ethics

伦理学
  • 文章类型: Journal Article
    背景:在瑞典,儿童癌症每年影响约350名儿童,是危及生命的疾病。在治疗期间,出现的情况可能会对孩子产生道德上的挑战。当了解儿童在儿童癌症护理中的价值观和道德挑战时,可以开发有针对性的伦理支持并用于护理。
    目的:探讨儿童接受癌症治疗时的价值观和道德困境。
    方法:这是一项基于经验数据的定性研究。数据收集是通过对10至18岁儿童(n=16)的三次焦点小组访谈和六次个人访谈进行的。使用内容分析方法来生成主题。瑞典三个儿童癌症中心接受过癌症治疗的儿童被邀请参加。该研究得到了瑞典伦理审查机构的批准。儿童的参与是基于自愿和同意/同意。
    结果:在分析过程中,出现了五个价值观主题:人际关系,身体放松和身份,感觉到控制和参与,积极的分心和正确的照顾是必要的。他们的道德困境被分为:我应该考虑别人吗?我应该休息吗?我应该拒绝治疗吗?
    结论:接受癌症治疗的儿童希望与医疗保健专业人员建立个人关系。他们的道德困境是质疑自己的身体和心理健康,违背他们的期望,他人的价值观和所需的待遇。需要进一步的研究来了解如何应对接受癌症治疗的儿童的道德困境。
    BACKGROUND: Childhood cancers affect about 350 children every year in Sweden and are life-threatening diseases. During the treatment period, situations arise that can become morally challenging for the child. When knowing children\'s values and morally challenging situations in childhood cancer care, targeted ethics support could be developed and used in care.
    OBJECTIVE: To explore children\'s values and moral dilemmas ​​when undergoing cancer treatment.
    METHODS: This is a qualitative study based on empirical data. The data collection was conducted through three focus group interviews and six individual interviews with children between 10 and 18 years (n = 16). A content analysis methodology was used to generate themes. Children who were/have been treated for cancer at three childhood cancer centres in Sweden were invited to participate. The study was approved by the Swedish Ethical Review Authority. The children\'s participation was based on voluntariness and consent/assent.
    RESULTS: During the analysis, five themes of values emerged: Personal relationships, Bodily ease and identity, Feeling in control and being involved, Positive distractions and Right care that is needed. Their moral dilemmas were thematized into: Should I consider others or not? Should I rest or not? and Should I refuse treatment or not?
    CONCLUSIONS: Children undergoing cancer treatment want to have personal relationships with healthcare professionals. Their moral dilemmas were about questioning their own physical and psychological well-being against their expectations, the values of others and the treatment required. Further research is needed to understand how to deal with moral dilemmas in children undergoing cancer treatment.
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  • 文章类型: Journal Article
    背景:COVID-19大流行为提供护理和教育初级医生(住院医师)带来了新的挑战。我们试图了解第一年住院医师的积极和消极经历,并从他们的故事中描述潜在的道德问题。
    方法:我们使用了叙述性调查(NI)方法,并应用了半结构化访谈指南,其中包含与道德原则以及大流行的积极和消极方面有关的问题。取样是有目的的。访谈是录音和转录的。研究小组的三名成员对抄本进行了一式两份的编码,以引出主题。通过讨论解决了分歧,以达成共识。构建了一个带有线程的复合故事。
    结果:11名居民参与了多个项目。参与者的故事中出现了三个主要主题:(1)导航交叉医疗保健和医学教育系统的复杂性,(2)平衡公共卫生和公共利益与个人;(3)公平的卫生系统规划/医疗保健提供。在这些主题中,参与者通过第一波的旅程是通过(1)吸引我们的线程引起的,(2)因为我们看到了对待责任的必要性(3)我们都在一起。
    结论:在COVID-19大流行期间发生的道德问题案例可能是进行道德教学和未来大流行计划的基础。临床伦理学的原则及其局限性,当应用于公共卫生问题时,可以帮助将临床伦理与公共卫生伦理进行对比。
    结论:努力了解住院医师如何驾驭突发公共卫生事件以及出现的伦理问题,可以使住院医师教育和医疗保健系统受益。
    BACKGROUND: The COVID-19 pandemic introduced new challenges to provide care and educate junior doctors (resident physicians). We sought to understand the positive and negative experiences of first-year resident physicians and describe potential ethical issues from their stories.
