CI[-0.62,-0.24],p<0.001)和护理人员负担(SMD=-0.21,95%CI[-0.40,-0.01],p=0.038),并提高正念水平(SMD=0.37,95%CI[0.09,0.65],P=0.010)和生活质量(SMD=0.22,95%CI[0.04,0.39],p=0.015)在精神疾病患者的非正式照顾者中,但不是焦虑减轻(SMD=-0.19,95%CI[-0.49,0.10],p=0.198)。此外,未来的研究应旨在采用更严格的方法来确认有效性。
    The increasing prevalence of mental illness has resulted in a growing burden on informal caregivers. Mindfulness-based interventions, as a form of psychotherapy, have shown efficacy in alleviating psychological stress and enhancing emotional and physical well-being. However, the utilisation of mindfulness-based interventions for informal caregivers of individuals with mental illness remains limited. The aim of the meta-analysis is to evaluate the impact of mindfulness-based interventions on the mental health and well-being among informal caregivers of people with mental illness. A comprehensive literature search was conducted across seven electronic databases (PubMed, Scopus, Web of Science, Cochrane Library, Embase, APA PsycINFO and CINAHL Ultimate) from the inception of these databases until 20 July 2023. Two authors independently screened the studies and extracted the relevant data. The meta-analysis was performed by using Stata 12.0 software, and the effect sizes were calculated utilising standardised mean difference (SMD) along with their corresponding 95% confidence intervals (CI). The meta-analysis included 13 studies with 1007 participants, and the results demonstrated that mindfulness-based interventions were efficacious in reducing stress (SMD = -0.80, 95% CI [-1.33, -0.28], p = 0.003), depression (SMD = -0.43, 95% CI [-0.62, -0.24], p < 0.001) and caregiver burden (SMD = -0.21, 95% CI [-0.40, -0.01], p = 0.038), and enhancing the mindfulness level (SMD = 0.37, 95% CI [0.09, 0.65], P = 0.010) and quality of life (SMD = 0.22, 95% CI [0.04, 0.39], p = 0.015) among informal caregivers of people with mental illness, but not on anxiety reduction (SMD = -0.19, 95% CI [-0.49, 0.10], p = 0.198). Furthermore, future research should aim to employ more rigorous methodologies to confirm the effectiveness.
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  • 文章类型: Meta-Analysis
    背景:老年患者的非正式照顾者往往忽视自我护理,尽管照顾对身心健康有影响。缺乏关于非正式护理人员自我护理干预的随机对照试验(RCT),这使得很难确定有效的策略。本系统综述探讨了非正式照顾者自我护理RCT的定义和类别,并进行了荟萃分析以确定这些干预措施的有效性。
    方法:七个数据库(Scopus,WebofScience,MEDLINE,PubMed,ProQuest,CINAHL,和Embase)搜索了有关60岁或以上患者非正式护理人员自我护理干预结果的英文文章。使用随机效应模型计算具有95%置信区间(CI)的标准化平均差(SMD)。子组,灵敏度,并进行了发表偏倚分析.
    结果:系统综述包括18项研究,其中15项研究纳入荟萃分析。RCT缺乏对自我照顾的明确定义,主要侧重于促进身心健康和个人能力,被忽视的疾病预防。干预措施侧重于卫生和个人机构的自我管理,对健康素养的关注较少,决策能力,自我监测健康状况,以及与卫生系统的联系。Meta分析结果显示RCT对降低焦虑的作用较小(SMD=-0.142,95%CI[-0.302,0.017],p=.081),但对减少抑郁有显著影响(SMD=-0.214,95%CI[-0.353,-0.076],p=.002)。在亚组分析中,国家和照顾者类型显著有助于减少照顾者抑郁的效果。
    结论:关于以照顾者为中心的自我护理干预措施的研究有限,导致缺乏明确的定义和全面的干预。随机对照试验表明,对非正式护理人员的心理健康影响很小,干预措施应同时考虑身心健康。需要更多的证据来证明自我护理干预对非正式护理人员焦虑和身体健康的有效性。
    BACKGROUND: Informal caregivers of older patients often neglect their self-care, despite the mental and physical health effects of caregiving. Randomized controlled trials (RCTs) on self-care interventions for informal caregivers are lacking, making it difficult to determine effective strategies. This systematic review explored the definition and categories of self-care RCTs for informal caregivers and a meta-analysis was conducted to determine the effectiveness of these interventions.
