背景:老花眼矫正人工晶状体(PCIOL)植入是希望独立眼镜的白内障手术患者的一种流行治疗选择。这项研究旨在通过分析患者社交媒体帖子来了解患者对PCIOL的看法和结果。
方法:这是一项非干预性回顾性研究,使用预定义的搜索字符串来识别公开可用的社交媒体数据,讨论患者对七个PCIOL的看法和结果(三个三焦,一个具有连续视觉范围的多焦点,和三个扩展的焦深[EDOF]PCIOL)。从Reddit搜索相关帖子,YouTube,和Facebook和病人论坛病人。info,Medicine.net,Optiker-Forum,和Medizin论坛从2020年9月到2022年10月以四种语言(英语,德语,法语,和西班牙语)。
结果:共包括2237个帖子,全部用英语,68%的帖子被确定在患者身上。info.患者讨论最多的主题是视力质量(占总职位的69%),PCIOL植入后的患者体验(30%),PCIOL植入前患者的感知(26%),视力障碍(24%)。讨论最多的PCIOL是Vivity®(占总员额的58%),PanOptix®(38%),Synergy®(26%),和Symfony®(13%)。患者对PCIOL的感知最常受到医疗保健专业人员的影响,在线阅读,和在线视频(31%,18%,15%的帖子,分别)。共有215个帖子(占总数的10%)讨论了PCIOL手术后的眼镜使用:用于EDOF和三焦/多焦PCIOL,讨论眼镜使用的帖子中有37%和56%表示不戴眼镜,分别。共有537个帖子讨论了视觉障碍:光环/环(66%)和星爆(36%)是所有镜片类型中讨论最多的视觉障碍。PCIOL植入后不戴眼镜似乎是患者满意度的关键驱动因素。
结论:社交媒体提供了丰富的患者感知信息来源,经验,和PCIOL的总体满意度,可用于补充和指导收集通过对照试验产生的进一步证据。
老花眼是作为自然衰老过程的一部分的近视力逐渐丧失,这通常在40岁左右变得很明显。老花眼会降低一个人的自尊心,生活质量,工作效率,和社会互动。老花眼可以使用多种治疗方法进行矫正,包括手术。使用老花眼矫正人工晶状体(PCIOL)的白内障手术需要用合成晶状体替换患者的自然晶状体以改善视力。社交媒体收听正在成为一种了解疾病及其治疗如何直接影响患者的流行方法。患者在社交媒体上表达的想法和意见被认为反映了患者自发的观点,并且可能比传统研究更接近地反映患者在现实世界中的声音。在这项研究中,我们检查了老花眼患者的社交媒体帖子,以了解他们对PCIOL的看法和经验.患者讨论的主要主题是思想,问题,以及在进行PCIOL手术之前的担忧,PCIOL手术后的患者体验。患者描述,如果他们的独立视力得到改善,PCIOL手术后会很高兴,包括他们使用电子设备的能力。如果手术后仍然需要戴眼镜或视力障碍,患者的满意度会降低,特别是如果它影响日常活动,如夜间驾驶。社交媒体平台是关于患者对PCIOL的感知和体验的丰富信息来源;这些信息可用于补充和指导通过对照试验产生的进一步证据的收集。
BACKGROUND: Presbyopia-correcting intraocular lens (PCIOL) implantation is a popular treatment option for cataract surgery patients who desire spectacle independence. This
study aimed to understand patient perception and outcomes with PCIOLs by analyzing patient social media posts.
METHODS: This was a non-interventional retrospective
study that used predefined search strings to identify publicly available social media data discussing patient perceptions and outcomes with seven PCIOLs (three trifocal, one multifocal with continuous range of vision, and three extended depth-of-focus [EDOF] PCIOLs). Relevant posts were searched from Reddit, YouTube, and Facebook and patient forums Patient.info, Medicine.net, Optiker-Forum, and Medizin Forum from September 2020 to October 2022 in four languages (English, German, French, and Spanish).
RESULTS: A total of 2237 posts were included, all in English, with 68% of posts identified on Patient.info. The themes most discussed by patients were quality of vision (69% of total posts), patient experience after PCIOL implantation (30%), patient perception before PCIOL implantation (26%), and visual disturbances (24%). Most discussed PCIOLs were Vivity® (58% of total posts), PanOptix® (38%), Synergy® (26%), and Symfony® (13%). Patient perception of PCIOLs was most frequently influenced by healthcare professionals, online reading, and online videos (31%, 18%, and 15% of posts, respectively). A total of 215 posts (10% of total) discussed glasses use after PCIOL surgery: for EDOF and trifocal/multifocal PCIOLs, 37% and 56% of posts discussing glasses use stated being glasses free, respectively. A total of 537 posts discussed visual disturbances: halos/rings (66%) and starbursts (36%) were the most discussed visual disturbances for all lens types. Being glasses free after PCIOL implantation appeared to be a key driver of patient satisfaction.
CONCLUSIONS: Social media provides a rich source of information on patient perception, experience, and overall satisfaction of PCIOLs that can be used to complement and guide the collection of further evidence generated through controlled trials.
Presbyopia is the gradual loss of near vision as part of the natural aging process, which typically becomes evident around 40 years of age. Presbyopia can lower a person’s self-esteem, quality of life, work productivity, and social interactions. Presbyopia can be corrected using a variety of treatments, including surgery. Cataract surgery with a presbyopia-correcting intraocular lens (PCIOL) entails replacing a patient’s natural lens with a synthetic lens to improve vision. Social media listening is becoming a popular method to understand how diseases and their treatments affect patients firsthand. The thoughts and opinions expressed by patients on social media are believed to reflect spontaneous patient perspectives and can potentially reflect the patient voice in the real-world setting closer than traditional research. In this
study, we examined social media posts from patients with presbyopia to understand their perceptions and experiences with PCIOLs. The main topics discussed by patients were thoughts, questions, and concerns before pursuing PCIOL surgery, and patient experiences after PCIOL surgery. Patients described being happy after PCIOL surgery if their unaided vision improved, including their ability to use electronic devices. Patients were less satisfied if they still needed to wear glasses after surgery or if they experienced disturbances in their vision, particularly if it affected daily activities such as nighttime driving. Social media platforms are a rich source of information on patient perception and experience of PCIOLs; this information can be used to complement and guide the collection of further evidence generated through controlled trials.