Personal Autonomy

个人自主权
  • 文章类型: Journal Article
    Salter及其同事(2023)关于儿科决策的共识建议故意忽略了青少年,因为他们不断发展的自主性带来了额外的复杂性。使用两个案例研究,一个专注于说实话和披露,一个专注于拒绝治疗,本文在六项共识建议的背景下,研究了与青少年的医疗决策。报告的结论是,协商一致的建议可以合理地适用于年龄较大的儿童。
    The consensus recommendations by Salter and colleagues (2023) regarding pediatric decision-making intentionally omitted adolescents due to the additional complexity their evolving autonomy presented. Using two case studies, one focused on truth-telling and disclosure and one focused on treatment refusal, this article examines medical decision-making with and for adolescents in the context of the six consensus recommendations. It concludes that the consensus recommendations could reasonably apply to older children.
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  • 文章类型: Editorial
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  • 文章类型: Journal Article
    目标:对于住院老年护理的居民,在食物和用餐时间方面做出选择是保持自我意识和自主性的机会。它是未知的,然而,选择的概念是否在有关住宿老年人护理的文本中得到充分解决。这项审查的目的是检查居民是否有权选择他们吃的饭菜,在灰色文献中讨论,包括,政策,标准,报告和指南,这些都会影响老年护理的实践。
    方法:灰色文献位于利用;谷歌,谷歌学者和手搜索。文本必须参考住宅老年护理,并使用《评估与评估指南II》和JoannaBriggs研究所的工具进行评估。
    结果:最终审查包括29篇文本,包括,12项政策和标准,12条准则和5份报告。在大多数文本中广泛讨论了选择,没有包括住宅老年人护理应提供的选择水平的定义。讨论了使用替代膳食来提供选择;然而,关于什么是适当的替代方案,案文的要求和建议各不相同。
    结论:围绕选择的歧义会影响老年护理的实践,并最终影响向居民提供的服务。大多数建议只是一般性的,老年护理院没有提供足够的膳食计划指导。为了确保居民在膳食中做出选择的权利得到保障,需要更明确的要求和建议。
    OBJECTIVE: For residents in residential aged care, making choices in relation to food and mealtimes are opportunities to maintain a sense of self and autonomy. It is unknown, however, whether the concept of choice is adequately addressed in texts relating to residential aged care. The purpose of this review is to examine whether residents\' right to make choices regarding the meals they eat, is discussed in grey literature including, policies, standards, reports and guidelines, which all impact practice in residential aged care.
    METHODS: Grey literature was located utilising; Google, Google Scholar and hand searching. Texts had to be in reference to residential aged care and were assessed using the Appraisal of Guidelines for Research and Evaluation II and Joanna Briggs Institute tools.
    RESULTS: Twenty-nine texts were included in the final review, consisting of, 12 policies and standards, 12 guidelines and 5 reports. Choice was discussed broadly in the majority of texts, with no definition included for the level of choice that should be provided by residential aged care. The use of alternative meals to provide choice was discussed; however, texts varied in their requirements and recommendations as to what constituted an adequate alternative.
    CONCLUSIONS: The ambiguity surrounding choice affects the practices within residential aged care and ultimately the service provided to residents. With most recommendations being only general in nature, residential aged care homes are not provided with sufficient guidance for meal planning. To ensure residents\' right to make choices in their meals is guaranteed, more definitive requirements and recommendations are needed.
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  • 文章类型: Editorial
    This editorial reviews the ethical day-to-day challenges faced by pain specialists when managing each patient\'s unique requirements, in light of guidelines, clinical practice and interpretation of evidence relating to the assessment and management of chronic pain.
