questionnaires

问卷调查
  • 文章类型: Journal Article
    在美国,大多数患有高血压的黑人女性拥有智能手机或平板电脑,并使用社交媒体,许多人使用可穿戴活动跟踪器和健康或保健应用程序,可用于支持生活方式改变和药物依从性的数字工具。
    The majority of Black women with hypertension in the United States have smartphones or tablets and use social media, and many use wearable activity trackers and health or wellness apps, digital tools that can be used to support lifestyle changes and medication adherence.
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  • 文章类型: Journal Article
    背景:COVID-19大流行引发了各种遏制策略,例如在家工作政策和减少的社会接触,这极大地改变了人们的睡眠习惯。虽然以前的研究强调了这些限制对睡眠的负面影响,他们往往缺乏综合考虑其他因素的综合观点,如季节性变化和体力活动(PA),这也会影响睡眠。
    目的:本研究旨在使用重复问卷和可穿戴传感器的高分辨率被动测量相结合,纵向检查COVID-19大流行期间工作成年人睡眠模式的详细变化。我们调查睡眠和5组变量之间的关联:(1)人口统计学;(2)睡眠相关习惯;(3)PA行为;和外部因素,包括(4)大流行特定的限制和(5)研究期间的季节性变化。
    方法:我们在COVID-19大流行后期进行了一项为期1年的研究(2021年6月至2022年6月)。我们从参与者佩戴的健身追踪器收集了多传感器数据,以及通过每月问卷调查与工作和睡眠相关的措施。此外,我们在不同时间点使用芬兰的严格性指数来估计研究期间与大流行相关的封锁限制的程度.我们应用线性混合模型来检查大流行后期睡眠模式的变化及其与5组变量的关联。
    结果:分析了112名在职成年人27,350晚的睡眠模式。更严格的大流行措施与总睡眠时间(TST)增加(β=.003,95%CI0.001-0.005;P<.001)和睡眠中期(MS)延迟(β=.02,95%CI0.02-0.03;P<.001)相关。倾向于贪睡的个体在TST(β=.15,95%CI0.05-0.27;P=.006)和MS(β=.17,95%CI0.03-0.31;P=.01)方面均表现出更大的变异性。观察到睡眠模式的职业差异,服务人员经历较长的TST(β=0.37,95%CI0.14-0.61;P=.004)和较低的TST变异性(β=-.15,95%CI-0.27至-0.05;P<.001)。当天晚些时候参与PA与更长的TST相关(β=.03,95%CI0.02-0.04;P<.001)和更小的TST变异性(β=-.01,95%CI-0.02至0.00;P=.02)。较高的静息活动节律与较短的TST相关(β=-0.26,95%CI-0.29至-0.23;P<.001),早期MS(β=-0.29,95%CI-0.33至-0.26;P<.001),TST变异性降低(β=-0.16,95%CI-0.23至-0.09;P<.001)。
    结论:我们的研究提供了在大流行后期影响睡眠模式的因素的综合观点。当我们在大流行后驾驭未来的工作时,了解如何安排工作,生活方式的选择,和睡眠质量互动对于优化员工的福祉和绩效至关重要。
    BACKGROUND: The COVID-19 pandemic prompted various containment strategies, such as work-from-home policies and reduced social contact, which significantly altered people\'s sleep routines. While previous studies have highlighted the negative impacts of these restrictions on sleep, they often lack a comprehensive perspective that considers other factors, such as seasonal variations and physical activity (PA), which can also influence sleep.
    OBJECTIVE: This study aims to longitudinally examine the detailed changes in sleep patterns among working adults during the COVID-19 pandemic using a combination of repeated questionnaires and high-resolution passive measurements from wearable sensors. We investigate the association between sleep and 5 sets of variables: (1) demographics; (2) sleep-related habits; (3) PA behaviors; and external factors, including (4) pandemic-specific constraints and (5) seasonal variations during the study period.
    METHODS: We recruited working adults in Finland for a 1-year study (June 2021-June 2022) conducted during the late stage of the COVID-19 pandemic. We collected multisensor data from fitness trackers worn by participants, as well as work and sleep-related measures through monthly questionnaires. Additionally, we used the Stringency Index for Finland at various points in time to estimate the degree of pandemic-related lockdown restrictions during the study period. We applied linear mixed models to examine changes in sleep patterns during this late stage of the pandemic and their association with the 5 sets of variables.
