self-report

自我报告
  • 文章类型: Journal Article
    背景:国际研究表明,儿童和青少年面临暴力的风险很高。2023年发表的系统审查建议了六项儿童和青少年自我报告对儿童的暴力行为(VAC)措施。基于他们的心理测量特性,在一项系统的基于共识的健康测量指标选择标准(COSMIN)审查中。然而,重叠程度和异质性不是分析的一部分.目标:比较有关项目重叠和有关暴露尺寸规格差异的六种措施。方法:对原始174个项目进行内容分析,结果减少到38个独特项目。这些项目是使用Fried的R代码的改编版本在同现圈中进行视觉组织的。此外,使用Jaccard索引对事件列表进行了成对比较.结果:六项措施之间存在适度的重叠。所有六项措施中只有一项,四项措施中只有两项,78%的项目只存在一两个措施。六项措施之间的总体重叠为25%。结论:度量之间缺乏重叠反映了定义和目的的异质性。这也阻碍了研究的进展,因为各种研究之间的比较很难以有效和可靠的方式进行。缺乏共识也延误了有效的政治倡议,因为固体,关于VAC患病率的共识不存在。
    暴力侵害儿童(VAC)是一个高度的政治和专业优先事项。最近的一项系统审查建议根据他们的心理测量质量提出六种自我报告措施。VAC项目非常多样化。内容分析将原始的174个项目减少到38个独特的项目。Jaccard指数显示有25%的重叠。在定义和应用措施方面缺乏共识阻碍了研究的进展,并拖延了重要的政治,预防性举措。
    Background: International research has established that children and adolescents are at high risk for being exposed to violence. A systematic review published in 2023 recommended six child and adolescent self-report violence against children (VAC) measures, based on their psychometric properties, in a systematic COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) review. However, the degree of overlap and heterogeneity was not part of the analysis.Objective: To compare the six measures with respect to item overlap and differences concerning specification of exposure dimensions.Method: A content analysis of the original 174 items resulted in a reduction to 38 unique items. These items were organized visually in a co-occurrence circle using an adapted version of Fried\'s R code. Furthermore, a pairwise comparison of event lists was performed using the Jaccard index.Results: There was a modest overlap among the six measures. Only one item was present in all six measures, only two items were present in four measures, and 78% of the items were present in just one or two measures. The overall overlap between the six measures was 25%.Conclusions: The lack of overlap among measures reflects a heterogeneity of definitions and purposes. It also impedes progress in research, as comparisons between various studies are difficult to make in a valid and reliable way. The lack of consensus also delays efficient political initiatives, because solid, consensual knowledge about the prevalence of VAC does not exist.
    Violence against children (VAC) is a high political and professional priority. A recent systematic review recommended six self-report measures based on their psychometric qualities.The VAC items were very diverse. A content analysis reduced the original 174 items to 38 unique items. A Jaccard index showed an overlap of 25%.The lack of consensus in definitions and applied measures impedes progress in research and delays important political, prophylactic initiatives.
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  • 文章类型: Journal Article
    目的:本研究旨在探索和描述护生对药物管理能力的自我报告看法。
    背景:药物错误是医院的一个重要问题,因为它们会对患者造成严重伤害甚至死亡。护理学生在管理药物和预防错误中起着至关重要的作用,但他们也容易犯错误。虽然许多研究已经广泛检查了导致用药错误的因素,很少有人关注护理专业学生的能力评估。
    方法:本研究采用定性探索性和描述性设计。
    方法:某高等教育机构共有10名本科护生同意面对面参与,半结构化个人访谈。数据是在2022年8月至9月之间使用采访指南收集的。使用Braun和Clarke的主题分析的六个步骤对访谈进行了音频记录和分析。
    结果:该研究揭示了两个主要主题:(1)“感知能力障碍”,其中包括参与者对犯错误的担忧,药理学知识,数学自我效能感和监督水平;和(2)“改进机制”,以提高模拟能力为中心,在护理培训的第二年中加强监督和整合药理学教育。
    结论:研究结果表明,实习护士面临各种能力障碍,比如害怕犯错误,缺乏药理学知识和计算药物剂量的自信心低。为了解决这些问题,优先监督对于促进学生学习和确保安全至关重要。未来的研究应考虑调查护士教育者对药理学课程的看法。
    OBJECTIVE: This study aims to explore and describe self-reported perceptions of nursing students\' competence in the administration of medication.