    METHODS: We used narrative inquiry (NI) methodology and applied a semistructured interview guide with questions pertaining to ethical principles and both positive and negative aspects of the pandemic. Sampling was purposive. Interviews were audio recorded and transcribed. Three members of the research team coded transcripts in duplicate to elicit themes. Discrepancies were resolved through discussion to attain consensus. A composite story with threads was constructed.
    RESULTS: 11 residents participated across several programmes. Three main themes emerged from the participants\' stories: (1) complexities in navigating intersecting healthcare and medical education systems, (2) balancing public health and the public good versus the individual and (3) fair health systems planning/healthcare delivery. Within these themes, participants\' journeys through the first wave were elicited through the threads of (1) engage us, (2) because we see the need for the duty to treat and (3) we are all in this together.
    CONCLUSIONS: Cases of the ethical issues that took place during the COVID-19 pandemic may serve as a foundation on which ethics teaching and future pandemic planning can take place. Principles of clinical ethics and their limitations, when applied to public health issues, could help in contrasting clinical ethics with public health ethics.
    CONCLUSIONS: Efforts to understand how resident physicians can navigate public health emergencies along with the ethical issues that arise could benefit both residency education and healthcare systems.
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  • 文章类型: Journal Article
    卫生机构是指一个人形成健康相关目标的能力,经验控制,并拥有追求它们的手段。低社会经济地位(SES)与健康机构受损和不良妊娠结局风险增加有关。可能是由于寻求护理的倾向减少。更好的医疗保健可用性可能不会改善他们的妊娠结局,因此,提高对孕产妇保健机构的了解至关重要。
    对15名有孩子或想要孩子的参与者进行了半结构化访谈。SES较低是由邻里收入中位数和受教育程度决定的。进行了专题内容分析。
    出现了两个主题:1)个人目标的起源和发展,2)意识和能力。参与者的目标源于文化规范,个人叙述,和直觉。综合目标是那些高度重视的参与者,意识到,并争取。在目标意识和能力方面确定了四个次主题。由于目标和行为之间的差异,内部冲突导致需要平衡行为改变的负担和收益。
    孕产妇健康机构是一个可改变的结果,取决于目标意识和各种因素。受损的机构似乎源于缺乏目标意识,而不是无法满足既定的支柱。
    UNASSIGNED: Health agency refers to one\'s capacity to form health-related goals, experience control, and possess the means to pursue them. Low socioeconomic status (SES) is linked to impaired health agency and increased risk of adverse pregnancy outcomes, potentially due to a reduced tendency to seek care. Better healthcare availability may not improve their pregnancy outcomes, and therefore improved understanding of maternal health agency is paramount.
    UNASSIGNED: Semi-structured interviews were conducted with 15 participants who either had children or desired to have them. Low SES was determined by neighborhood median income and educational attainment. A thematic content analyses was conducted.
    UNASSIGNED: Two themes emerged: 1) Origin and development of personal goals, and 2) Awareness and competence. Participant\'s goals stemmed from cultural norms, personal narratives, and intuition. Integrated goals were those participants valued highly, were aware of, and strived for. Four subthemes were identified in goal-awareness and competence. Internal conflict due to discrepancies between goals and behavior resulted in the need to balance the burdens and benefits of behavior change.
    UNASSIGNED: Maternal health agency is a modifiable outcome dependent on goal-awareness and various factors. Impaired agency seemed to stem from lack of goal-awareness rather than an inability to meet established pillars.