    RESULTS: The sleep patterns of 27,350 nights from 112 working adults were analyzed. Stricter pandemic measures were associated with an increase in total sleep time (TST) (β=.003, 95% CI 0.001-0.005; P<.001) and a delay in midsleep (MS) (β=.02, 95% CI 0.02-0.03; P<.001). Individuals who tend to snooze exhibited greater variability in both TST (β=.15, 95% CI 0.05-0.27; P=.006) and MS (β=.17, 95% CI 0.03-0.31; P=.01). Occupational differences in sleep pattern were observed, with service staff experiencing longer TST (β=.37, 95% CI 0.14-0.61; P=.004) and lower variability in TST (β=-.15, 95% CI -0.27 to -0.05; P<.001). Engaging in PA later in the day was associated with longer TST (β=.03, 95% CI 0.02-0.04; P<.001) and less variability in TST (β=-.01, 95% CI -0.02 to 0.00; P=.02). Higher intradaily variability in rest activity rhythm was associated with shorter TST (β=-.26, 95% CI -0.29 to -0.23; P<.001), earlier MS (β=-.29, 95% CI -0.33 to -0.26; P<.001), and reduced variability in TST (β=-.16, 95% CI -0.23 to -0.09; P<.001).
    CONCLUSIONS: Our study provided a comprehensive view of the factors affecting sleep patterns during the late stage of the pandemic. As we navigate the future of work after the pandemic, understanding how work arrangements, lifestyle choices, and sleep quality interact will be crucial for optimizing well-being and performance in the workforce.
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  • 文章类型: Journal Article
    背景:关于亚洲女性对隆胸的偏好和影响决策的因素的研究很少或没有代表性。
    方法:本研究于2016年9月至2017年9月进行,为期一年。我们根据乳房Q问卷为有隆胸意向的中国女性制定了一份问卷,世界上最流行的隆胸评估工具,并在中国大陆19个省份的35家医院对来医院咨询隆胸手术的女性进行了问卷调查。
    结果:总共从对隆胸感兴趣的女性中收集了2066份问卷。反应时的年龄范围为19-53岁(平均31.2±6.8岁)。超过一半的受访者(58.1%)已婚,其中70.4%有孩子。受访者对他们的着装形象的评价明显高于他们的裸体形象。他们的伴侣也对他们的乳房图像评价很差,43%的人认为公平,30.4%的人认为负面。内部原因,例如提高自信心和创造更好的身体形象,是隆胸的主要动机。超过一半的受访者对隆胸手术了解有限或听说过但不完全了解(33.2%和27.5%,分别),69.4%的人考虑隆胸不到三年。共有49.2%的受访者通过互联网了解隆胸手术。43.8%的受访者没有得到家庭成员或伴侣的支持。手术安全性(20.4%),手术效果(17.1%),和外科医生的技能(16.6%)被给予最高优先级。外科医生的专业精神,人气,和学术背景也是人们考虑的首要因素。
    结论:我们的隆胸调查结果提供了许多考虑隆胸的中国女性的数据。这将有助于整形外科医生更好地了解这些特征,preferences,以及对中国女性进行隆胸的担忧,并将用于指导患者与医生的沟通,并帮助中国女性做出最明智的决定。
    方法:本期刊要求作者为每篇文章分配一定程度的证据。对于这些循证医学评级的完整描述,请参阅目录或在线作者说明www。springer.com/00266.
    BACKGROUND: Research studies on Asian women\'s preferences for breast augmentation and the factors that influence decision-making are scarce or unrepresentative.
    METHODS: This study was conducted from September 2016 to September 2017, a period of one year. We developed a questionnaire for Chinese female with breast augmentation intentions based on the Breast-Q questionnaire, the world\'s most popular breast augmentation assessment tool, and conducted questionnaire surveys in 35 hospitals located in 19 provinces in mainland China among female who came to hospitals to inquire about breast augmentation surgery.
    RESULTS: A total of 2066 questionnaires were collected from female interested in breast augmentation. The age range at the time of response was 19-53 years (mean 31.2 ± 6.8 years). More than half of the respondents (58.1%) were married, and 70.4% of them had children. The respondents rated their dressed image significantly higher than their nude image. Their partners also rated their breast image poorly, with 43% rating it fair and 30.4% negatively. Internal reasons, such as improving self-confidence and creating a better body image, were the main motivators for breast augmentation. More than half of the respondents had only limited understanding of breast augmentation surgery or had heard of it but did not fully understand it (33.2% and 27.5%, respectively), and 69.4% had considered breast augmentation for less than three years. A total of 49.2% of the respondents learned about breast augmentation surgery through the Internet. A total of 43.8% of the respondents did not receive support from family members or partners. Surgical safety (20.4%), surgical effect (17.1%), and surgeon\'s skill (16.6%) were given the highest priority. The surgeon\'s professionalism, popularity, and academic background were also high on people\'s list of considerations.
    CONCLUSIONS: The results of our breast augmentation survey provide data on many Chinese women considering breast augmentation. This will help plastic surgeons better understand the characteristics, preferences, and concerns of Chinese women undergoing breast augmentation and will be used to guide patient-doctor communication and help Chinese women make the most informed decisions.
    METHODS: This journal requires that authors assign a level of evidence to each article. For a full description of these Evidence-Based Medicine ratings, please refer to the Table of Contents or the online Instructions to Authors www.springer.com/00266 .