    BACKGROUND: Medication errors are a significant concern in hospitals, as they can result in serious harm and even death for patients. Nursing students play a crucial role in administering medication and preventing errors, but they are also prone to making mistakes. While numerous studies have extensively examined the factors that contribute to medication errors, few have focused on the assessment of competency among nursing students.
    METHODS: This study employed a qualitative exploratory and descriptive design.
    METHODS: A total of 10 undergraduate nursing students at a higher education institution consented to participate in face-to-face, semi-structured individual interviews. Data were collected between August and September 2022 using an interview guide. The interviews were audio recorded and analysed using Braun and Clarke\'s six steps of thematic analysis.
    RESULTS: The study revealed two major themes: (1) \'Perceived barriers to competency\', which include participants\' concerns regarding making errors, knowledge in pharmacology, self-efficacy in mathematics and level of supervision; and (2) \'Mechanisms for improvement\', which centre on enhancing simulation proficiency, improving supervision and integrating pharmacology education in year two of nursing training.
    CONCLUSIONS: The study findings suggest that student nurses face various barriers to competence, such as a fear of making mistakes, a lack of pharmacology knowledge and low self-confidence in calculating drug dosages. To address these issues, prioritising supervision is crucial to facilitate student learning and ensure safety. Future research should consider investigating the perspectives of nurse educators on pharmacology curricula.
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  • 文章类型: Journal Article
    背景:电子烟(ECIG)设备和液体特性的自我报告并不总是准确的或与研究人员测量的特性一致。比较了两种测量ECIG特征的方法:用户自我报告和评分者编码的图片。
    方法:独家ECIG用户(N=321)在设备上报告(一次性,可再填充,可调功率,品牌)和液体(尼古丁浓度,配方,风味)特性。要测量设备类型,他们选择了最能描述他们的设备的术语(“类似的,\"\"vape笔,\"\"mod,\"\"pod,\“\”不知道\”)和最类似于他们设备的图片(cig-like,vape笔,boxmod,USB形状的吊舱,泪滴形豆荚,none).受访者上传设备和液体图片,和独立的评估者编码这些相同的特征。方法之间的一致性用科恩的kappa和类内相关性进行了检验,包括“不知道”的回答,包括和排除在分析之外。
    结果:无论如何处理“不知道”的反应,一次性协议最高(95.3-97.7%),可再填充(96.3%),可调功率(83.6-88.7%),和品牌(77.9-80.4%),和较低的尼古丁浓度(72.7%),尼古丁配方(58.6-79.4%),和风味(66.2%)。对于设备类型,使用基于术语(67.9-78.8%)和基于图片相似性(71.7%)的项目时,协议是中等的。对于条款,最大的差异是根据自我报告归类为“vapepens”的设备;其中,70.6%被评分者归类为“豆荚”。对于图片相似性,13%的用户报告说他们的设备与任何图片都不相似;评估者将这些设备分类为USB形pod(50.0%)和mods(23.8%)。
    结论:自我报告可能足以衡量某些特征(品牌,一次性的,可再填充,可调功率),但不是其他(尼古丁浓度和配方,和一些味道)。
    BACKGROUND:  Self-reports of electronic cigarette (ECIG) device and liquid characteristics are not always accurate or consistent with characteristics as measured by researchers. Two methods for measuring ECIG characteristics were compared: user self-reports and rater-coded pictures.
    METHODS:  Exclusive ECIG users (N = 321) reported on device (disposable, refillable, adjustable power, brand) and liquid (nicotine concentration, formulation, flavor) characteristics. To measure device type, they chose the term that best described their device (\"cig-alike,\" \"vape pen,\" \"mod,\" \"pod,\" \"don\'t know\") and the picture that best resembled their device (cig-alike, vape pen, box mod, USB-shaped pod, teardrop-shaped pod, none). Respondents uploaded device and liquid pictures, and independent raters coded these same features. Agreement between methods was examined with Cohen\'s kappa and intra-class correlations, including with \"don\'t know\" responses included and excluded from analyses.
