Advance Care Planning

提前护理计划
  • 文章类型: Journal Article
    背景:建议将高级护理计划作为标准医疗服务的一部分。准备情况,表示行为改变的阶段,对其吸收产生重大影响。然而,预先护理计划干预对准备情况的特点和影响尚不明确.
    方法:我们系统回顾并进行了一项随机对照试验的荟萃分析,该试验评估了预先护理计划干预对准备的影响。使用乔安娜·布里格斯研究所批判性评估工具对研究进行了评估。使用连续变量的平均差或二元变量的风险比及其95%置信区间作为合并效应大小进行荟萃分析。
    结果:本综述纳入了8项研究,均被评为低质量。荟萃分析显示,干预措施使预先护理计划的总体准备度略有改善(平均差异=0.19,95%置信区间:0.02-0.36)。然而,没有确定干预措施的统计学显著影响是否准备好与特定行为相关(任命医疗保健代理人,与医疗保健代理人交谈,和医生谈论生前遗嘱,并签署生前遗嘱)。
    结论:我们的荟萃分析表明,干预措施可以改善预先护理计划的总体准备情况,建议将准备工作纳入未来的卫生政策和临床实践的必要性。然而,对特定行为准备没有显著影响强调了在干预设计中需要额外的改进,先进技术,和理论基础。
    背景:未注册。
    BACKGROUND: Advance care planning is recommended as part of standard medical services. Readiness, denoting stages of behavior change, exerts a substantial influence on its uptake. However, the characteristics and impacts of advance care planning interventions on readiness are not well-established.
    METHODS: We systematically reviewed and conducted a meta-analysis of randomized controlled trials assessing the effects of advance care planning interventions on readiness. Studies were appraised using Joanna Briggs Institute Critical Appraisal tools. Meta-analyses were performed using mean difference of continuous variables or risk ratios of binary variables and their 95 % confidence interval as the pooled effect sizes.
    RESULTS: Eight studies were included in this review and were all rated low quality. Meta-analysis showed that interventions resulted in slight improvement in overall readiness (mean difference = 0.19, 95 % confidence interval: 0.02-0.36) for advance care planning. However, statistically significant effects of interventions were not identified for readiness in relation to specific behaviors (appointment of a healthcare proxy, talking to a healthcare proxy, talking to a medical practitioner about living wills, and signing a living will).
    CONCLUSIONS: Our meta-analyses demonstrated that interventions can improve the overall readiness for advance care planning, suggesting the necessity to integrate readiness into future health policies and clinical practices. Nevertheless, the absence of significant effects on specific behavioral readiness underscores the requirement for additional refinement in intervention design, advanced technologies, and theoretical foundations.
    BACKGROUND: Not registered.
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  • 文章类型: Journal Article
    调查头颈部外科专业人员对老年头颈部癌症患者手术前实施预先护理计划的看法。
    Q方法用于通过结合定量和定性方法来探索和分析参与者的观点。参与者被要求对通过半结构化访谈和文献综述产生的35个Q陈述进行排名,并在随后的访谈中解释其排名的原因。然后对数据进行分析,并用于制定一个因素系列来说明参与者的观点。
    这项研究调查了15名医疗保健专业人员,包括八名医生和七名护士。卫生保健专业人员对术前实施预先护理计划讨论的看法各不相同,可以分为三种类型:捍卫患者的自主权,患者的知识和中国传统文化背景阻碍了术前提前护理计划的实施,对执行术前预先护理计划缺乏信心。
    尽管本研究中头颈外科的卫生保健专业人员认识到术前讨论有关提前护理计划的益处,患者知识水平,中国传统价值观,卫生保健专业人员能力不足,不健全的法律政策导致这些专业人员对术前咨询和与患者讨论预先护理计划有疑虑。应该进行进一步的研究,应制定克服术前提前护理计划讨论障碍的策略.
    UNASSIGNED: To investigate the views of health care professionals in a head and neck surgical department toward the implementation of advance care planning prior to surgery for older patients with head and neck cancer.
