Personal Autonomy

个人自主权
  • 文章类型: Journal Article
    在COVID-19大流行期间,生物伦理学的担忧被提出,甚至出现了“生物伦理学的复兴”。“在这项工作中,我们回顾了西班牙作者在宣布大流行后三年内发表的与生物伦理问题有关的科学文章.选择了70种出版物。在他们当中,引起争论最多的话题是卫生资源使用的优先次序。达成共识,排除了年龄可以被视为医疗保健或可能进入ICU的唯一排除标准。回顾了特别照顾最脆弱的人并使护理适应每个患者的状况而不排除任何人的重要性。其他相关主题是自主性与共同利益之间的对比,免疫护照,疫苗接种,严谨的研究和结果的发表,卫生人员的专业精神,错误信息,护理疗养院,远程医疗,以及锻炼美德的重要性。在经历了脆弱和团结的需要之后,许多作品提高了更好地克服大流行的愿望和可能性。
    During the COVID-19 pandemic, bioethical concerns were raised and there was even a ″resurgence of bioethics. ″ In this work, we review the scientific articles published by Spanish authors in relation to bioethical issues in the three years following the declaration of the pandemic. Seventy publications have been selected. Of all of them, the topic that lent itself to the most debate was that of prioritization in the use of health resources. A consensus was reached that ruled out that age could be considered as a sole exclusion criterion in healthcare or in a possible admission to the ICU. And the importance of taking special care of the most vulnerable and adapting care to the conditions of each patient without excluding anyone was recalled. Other relevant topics were the contrast between autonomy and the common good, the immune passport, vaccination, rigor in research and the publication of results, the professionalism of health personnel, misinformation, care for nursing homes, telemedicine, and the importance of the exercise of virtues. After the experience of both vulnerability and the need to exercise solidarity, many works raise the desire and the possibility of being able to overcome the pandemic being better.
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  • 文章类型: Journal Article
    背景:个人健康监测(PHM)具有增强士兵健康结果的潜力。促进道德上负责任的发展,实施,以及在武装部队中使用PHM,重要的是要意识到PHM的内在伦理维度。为了提高对伦理维度的理解,对现有的关于PHM伦理维度的学术文献进行了范围审查。
    方法:四个书目数据库(Ovid/Medline,Embase.com,ClarivateAnalytics/WebofScience核心合集,和Elsevier/SCOPUS)从成立到2023年6月1日进行了相关文献搜索。如果研究充分解决了PHM的道德层面,并且与军队有关或声称与军队有关,则包括这些研究。经过选择和提取,使用定性专题方法分析数据。
    结果:总共筛选了9,071个参考。经过资格筛选,本综述包括19篇文章。该评论确定并描述了反映军事中PHM道德维度的三个类别:(1)功利主义考虑,(2)基于价值的考虑,(三)监管责任。被确定为关注的四个主要价值观是隐私,安全,信任,和自主性。
    结论:这篇综述表明,武装部队中的PHM主要是从功利主义的角度出发,专注于它的好处,没有对PHM潜在的道德弊端进行明确的批判性审议。此外,该综述强调了一个显著的研究差距,特别是缺乏专门关注PHM伦理维度的实证研究。意识到PHM在军队中固有的伦理层面,包括价值冲突以及如何平衡它们,可以帮助促进道德上负责任的发展,实施,以及在武装部队中使用PHM。
    BACKGROUND: Personal Health Monitoring (PHM) has the potential to enhance soldier health outcomes. To promote morally responsible development, implementation, and use of PHM in the armed forces, it is important to be aware of the inherent ethical dimension of PHM. In order to improve the understanding of the ethical dimension, a scoping review of the existing academic literature on the ethical dimension of PHM was conducted.