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  • 文章类型: Journal Article
    院外心脏骤停(OHCA)是发达国家死亡的主要原因。及时发现心脏骤停并迅速启动紧急医疗服务(EMS)至关重要,但具有挑战性。使用来自智能手表的传感器信号进行自动心脏骤停检测有可能缩短心脏骤停和EMS激活之间的间隔,从而增加了生存的可能性。
    这项横断面调查研究旨在调查用户对持续监控方面的看法,例如隐私和数据保护,以及其他影响,并收集他们对技术态度的见解。
    我们在荷兰对两组潜在的自动心脏骤停技术用户进行了一项基于网络的横断面调查:已经拥有智能手表的消费者和有心脏骤停风险的患者。调查主要包括封闭式问题和一些额外的开放式问题,以提供补充见解。定量数据进行了描述性分析,并对开放式问题进行了内容分析。
    在消费者组中(n=1005),90.2%(n=906;95%CI88.1%-91.9%)的参与者表示对该技术感兴趣,89%(n=1196;95%CI87.3%-90.7%)的患者组(n=1344)表现出兴趣。两组中超过75%(消费者组:n=756;患者组:n=1004)的参与者表示他们愿意使用该技术。与会者对这项技术提出的主要关切包括隐私,数据保护,可靠性,和可访问性。
    绝大多数潜在用户对使用智能手表技术进行自动心脏骤停检测表示了浓厚的兴趣和积极的态度。然而,确定了一些问题,应在开发和实施过程中加以解决,以优化技术的接受度和有效性。
    UNASSIGNED: Out-of-hospital cardiac arrest (OHCA) is a leading cause of mortality in the developed world. Timely detection of cardiac arrest and prompt activation of emergency medical services (EMS) are essential, yet challenging. Automated cardiac arrest detection using sensor signals from smartwatches has the potential to shorten the interval between cardiac arrest and activation of EMS, thereby increasing the likelihood of survival.
    UNASSIGNED: This cross-sectional survey study aims to investigate users\' perspectives on aspects of continuous monitoring such as privacy and data protection, as well as other implications, and to collect insights into their attitudes toward the technology.
    UNASSIGNED: We conducted a cross-sectional web-based survey in the Netherlands among 2 groups of potential users of automated cardiac arrest technology: consumers who already own a smartwatch and patients at risk of cardiac arrest. Surveys primarily consisted of closed-ended questions with some additional open-ended questions to provide supplementary insight. The quantitative data were analyzed descriptively, and a content analysis of the open-ended questions was conducted.
    UNASSIGNED: In the consumer group (n=1005), 90.2% (n=906; 95% CI 88.1%-91.9%) of participants expressed an interest in the technology, and 89% (n=1196; 95% CI 87.3%-90.7%) of the patient group (n=1344) showed interest. More than 75% (consumer group: n= 756; patient group: n=1004) of the participants in both groups indicated they were willing to use the technology. The main concerns raised by participants regarding the technology included privacy, data protection, reliability, and accessibility.
    UNASSIGNED: The vast majority of potential users expressed a strong interest in and positive attitude toward automated cardiac arrest detection using smartwatch technology. However, a number of concerns were identified, which should be addressed in the development and implementation process to optimize acceptance and effectiveness of the technology.
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  • 文章类型: Journal Article
    印度尼西亚迅速接受了数字健康,特别是在COVID-19大流行期间,每天有超过1500万健康应用程序用户。为了推进其数字健康愿景,政府正优先将健康数据和应用系统发展成一个综合的健康护理技术生态系统。这项倡议涉及各级医疗保健,从初级到三级,在所有省份。特别是,它旨在加强初级卫生保健服务(作为与普通民众的主要接口),并为印度尼西亚的数字卫生转型做出贡献。
    本研究评估了信息和通信技术(ICT)在印度尼西亚医疗保健服务中的成熟度,以推进数字健康计划。ICT成熟度评估工具,专为中等收入国家设计,用于评估印度尼西亚5个岛屿9个省的数字健康能力。
    2022年2月至3月在印度尼西亚的9个省进行了横断面调查,代表该国在其主要岛屿上的不同条件。受访者包括公共卫生中心(Puskesmas)的工作人员,初级保健诊所(KlinikPratama),和地区卫生办公室(DinasKesehatanKabupaten/Kota)。调查使用了适应的ICT成熟度评估问卷,涵盖人力资源,软件和系统,硬件,和基础设施。它以电子方式管理,涉及121个公共卫生中心,49个初级保健诊所,和67名来自地区卫生局的资讯科技员工。举行了焦点小组讨论,以更深入地研究评估结果并获得更多描述性见解。
    在这项研究中,237名参与者代表3个不同的类别:121个公共卫生中心,67个地区卫生局,和49个初级诊所。这些实例是从印度尼西亚34个省中的9个省的样本中选择的。从访谈和焦点小组讨论中收集的数据被转换为1至5分,其中1表示信通技术准备程度低,5表示信通技术准备程度高。平均而言,ICT成熟度分数的细分如下:人力资源在ICT使用和系统管理方面的能力为2.71,2.83用于软件和信息系统,2.59用于硬件,基础设施2.84,总体平均得分为2.74。根据ICT成熟度金字塔,印度尼西亚医疗保健提供者的ICT成熟度介于基本水平和良好水平之间。追求最佳做法的必要性也强烈出现。对ICT成熟度得分的进一步分析,当由省检查时,揭示了区域差异。
    ICT使用的成熟度受几个关键组成部分的影响。加强人力资源,确保基础设施,支持硬件的可用性,优化信息系统对于实现医疗保健服务中的ICT成熟度至关重要。在信通技术成熟度评估的背景下,在9个省的卫生保健水平上观察到显著的分数差异,强调信息和通信技术准备工作的多样性,以及需要采取区域定制的后续行动。
    UNASSIGNED: Indonesia has rapidly embraced digital health, particularly during the COVID-19 pandemic, with over 15 million daily health application users. To advance its digital health vision, the government is prioritizing the development of health data and application systems into an integrated health care technology ecosystem. This initiative involves all levels of health care, from primary to tertiary, across all provinces. In particular, it aims to enhance primary health care services (as the main interface with the general population) and contribute to Indonesia\'s digital health transformation.