    UNASSIGNED: Q methodology was used to explore and analyze participants\' views by combining quantitative and qualitative methods. Participants were asked to rank 35 Q statements generated via semi-structured interviews and a literature review and to explain the reasons for their ranking in subsequent interviews. The data was then analyzed and used to develop a factor series to illustrate participants\' views.
    UNASSIGNED: This study surveyed 15 health care professionals, including eight doctors and seven nurses. The views of health care professionals toward preoperative implementation of advance care planning discussions were varied and could be categorized into three types: defending the autonomy of patients, patients\' knowledge and the Chinese traditional cultural context hinder the implementation of preoperative advance care planning, and lack of confidence in performing preoperative advance care planning.
    UNASSIGNED: Although the health care professionals in the head and neck surgical department in this study recognized the benefits of preoperative discussions regarding advance care planning, patients\' knowledge level, traditional Chinese values, inadequate capacity among health care professionals, and unsound legal policies have caused these professionals to have misgivings about preoperative counseling and discussing advance care planning with patients. Further studies should be conducted, and strategies to overcome barriers to discussions of preoperative advance care planning should be developed.
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  • 文章类型: Journal Article
    背景:提前护理计划是一个过程,通过该过程,人们传达了他们对未来医疗护理的目标和偏好。由于决策过程的复杂性,辅助决策可以帮助个人平衡治疗方案的潜在益处和风险。
    目的:虽然辅助决策有可能更好地促进提前护理计划,他们的特点,内容和应用效果不明确,缺乏系统评价。因此,我们旨在探讨这三个方面,并为未来的研究奠定基础。
    方法:范围审查。
    方法:此范围审查遵循Arksey和O\'Malley提出的框架和PRISMA-ScR列表。从建设时间到2023年12月1日,系统地搜索了六个英语数据库。两名研究人员进行了文章筛选和数据提取,提取的数据以书面表格和叙述性摘要形式呈现。
    结果:在1479个标题和摘要中,20项研究符合纳入标准。采用了决策辅助工具的类型,主要是网站和视频。决策辅助工具的主要组成部分围绕11个区域,例如提供信息,探索治疗和护理偏好。主要表现为知识的显着增加和对患者目标价值偏好的认识的提高。在艾滋病中,提前护理计划的网站和视频具有相对较高的内容接受度和决策过程满意度,但其可行性尚待检验。
    结论:决策辅助工具多种多样,内容集中在描述关键信息和探索治疗和护理偏好。关于应用效果,这些辅助设备成功地促进了预先护理计划过程,并提高了参与者的决策质量。总的来说,决策辅助工具可有效改善癌症和老年患者实施预先护理计划的决策过程.在未来,应在持续优化工具质量的基础上开发个性化决策辅助工具,并推广用于临床应用。
    本文遵守了EQUATOR准则,并参考了PRISMAg-ScR检查表。
    这是一项没有耐心和公众贡献的评论。
    背景:https://doi.org/10.17605/OSF。IO/YPHKF,开放科学DOI:10.17605/OSF。IO/YPHKF。
    BACKGROUND: Advance care planning is a process through which people communicate their goals and preferences for future medical care. Due to the complexity of the decision-making process, decision aids can assist individuals in balancing potential benefits and risks of treatment options.
    OBJECTIVE: While decision aids have the potential to better promote advance care planning, their characteristics, content and application effectiveness are unclear and lack systematic review. Therefore, we aimed to explore these three aspects and establish a foundation for future research.
    METHODS: Scoping review.
    METHODS: This scoping review adheres to the framework proposed by Arksey and O\'Malley and the PRISMA-ScR list. Six English-language databases were systematically searched from the time of construction until 1 December 2023. Two researchers conducted the article screening and data extraction, and the extracted data was presented in written tables and narrative summaries.
    RESULTS: Of the 1479 titles and abstracts, 20 studies fulfilled the inclusion criteria. Types of decision aids were employed, mainly websites and videos. Decision aid\'s primary components center around 11 areas, such as furnishing information, exploring treatment and care preferences. The main manifestations were a significant increase in knowledge and improved recognition of patients\' target value preferences. Among the aids, websites and videos for advance care planning have relatively high content acceptability and decision-making process satisfaction, but their feasibility has yet to be tested.
