Public Reporting of Healthcare Data

医疗保健数据的公开报告
  • 文章类型: Journal Article
    UNASSIGNED:世界卫生组织(WHO)欧洲区域的政府已将报告COVID-19数据的仪表板列为优先事项。在公共报告中无处不在地使用仪表板是一种新颖的现象。
    UNASSIGNED:这项研究探讨了新冠肺炎在大流行第一年的发展,并确定了常见的障碍,推动者和经验教训的团队负责他们的发展。
    UNASSIGNED:我们应用了多种方法来识别和招募COVID-19仪表板团队,使用目的,配额抽样方法。半结构化小组访谈于2021年4月至6月进行。使用详细的编码和主题分析,我们从访谈数据中得出描述性和解释性主题。2021年6月,与研究参与者举行了一次验证研讨会。
    UNASIGNED:80名告密者参与,代表世卫组织欧洲区域33个国家COVID-19仪表板小组。大多数仪表板是在大流行的头几个月迅速启动的,2020年2月至5月。的紧迫性,紧张的工作量,人力资源有限,数据和隐私限制以及公众审查是最初发展阶段的共同挑战。确定了与障碍或推动者相关的主题,关于大流行前的背景,流行病本身,人员、流程和软件,数据和用户。围绕简单主题出现的教训,信任,伙伴关系,软件、数据和更改。
    未经评估:COVID-19仪表板是以一种边做边学的方法开发的。小组的经验表明,最初的准备不足被高级别政治认可所抵消,团队的专业精神,通过商业软件解决方案加速数据改进和即时支持。为了充分利用仪表板的全部潜力来报告健康数据,团队需要投资,国家和泛欧水平。
    UNASSIGNED: Governments across the World Health Organization (WHO) European Region have prioritised dashboards for reporting COVID-19 data. The ubiquitous use of dashboards for public reporting is a novel phenomenon.
    UNASSIGNED: This study explores the development of COVID-19 dashboards during the first year of the pandemic and identifies common barriers, enablers and lessons from the experiences of teams responsible for their development.
    UNASSIGNED: We applied multiple methods to identify and recruit COVID-19 dashboard teams, using a purposive, quota sampling approach. Semi-structured group interviews were conducted from April to June 2021. Using elaborative coding and thematic analysis, we derived descriptive and explanatory themes from the interview data. A validation workshop was held with study participants in June 2021.
    UNASSIGNED: Eighty informants participated, representing 33 national COVID-19 dashboard teams across the WHO European Region. Most dashboards were launched swiftly during the first months of the pandemic, February to May 2020. The urgency, intense workload, limited human resources, data and privacy constraints and public scrutiny were common challenges in the initial development stage. Themes related to barriers or enablers were identified, pertaining to the pre-pandemic context, pandemic itself, people and processes and software, data and users. Lessons emerged around the themes of simplicity, trust, partnership, software and data and change.
    UNASSIGNED: COVID-19 dashboards were developed in a learning-by-doing approach. The experiences of teams reveal that initial underpreparedness was offset by high-level political endorsement, the professionalism of teams, accelerated data improvements and immediate support with commercial software solutions. To leverage the full potential of dashboards for health data reporting, investments are needed at the team, national and pan-European levels.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

       PDF(Pubmed)

  • 文章类型: Journal Article
    背景:在过去十年中,为提高护理质量而发起的国家举措呈指数级增长。公开报道,认证和政府检查是佛兰德(比利时)医院质量的基础。由于缺乏这些国家举措的证据以及有关其可持续性的问题,我们的研究旨在根据国际专家意见,为急诊医院确定可持续的国家质量政策的基石。
    方法:对12名国际知名质量和患者安全专家进行了深入的半结构化访谈,通过目的抽样进行了定性研究。访谈侧重于参与者的观点和他们对未来的建议,可持续质量政策。使用常数比较法,对从数据中生成的主题进行了归纳分析。
    结果:确定了三个主要和五个次要主题,并将其纳入框架,作为国家质量政策的基础。质量文化,质量教育和质量控制的最低要求以及持续学习和改进是该框架的基石。
    结论:是对当前国家政策的补充,这项研究表明,在急诊护理医院中,需要对优质文化给予深刻关注.政策制定者需要为所有医护人员提供一个控制系统和高质量教育的最低要求。必须在每家医院中安装具有数据反馈回路的持续学习和改进模型,以获得可持续的质量体系。该框架可以激励政策制定者进一步制定自下而上的举措,与所有相关利益相关者共同治理,以适应各个医院的背景。
    BACKGROUND: National initiatives launched to improve the quality of care have grown exponentially over the last decade. Public reporting, accreditation and governmental inspection form the basis for quality in Flemish (Belgian) hospitals. Due to the lack of evidence for these national initiatives and the questions concerning their sustainability, our research aims to identify cornerstones of a sustainable national quality policy for acute-care hospitals based on international expert opinion.
    METHODS: A qualitative study was conducted using in-depth semi-structured interviews with 12 renowned international quality and patient safety experts selected by purposive sampling. Interviews focussed on participants\' perspectives and their recommendations for a future, sustainable quality policy. Inductive analysis was carried out with themes being generated from the data using the constant comparison method.
    RESULTS: Three major and five minor themes were identified and integrated into a framework as a basis for national quality policies. Quality culture, minimum requirements for quality education and quality control as well as continuous learning and improvement act as cornerstones of this framework.
    CONCLUSIONS: Complementary to the current national policy, this study demonstrated the need for profound attention to quality cultures in acute-care hospitals. Policymakers need to provide a control system and minimum requirements for quality education for all healthcare workers. A model for continuous learning and improvement with data feedback loops has to be installed in each hospital to obtain a sustainable quality system. This framework can inspire policymakers to further develop bottom-up initiatives in co-governance with all relevant stakeholders adapted to individual hospitals\' context.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