    UNASSIGNED: This study assesses the information and communication technology (ICT) maturity in Indonesian health care services to advance digital health initiatives. ICT maturity assessment tools, specifically designed for middle-income countries, were used to evaluate digital health capabilities in 9 provinces across 5 Indonesian islands.
    UNASSIGNED: A cross-sectional survey was conducted from February to March 2022, in 9 provinces across Indonesia, representing the country\'s diverse conditions on its major islands. Respondents included staff from public health centers (Puskesmas), primary care clinics (Klinik Pratama), and district health offices (Dinas Kesehatan Kabupaten/Kota). The survey used adapted ICT maturity assessment questionnaires, covering human resources, software and system, hardware, and infrastructure. It was administered electronically and involved 121 public health centers, 49 primary care clinics, and 67 IT staff from district health offices. Focus group discussions were held to delve deeper into the assessment results and gain more descriptive insights.
    UNASSIGNED: In this study, 237 participants represented 3 distinct categories: 121 public health centers, 67 district health offices, and 49 primary clinics. These instances were selected from a sample of 9 of the 34 provinces in Indonesia. Collected data from interviews and focus group discussions were transformed into scores on a scale of 1 to 5, with 1 indicating low ICT readiness and 5 indicating high ICT readiness. On average, the breakdown of ICT maturity scores was as follows: 2.71 for human resources\' capability in ICT use and system management, 2.83 for software and information systems, 2.59 for hardware, and 2.84 for infrastructure, resulting in an overall average score of 2.74. According to the ICT maturity level pyramid, the ICT maturity of health care providers in Indonesia fell between the basic and good levels. The need to pursue best practices also emerged strongly. Further analysis of the ICT maturity scores, when examined by province, revealed regional variations.
    UNASSIGNED: The maturity of ICT use is influenced by several critical components. Enhancing human resources, ensuring infrastructure, the availability of supportive hardware, and optimizing information systems are imperative to attain ICT maturity in health care services. In the context of ICT maturity assessment, significant score variations were observed across health care levels in the 9 provinces, underscoring the diversity in ICT readiness and the need for regionally customized follow-up actions.
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  • 文章类型: Journal Article
    未满足的医疗保健需求被定义为选择推迟或完全避免必要的医疗,尽管有需要,这可能会使当前状况恶化或导致新的健康问题。新兴的信息流行病可能是阻碍人们获取高质量健康信息的障碍,有助于在需要时寻求较低水平的医疗护理。
    我们评估了社交媒体上对健康错误和虚假信息的看法与未满足的医疗保健需求之间的关联。此外,我们评估了这种关系的机制,包括社交媒体使用的频率,医疗信托,医疗歧视。
    来自3964名活跃的成人社交媒体用户的数据,这些用户对2022年健康信息国家趋势调查6(HINTS6)做出了回应,具有全国代表性的调查,进行了分析。结果是医疗需求未得到满足,定义为延迟或未获得必要的医疗护理。预测变量是对社交媒体健康错误和虚假信息的感知,社交媒体使用的频率,对医疗保健系统的信任程度,以及在接受医疗保健时感知到的种族和族裔歧视。
    多变量逻辑回归模型表明,对大量社交媒体健康错误和虚假信息的感知(比值比[OR]1.40,95%CI1.07-1.82),日常使用社交媒体(OR1.34,95%CI1.01-1.79),低医疗信任(OR1.46,95%CI1.06-2.01),感知歧视(OR2.24,95%CI1.44-3.50)与未满足医疗护理需求的可能性较高显著相关.与日常社交媒体用户相比,每天不使用社交媒体且未感知到大量错误和虚假信息的成年人(24%;95%CI19%-30%)的需求较低(38%;95%CI32%-43%)。与其他三组相比,感知到大量错误和虚假信息且对医疗保健信任度低的成年人报告未满足需求的可能性最高(43%;95%CI38%-49%)。与没有经历过医疗服务歧视且没有经历过重大错误和虚假信息的成年人(29%;95%CI26%-32%)相比,感知到重大错误和虚假信息并经历过医疗服务歧视的成年人报告未满足需求的概率在统计学上显着较高(51%;95%CI40%-62%)。
    未满足的医疗需求在那些认为社交媒体错误和虚假信息有很大程度的个人中更高,尤其是那些每天使用社交媒体的人,不信任医疗保健系统,在接受医疗保健时经历过种族或族裔歧视。为了应对社交媒体错误和虚假信息对未满足的医疗保健需求的负面影响,公共卫生信息必须关注日常社交媒体用户,以及提高信任和减少卫生保健系统中的结构性种族主义。
    UNASSIGNED: Unmet need for health care is defined as choosing to postpone or completely avoid necessary medical treatment despite having a need for it, which can worsen current conditions or contribute to new health problems. The emerging infodemic can be a barrier that prevents people from accessing quality health information, contributing to lower levels of seeking medical care when needed.
