每年有超过1000名澳大利亚青少年和年轻人(AYAs)被诊断出患有癌症。许多人报告说社会福利需求未得到满足,影响他们的心理健康。澳大利亚AYA癌症护理提供者缺乏很好地解决这些需求的指导。我们的目标是制定准则,以照顾澳大利亚癌症患者的社会福祉。根据澳大利亚国家健康与医学研究委员会的指导,我们成立了一个多学科工作组(n=4名心理社会研究人员,n=4名心理学家,n=4AYA癌症幸存者,n=2名肿瘤学家,n=2名护士,和n=2社会工作者),定义了准则的范围,通过系统审查收集证据,给证据分级,并调查了AYA癌症护理提供者关于指南的可行性和可接受性。准则建议应评估哪些AYA的社会福祉,谁应该领导这个评估,何时应使用哪些工具/措施进行评估,以及临床医生如何解决AYAs的社会福祉问题。一个关键的临床医生,他对AYAs的发展需求很了解,应在癌症治疗期间和之后领导对社会福祉的评估。建议使用AYA心理肿瘤学筛查工具来筛查社会福祉需求。HEADSSS评估(主页,教育/就业,吃/锻炼,活动/同伴关系,吸毒,性,自杀/抑郁,安全/灵性评估)可用于深入评估社会福祉,而社交恐惧症量表可用于评估社交焦虑。AYA癌症护理提供者将指南评为高度可接受,但讨论了许多可行性障碍。这些指南为AYAs与癌症的社会福祉提供了最佳的护理途径。解决实施的未来研究对于满足AYAs的社会福祉需求至关重要。
More than 1000 Australian adolescents and young adults (AYAs) are diagnosed with cancer annually. Many report unmet social well-being needs, which impact their mental health. Australian AYA cancer care providers lack guidance to address these needs well. We aimed to develop
guidelines for caring for the social well-being of AYAs with cancer in Australia. Following the Australian National Health and Medical Research Council guidance, we formed a multidisciplinary working group (n = 4 psychosocial researchers, n = 4 psychologists, n = 4 AYA cancer survivors, n = 2 oncologists, n = 2 nurses, and n = 2 social workers), defined the scope of the guidelines, gathered evidence via a systematic review, graded the evidence, and surveyed AYA cancer care providers about the feasibility and acceptability of the
guidelines. The
guidelines recommend which AYAs should have their social well-being assessed, who should lead that assessment, when assessment should occur with which tools/measures, and how clinicians can address AYAs\' social well-being concerns. A key clinician, who is knowledgeable about AYAs\' developmental needs, should lead the assessment of social well-being during and after cancer treatment. The AYA Psycho-Oncology Screening Tool is recommended to screen for social well-being needs. The HEADSSS Assessment (Home, Education/Employment, Eating/Exercise, Activities/Peer Relationships, Drug use, Sexuality, Suicidality/Depression, Safety/Spirituality Assessment) can be used for in-depth assessment of social well-being, while the Social Phobia Inventory can be used to assess social anxiety. AYA cancer care providers rated the
guidelines as highly acceptable, but discussed many feasibility barriers. These
guidelines provide an optimal care pathway for the social well-being of AYAs with cancer. Future research addressing implementation is critical to meet AYAs\' social well-being needs.