    METHODS: Seven databases (Scopus, Web of Science, MEDLINE, PubMed, ProQuest, CINAHL, and Embase) were searched for articles in English reporting on self-care intervention outcomes for informal caregivers of patients aged 60 years or older. Standardized mean differences (SMD) with 95% confidence intervals (CI) were calculated using a random-effects model. Subgroup, sensitivity, and publication bias analyses were conducted.
    RESULTS: Eighteen studies were included in the systematic review, of which fifteen studies were included in the meta-analysis. RCTs lacked a clear definition of self-care, mainly focused on promoting physical and mental health and individual capacity, and neglected disease prevention. The interventions focused on self-management for health and individual agency, with less attention on health literacy, decision-making capacity, self-monitoring for health status, and linkage to the health system. Meta-analysis results showed that RCTs had a small effect on reducing anxiety (SMD = -0.142, 95% CI [-0.302, 0.017], p = .081) but a significant effect on reducing depression (SMD = -0.214, 95% CI [-0.353, -0.076], p = .002). Country and type of caregiver significantly contributed to the effect of reducing caregivers\' depression in subgroup analysis.
    CONCLUSIONS: Studies on caregiver-centered self-care interventions are limited, resulting in a lack of a clear definition and comprehensive intervention. RCTs indicated a small effect on informal caregivers\' mental health, and interventions should consider both mental and physical health. More evidence is needed on the effectiveness of self-care interventions for informal caregivers\' anxiety and physical health.
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  • 文章类型: Journal Article
    本文旨在描述一种评估有效性的随机对照试验方案,成本,以及针对家庭护理人员的基于压力过程模型的痴呆症护理程序(DeCare-SPM)的过程。痴呆症患者的家庭护理人员将从记忆诊所和社区环境中招募,并随机分配给DeCare-SPM或常规护理。DeCare-SPM包括三个面对面的会议(即,以问题为基础的应对,基于情绪的应对,基于意义的应对),和第四届会议(即,社会支持),包括每周进行为期四周的电话咨询,然后每月进行面对面的助推器。结果将在基线(T0)测量,在一个(T1),三(T2),六个月(T3)。主要结果是护理的积极方面,次要结果是护理(即,能力感,照顾者的负担,社会支持,焦虑,抑郁症,和生活质量),与痴呆相关的(即,护理依赖,神经精神症状,和生活质量),以及与压力相关的血液和唾液生物标志物。此外,将进行过程和经济评估。混合效应模型将用于评估干预效果。将对定性数据进行内容分析。本文描述了协议的有效性的综合评价,成本,以及理论驱动的DeCare-SPM的过程,以告知干预措施如何以及为什么起作用。它强调了减少挑战和加强痴呆症护理的积极方面的必要性。DeCare-SPM将提供基于证据的见解,以了解如何支持和增强家庭护理人员的重要作用,因此,改善痴呆症护理。
    This paper aims to describe a randomized controlled trial protocol evaluating the effectiveness, cost, and process of a stress process model-based program in dementia caregiving (DeCare-SPM) for family caregivers. Family caregivers of individuals with dementia will be recruited from memory clinics and community settings and randomly assigned to either DeCare-SPM or usual care. DeCare-SPM comprises three face-to-face sessions (ie, problem-based coping, emotion-based coping, meaning-based coping), and a fourth session (ie, social support) including weekly telephone-based consultation for four weeks and then monthly face-to-face boosters. Outcomes will be measured at baseline (T0), and at one (T1), three (T2), and six months (T3). The primary outcome is positive aspects of caregiving and secondary outcomes are caregiving (ie, sense of competence, caregiver burden, social support, anxiety, depression, and quality of life), dementia-related (ie, care dependency, neuropsychiatric symptoms, and quality of life), and stress-related biomarkers of blood and saliva. In addition, process and economic evaluations will be performed. Mixed-effects models will be used to assess intervention effects. Content analysis will be performed on the qualitative data. This paper described the protocol for comprehensive evaluation of the effectiveness, cost, and process of the theory-driven DeCare-SPM to inform how and why interventions work. It highlights the need to reduce challenges and enhance the positive aspects of dementia care. The DeCare-SPM will provide evidence-based insights into how to support and empower family caregivers in their important roles, thereby, leading to improved dementia care.
