PDF(Pubmed)
Abstract：
The extent of shared decision making (SDM) use in the care of Black patients is limited. We explored preferences, needs, and challenges of Black patients to enhance SDM offerings.
We performed interviews with 32 Black patients receiving type 2 diabetes care in safety-net primary care practices caring predominantly for Black people.
The following 4 themes emerged: preference for humanistic communication, need to account for the role of family in decision making, need for medical information sharing, and mistrust of clinicians.
Given the dearth of research on SDM among ethnic and racial minorities, this study offers patient-perspective recommendations to improve SDM offerings for Black patients in primary care settings. To enhance SDM with Black patients, acknowledgment of the importance of storytelling as a strategy, to place medical information in a context that makes it meaningful and memorable, is recommended. Triadic SDM, in which family members are centrally involved in decision making, is preferred over classical dyadic SDM. There is a need to reconsider the universalism assumption underlying contemporary SDM models and the relevancy of current SDM practices that were developed mostly without the feedback of participants of ethnic, racial, and cultural minorities.Annals \"Online First\" article.
We performed interviews with 32 Black patients receiving type 2 diabetes care in safety-net primary care practices caring predominantly for Black people.
The following 4 themes emerged: preference for humanistic communication, need to account for the role of family in decision making, need for medical information sharing, and mistrust of clinicians.
Given the dearth of research on SDM among ethnic and racial minorities, this study offers patient-perspective recommendations to improve SDM offerings for Black patients in primary care settings. To enhance SDM with Black patients, acknowledgment of the importance of storytelling as a strategy, to place medical information in a context that makes it meaningful and memorable, is recommended. Triadic SDM, in which family members are centrally involved in decision making, is preferred over classical dyadic SDM. There is a need to reconsider the universalism assumption underlying contemporary SDM models and the relevancy of current SDM practices that were developed mostly without the feedback of participants of ethnic, racial, and cultural minorities.Annals \"Online First\" article.
摘要：
目的：在Black患者的护理中使用共享决策（SDM）的范围有限。我们探索了偏好，需要,以及黑人患者在增强SDM产品方面的挑战。
方法：我们对32名接受2型糖尿病治疗的黑人患者进行了访谈，这些患者采用了主要照顾黑人的安全网初级护理实践。
结果：出现了以下4个主题：偏爱人文交流，需要考虑家庭在决策中的作用，需要医疗信息共享，和对临床医生的不信任。
结论：鉴于在少数民族和少数种族中缺乏对SDM的研究，本研究提供了从患者角度出发的建议,以改善初级医疗机构中Black患者的SDM服务.为了增强黑人患者的SDM,承认讲故事作为一种策略的重要性，将医疗信息置于一个有意义和令人难忘的环境中，是推荐的。三联SDM,家庭成员集中参与决策，优于经典二进SDM。有必要重新考虑当代SDM模型的普遍性假设，以及当前SDM实践的相关性，这些实践大多是在没有种族参与者反馈的情况下开发的，种族,文化少数民族。
方法：我们对32名接受2型糖尿病治疗的黑人患者进行了访谈，这些患者采用了主要照顾黑人的安全网初级护理实践。
结果：出现了以下4个主题：偏爱人文交流，
结论：鉴于在少数民族和少数种族中缺乏对SDM的研究，