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  • 文章类型: Journal Article
    背景:子宫移植(UTx)为患有绝对子宫因素性不孕症(AUFI)的女性提供了自己怀孕并分娩的机会。有多种与UTx相关的伦理和医学问题。自2018年美国提供者对UTx的看法进行上一次调查以来,已有更多关于成功移植和怀孕的报道。这项研究旨在确定参与AUFI诊断的提供者和移植团队对UTx的看法,以帮助我们了解知识差距并确定在一般临床实践中使用UTx必须克服的障碍。方法:我们对2023年美国妇产科学院(ACOG)会议和2023年美国移植大会(ATC)的会议与会者进行了REDCap调查。参与者由医学生志愿者招募。结果:200名ACOG和ATC参与者完成了调查。来自ACOG的42%的提供者报告了与UTx相关的医疗问题,而来自ATC的提供者为22%。总的来说,76%的参与者认为UTx应该是先天性AUFI患者的一种选择。最后,68%的参与者同意该程序应作为跨性别妇女的一种选择。结论:这项研究进一步阐明了妇产科医生和移植医生对UTx的看法。与以前的研究相比,我们发现对该程序的支持更大。这项研究还表明,提供者支持将此程序作为变性女性的选择。
    Background: Uterus transplantation (UTx) provides women with absolute uterine-factor infertility (AUFI) the opportunity to carry their own pregnancy and deliver a child. There are multiple ethical and medical concerns associated with UTx. Since the last survey of US provider perceptions of UTx in 2018, there have been additional reports of successful transplantations and pregnancies. This study aimed to identify the perception of UTx among providers involved in the diagnosis of AUFI and on the transplant team to help us understand knowledge gaps and determine what barriers must be overcome for UTx to be used in general clinical practice. Methods: We administered REDCap surveys to conference attendees at the 2023 American College of Obstetricians and Gynecologists (ACOG) conference and 2023 American Transplant Congress (ATC). Participants were recruited by medical student volunteers. Results: Two hundred ACOG and ATC attendees completed the survey. Medical concerns related to UTx were reported by 42% of providers from ACOG compared to 22% of providers from ATC. Overall, 76% of participants agreed that UTx should be an option for patients with congenital AUFI. Lastly, 68% of participants agreed that the procedure should be presented as an option for transgender women. Conclusions: This study further elucidates the perception of UTx among obstetricians/gynecologists and transplant physicians. We found greater support for the procedure than in previous studies. This study also demonstrates provider support for presenting this procedure as an option for transgender women.
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  • 文章类型: Journal Article
    背景:承认患者权利是基本人权,全球医疗保健界,包括世界卫生组织和各种护理组织,强调了护士在通过道德实践和以患者为中心的护理维护这些权利方面的关键作用。然而,在复杂的医疗保健环境中,越南的护士面临各种道德问题和挑战,可能会阻碍他们有效保护患者权利的能力,需要更好的道德决策和实践工具。
    目的:本研究旨在将护士保护患者权利的道德行为量表(NEBPPR)翻译成越南语,并评估V-NEBPPRS的有效性和可靠性。
    方法:原始量表经历了跨文化翻译过程,以适应越南语。使用验证性因子分析(CFA)评估结构效度。收敛有效性,判别效度,并对V-NEBPPRS的可靠性进行了评估。
    结果:删除因子载荷低于0.5的四个项目后,V-NEBPPRS包含24个项目,分为五个因子。CFA模型拟合良好(χ2/df=2.86;GFI=0.87;FI=0.85;CFI=0.84;RMSEA=0.07)。收敛和判别效度得到证实,提取的平均方差为0.54至0.67,0.54至0.67,综合信度为0.73至0.81。Cronbach的α系数在总量表中为0.85,在五个子量表中为0.70至0.79。
    结论:V-NEBPPRS是一种可靠的工具,为护理领导者和研究人员提供利用V-NEBPPRS评估和促进护士维护患者权利的意识和行为的手段,从而有助于改善整体健康结果。
    BACKGROUND: Recognizing patients\' rights as fundamental human rights, the global healthcare community, including the World Health Organization and various nursing organizations, has emphasized the critical role of nurses in upholding these rights through ethical practice and patient-centered care. However, in the complex landscape of healthcare, nurses in Vietnam face various ethical issues and challenges that may impede their ability to protect patient rights effectively, necessitating tools for better ethical decision-making and practice.
