生活质量(QoL)评估是癌症护理不可或缺的一部分,然而,它们在提供支持幸存者的基本信息方面的有效性各不相同。本研究旨在从医疗保健专业人员的角度阐明结直肠癌幸存者QoL的关键指标,并评估与这些指标相关的现有QoL问卷。进行了两项研究:一项Delphi研究,以确定关键的QoL指标,并对适合结直肠癌幸存者的问卷进行范围审查。54名医疗保健专业人员参加了德尔福研究的第一轮,第二个是25。该研究确定了两个主要的QoL领域(生理和心理)和17个被认为最关键的子领域。此外,对12份问卷的审查显示了两种评估最重要一般领域的工具。研究结果强调了现有评估工具与医疗保健专业人员在结直肠癌幸存者工作中的临床优先事项之间的不一致。为了增强对幸存者QoL的支持,需要努力开发更符合临床实践中常规QoL评估要求的工具。
Quality of life (QoL) assessments are integral to cancer care, yet their effectiveness in providing essential information for supporting survivors varies. This study aimed to elucidate key indicators of QoL among colorectal cancer survivors from the perspective of healthcare professionals, and to evaluate existing QoL questionnaires in relation to these indicators. Two studies were conducted: a Delphi study to identify key QoL indicators and a scoping review of questionnaires suitable for colorectal cancer survivors. Fifty-four healthcare professionals participated in the Delphi study\'s first round, with 25 in the second. The study identified two primary QoL domains (physical and psychological) and 17 subdomains deemed most critical. Additionally, a review of 12 questionnaires revealed two instruments assessing the most important general domains. The findings underscored a misalignment between existing assessment tools and healthcare professionals\' clinical priorities in working with colorectal cancer survivors. To enhance support for survivors\' QoL, efforts are needed to develop instruments that better align with the demands of routine QoL assessment in clinical practice.