    METHODS: Four bibliographical databases (Ovid/Medline, Embase.com, Clarivate Analytics/Web of Science Core Collection, and Elsevier/SCOPUS) were searched for relevant literature from their inception to June 1, 2023. Studies were included if they sufficiently addressed the ethical dimension of PHM and were related to or claimed relevance for the military. After selection and extraction, the data was analysed using a qualitative thematic approach.
    RESULTS: A total of 9,071 references were screened. After eligibility screening, 19 articles were included for this review. The review identifies and describes three categories reflecting the ethical dimension of PHM in the military: (1) utilitarian considerations, (2) value-based considerations, and (3) regulatory responsibilities. The four main values that have been identified as being of concern are those of privacy, security, trust, and autonomy.
    CONCLUSIONS: This review demonstrates that PHM in the armed forces is primarily approached from a utilitarian perspective, with a focus on its benefits, without explicit critical deliberation on PHM\'s potential moral downsides. Also, the review highlights a significant research gap with a specific lack of empirical studies focussing specifically on the ethical dimension of PHM. Awareness of the inherent ethical dimension of PHM in the military, including value conflicts and how to balance them, can help to contribute to a morally responsible development, implementation, and use of PHM in the armed forces.
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  • 文章类型: Journal Article
    目标:自决在恢复澳大利亚原住民福祉中的重要性正在逐渐被理解。几千年来,土著妇女生下了乡村和祖母的传说和妇女的生意促进了地球上最古老的生活文明的生存。殖民之后,然而,土著和托雷斯海峡岛民的孕产妇和围产期护理做法被积极废除,土著人民的自决被摧毁。这对原住民和托雷斯海峡岛民的福祉及其文化和习俗具有重大影响。
    方法:对澳大利亚原住民和托雷斯海峡岛民妇女及其子女的分娩和围产期保健计划研究进行系统评价和荟萃分析的首选报告项目。审查的主要目的是评估项目开发和交付的文化背景,其次要目的是评估方案组成部分的文化适用性。电子数据库SCOPUS,PsycINFO,Medline,我们在2000年至2023年间在澳大利亚以英语发表的同行评审研究中搜索了CINAHL。
    结果:28篇出版物符合纳入标准。纳入研究的方法学特征进行了评估,生育支持特征,围产期护理和连续性护理的特点。总的来说,方案在满足妇女的文化需求方面受到限制,孩子们,个人社区。土著社区在识别,交付,审查方案也很有限。
    结论:研究结果阐明了自决在维持强大的土著文化和为土著妇女制定和提供文化上安全的围产期护理方案方面的重要性,孩子们,和社区。
    结论:供土著和托雷斯海峡岛民使用的方案和服务必须让土著和托雷斯海峡岛民及其社区参与方案规划进程,delivery,和审查。将计划或服务评估为“文化安全”代表服务用户根据其对该计划或服务的经验最适当地做出的决定。
    OBJECTIVE: The importance of self-determination in restoring the wellbeing of Australian First Nations peoples is becoming understood. For thousands of years, Aboriginal women gave birth on Country and Grandmothers\' Lore and Women\'s Business facilitated the survival of the oldest living civilisations on earth. Following colonisation, however, Aboriginal and Torres Strait Islander practices of maternal and perinatal care were actively dismantled, and self-determination by Aboriginal people was destroyed. This had significant implications for the wellbeing of Aboriginal and Torres Strait Islander people and their Cultures and practices.
    METHODS: A Preferred Reporting Items for Systematic Reviews and Meta-Analyses-based systematic review of research about programmes of birthing and perinatal health care for Australian Aboriginal and Torres Strait Islander women and their children was undertaken. The review\'s primary aim was to assess the Cultural context of programme development and delivery, its secondary aim was to assess the Cultural appropriateness of programme components. Electronic databases SCOPUS, PsycINFO, Medline, and CINAHL were searched for peer-reviewed studies published in English in Australia between 2000 and 2023.