    OBJECTIVE: This study aims to translate the Nurses\' Ethical Behaviours for Protecting Patient Rights Scale (NEBPPR) into Vietnamese and evaluate the validity and reliability of the V-NEBPPRS.
    METHODS: The original scale underwent a cross-cultural translation process to be adapted into Vietnamese. Construct validity was assessed using confirmatory factor analysis (CFA). The convergent validity, discriminant validity, and reliability of the V-NEBPPRS were evaluated.
    RESULTS: After removing four items with factor loading below 0.5, the V-NEBPPRS comprises 24 items divided into five factors. CFA demonstrated a good model fit (χ2/df = 2.86; GFI = 0.87; IFI = 0.85; CFI = 0.84; RMSEA = 0.07). Convergent and discriminant validity were confirmed with extracted mean variance ranging from 0.54 to 0.67, 0.54 to 0.67, and composite reliability from 0.73 to 0.81. Cronbach\'s α coefficient was 0.85 for the total scale and ranged from 0.70 to 0.79 for five subscales.
    CONCLUSIONS: The V-NEBPPRS is a reliable tool, providing nursing leaders and researchers with the means to utilize the V-NEBPPRS for assessing and promoting nurses\' awareness and behaviour in safeguarding patients\' rights, thereby contributing to improved overall health outcomes.
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  • 文章类型: Journal Article
    背景:利用人工智能(AI)和机器学习(ML)的创新工具正在迅速开发用于医学,随着预测中出现的新应用,诊断,以及一系列疾病的治疗,患者群体,和临床程序。成功创新的一个障碍是当前文献中缺乏寻求和分析AI或ML研究人员和医生的观点以支持伦理指导的研究。
    目的:本研究旨在描述,使用定性的方法,AI或ML研究人员和专业接触AI或ML工具的医生在AI和ML在医学中的开发和使用中观察或预期的道德问题景观。
    方法:使用半结构化访谈来促进深入,开放式讨论,并使用有目的的抽样技术来识别和招募参与者。我们对AI和ML研究人员(n=10)和医生(n=11)的有目的样本进行了21次半结构化访谈。我们询问了受访者对与在医学中采用AI和ML有关的道德考虑的看法。我们的研究小组成员对访谈进行了转录和鉴定。数据分析遵循定性内容分析的原则。这种方法,其中转录的数据被分解为描述性单位,这些单位根据其内容进行命名和排序,允许直接从数据集中归纳出现代码。
    结果:值得注意的是,研究人员和医生都表达了对人工智能和机器学习创新在早期发展中如何形成的担忧(即,问题制定阶段)。考虑因素包括评估研究重点和动机,临床需求的清晰度和中心性,研究团队的专业和人口多样性,以及跨学科的知识生成和协作。受访者确定的第一阶段伦理问题在本质上是跨学科的,并邀请了关于如何调整跨学科的优先事项和价值观,并在整个医学AI和ML的开发和实施过程中确保临床价值的问题。相关地,受访者建议跨学科解决这些问题,例如,更多资源来支持开发人员和医生之间的知识生成和协作,与更广泛的利益相关者接触,并努力在广泛的研究和个人团队内部增加研究的多样性。
    结论:这些定性发现有助于阐明AI和ML在医疗保健方面预期或遇到的一些伦理挑战。我们的研究是独一无二的,因为它使用开放式问题允许受访者探索他们的情绪和观点,而不会过度依赖关于AI和ML目前是什么或不是什么的隐含假设。这个分析,然而,不包括其他相关利益相关者团体的观点,如患者,伦理学家,行业研究人员或代表,或医生以外的其他医疗保健专业人员。需要额外的定性和定量研究来重现和建立这些发现。
    BACKGROUND: Innovative tools leveraging artificial intelligence (AI) and machine learning (ML) are rapidly being developed for medicine, with new applications emerging in prediction, diagnosis, and treatment across a range of illnesses, patient populations, and clinical procedures. One barrier for successful innovation is the scarcity of research in the current literature seeking and analyzing the views of AI or ML researchers and physicians to support ethical guidance.