    UNASSIGNED: We evaluated the association between perceptions of health mis- and disinformation on social media and unmet need for health care. In addition, we evaluated mechanisms for this relationship, including frequency of social media use, medical trust, and medical care discrimination.
    UNASSIGNED: Data from 3964 active adult social media users responding to the 2022 Health Information National Trends Survey 6 (HINTS 6), a nationally representative survey, were analyzed. The outcome was unmet need for medical care, defined as delaying or not getting the necessary medical care. The predictor variables were perception of social media health mis- and disinformation, frequency of social media use, level of trust in the health care system, and perceived racial and ethnic discrimination when receiving health care.
    UNASSIGNED: Multivariable logistic regression models indicated that perception of substantial social media health mis- and disinformation (odds ratio [OR] 1.40, 95% CI 1.07-1.82), daily use of social media (OR 1.34, 95% CI 1.01-1.79), low medical trust (OR 1.46, 95% CI 1.06-2.01), and perceived discrimination (OR 2.24, 95% CI 1.44-3.50) were significantly associated with a higher likelihood of unmet need for medical care. Unmet need among adults who did not use social media daily and who did not perceive substantial mis- and disinformation (24%; 95% CI 19%-30%) was lower compared to daily social media users who perceived substantial mis- and disinformation (38%; 95% CI 32%-43%). Adults who perceived substantial mis- and disinformation and had low trust in health care had the highest probability of reporting unmet need (43%; 95% CI 38%-49%) compared to the other three groups. Adults who perceived substantial mis- and disinformation and experienced medical care discrimination had a statistically significant higher probability of reporting unmet need (51%; 95% CI 40%-62%) compared to adults who did not experience medical care discrimination and did not perceive substantial mis- and disinformation (29%; 95% CI 26%-32%).
    UNASSIGNED: Unmet need for medical care was higher among individuals who perceived a substantial degree of social media mis- and disinformation, especially among those who used social media daily, did not trust the health care system, and experienced racial or ethnic discrimination when receiving health care. To counter the negative effects of social media mis- and disinformation on unmet need for health care, public health messaging must focus on daily social media users as well as improving trust and reducing structural racism in the health care system.
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  • 文章类型: English Abstract
    本文介绍了对俄罗斯政府代表进行的深入访谈和问卷调查的结果,这些调查涉及制裁压力和COVID-19下的城市复原力。该调查是由IPEIRANEPA领土变化和城市发展中心于3月至5月进行的2023,俄罗斯联邦50多个城市的政府代表参加了调查。我们发现总体情况稳定:社会计划正在全面实施,失业率正在下降,市政设施建设仍在继续,备件供应失败的问题,设备和部件正在解决。同时,制裁以完全不同的方式影响了城市经济:虽然在一些城市表现出显著的负面影响,在其他方面,制裁的影响微不足道。城市面临着许多新的挑战:供应链的中断,拒绝提供有偿设备,无法找到具有必要特性的进口设备类似物,备件价格上涨。组件和建筑材料,向不友好国家建立的销售渠道破裂,市政预算收入下降,等。城市管理部门负责人加班加点解决新出现的问题,组织企业之间的互动,与友好国家建立和深化业务联系,提出改善联邦一级状况的建议。新任务成功解决,尽管这需要认真的努力。为了应对新的挑战,我们需要一个新的,更加分散和面向地方的公共行政风格,一个完善的反馈过程。
    The paper presents the results of in-depth interviews and a questionnaire survey of the Russian cites administration representatives about cities resilience under the sanctions pressure and COVID-19. The survey was conducted by the Center for Territorial Changes and Urban Development of IPEI RANEPA in March-May 2023, it was attended by representatives of the administration of more than 50 cities of the Russian Federation. We found overall situation as stable: social programs are being implemented in full, unemployment is decreasing, construction of municipal facilities continues, problems with failures in the supply of spare parts, equipment and components are being solved. At the same time, the sanctions have affected the urban economy in completely different ways: while in some cities show significant negative effect, in others the impact of sanctions is insignificant. Cites face number of new challenges: disruption of supply chains, refusal to supply paid equipment, inability to find analogues of imported equipment with the necessary characteristics, rising prices for spare parts. components and construction materials, the rupture of established sales channels to unfriendly countries, a drop in municipal budget revenues, etc. The heads of the city administration work overtime to solve emerging problems, organize interaction between enterprises, establish and deepen business contacts with friendly countries, put forward proposals to improve the situation at the federal level. New tasks successfully solved, although it requires serious efforts. To respond to new challenges, we need a new, more decentralized and local-oriented style of public administration, a process of well-established feedback.