    求助全文

  • 文章类型: Letter
    暂无摘要。
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

       PDF(Sci-hub)

       PDF(Pubmed)

  • 文章类型: Journal Article
    背景:需要基于证据的干预措施来治疗烧伤伤口感染(BWI)。证据综合受到用于报告各试验BWI的指标异质性的限制。商定的一套最低指标将有助于BWI的一致报告。烧伤感染共识研究旨在就BWI的核心指标集(CIS)达成专家共识。
    方法:TheCIS是通过开发从系统评价和专家输入中确定的一长串BWI指标而建立的。在Delphi调查中,英国专家参与者根据日常实践中的使用情况对指标进行了评级,对BWI患者的诊断和观察频率的重要性。如果≥75%的参与者认为这对诊断很重要并在日常实践中使用,则将指标包括在CIS中。≥50%的参与者认为它在BWI患者中经常观察到。
    结果:从系统评价中确定了一百九十五个指标,并通过合并具有相同含义的项目减少到29个调查项目。75名英国专家参加了德尔福调查。在进行了一轮调查和与专家小组的共识会议之后,CIS中包括四个项目:发热,蔓延的红斑,白细胞计数的变化,和病原微生物的存在。
    结论:为了促进证据综合,单一国家的系统,采用专家知情的方法开发aCIS,以便在报告BWI作为结局的试验中一致报告.未来的工作需要国际专家对CIS进行验证。
    BACKGROUND: Evidence-based interventions are needed to treat burn wound infection (BWI). Evidence syntheses have been limited by heterogeneity of indicators used to report BWI across trials. Consistent reporting of BWI would be facilitated by an agreed minimum set of indicators. The Infection Consensus in Burns study aimed to achieve expert consensus about a core indicator set (CIS) for BWI.
    METHODS: The CIS was established through development of a long list of BWI indicators identified from a systematic review and expert input. In a Delphi survey, UK expert participants rated the indicators according to use in everyday practice, importance for diagnosis and frequency of observation in patients with BWI. Indicators were included in the CIS if ≥75% of participants agreed it was important for diagnosis and used in everyday practice, and ≥50% of participants rated it as frequently observed in patients with BWI.
    RESULTS: One hundred and ninety-five indicators were identified from the systematic review and reduced to 29 survey items through merging of items with the same meaning. Seventy-five UK experts participated in the Delphi survey. Following a single survey round and a consensus meeting with an expert panel, four items were included in the CIS: pyrexia, spreading erythema, change in white cell count, and presence of pathogenic microbes.
    CONCLUSIONS: To facilitate evidence synthesis, a single-country systematic, expert-informed approach was taken to develop a CIS to be reported consistently across trials reporting BWI as an outcome. Future work requires verification of the CIS with international experts.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

       PDF(Sci-hub)