    OBJECTIVE: This study aims to describe, using a qualitative approach, the landscape of ethical issues that AI or ML researchers and physicians with professional exposure to AI or ML tools observe or anticipate in the development and use of AI and ML in medicine.
    METHODS: Semistructured interviews were used to facilitate in-depth, open-ended discussion, and a purposeful sampling technique was used to identify and recruit participants. We conducted 21 semistructured interviews with a purposeful sample of AI and ML researchers (n=10) and physicians (n=11). We asked interviewees about their views regarding ethical considerations related to the adoption of AI and ML in medicine. Interviews were transcribed and deidentified by members of our research team. Data analysis was guided by the principles of qualitative content analysis. This approach, in which transcribed data is broken down into descriptive units that are named and sorted based on their content, allows for the inductive emergence of codes directly from the data set.
    RESULTS: Notably, both researchers and physicians articulated concerns regarding how AI and ML innovations are shaped in their early development (ie, the problem formulation stage). Considerations encompassed the assessment of research priorities and motivations, clarity and centeredness of clinical needs, professional and demographic diversity of research teams, and interdisciplinary knowledge generation and collaboration. Phase-1 ethical issues identified by interviewees were notably interdisciplinary in nature and invited questions regarding how to align priorities and values across disciplines and ensure clinical value throughout the development and implementation of medical AI and ML. Relatedly, interviewees suggested interdisciplinary solutions to these issues, for example, more resources to support knowledge generation and collaboration between developers and physicians, engagement with a broader range of stakeholders, and efforts to increase diversity in research broadly and within individual teams.
    CONCLUSIONS: These qualitative findings help elucidate several ethical challenges anticipated or encountered in AI and ML for health care. Our study is unique in that its use of open-ended questions allowed interviewees to explore their sentiments and perspectives without overreliance on implicit assumptions about what AI and ML currently are or are not. This analysis, however, does not include the perspectives of other relevant stakeholder groups, such as patients, ethicists, industry researchers or representatives, or other health care professionals beyond physicians. Additional qualitative and quantitative research is needed to reproduce and build on these findings.