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  • 文章类型: Journal Article
    背景:考虑到淋巴瘤治疗的显著进展,评估淋巴瘤患者的健康相关生活质量(HRQoL)已成为临床研究和常规实践中需要考虑的重要方面.然而,诊断时缺乏关于淋巴瘤特异性HRQoL谱的信息.
    方法:对3922例新诊断为高级别(HG)的成年患者进行了诊断时的HRQoL评估(n=1994),低级别(LG)(n=1053)非霍奇金(NHL)和霍奇金(HL)(n=875)淋巴瘤包括在真性淋巴瘤和成人生存率中(REALYSA,NCT03869619),法国的前瞻性非介入多中心队列。通过三个经过验证的EORTC问卷评估了特定疾病的HRQoL方面,即,对于NHL-HG患者,QLQ-NHL-HG29,QLQ-NHL-LG20和QLQ-HL27,NHL-LG和HL,分别。
    结果:我们证实了REALYSA队列中这些问卷的高度完成,从QLQ-HG29的84%到QLQ-HL27的88%不等。全球健康状况受损的患者比例如下:T细胞NHL,67%;弥漫性大B细胞(DLBCL),62%;伯基特,61%;HL,53%;边缘区,49%;套细胞,48%;卵泡,47%。DLBCL的多元回归分析,卵泡和HL显示性别,表现状态和B症状与所有HRQoL维度独立相关.然而,在这三种亚型中观察到年龄和分期的不同影响.
    结论:对新诊断的不同类型淋巴瘤患者的HRQoL谱进行了综合分析。我们的数据可能有助于在使用最近验证的EORTC淋巴瘤特异性问卷的未来研究中增强对HRQoL结果的解释。
    BACKGROUND: Considering the notable advances made in the treatment of lymphoma, assessment of health-related quality of life (HRQoL) of lymphoma patients has become a critical aspect to consider both in clinical research and routine practice. However, there is paucity of information about lymphoma specific HRQoL profile at diagnosis.
    METHODS: HRQoL at diagnosis was assessed for 3922 adult patients with newly diagnosed high-grade (HG) (n = 1994), low-grade (LG) (n = 1053) non-Hodgkin (NHL) and Hodgkin (HL) (n = 875) lymphomas included in REal world dAta in LYmphoma and Survival in Adults (REALYSA, NCT03869619), a prospective non-interventional multicentric cohort in France. Disease-specific HRQoL aspects were assessed with three validated EORTC questionnaires, namely, the QLQ-NHL-HG29, the QLQ-NHL-LG20 and the QLQ-HL27, for patients with NHL-HG, NHL-LG and HL, respectively.
    RESULTS: We confirmed the high-level of completion of these questionnaires in REALYSA cohort, ranging from 84 % for QLQ-HG29 to 88 % for QLQ-HL27. The proportion of patients with impaired global health status was as follows: T-cell NHL, 67 %; diffuse large B-cell (DLBCL), 62 %; Burkitt, 61 %; HL, 53 %; marginal zone, 49 %; mantle cell, 48 %; follicular, 47 %. Multivariable regression analyses for DLBCL, follicular and HL showed that gender, performance status and B symptoms were independently associated with all HRQoL dimensions. However, a variable effect of age and stage were observed among these three subtypes.
    CONCLUSIONS: A comprehensive analysis was made describing the HRQoL profile of newly diagnosed patients with different types of lymphomas. Our data may help to enhance the interpretation of HRQoL results in future studies using the recently validated EORTC lymphoma specific questionnaires.