    CONCLUSIONS: Decision aids were varied, with content focused on describing key information and exploring treatment and care preferences. Regarding application effects, the aids successfully facilitated the advance care planning process and improved the quality of participants\' decisions. Overall, decision aids are efficient in improving the decision-making process for implementing advance care planning in cancer and geriatric populations. In the future, personalised decision aids should be developed based on continuous optimization of tools\' quality and promoted for clinical application.
    UNASSIGNED: The paper has adhered to the EQUATOR guidelines and referenced the PRISMAg-ScR checklist.
    UNASSIGNED: This is a review without patient and public contribution.
    BACKGROUND: https://doi.org/10.17605/OSF.IO/YPHKF, Open Science DOI: 10.17605/OSF.IO/YPHKF.
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  • 文章类型: Journal Article
    Advance care planning (ACP) is designed to ensure that patients lacking autonomous decision-making capacity receive medical services in accordance with their expectations and preferences. Individuals with advanced cancer are a crucial target for ACP implementation. However, the current practice of ACP in this group in China is suboptimal, demanding high-quality implementation evidence to strengthen ACP in the clinical practice of patients with advanced cancer. The existing literature can be summarized into 27 pieces of evidence across 7 dimensions, including initiation time, intervention content, intervention providers, intervention modalities, communication skills, outcome indicators, and environmental support. The aforementioned evidence could provide crucial support for improving ACP implementation for patients with advanced cancer. Subsequent research efforts should integrate patient preferences and explore the most suitable implementation strategies for ACP in the Chinese population with advanced cancer, considering diverse aspects such as traditional culture, ACP education and training, legislative support, and healthcare system refinement.
    预立医疗照护计划(advance care planning,ACP)旨在确保丧失自主决策权的患者获得符合其期待和偏好的医疗服务。晚期癌症人群是ACP实施的关键人群,然而目前在中国的实践现状欠佳,亟需高质量的实施证据加强ACP在晚期癌症患者人群的临床实践。现有文献可汇总为干预时间、干预内容、干预人员、干预模式、沟通技巧、结局指标和环境支持7个维度的27条证据,为促进晚期癌症患者ACP实施提供了重要依据。后续研究需结合患者意愿,从传统文化、ACP宣教与培训、健全立法和医疗系统等多层面探索适合中国晚期癌症人群ACP的最佳实施策略。.
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  • 文章类型: Journal Article
    背景:预先护理计划通常在患者生命的最后六个月开始。然而,由于痴呆症患者的决策过程逐渐下降,他们参与预先护理计划仅限于疾病的早期阶段。目前,对于启动痴呆症患者的提前护理计划的最佳时机没有共识,缺乏对解决这一问题的文献的全面审查。
    目的:探索痴呆症患者的经历和观点,他们的家庭照顾者,和卫生保健专业人员关于启动提前护理计划的最佳时机。
    方法:进行元合成。
    方法:搜索了以下八个电子数据库:PubMed,Embase,WebofScience,科克伦图书馆,CINAHL和CNKI,万方和贵宾。
    方法:本综述使用主题综合方法,根据《提高报告质量研究综合的透明度》(ENTREQ)和JoannaBriggsInstitute证据综合手册》系统地综合定性证据并报告发现。研究选择和数据提取由两名研究人员独立进行,使用乔安娜·布里格斯研究所的定性研究标准评估工具对质量进行评估。
    结果:本综述选择了21项研究。这次审查涉及一个总体主题:利用关键要素从延迟启动过渡到全面执行。出现了三个主题,包括启动预先护理计划的先决条件,还没有准备好开始提前护理计划,并在狭窄的道路上苦苦挣扎。对于医疗保健专业人员来说,选择合适的时机启动痴呆症患者的提前护理计划不仅是一项挑战,也是成功实施提前护理计划的关键前提。卫生保健专业人员的经验,对提前护理计划的态度,与患者的信任关系,痴呆症患者和他们的照顾者之间的文化差异,和经济差异都会影响医疗保健专业人员对启动提前护理计划的时机的判断。
    结论:确定启动预先护理计划的最佳时机是一个复杂的过程,需要全面考虑卫生保健专业人员所面临的现实,痴呆症患者和他们的照顾者。因此,必须向卫生保健专业人员提供相关培训,以确保成功实施预先护理计划。
    BACKGROUND: Advance care planning is typically initiated during the last six months of a patient\'s life. However, due to the progressive decline in the decision-making process in individuals with dementia, their involvement in advance care planning is limited to the early stages of the disease. Currently, there is no consensus on the optimal timing for initiating advance care planning for people with dementia, and a comprehensive review of the literature addressing this matter is lacking.