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  • 文章类型: Journal Article
    目标:本文探讨了医疗保健管理学生如何看待人工智能(AI)在医疗保健领导中的整合,主要关注所涉及的可持续性方面。它旨在确定当前教育课程中的差距,并提出改进措施,以更好地为未来的医疗保健专业人员做好准备,以适应人工智能驱动的医疗保健环境不断变化的需求。
    方法:本研究利用横断面调查设计来了解医疗保健管理学生对将AI整合到医疗保健领导力中的看法。一份网上调查问卷,从广泛的文献综述中发展而来,涵盖了基本的人工智能知识及其在可持续领导力中的作用,分发给医疗保健管理专业和辅修的学生。这种方法论方法吸引了62名学生的参与,提供对研究目标至关重要的见解和观点。
    结果:研究表明,尽管绝大多数医疗保健管理学生(70%)认识到AI在培养医疗保健可持续领导力方面的潜力,只有30%的人觉得在人工智能集成的环境中工作已经做好了充分的准备。此外,学生们有兴趣更多地了解人工智能在医疗保健中的应用以及人工智能在可持续领导力中的作用,强调在他们的课程中需要全面的以人工智能为重点的教育。
    结论:这项研究受到关注于单一学术机构的限制,这可能不能完全代表医疗保健管理观点的多样性。
    结论:这项研究强调了医疗保健管理课程纳入人工智能教育的必要性,将理论知识与实际应用相结合,有效地为未来的专业人员做好准备,以适应人工智能集成医疗环境不断变化的需求。
    结论:本研究论文提供了对医疗保健管理专业学生的见解,以及对AI整合在医疗保健领导中的观点。填补了理解AI驱动的医疗保健不断发展的教育需求方面的关键空白。
    OBJECTIVE: This paper explores how healthcare administration students perceive the integration of Artificial Intelligence (AI) in healthcare leadership, mainly focusing on the sustainability aspects involved. It aims to identify gaps in current educational curricula and suggests enhancements to better prepare future healthcare professionals for the evolving demands of AI-driven healthcare environments.
    METHODS: This study utilized a cross-sectional survey design to understand healthcare administration students\' perceptions regarding integrating AI in healthcare leadership. An online questionnaire, developed from an extensive literature review covering fundamental AI knowledge and its role in sustainable leadership, was distributed to students majoring and minoring in healthcare administration. This methodological approach garnered participation from 62 students, providing insights and perspectives crucial for the study\'s objectives.
    RESULTS: The research revealed that while a significant majority of healthcare administration students (70%) recognize the potential of AI in fostering sustainable leadership in healthcare, only 30% feel adequately prepared to work in AI-integrated environments. Additionally, students were interested in learning more about AI applications in healthcare and the role of AI in sustainable leadership, underscoring the need for comprehensive AI-focused education in their curriculum.
    CONCLUSIONS: The research is limited by its focus on a single academic institution, which may not fully represent the diversity of perspectives in healthcare administration.
    CONCLUSIONS: This study highlights the need for healthcare administration curricula to incorporate AI education, aligning theoretical knowledge with practical applications, to effectively prepare future professionals for the evolving demands of AI-integrated healthcare environments.
    CONCLUSIONS: This research paper presents insights into healthcare administration students\' readiness and perspectives toward AI integration in healthcare leadership, filling a critical gap in understanding the educational needs in the evolving landscape of AI-driven healthcare.
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  • 文章类型: Journal Article
    背景:确保有道德能力的护士取决于许多因素,如环境、社会,政治,和文化。然而,护理教育中的一些不足之处已经被记录下来,对于如何在本科教育中教授护理伦理学,还没有建立共同的框架。
    目的:在伦理学教学中建立的护理计划之间有哪些不同的方法?在制定能够培养道德胜任的护士的课程时,计划之间的主要相似之处和不同之处是什么?
    方法:国际比较教育研究分为五个步骤:(1)制定初始问题;(2)定义比较单位;(3)确定比较结果;(4)描述结果。确定了比较变量,提取,并填充在一个试点网格中。
    方法:“促进道德胜任护士”项目合作伙伴有目的地选择了六所大学,用于2022-2023年交付的护理教育课程。
    方法:不需要道德批准,没有人类参与者和关于护理课程的公共数据。
    结果:命名课程时使用的术语出现了变化,用于教学道德的学分和小时数,当课程交付(从护理教育的最初学期或集中在最后几年),以及它们的主要交付模式(单个或单独的模块或集成在整个课程中)。内容有一些相似之处,而教学方法各不相同,并且包括(或不包括)与临床实践的明确联系。所有课程都必须参加。所使用的评估方法各不相同,从基于知识的方法到涉及多维战略的更多基于能力的方法。
    结论:这项比较研究探讨了六个不同欧洲国家护理项目的异同。审查的道德课程缺乏明显的清晰度,它们为未来的发展提供了重要的考虑领域。出现了关于术语的问题,学习工作负载,什么时候交货,如何交付,主要内容,以及值得进一步讨论的教学和评估方法。
    BACKGROUND: Ensuring morally competent nurses depends on many factors, such as environmental, social, political, and cultural. However, several inadequacies in nursing education have been documented, and no common framework has been established for how nursing ethics should be taught in undergraduate education.
