Shared-decision making

共享决策
  • 文章类型: Journal Article
    目的:近年来,医学各个领域的决策支持工具已经出现,以帮助临床医生和患者在共同决策过程中。本范围审查旨在确定用于选择下肢动脉疾病治疗的现有决策支持工具,并评估其在促进共同决策方面的有效性。
    方法:遵循PRISMA范围审查指南。在MEDLINE进行了文献检索,EMBASE和Cochrane数据库,连同决策辅助图书馆清单,2000年1月至2023年6月发表的研究。包括报告针对下肢动脉疾病的决策支持工具的开发和/或临床应用的文章。对结果进行了叙述性综合,并以表格形式呈现了发现。
    结果:纳入了五项研究和五项独特的决策支持工具。呈现格式包括网站,小册子,小册子和口袋卡。总的来说,在所有格式的决策支持工具中都观察到高度的异质性,内容和交付。在患者和临床医生中报告了广泛的可接受性和满意度。然而,由于缺乏标准化的结果指标,它们在改善共同决策方面的效果仍然不确定。
    结论:下肢动脉疾病治疗决策支持工具的开发和实施讨论仍处于早期阶段。这篇综述为未来的研究奠定了基础,以继续探索决策支持工具开发的最佳策略及其在支持共享决策中的作用。
    BACKGROUND: In recent years, decision support tools (DSTs) in various fields of medicine have emerged to aid clinicians and patients in the process of shared decision-making (SDM). This scoping review aims to identify the existing DSTs for selecting treatments in lower extremity arterial disease and to evaluate their effectiveness in facilitating SDM.
    METHODS: The Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines for scoping reviews were followed. A literature search was conducted across MEDLINE, EMBASE, and Cochrane databases, along with the Decision Aid Library Inventory, for studies published between January 2000 and June 2023. Articles reporting the development and/or clinical application of a DST specific to lower extremity arterial disease were included. A narrative synthesis of the results was performed and findings were presented in tabular formats.
    RESULTS: Five studies and 5 unique DSTs were included. Presenting formats included websites, booklets, brochures, and pocket cards. Overall, a high degree of heterogeneity was observed across all DSTs in their format, content, and delivery. A widespread acceptability and satisfaction were reported among patients and clinicians. However, their effect at improving SDM remains uncertain due to the lack of standardized outcome metrics.
    CONCLUSIONS: The development and implementation of DSTs for lower limb arterial disease treatment discussion remain in the early stages. This review lays the foundation for future studies to continue exploring optimal strategies for DST development and their role in supporting SDM.
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  • 文章类型: Systematic Review
    背景:实施精准医学很可能对临床癌症护理产生巨大影响,而医患关系是癌症治疗的一个关键方面,需要保留。本系统综述旨在阐明有关实施精准医疗将如何影响癌症护理中的医患关系的看法和担忧,以便解决对医患关系的威胁。
    方法:电子数据库(Pubmed,Scopus,WebofScience,社会科学高级合集)搜索了2010年1月至2021年12月发表的文章,包括定性,定量,和理论方法。两名审稿人完成了标题和摘要筛选,全文筛选,和数据提取。使用叙事综合对研究结果进行了总结和解释。
    结果:从所包含的文章中产生了四个主题(n=35)。提供信息解决了信息传输和需求的问题,以及复杂的概念,如遗传学和不确定性。在信任关系中做出决定解决了不透明问题,信任的作用,以及医生对精准医学工具在决策中的作用的态度。管理不合格患者的负面反应可解决患者对精准医疗的未满足期望。在临床和研究之间模糊的界限中,相互冲突的角色解决了医生作为医生和研究人员的双重角色所产生的问题。
    结论:许多发现以前已经在医患沟通和临床遗传学中得到了解决。然而,精准医学增加了这些领域的复杂性,并进一步强调了在特定主题上进行清晰交流的重要性,例如基因组和基因表达之间的区别以及患者对获取的期望,资格,有效性,和靶向治疗的副作用。
    The implementation of precision medicine is likely to have a huge impact on clinical cancer care, while the doctor-patient relationship is a crucial aspect of cancer care that needs to be preserved. This systematic review aimed to map out perceptions and concerns regarding how the implementation of precision medicine will impact the doctor-patient relationship in cancer care so that threats against the doctor-patient relationship can be addressed.