    RESULTS: Twenty-eight publications met inclusion criteria. Included studies were assessed for their methodological characteristics, birthing-support characteristics, perinatal care and continuity of care characteristics. Overall, programmes were limited in meeting the Cultural needs of women, children, and individual Communities. The role of Aboriginal Communities in identifying, delivering, and reviewing programmes was also limited.
    CONCLUSIONS: Findings articulate the importance of self-determination in maintaining strong Indigenous Cultures and informing the Culturally appropriate development and delivery of Culturally safe programmes of perinatal care for Aboriginal women, children, and Communities.
    CONCLUSIONS: Programmes and services for use by Aboriginal and Torres Strait Islander people must involve Aboriginal and Torres Strait Islander people and their Communities in processes of programme planning, delivery, and review. The evaluation of a programme or service as \"Culturally safe\" represents a determination that is most appropriately made by service users based on their experience of that programme or service.
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  • 文章类型: Journal Article
    背景:社交媒体是青少年生活中不可或缺的一部分,对青少年的发展和福祉有很大的影响。调查青少年社交媒体使用和福祉的研究令人困惑,因为调查结果不一致,不确定和矛盾。为了解决这个问题,数字福利学者建议研究人员采用一种理论方法,目的是增加研究结果的意义和适用性。因此,这篇评论应用自决理论来调查青少年社交媒体的使用如何支持和挫败基本的心理需求,自主权和能力。满足所有三种心理需求对于最佳发展和福祉至关重要。
    方法:对与青少年社交媒体使用相关的5个数据库进行了系统性检索。应用了系统评价和荟萃分析方案的首选项目(范围界定评价的扩展),导致86项纳入研究。
    结果:青少年社交媒体使用支持和挫败相关性,自主权和能力。调查结果强调了青少年社交媒体使用的不同方面(包括个人内部,人际,情境和环境因素)有助于基本心理需求的满足和挫败。
    结论:这篇综述说明了社交媒体如何既有益又有害于满足基本的人际关系心理需求,自主权和能力。考虑到如果青春期的心理需求得到满足或受挫,这一点很重要,这些影响会在整个成年期产生级联效应。这篇综述指出了文献中的空白,并为未来的研究提供了建议。
    BACKGROUND: Social media is an integral part of adolescents\' lives and has a strong influence on development and wellbeing. Research examining adolescent social media use and wellbeing is confusing as findings are inconsistent, inconclusive and contradictory. To address this issue, digital wellbeing scholars recommend that researchers adopt a theoretical approach with the aim of increasing meaningfulness and applicability of findings. Hence, this review applies self-determination theory to investigate how adolescent social media use supports and thwarts the basic psychological needs of relatedness, autonomy and competence. Satisfaction of all three psychological needs is essential for optimal development and wellbeing.
    METHODS: A scoping review was conducted using a systematic search of five databases relating to adolescent social media use. The preferred items for systematic review and meta-analysis protocols (extension for scoping reviews) was applied resulting in 86 included studies.
    RESULTS: Adolescent social media use both supports and thwarts relatedness, autonomy and competence. The findings highlighted how different aspects of adolescent social media use (including intra-personal, inter-personal, situational and environmental factors) contribute to the satisfaction and frustration of basic psychological needs.
    CONCLUSIONS: This review illustrates how social media can be both beneficial and detrimental to satisfying the basic psychological needs of relatedness, autonomy and competence. This is important when considering that if psychological needs are satisfied or frustrated in adolescence, the repercussions can have a cascading effect throughout adulthood. This review identifies gaps in the literature and provides suggestions for future research.