    OBJECTIVE: What are the different approaches across nursing programmes established in teaching ethics? What are the main similarities and differences across programmes facilitating a common understanding in developing a curriculum capable of preparing a morally competent nurse?
    METHODS: International comparative education study in five steps: (1) formulating the initial question; (2) defining the units of comparison; (3) determining the variables of comparison; (4) describing the findings; (5) interpreting the findings. The comparative variables were identified, extracted, and populated in a piloted grid.
    METHODS: Six universities were purposefully selected by the Promoting a Morally Competent Nurse project partners for their nursing education curricula as delivered in 2022-2023.
    METHODS: No ethical approval was required, given no human participants and public data regarding nursing curricula.
    RESULTS: Variability emerged in the terminologies used in naming the courses, the numbers of credits and hours devoted to teaching ethics, when the courses are delivered (since the initial semesters of nursing education or concentrated in the final years), and their main modes of delivery (a single or separate module or integrated across the curriculum). Contents have some similarities, whereas the teaching methods varied and included (or not) explicit connections with clinical practice. Attendance is mandatory in all courses. The assessment methods used varied from knowledge-based to more competence-based approaches involving multidimensional strategies.
    CONCLUSIONS: This comparative study explored similarities and differences across nursing programmes in six different European countries. The reviewed ethics curricula lack significant clarity, and they offer important areas to consider for future development. Issues emerged regarding terminologies, learning workloads, when to deliver, how to deliver, the main contents, and the teaching and assessment methods that merit further discussion.
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  • 文章类型: Journal Article
    背景:诊断不确定性很常见,但是它与患者的沟通还没有得到充分的探索。这项研究旨在(1)描述医生对诊断不确定性的交流中的变化,以及(2)探索为什么会发生变化。
    方法:开发了四种涉及诊断不确定性的临床情景的书面插图。从五家医院招募医生,直到达到理论饱和(n=36)。参与者以随机顺序阅读小插图,并被要求与在线面试官讨论诊断/计划,就像他们对“典型病人”一样。半结构化访谈探讨了沟通选择的原因。对采访记录进行了编码;进行了定量和定性(主题)分析。
    结果:医生的交流存在明显差异:在他们关于鉴别诊断的讨论中,他们对诊断/调查中的不确定度的参考,以及他们对安全网时的诊断不确定度的确认.不确定性的隐式表达比显式表达更常见。参与者表达了两种不同的沟通目标(包括减少患者的焦虑,建立信任,授权患者并防止诊断错误)以及如何实现这些目标的不同观点。诊断不确定性沟通方面的培训很少,但许多人认为这将是有用的。
    结论:诊断不确定性交流存在显着变化,即使在受控的环境中。不同的沟通目标-通常基于相互冲突的道德原则,例如,尊重自主性与不恶意-以及关于如何优先考虑和实现它们的不同想法可能是这一点的基础。观察到的交流行为变化对患者安全和健康不平等具有重要意义。需要以患者为中心的研究来指导实践。
    在研究的设计阶段,我们咨询了两个患者和公众参与小组(由不同年龄和背景的公众成员组成),以了解患者对传达诊断不确定性概念的看法.他们的反馈为研究问题的制定和使用的插图的选择提供了信息。
    BACKGROUND: Diagnostic uncertainty is common, but its communication to patients is under-explored. This study aimed to (1) characterise variation in doctors\' communication of diagnostic uncertainty and (2) explore why variation occurred.