    Electronic databases (Pubmed, Scopus, Web of Science, Social Science Premium Collection) were searched for articles published from January 2010 to December 2021, including qualitative, quantitative, and theoretical methods. Two reviewers completed title and abstract screening, full-text screening, and data extraction. Findings were summarized and explained using narrative synthesis.
    Four themes were generated from the included articles (n = 35). Providing information addresses issues of information transmission and needs, and of complex concepts such as genetics and uncertainty. Making decisions in a trustful relationship addresses opacity issues, the role of trust, and and physicians\' attitude towards the role of precision medicine tools in decision-making. Managing negative reactions of non-eligible patients addresses patients\' unmet expectations of precision medicine. Conflicting roles in the blurry line between clinic and research addresses issues stemming from physicians\' double role as doctors and researchers.
    Many findings have previously been addressed in doctor-patient communication and clinical genetics. However, precision medicine adds complexity to these fields and further emphasizes the importance of clear communication on specific themes like the distinction between genomic and gene expression and patients\' expectations about access, eligibility, effectiveness, and side effects of targeted therapies.
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  • 文章类型: Journal Article
    本次范围审查总结了现有的方法,好处,以及运动心脏病学背景下共享决策(SDM)的障碍。在筛选的6058条记录中,这篇综述包括了37篇文章。大多数文章将SDM定义为运动员之间的公开对话,医疗团队,和其他利益相关者。管理策略的收益和风险,治疗方案,回归是这场对话的焦点。通过各种主题描述了SDM的关键组件,比如强调病人的价值观,考虑到非物理因素,知情同意。SDM的好处包括增强患者的理解、实施个性化管理计划,并考虑采取整体的护理方法。SDM的障碍包括来自机构的压力,在决策中考虑多种观点,以及医疗保健提供者的潜在责任。在讨论管理时使用SDM,治疗,和生活方式的改变为运动员诊断为心血管疾病是必要的,以确保患者的自主权和参与。
    This scoping review summarizes existing approaches, benefits, and barriers to shared decision-making (SDM) in the context of sports cardiology. Among 6,058 records screened, 37 articles were included in this review. Most included articles defined SDM as an open dialogue between the athlete, healthcare team, and other stakeholders. The benefits and risks of management strategies, treatment options, and return-to-play were the focus of this dialogue. Key components of SDM were described through various themes, such as emphasizing patient values, considering nonphysical factors, and informed consent. Benefits of SDM included enhancing patient understanding, implementing a personalized management plan, and considering a holistic approach to care. Barriers to SDM included pressure from institutions, consideration of multiple perspectives in decision-making, and the potential liability of healthcare providers. The use of SDM when discussing management, treatment, and lifestyle modification for athletes diagnosed with a cardiovascular condition is necessary to ensure patient autonomy and engagement.