    OBJECTIVE: To explore the experiences and perspectives of people with dementia, their family caregivers, and health care professionals with regard to the optimal timing for initiating advance care planning.
    METHODS: A meta-synthesis was conducted.
    METHODS: The following eight electronic databases were searched: PubMed, Embase, Web of Science, Cochrane Library, CINAHL and CNKI, WanFang and Vip.
    METHODS: This review uses thematic synthesis to systematically synthesize qualitative evidence and report findings according to The Enhancing Transparency in Reporting the Synthesis of Qualitative Research (ENTREQ) and the Joanna Briggs Institute Manual for Evidence Synthesis. Study selection and data extraction were conducted independently by two researchers, and quality was evaluated using the Joanna Briggs Institute\'s Qualitative Research Standard Assessment tool.
    RESULTS: Twenty-one studies were selected for this review. This review involved an overarching theme: The utilization of pivotal elements to transition from delayed initiation to comprehensive implementation. Three themes emerge, including the prerequisites for initiating advance care planning, not ready to start advance care planning and struggling along narrow roads. For health care professionals, the selection of an opportune moment to initiate advance care planning for people with dementia is not only a challenge but also a crucial prerequisite for the successful implementation of advance care planning. Health care professionals\' experience, attitude toward advance care planning, trust relationship with patients, cultural differences among people with dementia and their caregivers, and economic disparities all influence health care professionals\' judgment of the timing for initiating advance care planning.
    CONCLUSIONS: Determining the optimal timing for initiating advance care planning is a complex process that requires a comprehensive consideration of the realities faced by health care professionals, people with dementia and their caregivers. Therefore, it is imperative to provide relevant training to health care professionals to ensure the successful implementation of advance care planning.
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  • 文章类型: Journal Article
    目的:在中国郊县社区居住的患有慢性病的老年人中,评估预先护理计划准备量表(ACPRS-C)的心理测量学特性。
    方法:描述性,横断面调查。
    方法:本研究采用的研究方法是方法学研究。自我报告的调查数据是在中国郊县居住的社区居住的患有慢性病的老年人中收集的。包括以下心理测量特征,项目分析采用决策值法和Pearson相关分析。内容效度通过专家小组评估进行评估。通过计算Cronbach的α系数和校正的项目总相关性来确定问卷的内部一致性。此外,验证性因子分析(CFA)用于评估ACPRS-C的结构效度。
    结果:从2023年8月至10月,共有228名老年人参加了这项心理测量学研究。项目内容效度指数为0.80~1.00,量表内容效度指数为0.945。该量表表现出优异的内部一致性(Cronbach'sα=0.931),项目与总分的相关性令人满意。结构有效性被认为是稳健的(CFA模型拟合:卡方/df=1.121,比较拟合指数=0.992)。
    结论:ACPRS-C是一种具有强大心理测量特性的量表,用于评估居住在中国郊县的社区居住的患有慢性病的老年人的ACP准备情况。其信度和效度对研究和临床实践都具有重要意义。
    OBJECTIVE: To evaluate the psychometric properties of the Advance Care Planning Readiness Scale (ACPRS-C) within the context of community-dwelling older adults with chronic diseases residing in suburban counties in China.
    METHODS: Descriptive, cross-sectional survey.
