背景:尽管近年来已经对患者访问自己的健康记录进行了许多调查,关于患者的观点和偏好的全国跨国数据数量有限。为了解决这个差距,在北欧电子健康项目中对患者用户进行了一项国际调查,诺德健康.
目的:我们旨在调查通过挪威国家患者门户网站访问电子健康记录(EHR)的患者的社会人口统计学特征和经历,瑞典,芬兰,和爱沙尼亚。
方法:使用国家在线健康门户网站进行了基于网络的横断面调查。目标参与者是在2022年初访问国家患者门户网站并且年龄≥15岁的患者。调查包括有关参与者社会人口统计的封闭式和自由文本问题,可用性体验,医疗保健和EHR的经验,在线阅读健康记录的原因,有错误的经验,遗漏和冒犯,关于安全和隐私的意见,以及门户功能的有用性。在本文中,我们总结了参与者的人口统计数据,过去的医疗保健经验,和患者门户通过描述性统计。
结果:总计,29,334名用户完成了调查,其中9503人(32.40%)来自挪威,来自瑞典的13,008(44.35%),4713(16.07%)来自芬兰,和2104(7.17%)来自爱沙尼亚。根据报告的性别,国家样本具有可比性,大约三分之二的人被认定为女性(19,904/29,302,67.93%)。各国的年龄分布相似,但芬兰有较老的用户,而爱沙尼亚有较年轻的用户。在全国样本中,获得的最高教育和医疗保健教育的存在各不相同。在所有四个国家,患者最常将其健康状况评为“一般”(11,279/29,302,38.48%)。在爱沙尼亚,参与者更倾向于积极评价他们的健康状况,挪威和瑞典的负面健康评级比例最高。在整个样本中,大多数患者在过去2年接受了一些护理(25,318/29,254,86.55%).精神保健(6214/29,254,21.24%)比肿瘤保健(3664/29,254,12.52%)更常见。总的来说,大多数患者访问过他们的健康记录“2至9次”(11,546/29,306,39.4%),最频繁的用户居住在瑞典,大约三分之一的患者“超过20次”(4571/13,008,35.14%)。
结论:这是第一次大规模的国际调查,目的是比较患者用户的社会人口统计学和访问他们的EHR的经验。尽管这些国家在地理上非常接近,并在为居民提供在线记录访问方面表现出类似的进步,这项调查中的患者用户有所不同。我们将继续通过对NORDeHEALTH2022患者调查的国家和组合数据集的重点分析,调查患者对国家患者可访问EHR的经验和意见。
Although many surveys have been conducted on patients accessing their own health records in recent years, there is a limited amount of nationwide cross-country data available on patients\' views and preferences. To address this gap, an international survey of patient users was conducted in the Nordic eHealth project, NORDeHEALTH.
We aimed to investigate the sociodemographic characteristics and experiences of patients who accessed their electronic health records (EHRs) through national patient portals in Norway, Sweden, Finland, and Estonia.
A cross-sectional web-based survey was distributed using the national online health portals. The target participants were patients who accessed the national patient portals at the start of 2022 and who were aged ≥15 years. The survey included a mixture of close-ended and free-text questions about participant sociodemographics, usability experience, experiences with health care and the EHR, reasons for reading health records online, experience with errors, omissions and offense, opinions about security and privacy, and the usefulness of portal functions. In this paper, we summarized the data on participant demographics, past experience with health care, and the patient portal through descriptive statistics.
In total, 29,334 users completed the survey, of which 9503 (32.40%) were from Norway, 13,008 (44.35%) from Sweden, 4713 (16.07%) from Finland, and 2104 (7.17%) from Estonia. National samples were comparable according to reported gender, with about two-thirds identifying as women (19,904/29,302, 67.93%). Age distributions were similar across the countries, but Finland had older users while Estonia had younger users. The highest attained education and presence of health care education varied among the national samples. In all 4 countries, patients most commonly rated their health as \"fair\" (11,279/29,302, 38.48%). In Estonia, participants were more often inclined to rate their health positively, whereas Norway and Sweden had the highest proportion of negative health ratings. Across the whole sample, most patients received some care in the last 2 years (25,318/29,254, 86.55%). Mental health care was more common (6214/29,254, 21.24%) than oncological care (3664/29,254, 12.52%). Overall, most patients had accessed their health record \"2 to 9 times\" (11,546/29,306, 39.4%), with the most frequent users residing in Sweden, where about one-third of patients accessed it \"more than 20 times\" (4571/13,008, 35.14%).
This is the first large-scale international survey to compare patient users\' sociodemographics and experiences with accessing their EHRs. Although the countries are in close geographic proximity and demonstrate similar advancements in giving their residents online records access, patient users in this survey differed. We will continue to investigate patients\' experiences and opinions about national patient-accessible EHRs through focused analyses of the national and combined data sets from the NORDeHEALTH 2022 Patient Survey.