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  • 文章类型: Journal Article
    这项系统评价旨在检查更高的共病负担,根据合并症指数评估,与认知障碍患者的功能自主性下降有关。搜索在以下数据库中进行:PubMed/MEDLINE,ScienceDirect,科克伦,和Embase。包括横断面和纵向研究,这些研究检查了认知障碍患者的合并症指数与测量日常生活活动(ADL)的量表之间的关系。使用美国国立卫生研究院(NIH)的观察性队列和横断面研究的质量评估工具。总的来说,包括12项研究,其中三个是纵向的。横断面设计(n=7项研究)经常报告显着关联,只有一项研究报告了显着的纵向关联。这项纵向研究反复评估了共病负担和功能自主性,并将合并症负担视为时变协变量。将合并症负担视为随时间变化的协变量,可以处理合并症负担随时间变化的动态性质,在随访期间使用合并症指数和ADL量表进行重复评估可能会提高其对可靠测量合并症负担和功能自主性随时间下降的敏感性。总之,在认知障碍患者中,较高的合并症指数与较低的功能自主性相关.随着时间的推移,这种关系似乎是动态的,仅使用一次合并症指数和ADL量表可能无法应对合并症负担和功能自主性下降的波动。为了应对这种关系的复杂性,这篇综述强调了一些需要考虑的方法论方法。
    This systematic review aimed to examine whether higher comorbidity burden, as assessed by comorbidity indices, was associated with a functional autonomy decline in individuals with cognitive impairment. The search was conducted in the following databases: PubMed/MEDLINE, ScienceDirect, Cochrane, and Embase. Both cross-sectional and longitudinal studies that examined the relationship between comorbidity indices and scales measuring activities of daily living (ADL) in individuals with cognitive impairment were included. The quality assessment tool for observational cohort and cross-sectional studies of the National Institutes of Health (NIH) was used. Overall, 12 studies were included, among which three were longitudinal. Significant association was frequently reported by cross-sectional designs (n=7 studies) and only one study reported a significant longitudinal association. This longitudinal study repeatedly assessed both comorbidity burden and functional autonomy, and considered comorbidity burden as a time-varying covariate. Considering comorbidity burden as a time varying covariate may deal with the dynamic nature of comorbidity burden over time, and conducting repeated assessments during the follow-up using both comorbidity index and ADL scales may increase their sensitivity to reliably measure comorbidity burden and functional autonomy decline over time. In conclusion, a higher comorbidity index was associated with a lower level of functional autonomy in people with cognitive impairment. This relationship seems to be dynamic over time and using comorbidity indices and ADL scales only once may not deal with the fluctuation of both comorbidity burden and functional autonomy decline. To cope with complexity of this relationship this review highlights some methodological approaches to be considered.
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  • 文章类型: Journal Article
    本文的主题是孕妇在选择分娩方式方面的自主权。目的是进行范围审查,以研究如何为产妇提供自主权的文献和证据。研究设计和地点:2023年10月,在以下数据库中使用术语“孕妇”和“分娩”和“自主性”进行了搜索:PubMed,WebofScience,Scopus,Scielo和LILACS.搜索内容包括2016年至2023年的文章。在发现的179篇文章中,15人符合标准,被选中参加本次审查。结果:孕妇自主选择分娩方式受多种因素影响,如产科医生的建议,医疗队,消极和积极的经历。因此,当这种自主权与产科医生共享时,产科医生建议剖腹产是最安全的途径,但不能解释两种途径(阴道和剖宫产)的益处和危害,导致该妇女接受剖腹产。助产士建议阴道分娩,因为他们认为阴道分娩是自然和安全的,并解释了两种方法的益处和危害。尊重孕妇选择她喜欢的方法。结论:妇女有选择生育方式的基本权利,必须在产前保健中给予正确引导,无论是产科医生还是助产士,关于选项,每种分娩方法的风险和收益,尊重仁慈的伦理原则。
    This paper has as its theme the autonomy of pregnant women in relation to choosing the method of birth for their child. The objective was to carry out a scoping review to study the literature and evidence of how autonomy is being offered to parturient women. Study design and location: In October 2023, a search was carried out using the terms \"pregnant women\" AND \"delivery\" AND \"autonomy\" in the following databases: PubMed, Web of Science, Scopus, Scielo and LILACS. The search included articles from 2016 to 2023. Of the 179 articles found, 15 met the criteria and were selected for this review. Results: the pregnant woman\'s autonomy in choosing the method of childbirth is influenced by several factors, such as the obstetrician\'s recommendation, the medical team, and negative and positive experiences. Thus, when this autonomy is shared with the obstetrician, the obstetrician recommends cesarean section as the safest route, but does not explain the benefits and harms of both routes (vaginal and cesarean section), causing the woman to accept the cesarean section. Midwives recommend vaginal birth because they believe it to be natural and safe and explain the benefits and harms of both methods, respecting the pregnant woman\'s choice of the method she prefers. Conclusion: women have the fundamental right to choose their method of birth and must be properly guided throughout prenatal care, whether by an obstetrician or a midwife, about the options, risks and benefits of each method of childbirth, respecting the ethical principle of beneficence.