    RESULTS:  Regardless of how \"don\'t know\" responses were treated, agreement was highest for disposable (95.3-97.7%), refillable (96.3%), adjustable power (83.6-88.7%), and brand (77.9-80.4%), and lower for nicotine concentration (72.7%), nicotine formulation (58.6-79.4%), and flavor (66.2%). For device type, agreement was moderate using both term-based (67.9-78.8%) and picture resemblance-based (71.7%) items. For terms, the greatest discrepancy was for devices classified as \"vape pens\" by self-reports; of these, 70.6% were classified as \"pods\" by raters. For picture resemblance, ∼13% of users reported that their device resembled none of the pictures; raters classified these devices as USB-shaped pods (50.0%) and mods (23.8%).
    CONCLUSIONS:  Self-reports may be sufficient for measuring some characteristics (brand, disposable, refillable, adjustable power), but not others (nicotine concentration and formulation, and some flavor).
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  • 文章类型: Journal Article
    简介:在经历了一段与COVID-19大流行隔离的社会隔离之后,对于社交焦虑水平升高的个人来说,社交互动可能特别复杂。一个潜在的含义涉及面罩的使用。口罩已被用作防止COVID-19传播的有效工具。然而,对于社交焦虑升高的个体,口罩可能是一种回避和安全行为,停止使用口罩可能会增加社交焦虑。为了应对这些可能性,这项研究的目的是开发一种评估面罩潜在焦虑相关反应的方法.方法:参与者是564名未转诊的年轻人,他们完成了为本研究开发的评估行为和对口罩的反应的措施(对口罩的反应问卷),包括焦虑和回避行为。社交焦虑的衡量标准,更普遍的回避,和安全行为也包括在内。结果:基于探索性因素分析,保留了双因素模型.安全寻求和回避(SSA)措施降低了戴口罩时的安全感引起的社交焦虑,和社会干扰措施增加了与戴口罩相关的社会互动的干扰/抑制相关的社会焦虑症状。发现这两个子量表都与社交焦虑的一般指标有关,更普遍的回避,和安全行为;然而,SSA分量表的相关性更为稳健。讨论:根据目前的调查结果,一般的社交焦虑和社交焦虑的共同相关性,包括寻求安全的行为,被发现与面罩焦虑和回避有关。讨论了对未来研究和潜在临床实践的影响。
    Introduction: Following a period of social isolation from the COVID-19 pandemic, social interactions may be particularly complicated for individuals with elevated levels of social anxiety. One potential implication relates to the use of face masks. Face masks have been used as an effective tool to prevent the transmission of COVID-19. However, for individuals with elevated social anxiety, face masks may be a form of avoidance and type of safety behavior and discontinued use of face masks may be associated with increases in social anxiety. In response to these possibilities, the purpose of this study was to develop a measure to assess potential anxiety-related reactions to face masks. Method: Participants were 564 nonreferred young adults who completed a measure developed for this study to assess behaviors and reactions to face masks (Reaction to Face Masks Questionnaire), including anxiety and avoidance behaviors. Measures of social anxiety, more general avoidance, and safety behaviors were also included. Results: Based on an exploratory factor analysis, a two-factor model was retained. Safety-Seeking and Avoidance (SSA) measures reductions in social anxiety derived from a feeling of safety when wearing a face mask, and Social Interference measures increases in social anxiety symptoms related to the interference/inhibition of social interactions related to wearing masks. Both subscales were found to be associated with general measures of social anxiety, more general avoidance, and safety behaviors; however, the correlations were more robust for the SSA subscale. Discussion: Based on the current findings, general social anxiety and common correlates of social anxiety, including safety-seeking behaviors, were found to be associated with face mask anxiety and avoidance. Implications for future research and potential clinical practice are discussed.