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  • 文章类型: Journal Article
    背景:在COVID-19大流行期间,许多错误信息和虚假信息通过互联网迅速出现和传播,构成了严峻的公共卫生挑战。虽然强调了对电子健康素养(eHL)的需求,很少有研究比较eHL较低或较高的成年互联网用户之间寻求和使用COVID-19信息的困难。
    目的:本研究调查了日本成年互联网用户中eHL与基于网络的健康信息寻求行为之间的关联。此外,这项研究定性地揭示了在寻求和使用这些信息时遇到的困难,并研究了其与eHL的关系。
    方法:这项基于互联网的横断面调查(2021年10月)收集了6000名成年互联网用户的数据,这些用户按性别平均分为样本组,年龄,和收入。我们使用了日文版的eHL量表(eHEALS)。我们还使用了适用于COVID-19大流行的数字健康素养工具(DHLI),在我们将其翻译成日语后,对eHL进行了评估。通过使用10个项目的网络来源列表和评估10个参与者搜索的关于COVID-19的主题来评估基于网络的健康信息搜索行为。社会人口统计学和其他因素(如,健康相关行为)被选为协变量。此外,我们定性地探讨了信息获取和使用中的困难。使用归纳定性内容分析方法分析了有关寻求和使用COVID-19信息困难的答复的描述性内容。
    结果:eHEALS和DHLI信息搜索得分高的参与者,添加自我生成的信息,评估可靠性,确定相关性,和操作技能相比,得分较低的人更有可能使用有关COVID-19的所有网络信息来源。然而,使用多个信息源时,导航技能和隐私保护分数之间存在负相关,例如YouTube(GoogleLLC),搜索COVID-19信息。虽然一半的参与者报告寻求和使用COVID-19信息没有困难,报告任何困难的参与者,包括信息识别,难以理解的信息,信息过载,和虚假信息,DHLI得分较低。与会者对“信息质量和可信度,“”相关信息的丰富和短缺,“\”公众的信任和怀疑,COVID-19相关信息的“和”可信度。\"此外,他们披露了更具体的担忧,包括“隐私和安全问题,“\”信息检索挑战,“\”焦虑和恐慌,\"和\"移动限制。\"
    结论:尽管eHEALS和DHLI总分较高的日本互联网用户更积极地使用各种网络来源获取COVID-19信息,与熟练程度较低的人相比,具有较高导航技能和隐私保护的人谨慎使用基于网络的COVID-19信息。该研究还强调了在“健康2.0”时代使用社交网站时对信息识别的需求增加。定性内容分析确定的类别和主题,如“信息质量和可信度,“建议一个框架来解决未来信息流行病中预期的无数挑战。
    BACKGROUND: During the COVID-19 pandemic, much misinformation and disinformation emerged and spread rapidly via the internet, posing a severe public health challenge. While the need for eHealth literacy (eHL) has been emphasized, few studies have compared the difficulties involved in seeking and using COVID-19 information between adult internet users with low or high eHL.
    OBJECTIVE: This study examines the association between eHL and web-based health information-seeking behaviors among adult Japanese internet users. Moreover, this study qualitatively shed light on the difficulties encountered in seeking and using this information and examined its relationship with eHL.
    METHODS: This cross-sectional internet-based survey (October 2021) collected data from 6000 adult internet users who were equally divided into sample groups by gender, age, and income. We used the Japanese version of the eHL Scale (eHEALS). We also used a Digital Health Literacy Instrument (DHLI) adapted to the COVID-19 pandemic to assess eHL after we translated it to Japanese. Web-based health information-seeking behaviors were assessed by using a 10-item list of web sources and evaluating 10 topics participants searched for regarding COVID-19. Sociodemographic and other factors (eg, health-related behavior) were selected as covariates. Furthermore, we qualitatively explored the difficulties in information seeking and using. The descriptive contents of the responses regarding difficulties in seeking and using COVID-19 information were analyzed using an inductive qualitative content analysis approach.
    RESULTS: Participants with high eHEALS and DHLI scores on information searching, adding self-generated information, evaluating reliability, determining relevance, and operational skills were more likely to use all web sources of information about COVID-19 than those with low scores. However, there were negative associations between navigation skills and privacy protection scores when using several information sources, such as YouTube (Google LLC), to search for COVID-19 information. While half of the participants reported no difficulty seeking and using COVID-19 information, participants who reported any difficulties, including information discernment, incomprehensible information, information overload, and disinformation, had lower DHLI score. Participants expressed significant concerns regarding \"information quality and credibility,\" \"abundance and shortage of relevant information,\" \"public trust and skepticism,\" and \"credibility of COVID-19-related information.\" Additionally, they disclosed more specific concerns, including \"privacy and security concerns,\" \"information retrieval challenges,\" \"anxieties and panic,\" and \"movement restriction.\"
    CONCLUSIONS: Although Japanese internet users with higher eHEALS and total DHLI scores were more actively using various web sources for COVID-19 information, those with high navigation skills and privacy protection used web-based information about COVID-19 cautiously compared with those with lower proficiency. The study also highlighted an increased need for information discernment when using social networking sites in the \"Health 2.0\" era. The identified categories and themes from the qualitative content analysis, such as \"information quality and credibility,\" suggest a framework for addressing the myriad challenges anticipated in future infodemics.