    METHODS: The research method employed in this study is characterized as a methodological study. Self-reported survey data were collected among community-dwelling older adults with chronic diseases residing in suburban counties in China. Including the following psychometric characteristics, item analysis was performed using the decision value method and Pearson\'s correlation analysis. Content validity was assessed through expert panel evaluation. The internal consistency of the questionnaire was determined by calculating Cronbach\'s alpha coefficient and corrected item-total correlation. Additionally, confirmatory factor analysis (CFA) was utilized to assess the construct validity of the ACPRS-C.
    RESULTS: A total of 228 older adults participated in this psychometric study from August to October 2023. The item content validity index ranged from 0.80 to 1.00, while the scale content validity index was 0.945. The scale demonstrated excellent internal consistency (Cronbach\'s alpha = 0.931), and the correlation between items and total score was satisfactory. The structural validity was deemed robust (CFA model fit: chi-square/df = 1.121, comparative fit index = 0.992).
    CONCLUSIONS: The ACPRS-C is a scale with strong psychometric properties to assess the ACP readiness within the context of community-dwelling older adults with chronic diseases residing in suburban counties in China. Its reliability and validity hold considerable significance for both research and clinical practice.
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  • 文章类型: Journal Article
    人工智能(AI)在医疗保健领域的应用前景广阔,人工智能也有可能彻底改变姑息治疗服务领域。姑息治疗的消费者满意度是提供高质量的临终支持的关键方面。它包含各种元素,有助于为患者及其家人带来积极的体验。基于人工智能的工具和技术可以帮助早期识别受益者,降低成本,提高护理质量和对患有慢性生命限制性疾病的患者的满意度。然而,必须确保人工智能在道德上得到使用,并以一种互补的方式得到使用,而不是取代,人类的接触和富有同情心的关怀,这是姑息治疗的核心组成部分。本文试图分析在姑息治疗服务中通过基于AI的技术提高消费者满意度的范围和挑战。
    The scope of artificial intelligence (AI) in healthcare is promising, and AI has the potential to revolutionise the field of palliative care services also. Consumer satisfaction in palliative care is a critical aspect of providing high-quality end-of-life support. It encompasses various elements that contribute to a positive experience for both patients and their families. AI-based tools and technologies can help in early identification of the beneficiaries, reduce the cost, improve the quality of care and satisfaction to the patients with chronic life-limiting illnesses. However, it is essential to ensure that AI is used ethically and in a way that complements, rather than replaces, the human touch and compassionate care, which are the core components of palliative care. This article tries to analyse the scope and challenges of improving consumer satisfaction through AI-based technology in palliative care services.
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  • 文章类型: Letter
    暂无摘要。
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  • 文章类型: Journal Article
    目的:从居民的角度探讨预先护理计划的观点和偏好,长期护理机构的家庭成员和医疗保健专业人员。
    方法:定性描述性设计。
    方法:我们对12名长期护理机构的居民进行了半结构化访谈,10名家庭成员和14名医疗保健专业人员。使用反身性主题分析对数据进行了分析。社会生态模型用于制定实施建议。
    结果:我们构建了一个障碍和促进者的概念模型,以推进长期护理机构的护理计划,从定性分析中汲取四个主要主题:(1)缺乏关于临终关怀的论述:缺乏谈论死亡的文化氛围,避免谈论死亡的潜移默化的协议,对姑息治疗的意识差可能会阻碍提前护理计划的启动;(2)关系决策过程是影响提前护理计划参与的双重因素;(3)低信任和“不安全”文化:缺乏诚实的信息共享,违反社会期望和破坏社会关系的风险,法律后果的风险可能会阻碍参与预先护理计划的意愿;(4)满足和尊重居民的社会心理需求:这些可以通过准备评估来解决,以非正式和平等的方式启动预先护理计划,并让社会工作者参与。
    结论:我们的研究结果表明,居民的声音没有被听到。有必要识别居民自发的对话触发因素,根据家庭的价值观和偏好,阐明提前护理计划的价值,并尊重居民的社会心理需求,以促进长期护理设施中的提前护理计划。提前护理计划可以减轻核心家庭后代的决策负担。
    结论:本研究中基于证据的建议将为亚太地区实施特定背景的提前护理计划提供信息。
    患者和护理人员为访谈试点和数据收集做出了贡献。
    OBJECTIVE: To explore the views and preferences for advance care planning from the perspectives of residents, family members and healthcare professionals in long-term care facilities.