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  • 文章类型: Journal Article
    背景:生态瞬时评估(EMA)是一种测量方法,涉及重复收集有关参与者在其自然环境中的行为和经验的实时数据。虽然EMA允许研究人员获得对动态行为过程的有价值的见解,需要频繁的自我报告可能是繁重和破坏性的。遵守EMA协议对于准确、无偏抽样;然而,EMA研究设计没有“黄金标准”来促进合规性。
    目的:这项研究的目的是使用阶乘设计来确定最佳研究设计因素,或多种因素的组合,实现基于智能手机的EMA的最高完成率。
    方法:在2×2×2×2设计(32个条件)中,从美国各地招募的参与者被随机分配到5个设计因素中的2个水平中的1个:因子1-每个EMA调查的问题数(15对25);因子2-每天的EMA数量(2对4);因子3-EMA提示时间表(随机与固定时间;基于EMA类型的滑块型反应量表与Likert型反应量表;这是唯一的人内因素;每个参与者在研究期前14天或后14天被随机分配完成滑块型或Likert型问题).要求所有参与者完成提示的EMA28天。检查了每个因素对EMA完成的影响,以及因子相互作用对EMA完成的影响。最后,研究了人口和社会环境因素与EMA完成情况之间的关系。
    结果:参与者(N=411)年龄为48.4(SD12.1)岁;75.7%(311/411)为女性,72.5%(298/411)为白人,18.0%(74/411)是黑人或非裔美国人,2.7%(11/411)是亚洲人,1.5%(6/411)是美洲印第安人或阿拉斯加原住民,5.4%(22/411)属于一个以上的种族,9.6%(38/396)为西班牙裔/拉丁裔。平均而言,参与者完成了83.8%(28,948/34,552)的预定EMA,96.6%(397/411)的参与者完成了后续调查。结果表明,设计因素对依从性没有显着的主要影响,也没有显着的相互作用。分析还表明,老年人,那些没有物质使用问题的历史,那些没有当前抑郁症的人往往比他们的同龄人完成更多的EMA。没有其他人口统计学或社会环境因素与EMA完成率相关。最后,该应用程序很受欢迎(即,系统可用性量表得分=82.7),并且在喜欢应用和EMA依从性之间存在统计学上显著的正相关。
    结论:研究结果对于制定使用EMA方法的未来研究的最佳实践指南具有广泛的意义。
    背景:ClinicalTrials.gov编号NCT05194228;https://clinicaltrials.gov/study/NCT05194228。
    BACKGROUND: Ecological momentary assessment (EMA) is a measurement methodology that involves the repeated collection of real-time data on participants\' behavior and experience in their natural environment. While EMA allows researchers to gain valuable insights into dynamic behavioral processes, the need for frequent self-reporting can be burdensome and disruptive. Compliance with EMA protocols is important for accurate, unbiased sampling; yet, there is no \"gold standard\" for EMA study design to promote compliance.
    OBJECTIVE: The purpose of this study was to use a factorial design to identify optimal study design factors, or combinations of factors, for achieving the highest completion rates for smartphone-based EMAs.
    METHODS: Participants recruited from across the United States were randomized to 1 of 2 levels on each of 5 design factors in a 2×2×2×2×2 design (32 conditions): factor 1-number of questions per EMA survey (15 vs 25); factor 2-number of EMAs per day (2 vs 4); factor 3-EMA prompting schedule (random vs fixed times); factor 4-payment type (US $1 paid per EMA vs payment based on the percentage of EMAs completed); and factor 5-EMA response scale type (ie, slider-type response scale vs Likert-type response scale; this is the only within-person factor; each participant was randomized to complete slider- or Likert-type questions for the first 14 days or second 14 days of the study period). All participants were asked to complete prompted EMAs for 28 days. The effect of each factor on EMA completion was examined, as well as the effects of factor interactions on EMA completion. Finally, relations between demographic and socioenvironmental factors and EMA completion were examined.
    RESULTS: Participants (N=411) were aged 48.4 (SD 12.1) years; 75.7% (311/411) were female, 72.5% (298/411) were White, 18.0% (74/411) were Black or African American, 2.7% (11/411) were Asian, 1.5% (6/411) were American Indian or Alaska Native, 5.4% (22/411) belonged to more than one race, and 9.6% (38/396) were Hispanic/Latino. On average, participants completed 83.8% (28,948/34,552) of scheduled EMAs, and 96.6% (397/411) of participants completed the follow-up survey. Results indicated that there were no significant main effects of the design factors on compliance and no significant interactions. Analyses also indicated that older adults, those without a history of substance use problems, and those without current depression tended to complete more EMAs than their counterparts. No other demographic or socioenvironmental factors were related to EMA completion rates. Finally, the app was well liked (ie, system usability scale score=82.7), and there was a statistically significant positive association between liking the app and EMA compliance.