    METHODS: Four written vignettes of clinical scenarios involving diagnostic uncertainty were developed. Doctors were recruited from five hospitals until theoretical saturation was reached (n = 36). Participants read vignettes in a randomised order, and were asked to discuss the diagnosis/plan with an online interviewer, as they would with a \'typical patient\'. Semi-structured interviews explored reasons for communication choices. Interview transcripts were coded; quantitative and qualitative (thematic) analyses were undertaken.
    RESULTS: There was marked variation in doctors\' communication: in their discussion about differential diagnoses, their reference to the level of uncertainty in diagnoses/investigations and their acknowledgement of diagnostic uncertainty when safety-netting. Implicit expressions of uncertainty were more common than explicit. Participants expressed both different communication goals (including reducing patient anxiety, building trust, empowering patients and protecting against diagnostic errors) and different perspectives on how to achieve these goals. Training in diagnostic uncertainty communication is rare, but many felt it would be useful.
    CONCLUSIONS: Significant variation in diagnostic uncertainty communication exists, even in a controlled setting. Differing communication goals-often grounded in conflicting ethical principles, for example, respect for autonomy versus nonmaleficence-and differing ideas on how to prioritise and achieve them may underlie this. The variation in communication behaviours observed has important implications for patient safety and health inequalities. Patient-focused research is required to guide practice.
    UNASSIGNED: In the design stage of the study, two patient and public involvement groups (consisting of members of the public of a range of ages and backgrounds) were consulted to gain an understanding of patient perspectives on the concept of communicating diagnostic uncertainty. Their feedback informed the formulations of the research questions and the choice of vignettes used.
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  • 文章类型: Journal Article
    根据我国《艾滋病防治条例》,在中国大陆寻求医疗服务时,被诊断患有艾滋病毒的个人必须披露其健康状况。实证实地调查,然而,表明艾滋病毒感染者(PLHIV)仅在绝对必要的条件下才主要遵守这项任务。随之而来的难题,将隐私的必要性与披露义务并列,在实际应用中已经成为一个反复出现的恶性循环,加剧了以医患互动为特征的内在信任差异。对相关法律先例的细致审查,加上深入的实地研究,揭示了这些并发症的起源可以追溯到支撑HIV/AIDS预防和治疗策略的立法意图中不可预见的变态。虽然最初的目标是降低风险,在现实世界中颁布的效果已经显著下降。由于广泛的媒体报道以及流行的公共话语等因素,PLHIV,而不是在法律框架中被视为承载权利的实体,越来越多地沦为“艾滋病毒/艾滋病”的限制性和非人性化标签。当这些人通过其他非监管渠道行使自己的权利时,规避正式法律义务,他们实现这些权利的效力同时受到损害。
    In accordance with China\'s regulations on the prevention and control of HIV/AIDS, individuals diagnosed with HIV are required to disclose their medical condition when soliciting medical care in Mainland China. Empirical field investigations, however, indicate that people living with HIV (PLHIV) predominantly comply with this mandate only under conditions of absolute necessity. The ensuing conundrum, juxtaposing the imperative of privacy against the duty of disclosure, has materialised into a recurrent vicious cycle in its practical application, intensifying the intrinsic trust disparities characterising doctor-patient interactions. A meticulous scrutiny of pertinent legal precedents, coupled with in-depth field studies, reveals that the genesis of these complications can be traced back to an unforeseen metamorphosis in the legislative intent underpinning HIV/AIDS prevention and therapeutic strategies. While the initial objective was risk mitigation, the effect of enactment in real-world scenarios has significantly decreased. Owing to factors including extensive media reporting as well as prevailing public discourse, PLHIV, rather than being perceived as rights-bearing entities in legal frameworks, are increasingly relegated to the restrictive and dehumanising labels of \'HIV/AIDS\'. As these individuals navigate their rights through alternative non-regulatory channels, circumventing formal legal obligations, their efficacy in actualising these rights is concurrently undermined.
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