    METHODS: A qualitative descriptive design.
    METHODS: We conducted semi-structured interviews with 12 residents of long-term care facilities, 10 family members and 14 healthcare professionals. Data were analysed using reflexive thematic analysis. The social ecological model was used to develop implementation recommendations.
    RESULTS: We constructed a conceptual model of barriers and facilitators to advance care planning in long-term care facilities, drawing upon four dominant themes from the qualitative analysis: (1) The absence of discourse on end-of-life care: a lack of cultural climate to talk about death, the unspoken agreement to avoid conversations about death, and poor awareness of palliative care may hinder advance care planning initiation; (2) Relational decision-making process is a dual factor affecting advance care planning engagement; (3) Low trust and \'unsafe\' cultures: a lack of honest information sharing, risks of violating social expectations and damaging social relationships, and risks of legal consequences may hinder willingness to engage in advance care planning; (4) Meeting and respecting residents\' psychosocial needs: these can be addressed by readiness assessment, initiating advance care planning in an informal and equal manner and involving social workers.
    CONCLUSIONS: Our findings show that residents\' voices were not being heard. It is necessary to identify residents\' spontaneous conversation triggers, articulate the value of advance care planning in light of the family\'s values and preferences, and respect residents\' psychosocial needs to promote advance care planning in long-term care facilities. Advance care planning may alleviate the decision-making burden of offspring in nuclear families.
    CONCLUSIONS: The evidence-based recommendations in this study will inform the implementation of context-specific advance care planning in Asia-Pacific regions.
    UNASSIGNED: Patients and caregivers contributed to the interview pilot and data collection.
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  • 文章类型: Journal Article
    提前护理计划可能具有挑战性,因为讨论临终护理通常具有负面含义。游戏化是一种新颖的方法,可以鼓励西方文化中的提前护理计划对话。
    与多个利益相关者共同设计游戏,以促进中国社区的提前护理计划。
    在医学研究委员会框架的指导下,在2019年5月至2020年8月期间采用了两阶段设计,用于开发复杂的干预措施。在第一阶段,在文献综述的基础上开发了一个游戏原型,专家咨询和最终用户咨询。在第二阶段,游戏原型在最终用户中进行了测试,并通过迭代过程根据他们的反馈和多学科团队的专业知识进行了完善。
    老年护理领域的专家,姑息治疗,生活教育和游戏开发以及中国60岁或以上的社区居住成年人。
    开发了一种名为“在杂货店发现的五种口味”的棋盘游戏。游戏设计是由Bandura的自我效能理论以及专家和最终用户的反馈形成的。参与者通常发现游戏体验令人愉快,并赞赏有机会公开讨论临终护理。
    这项研究是第一个开发有证据的,基于理论,使用共同设计方法促进华人社区提前护理计划的文化敏感游戏。
    UNASSIGNED: Advance care planning can be challenging because discussing end-of-life care often has negative connotations. Gamification is a novel approach to encourage advance care planning conversations in Western culture.
    UNASSIGNED: To co-design a game with multiple stakeholders to promote advance care planning in Chinese communities.
    UNASSIGNED: A two-phase design guided by the Medical Research Council framework for developing complex interventions was adopted between May 2019 and August 2020. In phase I, a game prototype was developed based on literature review, expert consultation and end-user consultation. In Phase II, the game prototype was tested among end-users and refined according to their feedback and expertise of a multi-disciplinary team through an iterative process.
    UNASSIGNED: Experts in the field of aged care, palliative care, life education and game development and Chinese community-dwelling adults aged 60 years or older.
    UNASSIGNED: A board game called \'The Five Tastes Found in a Grocery Store\' was developed. The game design was shaped by Bandura\'s Self-efficacy theory and feedback from experts and end-users. The participants generally found the gaming experience enjoyable and appreciated the opportunity to discuss end-of-life care openly.
    UNASSIGNED: This study is the first to develop an evidence-informed, theory-based, culturally sensitive game for promoting advance care planning in the Chinese community using a co-design approach.
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