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  • 文章类型: Journal Article
    目的:探讨二元干预对焦虑、抑郁症,肺癌姑息患者非正式护理人员的护理负担和生活质量。
    背景:肺癌姑息患者的非正式照顾者在照顾患者的过程中,会产生大量的负面情绪。二元干预有可能改善它们,但总体效果尚不清楚。
    方法:系统综述和荟萃分析。
    方法:所有随机对照试验均从以下数据库检索,直到2023年5月4日:WebofScience,EmbaseOvid,PubMed,Cochrane随机对照试验中央登记册,维普,万方和中国国家知识基础设施数据库。
    方法:本综述由Stata12.0和ReviewManager5.3进行。
    结果:13项随机对照试验符合纳入和排除标准(n=1807)。结果显示,二元干预显著改善了家庭照顾者的焦虑,肺癌姑息患者的抑郁和照顾者负担。二元干预组与未接受二元干预的家庭照顾者之间的生活质量没有显着差异。
    结论:二重干预对姑息肺癌患者的家庭照顾者的体验有积极影响。
    OBJECTIVE: To investigate the effects of dyadic intervention on anxiety, depression, care burden and quality of life in informal caregivers of palliative patients with lung cancer.
    BACKGROUND: Informal caregivers of palliative lung cancer patients bear a large number of negative emotions during the process of caring for the patients. Dyadic intervention has the potential for improving them but the overall effect is unclear.
    METHODS: A systematic review and meta-analysis.
    METHODS: All randomized controlled trials were retrieved from the following databases until 4 May 2023: Web of Science, Embase Ovid, PubMed, Cochrane Central Register of Randomized Controlled Trials, Weipu, Wanfang and Chinese National Knowledge Infrastructure databases.
    METHODS: This review was performed by Stata 12.0 and Review Manager 5.3.
    RESULTS: Thirteen randomized controlled trials were in accordance with the inclusion and exclusion criteria (n = 1807). The results revealed that dyadic intervention significantly improved family caregivers\' anxiety, depression and caregiver burden of palliative patients with lung cancer. There was no significant difference in quality of life between the dyadic intervention group and family caregivers who did not receive the dyadic intervention.
    CONCLUSIONS: Dyadic intervention positively impacts the experience of family caregivers of palliative patients with lung cancer.