    CONCLUSIONS: Study results have broad implications for developing best practices guidelines for future studies that use EMA methodologies.
    BACKGROUND: ClinicalTrials.gov number NCT05194228; https://clinicaltrials.gov/study/NCT05194228.
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  • 文章类型: Journal Article
    希望是一个积分,求医的多维部分。这项研究的目的是制定一个自我报告量表,医学希望(HIM)量表,为了测量与症状过程相关的不同的希望模式,治疗的效果,支持医学研究。
    我们在参加为期2周的随机对照试验的74名过敏性鼻炎患者样本中检查了该量表的心理测量特性,该试验比较了开放标签安慰剂(OLP)与常规治疗(TAU)。
    HIM量表的克朗巴赫α为0.78。探索性因素分析揭示了四个因素:现实希望(即希望获得特定的积极结果,如症状改善),超越的希望(即,非定向希望事情会变得积极),乌托邦式的希望(即,希望为更多的知识做出贡献),和技术科学的希望(即,希望科学突破)。谈到量表的收敛有效性,现实的希望与治疗预期适度相关(r=.54);超越的希望与乐观有关(r=.50),治疗预期(r=0.37),自我效能感(r=0.36),与悲观情绪呈负相关(r=-.43)。希望分量表既不能预测症状的病程,也不能预测损害。
    HIM量表是具有足够内部一致性的问卷,可以评估四种希望模式。其收敛有效性的初步结果是有希望的。然而,需要进一步验证。
    UNASSIGNED: Hope is an integral, multi-dimensional part of seeking medical treatment. The aim of this study was to develop a self-report scale, the Hope in Medicine (HIM) scale, to measure different modes of hoping in relation to the course of symptoms, the effects of treatment, and supporting medical research.
    UNASSIGNED: We examined the psychometric properties of the scale in a sample of 74 allergic rhinitis patients participating in a 2-week randomized-controlled trial comparing open-label placebos (OLP) with treatment as usual (TAU).
    UNASSIGNED: The HIM scale had a Cronbach\'s α of .78. An exploratory factor analysis revealed four factors: realistic hope (i.e., hoping for specific positive outcomes such as improvement in symptoms), transcendent hope (i.e., non-directed hoping that things will turn out positively), utopian hope (i.e., hoping to contribute to greater knowledge), and technoscience hope (i.e., hoping for scientific breakthroughs). Speaking to the convergent validity of the scale, realistic hope was moderately related to treatment expectancies (r = .54); transcendent hope was related to optimism (r = .50), treatment expectancies (r = .37), self-efficacy (r = .36), and inversely correlated with pessimism (r = -.43). Hope subscales predicted neither course of symptoms nor impairment.
    UNASSIGNED: The HIM scale is a questionnaire with adequate internal consistency allowing to assess four modes of hoping. Preliminary results for its convergent validity are promising. Yet, further validation is needed.
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  • 文章类型: Journal Article
    目的:比较父母/照顾者代理报告的5岁儿童的龋齿经历与流行病学调查的临床医生检查相同儿童的龋齿经历。以区域为基础的社会经济群体确定准确性的任何差异。
    方法:一项横断面数据链接研究将来自苏格兰成长(GUS)研究和国家牙科检查计划(NDIP)学校流行病学调查的数据联系起来。在n=3008名儿童中,将父母/照顾者代理报告的龋齿经历与临床医生测量的龋齿经历进行了比较,数据按基于家庭居住区的社会经济剥夺水平(苏格兰多重剥夺指数(SIMD))进行分层。灵敏度,特异性,总体计算阳性预测值(PPV)和阴性预测值(NPV),并通过SIMD进行分层.