  • 文章类型: Journal Article
    Social distancing and shielding measures have been put in place to reduce social interaction and slow the transmission of the coronavirus disease (COVID-19). For older people, self-isolation presents particular challenges for mental health and social relationships. As time progresses, continued social distancing could have a compounding impact on these concerns.
    This project aims to provide a tool for older people and their families and peers to improve their well-being and health during and after regulated social distancing. First, we will evaluate the tool\'s feasibility, acceptability, and usability to encourage positive nutrition, enhance physical activity, and enable virtual interaction while social distancing. Second, we will be implementing the app to provide an online community to assist families and peer groups in maintaining contact with older people using goal setting. Anonymized data from the app will be aggregated with other real-world data sources to develop a machine learning algorithm to improve the identification of patients with COVID-19 and track for real time use by health systems.
    Development of this project is occurring at the time of publication, and therefore, a case study design was selected to provide a systematic means of capturing software engineering in progress. The app development framework for software design was based on agile methods. The evaluation of the app\'s feasibility, acceptability and usability shall be conducted using Public Health England\'s guidance on evaluating digital health products, Bandura\'s model of health promotion, the Reach Effectiveness Adoption Implementation Maintenance (RE-AIM) framework and the Nonadoption, Abandonment and Challenges to the Scale-up, Spread and Suitability (NASSS) framework.
    Making use of a pre-existing software framework for health behavior change, a proof of concept was developed, and a multistage app development and deployment for the solution was created. Grant submissions to fund the project and study execution have been sought at the time of publication, and prediscovery iteration of the solution has begun. Ethical approval for a feasibility study design is being sought.
    This case study lays the foundations for future app development to combat mental and societal issues arising from social distancing measures. The app will be tested and evaluated in future studies to allow continuous improvement of the app. This novel contribution will provide an evidence-based exemplar for future app development in the space of social isolation and loneliness.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

       PDF(Pubmed)

  • 文章类型: Comparative Study
    Several systematic reviews (SRs) have been conducted on the COVID-19 outbreak, which together with the SRs on previous coronavirus outbreaks, form important sources of evidence for clinical decision and policy making. Here, we investigated the methodological quality of SRs on COVID-19, severe acute respiratory syndrome (SARS), and Middle East respiratory syndrome (MERS). Online searches were performed to obtain SRs on COVID-19, SARS, and MERS. The methodological quality of the included SRs was assessed using the AMSTAR-2 tool. Descriptive statistics were used to present the data. In total, of 49 SRs that were finally included in our study, 17, 16, and 16 SRs were specifically on COVID-19, MERS, and SARS, respectively. The growth rate of SRs on COVID-19 was the highest (4.54/month) presently. Of the included SRs, 6, 12, and 31 SRs were of moderate, low, and critically low quality, respectively. SRs on SARS showed the optimum quality among the SRs on the three diseases. Subgroup analyses showed that the SR topic (P < .001), the involvement of a methodologist (P < .001), and funding support (P = .046) were significantly associated with the methodological quality of the SR. According to the adherence scores, adherence to AMSTAR-2 items sequentially decreased in SRs on SARS, MERS, and COVID-19. The methodological quality of most SRs on coronavirus outbreaks is unsatisfactory, and those on COVID-19 have higher risks of poor quality, despite the rapid actions taken to conduct SRs. The quality of SRs should be improved in the future. Readers must exercise caution in accepting and using the results of these SRs.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

       PDF(Sci-hub)

       PDF(Pubmed)

  • 文章类型: Journal Article
    审判登记得到广泛认可,因为它不仅被认为是为了提高报告的透明度和质量,而且还有助于防止结果报告偏见,被称为具体报道,可能扭曲对结果的解释,从而误导读者。我们计划调查最近发表的针灸随机对照试验(RCT)的当前注册状态,前瞻性注册试验中的结果报告偏倚,以及针灸随机对照试验中自旋和方法学因素的存在之间的关联。
    在PubMed中搜索了近5年(2013年1月至2017年12月)以英文发布的针灸随机对照试验,Cochrane中央控制试验登记册,和EMBASE。出版物和审判登记册中确定的审判登记记录被分类为前瞻性登记,追溯注册,或未注册。确定了主要结果,并将结果的方向判断为具有统计学意义(阳性)或无统计学意义(阴性)。我们比较了已注册和已发表的主要结果,以评估结果报告偏倚,并评估差异是否有利于具有统计学意义的结果。然后确定了已发表报告中的旋转频率和策略,其主要结果具有统计学意义。我们还分析了试验注册状态是否与方法因素的旋转和质量有关。
    在包含的322项RCT中,41.9%(n=135)为前瞻性登记。在64项前瞻性登记和指定主要结局的研究中,25项试验在注册和发表的主要结果之间存在差异,其中60%(15项试验)赞成具有统计学意义的发现。在指定主要结果的169项研究中,试验注册状态与结果方向无关,即,统计上显著或不显著。在78项研究中,有56.4%的研究发现了自旋,其主要结局无统计学意义,并且声称疗效不考虑统计学上无统计学意义的主要结局是最常见的自旋策略。有和没有旋转的研究之间的试验注册状态没有统计学差异。
    虽然随着时间的推移,试用注册似乎有所改善,注册记录和出版物的主要结果通常不一致,倾向于支持有统计学意义的研究结果和旋转在主要结局无统计学意义的研究中很常见.应该提醒该领域的期刊编辑和研究人员注意仍然普遍存在的报道偏见和旋转。
    Trial registration is widely endorsed as it is considered not only to enhance transparency and quality of reporting but also to help safeguard against outcome reporting bias and probably spin, known as specific reporting that could distort the interpretation of results thus mislead readers. We planned to investigate the current registration status of recently published randomized controlled trials (RCTs) of acupuncture, outcome reporting bias in the prospectively registered trials, and the association between trial registration and presence of spin and methodological factors in acupuncture RCTs.
    Acupuncture RCTs published in English in recent 5 years (January 2013 to December 2017) were searched in PubMed, Cochrane Central Register of Controlled Trials, and EMBASE. Trial registration records identified in the publications and trial registries were classified into prospectively registered, retrospectively registered, or unregistered. Primary outcomes were identified and the direction of the results was judged as statistically significant (positive) or statistically nonsignificant (negative). We compared registered and published primary outcomes to assess outcome reporting bias and assessed whether discrepancies favored statistically significant outcomes. Frequency and strategies of spin in published reports with statistically nonsignificant results for primary outcomes were then identified. We also analyzed whether the trial registration status was associated with spin and quality of methodological factors.
    Of the 322 included RCTs, 41.9% (n = 135) were prospectively registered. Among 64 studies that were prospectively registered and specified primary outcomes, 25 trials had the discrepancies between the registered and published primary outcomes and 60% of them (15 trials) favored the statistically significant findings. Among 169 studies that specified primary outcomes, trial registration status was not associated with the direction of results, i.e., statistically significant or not. Spin was identified in 56.4% out of 78 studies with statistically nonsignificant primary outcomes and claiming efficacy with no consideration of statistically nonsignificant primary outcomes was the most common strategy for spin. Trial registration status was not statistically different between studies with and without spin.
    While trial registration seemed to have improved over time, primary outcomes in registered records and publications were often inconsistent, tending to favor statistically significant findings and spin was common in studies with statistically nonsignificant primary outcomes. Journal editors and researchers in this field should be alerted to still prevalent reporting bias and spin.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