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  • 文章类型: Review
    有证据表明,患有认知障碍的老年人可以可靠地传达他们的价值观和选择,即使认知能力可能下降。共同决策,包括病人,家庭成员,和医疗保健提供者,对于以患者为中心的护理至关重要。这项范围审查的目的是综合已知的痴呆症患者的共同决策。在PubMed中完成了范围审查,CINAHL,和WebofScience。关键词包括痴呆症和共享决策的内容领域。纳入标准如下:共同或合作决策的描述,认知障碍患者群体,成年患者,原创性研究。评论文章被排除在外,以及那些正式医疗保健提供者是参与决策的唯一团队成员的人(例如,医师),和/或患者样本没有认知障碍。系统提取的数据被组织在一个表中,比较,和合成。搜索产生了263篇按标题和摘要筛选的非重复文章。剩下93篇文章,并对全文进行了审查;32篇文章符合本次审查的条件。研究来自欧洲各地(n=23),北美(n=7),澳大利亚(n=2)。大多数文章采用了定性研究设计,10人采用了定量研究设计。出现了类似的共享决策主题类别,包括健康促进,生命的终结,高级护理计划,住房决策。大多数文章侧重于关于患者健康促进的共同决策(n=16)。研究结果表明,共同决策需要深思熟虑的努力,并且在家庭成员中更受欢迎,医疗保健提供者,和痴呆症患者。未来的研究应该包括对决策工具进行更稳健的功效测试,结合基于认知状态/诊断的循证共享决策方法,并考虑医疗保健提供系统中的地理/文化差异。
    Evidence supports that older adults with cognitive impairment can reliably communicate their values and choices, even as cognition may decline. Shared decision-making, including the patient, family members, and healthcare providers, is critical to patient-centered care. The aim of this scoping review was to synthesize what is known about shared decision-making in persons living with dementia. A scoping review was completed in PubMed, CINAHL, and Web of Science. Keywords included content areas of dementia and shared decision-making. Inclusion criteria were as follows: description of shared or cooperative decision making, cognitively impaired patient population, adult patient, and original research. Review articles were excluded, as well as those for which the formal healthcare provider was the only team member involved in the decision-making (e.g., physician), and/or the patient sample was not cognitively impaired. Systematically extracted data were organized in a table, compared, and synthesized. The search yielded 263 non-duplicate articles that were screened by title and abstract. Ninety-three articles remained, and the full text was reviewed; 32 articles were eligible for this review. Studies were from across Europe (n = 23), North America (n = 7), and Australia (n = 2). The majority of the articles used a qualitative study design, and 10 used a quantitative study design. Categories of similar shared decision-making topics emerged, including health promotion, end-of-life, advanced care planning, and housing decisions. The majority of articles focused on shared decision-making regarding health promotion for the patient (n = 16). Findings illustrate that shared decision-making requires deliberate effort and is preferred among family members, healthcare providers, and patients with dementia. Future research should include more robust efficacy testing of decision-making tools, incorporation of evidence-based shared decisionmaking approaches based on cognitive status/diagnosis, and consideration of geographical/cultural differences in healthcare delivery systems.
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  • 文章类型: Journal Article
    目的:虽然人工智能(AI)和虚拟现实(VR)技术在医学领域的发展意义重大,它们在医患沟通中的应用是有限的。由于沟通风险是一个挑战,然而必不可少的,手术中共享决策(SDM)的组成部分,这篇综述旨在探讨人工智能和虚拟现实在医患手术风险沟通中的应用。
    方法:搜索策略由医学图书馆员准备,并在7个电子数据库中运行。文章由单个审稿人筛选。包含的文章描述了适用于患者之间手术风险沟通的AI或VR的使用,他们的家人,还有手术团队.
    结果:从收集的4576篇文章中,64人被纳入本审查。确定的应用程序包括决策支持工具(15,23.4%),量身定制的患者信息资源(13,20.3%),治疗可视化工具(17,26.6%)和沟通培训平台(19,29.7%)。总的来说,这些技术增强了风险沟通和SDM,尽管评价方法存在异质性。然而,需要改进这些干预措施的可用性和多功能性。
    结论:关于应用AI和VR促进医患手术风险沟通的文献正在兴起。
    结论:AI和VR具有将医患之间的手术风险沟通个性化到个体患者和医疗保健环境的潜力。
    OBJECTIVE: While the development of artificial intelligence (AI) and virtual reality (VR) technologies in medicine has been significant, their application to doctor-patient communication is limited. As communicating risk is a challenging, yet essential, component of shared decision-making (SDM) in surgery, this review aims to explore the current use of AI and VR in doctor-patient surgical risk communication.
    METHODS: The search strategy was prepared by a medical librarian and run in 7 electronic databases. Articles were screened by a single reviewer. Included articles described the use of AI or VR applicable to surgical risk communication between patients, their families, and the surgical team.