    结果:总体而言,父母/照顾者代理报告的敏感性较低(42.3%95CI:39.0,45.7),随着剥夺减少而降低(SIMD-1(最剥夺):49.4%至SIMD-5(最不剥夺):37.2%).总体和各地区社会经济贫困水平的特异性始终很高(总体=96.2%,95CI:95.3、97.0;SIMD-1:94.4%SIMD-5:97.8%)。在父母/照顾者报告他们有龋齿经历(GUS)的儿童中,发现有龋齿经历(NDIP)的比例很高(PPV=81.8%,95CI:78.2,84.9)。
    结论:5岁儿童龋齿经历的父母/照顾者代理报告敏感性非常低,在最贫困地区的儿童中敏感性最低。相比之下,报告孩子有龋齿经历的父母/看护人的表现相当准确。这项研究得出的结论是,代理报告龋齿经历并不足够敏感,无法在儿童人群调查中替代评估龋齿经历的临床医生检查,并强调了将数据链接到常规数据集的重要性。
    OBJECTIVE: To compare parent/carer proxy-reported dental caries experience of their 5-year-old child with epidemiological survey clinician examination of caries experience in the same children. To determine any differences in the accuracy by area-based socioeconomic group.
    METHODS: A cross-sectional data linkage study linked data from the Growing Up in Scotland (GUS) study and the National Dental Inspection Programme (NDIP) school epidemiology survey. Parent/carer proxy-reported caries experience was compared with clinician-measured caries experience on n=3008 children, and data were stratified by home-residential area-based socioeconomic deprivation levels (Scottish Index of Multiple Deprivation (SIMD)). Sensitivity, specificity, positive predictive value (PPV) and negative predictive value (NPV) were calculated overall and stratified by SIMD.
    RESULTS: Overall, parent/carer proxy-reporting had low sensitivity (42.3% 95%CI: 39.0, 45.7) that decreased with decreasing deprivation (SIMD-1(most deprived): 49.4% to SIMD-5 (least deprived): 37.2%). Specificity remained consistently high overall and across area-based socioeconomic deprivation levels (overall=96.2%, 95%CI: 95.3, 97.0; SIMD-1: 94.4% SIMD-5: 97.8%). In children whose parents/carers reported them to have caries experience (GUS) a high percentage were found to have caries experience (NDIP) (PPV=81.8%, 95%CI: 78.2, 84.9).
    CONCLUSIONS: Parent/carer proxy-reporting of caries experience in 5-year-old children had very low sensitivity and was lowest in children from the least deprived areas. In contrast, parents/carers who reported their child had caries experience did so reasonably accurately. This study concludes that proxy reporting caries experience is not sufficiently sensitive to replace clinician examination in assessing dental caries experience in surveys of child populations and highlights the importance of data linkage to routine datasets.
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  • 文章类型: Journal Article
    背景:卫生系统碎片化直接导致患有多种慢性疾病的老年人及其护理伙伴的健康和社会结果不佳。老年人通常需要初级保健的支持,多个专家,家庭护理,社区支持服务,和其他卫生保健部门,这些提供者之间的沟通是非结构化的,也不是标准化的。综合和跨专业的基于团队的护理模式是改善向有复杂需求的老年人提供卫生服务的推荐策略。在数字平台上部署的标准化评估工具被认为是综合护理的必要组成部分。这项研究的目的是制定策略来利用电子健康工具,interRAI检查自我报告,支持安大略省南部社区中老年人及其护理伙伴的综合健康和社会护理,加拿大。
    方法:组概念图,参与式混合方法,进行了。参与者包括老年人,护理伙伴,和代表来自:家庭护理,社区支持服务,专门的老年服务,初级保健,和健康信息学。在一系列虚拟会议中,参与者提出了实施内部RAI检查的想法,并对这些想法的相对重要性进行了评级。层次聚类分析用于将想法映射到类似陈述的聚类中。与会者审查了地图,以共同制定行动计划。
    结果:41名参与者贡献了十个动作区域的聚类图(例如,老年人和护理伙伴的参与,仪器的易用性,评估过程的可及性,以人为本的过程,对提供者的培训和教育,提供商协调,卫生信息集成,卫生系统决策支持和质量改进,隐私和保密)。卫生系统决策支持集群被评为相对重要性最低,健康信息集成被评为相对重要性最高。
    结论:许多人-,提供者-,在健康和社会护理提供者实施和使用电子健康工具时,需要考虑系统级因素。这些因素与将其他标准化工具整合到跨专业团队护理中高度相关,以确保在引入技术时采用富有同情心的护理方法。
    BACKGROUND: Health system fragmentation directly contributes to poor health and social outcomes for older adults with multiple chronic conditions and their care partners. Older adults often require support from primary care, multiple specialists, home care, community support services, and other health-care sectors and communication between these providers is unstructured and not standardized. Integrated and interprofessional team-based models of care are a recommended strategy to improve health service delivery to older adults with complex needs. Standardized assessment instruments deployed on digital platforms are considered a necessary component of integrated care. The aim of this study was to develop strategies to leverage an electronic wellness instrument, interRAI Check Up Self Report, to support integrated health and social care for older adults and their care partners in a community in Southern Ontario, Canada.