       PDF(Sci-hub)

       PDF(Pubmed)

  • 文章类型: Journal Article
    质量改进(QI)可能有助于避免或减轻欠佳护理的风险,但在医疗保健文献中经常很少报道。我们旨在确定围手术期护理领域对报告QI的影响,以期为医疗保健报告QI的改进提供信息。
    定性访谈研究。
    澳大利亚的医疗保健和学术组织,欧洲和北美。
    参与或影响出版物的利益相关者,围手术期护理中QI研究报告的撰写或消费。
    来自六个国家的42名参与者参加了这项研究。参与者包括15位作者(撰写QI报告的作者),12位QI报告的消费者(在实践中应用QI研究的从业者),11位期刊编辑和4位报告指南作者。与会者确定了实现高质量QI报告的三个主要挑战。首先,QI报告的广泛范围-从小型本地项目到跨不同学科的多站点研究-导致关于QI工作应在何处发布的不确定性。第二,背景是QI干预成功的基础,但很难以支持复制和发展的方式报告。第三,报告受到近端影响(如没有时间写QI)和远端影响的负面影响,结构影响(如生物医学研究报告格式和内容的规范),导致QI调查结果报告不完整。
    对QI的不同术语和理解,连同现有的报告规范和充分而简洁地捕捉上下文的挑战,应对报告QI的挑战。我们提出改进建议。
    Quality improvement (QI) may help to avert or mitigate the risks of suboptimal care, but it is often poorly reported in the healthcare literature. We aimed to identify the influences on reporting QI in the area of perioperative care, with a view to informing improvements in reporting QI across healthcare.
    Qualitative interview study.
    Healthcare and academic organisations in Australia, Europe and North America.
    Stakeholders involved in or influencing the publication, writing or consumption of reports of QI studies in perioperative care.
    Forty-two participants from six countries took part in the study. Participants included 15 authors (those who write QI reports), 12 consumers of QI reports (practitioners who apply QI research in practice), 11 journal editors and 4 authors of reporting guidelines. Participants identified three principal challenges in achieving high-quality QI reporting. First, the broad scope of QI reporting-ranging from small local projects to multisite research across different disciplines-causes uncertainty about where QI work should be published. Second, context is fundamental to the success of a QI intervention but is difficult to report in ways that support replication and development. Third, reporting is adversely affected by both proximal influences (such as lack of time to write up QI) and more distal, structural influences (such as norms about the format and content of biomedical research reporting), leading to incomplete reporting of QI findings.
    Divergent terminology and understandings of QI, along with existing reporting norms and the challenges of capturing context adequately yet succinctly, make for challenges in reporting QI. We offer suggestions for improvement.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

       PDF(Sci-hub)

       PDF(Pubmed)

公众号