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  • 文章类型: Consensus Development Conference
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  • 文章类型: Journal Article
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  • 文章类型: Evaluation Study
    UNASSIGNED:麻醉师和外科医生在为手术患者提供不复苏(DNR)医嘱时,对专业指南不熟悉。这实质上侵犯了患者的自我自主权;因此,导致不合格的护理,特别是姑息性外科手术。外科手术的介入性可能会产生不同的外科手术心态,“这可能无意中优先考虑生存能力而不是维持患者的自我自主性。虽然以前的文献已经证明了模拟训练在沟通技巧方面的进步,尚未提出专门针对围手术期法规状态讨论的具体教育课程.我们在研究生(PGY)2开始时设计了一个模拟的标准化患者演员(SPA)相遇,对应于麻醉学特定培训的开始,允许居民专注于与SPA的DNR命令有关的围手术期讨论。44名麻醉科居民自愿参加了这项研究。PGY-2组(n=17)立即完成了干预后评估,而PGY-3组(n=13)在教育计划后约1年完成评估以确定保留率。PGY-4居民(n=14)没有接受任何特定的教育干预,但得到了同样的评价。评估包括一项匿名调查,检查了与围手术期DNR命令有关的专业指南和医院政策的熟悉程度。随后,在不同类别之间比较了调查响应。未参与教育干预的研究参与者报告缺乏关于术中DNR患者护理的正式指导。第二年和第三年的居民在了解详细的围手术期代码状态决策的专业指南方面优于高级居民(47%,62%vs21%,P=.004)。PGY-3居民在正确识别机构政策允许自动围手术期DNR暂停的普遍误解方面优于PGY-4居民(85%vs43%;P=0.02)。PGY-3班的居民,在获得额外1年的临床麻醉培训的同时,接受了1年的教育干预,始终优于从未接受过干预的高级居民。我们对麻醉科住院医师进行代码状态培训的培训模型显示出明显的收益。将临床经验与重点教育培训相结合,取得了最佳效果。
    UNASSIGNED: Anesthesiologists and surgeons have demonstrated a lack of familiarity with professional guidelines when providing care for surgical patients with a do-not-resuscitate (DNR) order. This substantially infringes on patient\'s self-autonomy; therefore, leading to substandard care particularly for palliative surgical procedures. The interventional nature of surgical procedures may create a different mentality of surgical \"buy-in,\" that may unintentionally prioritize survivability over maintaining patient self-autonomy. While previous literature has demonstrated gains in communication skills with simulation training, no specific educational curriculum has been proposed to specifically address perioperative code status discussions. We designed a simulated standardized patient actor (SPA) encounter at the beginning of post-graduate year (PGY) 2, corresponding to the initiation of anesthesiology specific training, allowing residents to focus on the perioperative discussion in relation to the SPA\'s DNR order.Forty four anesthesiology residents volunteered to participate in the study. PGY-2 group (n = 17) completed an immediate post-intervention assessment, while PGY-3 group (n = 13) completed the assessment approximately 1 year after the educational initiative to ascertain retention. PGY-4 residents (n = 14) did not undergo any specific educational intervention on the topic, but were given the same assessment. The assessment consisted of an anonymized survey that examined familiarity with professional guidelines and hospital policies in relation to perioperative DNR orders. Subsequently, survey responses were compared between classes.Study participants that had not participated in the educational intervention reported a lack of prior formalized instruction on caring for intraoperative DNR patients. Second and third year residents outperformed senior residents in being aware of the professional guidelines that detail perioperative code status decision-making (47%, 62% vs 21%, P = .004). PGY-3 residents outperformed PGY-4 residents in correctly identifying a commonly held misconception that institutional policies allow for automatic perioperative DNR suspensions (85% vs 43%; P = .02). Residents from the PGY-3 class, who were 1 year removed the educational intervention while gaining 1 additional year of clinical anesthesiology training, consistently outperformed more senior residents who never received the intervention.Our training model for code-status training with anesthesiology residents showed significant gains. The best results were achieved when combining clinical experience with focused educational training.
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  • 文章类型: Journal Article
    The pandemic caused by COVID19 is associated with an increase in the number of cases of cardiorespiratory arrest, which has resulted in ethical concerns regarding the enforceability of cardiopulmonary resuscitation, as well as the conditions to carry it out. The risk of aerosol transmission and the clinical uncertainties about the efficacy, the potential sequelae, and the circumstances that could justify limiting this procedure during the pandemic have multiplied the ethical doubts on how to proceed in these cases. Based on ethical and legal grounds, this paper offers a practical guide on how to proceed in the clinical setting in cases of cardiopulmonary arrest during the pandemic. The criteria of justice, benefit, no harm, respect for autonomy, precaution, integrity, and transparency are asserted in an organized and practical framework for decision-making regarding cardiopulmonary resuscitation.