    METHODS: Group concept mapping, a participatory mixed-methods approach, was conducted. Participants included older adults, care partners, and representatives from: home care, community support services, specialized geriatric services, primary care, and health informatics. In a series of virtual meetings, participants generated ideas to implement the interRAI Check Up and rated the relative importance of these ideas. Hierarchical cluster analysis was used to map the ideas into clusters of similar statements. Participants reviewed the map to co-create an action plan.
    RESULTS: Forty-one participants contributed to a cluster map of ten action areas (e.g., engagement of older adults and care partners, instrument\'s ease of use, accessibility of the assessment process, person-centred process, training and education for providers, provider coordination, health information integration, health system decision support and quality improvement, and privacy and confidentiality). The health system decision support cluster was rated as the lowest relative importance and the health information integration was cluster rated as the highest relative importance.
    CONCLUSIONS: Many person-, provider-, and system-level factors need to be considered when implementing and using an electronic wellness instrument across health- and social-care providers. These factors are highly relevant to the integration of other standardized instruments into interprofessional team care to ensure a compassionate care approach as technology is introduced.
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  • 文章类型: Journal Article
    目的:自闭症社区将生活质量(QoL)确定为临床和研究重点。研究人员有责任确保用于测量QoL的仪器在自闭症参与者中如此可靠和准确。
    方法:我们的研究评估了情绪困扰的测量不变性(抑郁症,焦虑,愤怒,心理压力)和主观幸福感(生活满意度,积极的影响,和含义与目的)自闭症患者(N=140,每量表=132-140)和普通人群(N=1,224,每量表=406-411)的患者报告结果测量信息系统(PROMIS)的量表青少年(14-17岁)。这些量表包含在PROMIS自闭症电池寿命中,它使用PROMIS量表来测量与自闭症患者最相关的QoL域。
    结果:使用排列测试的多组验证性因素分析表明,抑郁和积极情感量表在组间表现出标量不变性,这表明可以在自闭症和普通人群青少年之间进行有意义的比较。愤怒和心理压力量表显示了组间的度量不变性,表明这些量表在两组中测量相同的潜在特征,但不支持组比较。
    结论:我们提供有关如何将这些量表用于心理测量支持的方式来捕获与理解自闭症青少年QoL相关的结构的指导。
    生活质量是自闭症患者及其家庭的重要结果。然而,许多生活质量量表尚未经过测试,以确保它们能够准确衡量自闭症患者的生活质量。重要的是要确保生活质量措施在自闭症人群中同样有效。我们研究的目的是测试是否以常见的生活质量测量量表-患者报告的结果测量信息系统(PROMIS)-以相同的方式测量自闭症和普通人群青少年的生活质量。我们发现,某些PROMIS量表对自闭症和普通人群青少年的作用方式相同,而另一些则不然。这些结果有助于研究人员自信地使用PROMIS量表来衡量自闭症青年生活质量的不同方面。
    OBJECTIVE: Quality of life (QoL) is identified as a clinical and research priority by the autistic community. Researchers have the responsibility to ensure that instruments used to measure QoL do so reliably and accurately among autistic participants.
    METHODS: Our study evaluated measurement invariance of Emotional Distress (Depression, Anxiety, Anger, Psychological Stress) and Subjective Well-Being (Life Satisfaction, Positive Affect, and Meaning & Purpose) scales of the Patient-Reported Outcomes Measurement Information System (PROMIS) among groups of autistic (N=140, n per scale=132-140) and general population (N=1,224, n per scale=406-411) teenagers (14-17 years). These scales were included in the PROMIS Autism Battery-Lifespan, which uses PROMIS scales to measure QoL domains most relevant for autistic people.