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  • 文章类型: Systematic Review
    这篇系统的综述提供了对现有的人为因素对适应性自主性研究的理解,它的设计,其影响,及其定义。我们在四个数据库中进行了自适应自主性和其他相关搜索词的搜索,产生了最初的245篇文章。纳入和排除标准的应用共产生了60篇文章供深入审查。通过协作编码过程和分析,我们提取了自主适应的触发因素和类型,以及以往适应性自主性研究中研究过的人为因素因变量。基于这一分析,我们提出了用于人为因素人工智能研究的自适应自治的定义,以及对现有研究贡献的全面回顾,值得注意的研究空白,以及适应性自治的应用。
    This systematic review provides an understanding of existing human factors research on adaptive autonomy, its design, its impacts, and its definition. We conducted a search on adaptive autonomy and additional relevant search terms in four databases, which produced an initial 245 articles. The application of inclusion and exclusion criteria produced a total of 60 articles for in-depth review. Through a collaborative coding process and analysis, we extracted triggers for and types of autonomy adaptations, as well as human factors dependent variables that have been studied in previous adaptive autonomy research. Based on this analysis, we present a definition of adaptive autonomy for use in human factors artificial intelligence research, as well as a comprehensive review of existing research contributions, notable research gaps, and the application of adaptive autonomy.
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  • 文章类型: Systematic Review
    背景:自决与终身积极结果相关。智障学生的自决权通常低于同龄人。普及基础教育为学校提供了纠正这种差距的机会。这是对针对智障学生的自决发展的基于学校的实践进行的首次系统审查。
    方法:审查遵循PRISMA指南,跨越五个数据库(ProQuest数据库,EMBASE,Scopus,Sage日志,泰勒和弗朗西斯在线)从2006年到2021年。
    结果:在18项研究中,最常用的做法是SDLMI。研究的重点是美国有轻度至中度智力障碍的过渡年龄学生。社会有效性倾向于以终结和非正式的方式进行评估。学生通常不参与有关实践和个性化支持的决策。
    结论:该人群的自决发展可以在青春期之前开始。未来的研究应该批判性地调查整个教学周期中学生自决学习机会的社会有效性和整体整合。
    BACKGROUND: Self-determination is associated with lifelong positive outcomes. Students with intellectual disabilities typically have lower self-determination than their peers. Universal basic education access offers schools the opportunity to rectify this disparity. This is the first systematic review investigating the school-based practices that target self-determination development for students with intellectual disabilities.
    METHODS: The review follows the PRISMA guidelines, spanning five databases (ProQuest databases, EMBASE, Scopus, Sage Journals, Taylor and Francis Online) from 2006 to 2021.
    RESULTS: Across the 18 studies, the most used practice is the SDLMI. Research focuses on United States-based transition-aged students with mild to moderate intellectual disabilities. Social validity tends to be assessed in summative and informal ways. Students are not generally involved in decision-making about practices and individualisation of support.
    CONCLUSIONS: Self-determination development for this population can begin before puberty. Future research should critically investigate social validity and holistic integration of student self-determination learning opportunities throughout the pedagogical cycle.