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  • 文章类型: Systematic Review
    痴呆症是一种长期和进行性综合征,不仅影响痴呆症患者(PWD),也影响护理人员。然而,非正式的照顾者并不总是同情和了解痴呆症的症状,导致破坏性的护理关系和护理质量差。基于VR的模拟干预可以为护理人员提供更真实和令人难忘的学习体验,让他们穿着残疾人鞋走路。这篇综述旨在为从业者和研究人员提供有关开发和/或采用有效的基于VR的模拟干预措施的见解,以增强PWD非正式护理人员的同理心。进行了混合方法系统评价。定量,定性,从MEDLINE搜索混合方法研究,PsycINFO,CINAHL,Scopus,Embase,和Cochrane图书馆更新。使用标准JBI关键评估工具进行质量评估。使用了一种融合的分离方法来合成和整合数据。共纳入七项研究。关于基于VR的模拟对同理心增强的影响的定量结果不一致。据报道,对痴呆知识和以情绪为中心的应对策略有显著影响。定性研究产生了两个主题,包括“非正式护理人员更好地了解老年痴呆症患者遇到的问题”和“从老年痴呆症患者的角度思考,导致对痴呆症的态度和行为发生改变。“定性综合证据表明,非正式护理人员对PWD遇到的问题有了更好的了解,但定量合成结果不一致。然而,从PWD的角度思考,非正式护理人员的态度发生了变化。
    Dementia is a long-term and progressive syndrome that not only influences the person with dementia (PWD) but also the caregiver. However, informal caregivers are not always empathic and understand the symptoms of dementia, leading to destructive caregiving relationships and poor quality of caregiving. VR-based simulation interventions can provide a more realistic and memorable learning experience for caregivers to walk in PWDs\' shoes. This review aimed to provide practitioners and researchers with insights on developing and/or adopting an effective VR-based simulation intervention for enhancing the empathy of informal caregivers of PWD. A mixed-methods systematic review was conducted. Quantitative, qualitative, and mixed-methods studies were searched from MEDLINE, PsycINFO, CINAHL, Scopus, Embase, and Cochrane Library updating. Standard JBI critical appraisal instruments were used for the quality appraisal. A convergent segregated approach was used to synthesize and integrate the data. A total of seven studies were included. Inconsistent quantitative results were reported on the effects of VR-based simulation on empathy enhancement. Significant effects were reported on knowledge of dementia and emotion-focused coping strategies. Two themes were generated from the qualitative studies, including \"Informal caregivers gained better insight into problems encountered by older people with dementia\" and \"Thinking from the perspective of older people with dementia, leading to changes in attitudes and behaviours towards dementia\". The qualitative synthesized evidence showed that informal caregivers gained better insight into problems encountered by PWD, but the quantitative synthesized results are inconsistent. Yet, informal caregivers experienced a change in attitude by thinking from the perspective of PWD.
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  • 文章类型: Systematic Review
    目的:综合慢性非传染性疾病(CNCD)患者非正式护理人员的自我管理需求评估工具,评估心理测量属性的质量,并确定主要需求评估主题。
    方法:系统评价。
    方法:检索了8个中英文电子数据库。工具的心理测量特性是根据Terwee等人开发的良好心理测量特性的质量标准进行评估的。同时采用了内容分析法和专题提取法。需求评估主题是根据7级马斯洛需求层次理论进行分类的。
    结果:共合成了17种工具。其中13人针对癌症患者的非正式护理人员。对大多数这些工具评估的心理测量特性是内容有效性,内部一致性和结构效度。根据7级马斯洛需求层次理论,总共确定了27个需求主题,并将其匹配到6个级别,除了审美需求层面。
    未收集任何主要数据。
    OBJECTIVE: To synthesize self-administrated needs assessment tools of informal caregivers for patients with chronic non-communicable diseases (CNCDs), evaluate the quality of psychometric properties and identify main needs assessment themes.
    METHODS: Systematic review.
    METHODS: Eight electronic databases both in English and Chinese were searched for. The psychometric properties of tools were evaluated according to the quality criteria for good psychometric properties developed by Terwee et al. Both the content analysis and thematic extraction methods were used. Needs assessment themes were categorized based on the 7-level Maslow\'s Hierarchy of Needs Theory.
    RESULTS: A total of 17 tools were synthesized. Thirteen of them targeted informal caregivers of patients with cancer. The psychometric properties evaluated for most of these tools were content validity, internal consistency and construct validity. A total of 27 needs themes were identified and matched to six levels based on the 7-level Maslow\'s Hierarchy of Needs theory, besides the aesthetic needs level.
    UNASSIGNED: No primary data are being collected.
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