估计质量调整寿命年的现有措施大多限于与健康相关的生活质量。本文概述了EQ-HWB(EQ健康与福祉)的发展,这是一项涵盖健康和福祉的措施。
阶段:(1)通过审查由概念框架提供的定性文献来建立领域。(2)生成和选择项目以覆盖域。(3)通过对168名患者的定性访谈对这些项目进行面部验证,社会护理用户,一般人口,和6个国家的护理人员(阿根廷,澳大利亚,中国,德国,英国,美国)。(4)对候选项目进行广泛的心理测验(使用经典,因子分析,和项目反应理论方法)对6个国家的>4000名受访者进行调查。自始至终都征求了利益相关者的意见。
从定性文献中确定了总共32个子域,分为7个高级域,并生成了97个项目来覆盖它们。面部验证消除了36个项目,修改了14,增加了3。对64个项目进行心理测试,发现缺失数据或反应分布问题差异不大,除了在中国,概念模型得到了证实,大多数项目在所有国家的项目反应理论中都表现良好。在两轮磋商中向利益相关者提供了证据,以告知EQ-HWB(25个项目)和EQ-HWB的简短版本(9个项目)的最终选择。
国际上已经开发了EQ-HWB措施,用于评估健康干预措施,公共卫生,和社会关怀,包括对病人的影响,社会护理用户,和照顾者。
Existing measures for estimating quality-adjusted life-years are mostly limited to health-related quality of life. This article presents an overview of the development the EQ-HWB (EQ Health and Wellbeing), which is a measure that encompasses health and wellbeing.
Stages: (1) Establishing domains through reviews of the qualitative literature informed by a conceptual framework. (2) Generation and selection of items to cover the domains. (3) Face validation of these items through qualitative interviews with 168 patients, social care users, general population, and carers across 6 countries (Argentina, Australia,
China, Germany, United Kingdom, United States). (4) Extensive psychometric testing of candidate items (using classical, factor analysis, and item response theory methods) on > 4000 respondents in the 6 countries. Stakeholders were consulted throughout.
A total of 32 subdomains grouped into 7 high-level domains were identified from the qualitative literature and 97 items generated to cover them. Face validation eliminated 36 items, modified 14, and added 3. Psychometric testing of 64 items found little difference in missing data or problems with response distribution, the conceptual model was confirmed except in
China, and most items performed well in the item response theory in all countries. Evidence was presented to stakeholders in 2 rounds of consultation to inform the final selection of items for the EQ-HWB (25-item) and the short version of EQ-HWB (9-items).
EQ-HWB measures have been developed internationally for evaluating interventions in health, public health, and social care including the impact on patients, social care users, and carers.