背景:在患者护理中,对数字医疗工具的需求正在增长,以实现远程服务并提高患者的参与度。患有慢性病的人通常有多种健康问题,并建议采取长期后续行动,以满足他们的需求并能够获得适当的支持。用于预先准备的数字工具可以提高时间效率,并在访问期间指导患者的优先事项。
目的:本研究旨在开发一种数字预测工具,并探索潜在的最终用户的感知,以中风参与式方法为例。
方法:数字工具是根据服务设计原则开发和原型制作的,由定性参与者数据和专家小组的反馈提供信息。所有特征都在与包括患者伙伴的团队的研讨会中进行处理。由此产生的工具提出了有关健康问题和健康信息的问题。研究参与者是从瑞典的门诊诊所和患者组织招募的中风患者。并行进行开发和数据收集。对于概念化,最初的原型是基于卒中后检查表和研究。焦点小组探讨了需求和相关性,我们使用网络调查和个人访谈来探索感知的效用,易用性,和接受。按照框架方法对数据进行主题分析。
结果:发展过程包括22名参与者(9名女性),中位年龄为59岁(42-83岁),卒中后中位年龄为51个月(4-228个月)。参与者对使用该工具感到满意或非常满意,并建议将其用于临床实践。基于焦点小组数据(n=12)和访谈(n=10)构建了三个主要主题。首先,有价值的可获取信息,阐明了对信息确认经验的需求,促进回应,并邀请参与他们的护理。对信息的修改反过来重新配置了他们的期望。第二,回答的实用性和复杂性证实了这些问题是相关的和可理解的。一些与会者认为答案选项有限,并建议为自由文本提供更多空间。第三,捕捉需求和工具的价值突出了该工具的潜力,以确定健康问题和鼓励进一步对话的重要性。由此产生的数字工具,Strokehälsa[Strokehealth]1.0版现已纳入国家卫生平台。
结论:参与式工具开发方法产生了一个预先的数字工具,研究组认为该工具是有用的。这里使用的整体开发过程,整合了健康信息,已验证的问题,和数字功能,提供了一个可能适用于其他长期条件的示例。除了识别护理需求的潜力之外,该工具提供确认体验的信息,并支持回答工具中的问题。该工具是自由共享的,以适应不同的环境。
背景:researchweb236341;https://www.researchweb.org/is/vgr/project/236341。
BACKGROUND: In patient care, demand is growing for digital health tools to enable remote services and enhance patient involvement. People with chronic conditions often have multiple health problems, and long-term follow-up is recommended to meet their needs and enable access to appropriate support. A digital tool for previsit preparation could enhance time efficiency and guide the conversation during the visit toward the patient\'s priorities.
OBJECTIVE: This study aims to develop a digital previsit tool and explore potential end user\'s perceptions, using a participatory approach with stroke as a
case example.
METHODS: The digital tool was developed and prototyped according to service design principles, informed by qualitative participant data and feedback from an expert panel. All features were processed in workshops with a team that included a patient partner. The resulting tool presented questions about health problems and health information. Study participants were people with stroke recruited from an outpatient clinic and patient organizations in Sweden. Development and data collection were conducted in parallel. For conceptualization, the initial prototype was based on the Post-Stroke Checklist and research. Needs and relevance were explored in focus groups, and we used a web survey and individual interviews to explore perceived utility, ease of use, and acceptance. Data were thematically analyzed following the Framework Method.
RESULTS: The development process included 22 participants (9 women) with a median age of 59 (range 42-83) years and a median of 51 (range 4-228) months since stroke. Participants were satisfied or very satisfied with using the tool and recommended its use in clinical practice. Three main themes were constructed based on focus group data (n=12) and interviews (n=10). First, valuable accessible information illuminated the need for information to confirm experiences, facilitate responses, and invite engagement in their care. Amendments to the information in turn reconfigured their expectations. Second, utility and complexity in answering confirmed that the questions were relevant and comprehensible. Some participants perceived the answer options as limiting and suggested additional space for free text. Third, capturing needs and value of the tool highlighted the tool\'s potential to identify health problems and the importance of encouraging further dialog. The resulting digital tool, Strokehälsa [Strokehealth] version 1.0, is now incorporated into a national health platform.
CONCLUSIONS: The participatory approach to tool development yielded a previsit digital tool that the study group perceived as useful. The holistic development process used here, which integrated health information, validated questions, and digital functionality, offers an example that could be applicable in the context of other long-term conditions. Beyond its potential to identify care needs, the tool offers information that confirms experiences and supports answering the questions in the tool. The tool is freely shared for adaptation in different contexts.
BACKGROUND: researchweb 236341; https://www.researchweb.org/is/vgr/project/236341.