    RESULTS: From 4576 collected articles, 64 were included in this review. Identified applications included decision support tools (15, 23.4%), tailored patient information resources (13, 20.3%), treatment visualization tools (17, 26.6%) and communication training platforms (19, 29.7%). Overall, these technologies enhance risk communication and SDM, despite heterogeneity in evaluation methods. However, improvements in the usability and versatility of these interventions are needed.
    CONCLUSIONS: There is emerging literature regarding applications of AI and VR to facilitate doctor-patient surgical risk communication.
    CONCLUSIONS: AI and VR hold the potential to personalize doctor-patient surgical risk communication to individual patients and healthcare contexts.
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  • 文章类型: Journal Article
    Older women are increasingly undergoing surgery for gynaecological malignancies. Although survival data is available other outcomes such as functional recovery are less well described. This systematic review and narrative synthesis describes functional recovery after gynaeoncology surgery with respect to baseline characteristics.
    Systematic search of MEDLINE and EMBASE databases and Cochrane Library between 1974 to 2018. Two reviewers independently reviewed abstracts/papers for inclusion against the following criteria: Results analysed and presented using narrative synthesis.
    Fifteen studies identified (8 Endometrial, 2 Ovarian, 2 Vulval, 3 mixed cancer types). 1/15 used a standalone functional assessment tool, 14/15 used Health-Related Quality of Life tools (EORTC QLQ C30 (8), FACT-G (3), SF-36 (3)) comprising items describing function. More studies showed full recovery to baseline (n = 13) than incomplete recovery (n = 2). Four studies reported a negative association between older age and functional trajectory. Recovery was more likely and occurred faster in minimally-invasive surgery. Few studies reported baseline characteristics including cognition, frailty or comorbidities and none examined associations with functional recovery.
    There is inadequate data on functional recovery of older women following gynaeoncology surgery. Future studies are needed to identify factors associated with poorer/better outcomes. This may enable identification of opportunities for risk reduction, improve equity of access and better shared-decision making.
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  • 文章类型: Journal Article
    Implementation of person-centred care has been widely advocated across various health settings and patient populations, including recent policy for child and family services. Nonetheless, evidence suggests that service users are rarely involved in decision-making, whilst their preferences and goals may be often unheard. The aim of the present research was to systematically review factors influencing person-centred care in mental health services for children, young people and families examining perspectives from professionals, service users and carers. This was conducted according to best practice guidelines, and seven academic databases were searched. Overall, 23 qualitative studies were included. Findings from the narrative synthesis of the facilitators and barriers are discussed in light of a recently published systematic review examining person-centred care in mental health services for adults. Facilitators and barriers were broadly similar across both settings. Training professionals in person-centred care, supporting them to use it flexibly to meet the unique needs of service users whilst also being responsive to times when it may be less appropriate and improving both the quantity and quality of information for service users and carers are key recommendations to facilitate person-centred care in mental health services with children, young people and families. Copyright © 2016 John Wiley & Sons, Ltd.
    UNASSIGNED: As research shows, children and young people are rarely actively involved in their treatment within mental health services. This is despite a strong recent emphasis on providing care within child and young people mental health services according to person-centred principles. Still, there is little known about factors affecting provision of person-centred care with this population. As found by the current study, the most commonly reported factors affecting provision of person-centred care were information sharing (in an appropriate amount and at a right time), listening, respecting and validating, quality of relationship and support, capacity of children and young people to be involved in their care, parental involvement and shortage of resources. These factors were cited as both facilitators and barriers and were found to be universally important by service users, their carers and professional working at the services. The key factors were broadly similar to those reported among adults, particularly regarding information sharing/communication, capacity of service users to be involved and available resources. The main difference was related to a more complex role of a carer in children/young people services. The key recommendations of the review to improve provision of person-centred care are providing professionals with more training in using the approach, supporting them to use it flexibly to meet the unique needs of service users whilst also being responsive to times when it may be less appropriate and improving both the quantity and quality of information for service users.
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