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  • 文章类型: Journal Article
    目的:在多国慢性偏头痛流行病学和结果-国际(CaMEO-I)研究中,评估偏头痛患者头痛时颈部疼痛的患病率和影响。
    背景:偏头痛患者的颈部疼痛非常普遍,并导致残疾。
    方法:CaMEO-I是一个前瞻性的,横截面,在加拿大进行的基于网络的研究,法国,德国,Japan,英国,和美国。来自每个国家的具有人口统计学代表性的参与者样本完成了一项筛查调查,以评估头痛特征。根据修订后的国际头痛疾病分类,头痛的受访者被确定为偏头痛或非偏头痛。第三版,标准;偏头痛患者完成了一项详细的调查,包括偏头痛特异性评估。根据是否存在颈痛伴头痛(NPWH)对结果进行分层。对于这些分析,数据汇集了6个国家.
    结果:在过去12个月内报告头痛的51,969名受访者中,14,492(27.9%)被归类为偏头痛;其余的37,477(72.1%)患有非偏头痛。总的来说,9896/14,492(68.3%)的偏头痛受访者报告NPWH,显着高于(p<0.001)报告NPWH的非偏头痛性头痛的受访者比例(13,536/37,477[36.1%])。在偏头痛的受访者中,患有NPWH的患者与没有NPWH的患者相比,中度至重度残疾更为普遍(47.7%[4718/9896]与28.9%,p<0.001)。有NPWH的受访者与没有NPWH的受访者相比,工作效率损失也显著增加,中位数(四分位数范围[IQR])为50.0(20.0,71.3)与30.0(0.0,60.0)(p<0.001),生活质量较低(偏头痛特定生活质量问卷2.1版,中位数[IQR]角色功能限制性领域评分60.0[42.9,74.3]vs.68.6[54.3,82.9],p<0.001),抑郁和焦虑症状的患病率较高(抑郁,40.2%[3982/9896]vs.28.2%[1296/4596],p<0.001);焦虑,41.2%[4082/9896]vs.29.2%[1343/4596],p<0.001),头痛期间皮肤异常性疼痛的患病率更高(54.0%[5345/9896]vs.36.6%[1681/4596],p<0.001),急性治疗优化不良的患病率较高(61.1%[5582/9129]vs.53.3%[2197/4122],p<0.001)。
    结论:近70%的偏头痛患者报告了NPWH。患有偏头痛并在头痛期间颈部疼痛的人有更大的残疾,抑郁症,焦虑,和皮肤异常疼痛(在头痛期间)比那些在头痛期间没有颈部疼痛的人。他们还降低了生活质量和工作效率,与没有颈部疼痛的患者相比,对急性治疗的反应较差。
    To assess the prevalence and impact of neck pain during headache among respondents with migraine in the multicountry Chronic Migraine Epidemiology and Outcomes - International (CaMEO-I) Study.
    Neck pain among individuals with migraine is highly prevalent and contributes to disability.
    The CaMEO-I was a prospective, cross-sectional, web-based study conducted in Canada, France, Germany, Japan, United Kingdom, and the United States. A demographically representative sample of participants from each country completed a screening survey to evaluate headache characteristics. Respondents with headache were identified as having migraine or non-migraine headache based on modified International Classification of Headache Disorders, third edition, criteria; those with migraine completed a detailed survey with migraine-specific assessments. Results were stratified by the presence or absence of neck pain with headache (NPWH). For these analyses, data were pooled across the six countries.
    Of 51,969 respondents who reported headache within the past 12 months, 14,492 (27.9%) were classified as having migraine; the remaining 37,477 (72.1%) had non-migraine headache. Overall, 9896/14,492 (68.3%) of respondents with migraine headache reported NPWH, which was significantly higher (p < 0.001) than the proportion of respondents with non-migraine headache who reported NPWH (13,536/37,477 [36.1%]). Among respondents with migraine, moderate-to-severe disability was significantly more prevalent for those with NPWH versus without (47.7% [4718/9896] vs. 28.9%, p < 0.001). Respondents with NPWH versus without also had significantly greater work productivity losses, at a median (interquartile range [IQR]) of 50.0 (20.0, 71.3) vs. 30.0 (0.0, 60.0) (p < 0.001), lower quality of life (Migraine-Specific Quality of Life questionnaire version 2.1, median [IQR] Role Function-Restrictive domain score 60.0 [42.9, 74.3] vs. 68.6 [54.3, 82.9], p < 0.001), higher prevalence of depression and anxiety symptoms (depression, 40.2% [3982/9896] vs. 28.2% [1296/4596], p < 0.001); anxiety, 41.2% [4082/9896] vs. 29.2% [1343/4596], p < 0.001), higher prevalence of cutaneous allodynia during headache (54.0% [5345/9896] vs. 36.6% [1681/4596], p < 0.001), and higher prevalence of poor acute treatment optimization (61.1% [5582/9129] vs. 53.3% [2197/4122], p < 0.001).
    Nearly 70% of respondents with migraine reported NPWH. Individuals with migraine with neck pain during their headaches had greater disability, depression, anxiety, and cutaneous allodynia (during headache) than those without neck pain during their headaches. They also had diminished quality of life and work productivity, and poorer response to acute treatment compared with those without neck pain.
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