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  • 文章类型: Journal Article
    背景:自决理论(SDT)可能为理解药物滥用和治疗结果提供重要的见解。然而,到目前为止,将SDT应用于物质使用及其治疗的文献多种多样,难以整合。方法:作者于10月26日检索了psycINFO和PubMed,2021年确定将SDT应用于物质使用及其治疗的文章。符合条件的研究发表在同行评审的英文文章中,成人人口(18+),并明确将SDT应用于物质使用或治疗的背景。结果被归类为在非治疗或治疗环境中应用SDT的研究,并在这些类别中按重点物质进行合成。主要结果(S),使用的SDT组件,和相关发现。结果:搜索显示有38篇文章在非治疗(k=16)和治疗(k=22)设置中应用了SDT。因果关系取向和基本心理需求是SDT最常研究的组成部分。在非治疗环境中应用SDT的研究更加强调因果关系取向,而治疗研究更经常针对或衡量的基本心理需求。结论:SDT构建体以理论上一致的方式一致地预测药物滥用和治疗结果,然而,几个重要的差距仍然存在,并讨论了未来研究的机会。
    Background: Self-determination theory (SDT) may provide important insights for understanding substance misuse and treatment outcomes. However, to date, the literature applying SDT to substance use and its treatment is varied and difficult to integrate. Methods: The authors searched psycINFO and PubMed on October 26th, 2021 to identify articles applying SDT to substance use and its treatment. Eligible studies were published in peer-reviewed articles in English, on adult populations (18+), and explicitly applied SDT to the context of substance use or its treatment. Results were categorized as studies applying SDT in non-treatment or treatment settings and were synthesized within these categories by substance(s) of focus, primary outcome(s), component(s) of SDT utilized, and relevant findings. Results: The search revealed 38 articles applying SDT in non-treatment (k = 16) and treatment (k = 22) settings. Causality orientations and the basic psychological needs were the most frequently studied components of SDT. Studies that applied SDT in non-treatment settings placed a greater emphasis on causality orientations, whereas treatment studies more frequently targeted or measured basic psychological needs. Conclusions: SDT constructs consistently predicted both substance misuse and treatment outcomes in a theoretically consistent manner, however, several important gaps remain and opportunities for future research are discussed.
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  • 文章类型: Journal Article
    本叙述探讨了非机构化政策对阿尔茨海默病和相关痴呆症患者的生活质量和护理结果的影响。我们提供了这些政策的历史视角,它们对痴呆症护理的影响,以及去制度化的障碍。去机构化的潜在好处,例如提高生活质量和获得社区支持和服务,被突出显示。围绕安全的挑战和争议,照顾者的负担,并对资源分配进行了研究。讨论了与痴呆症患者的自主性和决策能力有关的道德考虑。我们提出了痴呆症护理的最佳实践和创新模式,以平衡非机构化与适当护理。我们进一步提出了未来痴呆症护理和非机构化研究和政策制定的建议,强调需要采取平衡的方法,尊重痴呆症患者的自主性和偏好,同时确保他们的安全和福祉。
    This narrative explores the impact of deinstitutionalization policies on the quality of life and care outcomes for individuals with Alzheimer\'s disease and related dementias. We offer a historical perspective on these policies, their implications on dementia care, and the barriers to deinstitutionalization. The potential benefits of deinstitutionalization, such as improved quality of life and access to community-based support and services, are highlighted. Challenges and controversies surrounding safety, caregiver burden, and resource allocation are also examined. Ethical considerations related to the autonomy and decision-making capacity of people living with dementia are discussed. We present best practices and innovative models in dementia care that balance deinstitutionalization with appropriate care. We further put forth recommendations for future research and policy development in dementia care and deinstitutionalization, emphasizing the need for a balanced approach that respects the autonomy and preferences of people living with dementia while ensuring their safety and well-being.
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