    RESULTS: Multi-group confirmatory factor analyses using permutation tests demonstrated that Depression and Positive Affect scales exhibited scalar invariance between groups, indicating that scores can be meaningfully compared across autistic and general population teens. Anger and Psychological Stress scales demonstrated metric invariance between groups, indicating that these scales measure the same latent trait in both groups, but group comparisons are not supported.
    CONCLUSIONS: We provide guidance as to how these scales can be used in psychometrically supported ways to capture constructs relevant for understanding QoL among autistic teens.
    Quality of life is an important outcome for autistic people and their families. However, many quality of life scales have not been tested to make sure they accurately measure quality of life among autistic people. It is important to make sure that quality of life measures works similarly among the autistic population. The goal of our study is to test whether scales on a common quality of life measure – the Patient-Reported Outcomes Measurement Information System (PROMIS) – measures quality of life in the same way between autistic and general population adolescents. We found that some of the PROMIS scales worked the same way for autistic and general population adolescents and others did not. These results help researchers confidently use the PROMIS scales to measure different aspects of quality of life among autistic youth.
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  • 文章类型: Journal Article
    背景:药物数据已用于估计慢性病的患病率。缺乏疾病登记和年度调查,尤其是在欠发达地区。同时,保险药物数据和药物的自我报告很容易获得,而且价格低廉。我们旨在调查伊朗西南部欠发达地区某些慢性疾病的自我报告数据与药物数据之间的患病率估计相似性。
    方法:重新分析来自Pars队列研究(PCS)的基线数据。将疾病相关药物的使用与每种疾病的自我报告进行比较(高血压[HTN],糖尿病[DM],心脏病,中风,慢性阻塞性肺疾病睡眠障碍,焦虑,抑郁症,胃食管反流病肠易激综合征[IBS],和功能性便秘[FC])。我们使用了敏感性,特异性,阳性预测值(PPV),负预测值(NPV),和Jaccard相似性指数。
    结果:在DM中观察到前五个相似性(54%),HTN(53%),心脏病(32%),COPD(30%),GERD(15%)。在IBS中,药物使用和自我报告之间的相似性较低(2%),中风(5%),抑郁症(9%),睡眠障碍(10%),和焦虑症(11%)。
    结论:疾病的自我报告和药物数据显示,在我们的环境中,大多数疾病的患病率不同。似乎仅靠药物数据无法估算与我们相似的环境中的疾病患病率。我们建议在欠发达的环境中使用药物数据和自我报告数据进行流行病学调查。
    BACKGROUND: Drug data has been used to estimate the prevalence of chronic diseases. Disease registries and annual surveys are lacking, especially in less-developed regions. At the same time, insurance drug data and self-reports of medications are easily accessible and inexpensive. We aim to investigate the similarity of prevalence estimation between self-report data of some chronic diseases and drug data in a less developed setting in southwestern Iran.
    METHODS: Baseline data from the Pars Cohort Study (PCS) was re-analyzed. The use of disease-related drugs were compared against self-report of each disease (hypertension [HTN], diabetes mellitus [DM], heart disease, stroke, chronic obstructive pulmonary disease [COPD], sleep disorder, anxiety, depression, gastroesophageal reflux disease [GERD], irritable bowel syndrome [IBS], and functional constipation [FC]). We used sensitivity, specificity, positive predictive value (PPV), negative predictive value (NPV), and the Jaccard similarity index.
    RESULTS: The top five similarities were observed in DM (54%), HTN (53%), heart disease (32%), COPD (30%), and GERD (15%). The similarity between drug use and self-report was found to be low in IBS (2%), stroke (5%), depression (9%), sleep disorders (10%), and anxiety disorders (11%).
    CONCLUSIONS: Self-reports of diseases and the drug data show a different picture of most diseases\' prevalence in our setting. It seems that drug data alone cannot estimate the prevalence of diseases in settings similar to ours. We recommend using drug data in combination with self-report data for epidemiological investigation in the less-developed setting.
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