    La pandemia de COVID-19 se ha asociado con un incremento en el número de casos de paro cardiorrespiratorio y con ello han aumentado las inquietudes éticas en torno a la exigencia de la reanimación cardiopulmonar, así como sobre las condiciones para realizarla. El riesgo de contagio por aerosoles y las incertidumbres clínicas sobre la eficacia, las potenciales secuelas y las circunstancias que podrían justificar la limitación del procedimiento durante la pandemia, han multiplicado las dudas éticas sobre cómo proceder en estos casos. Con base en fundamentos éticos y jurídicos, en el presente artículo se ofrece una guía práctica sobre cómo proceder en los casos de paro cardiopulmonar en el contexto de la pandemia. Los criterios de justicia, beneficio, no daño, respeto a la autonomía, precaución, integridad y transparencia, se presentan de forma organizada y práctica para la adopción de decisiones en materia de reanimación cardiopulmonar.
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  • 文章类型: Journal Article
    Depression is highly prevalent in nursing homes residents and affects their quality of life. Both prevalence and impact of depression may decrease when effective guidelines or depression care programs are used, but this appears to be a challenging task. The Self Determination Theory postulates that the realization of complex tasks is being facilitated by meeting three basic human psychosocial needs: autonomy, competence and relatedness to others. This cross-sectional study investigates the relationship between the experienced autonomy, competence and relatedness and the extent to which depression care is given according to guidelines in 46 doctors, 49 psychologists and 53 nurses from 71 Dutch nursing homes. Although autonomy and competence were significantly related to depression care according to guidelines, hierarchical multiple regression analyses with all three basic needs showed a statistically significant result for competence only. The associations don\'t allow conclusions about causal relationships, longitudinal research will shed light on the direction of the association for competence.
    Depressie komt bij bewoners van verpleeghuizen vaak voor en tast de kwaliteit van hun leven aan. Als professionals de richtlijnen voor depressiezorg of een op richtlijnen gebaseerd zorgprogramma opvolgen, verminderen zowel ernst als prevalentie van depressie. Deze complexe taak blijkt in de praktijk echter lastig uitvoerbaar. De Zelf Determinatie Theorie stelt dat de uitvoering van complexe taken bevorderd wordt door tegemoet te komen aan drie psychosociale basisbehoeften van mensen. In dit dwarsdoorsnede-onderzoek is de relatie onderzocht tussen deze drie basisbehoeften, namelijk ervaren autonomie, competentie en verbondenheid met collega’s en de mate waarin 46 artsen, 49 psychologen en 53 zorgmedewerkers uit 71 verpleeghuisorganisaties in Nederland depressiezorg volgens richtlijnen vormgaven. Hoewel autonomie en competentie bleken te correleren met de mate waarin depressiezorg volgens richtlijnen vorm kreeg, liet hiërarchische multipele regressieanalyse met alle drie basisbehoeften alleen een statistisch significant resultaat zien voor competentie. Longitudinaal onderzoek kan inzicht geven in de richting van het gevonden verband voor de basisbehoefte competentie.
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  • 文章类型: Journal Article
    目标:这项研究是在对传统和补充医学(TCM)进行证据审查之前进行的,以更新临床实践指南(CPG):“决定对糖尿病患者的姑息治疗和临终治疗(P/EoL)。\“目的是构建PICO(人口/问题,干预/比较,和结果),确定其重要性,并确定评分建议的其他修改因素。设计:系统的范围审查映射有关糖尿病P/EoL问题和结果的信息,中药使用,provision,收益和风险,以及利益相关者的偏好和价值观。在2017/18年度搜索了13个电子数据库,直到没有发现新的信息。提取相关数据,评定质量,直接性,和相关性,并使用三角测量方法合成。不包括糖尿病的预防或治疗,因为这不是一个重要的P/EoL问题。结果:在228篇文章中,除了糖尿病P/EOL问题,不充分的直接证据导致数据从成人糖尿病患者或任何P/EoL诊断推断.研究结果证实,由于受P/EoL轨迹影响的多种波动需求,对需要P/EoL护理的糖尿病患者的护理是复杂的(稳定,不稳定,恶化,终端,或丧亲),多浊度,以及难以管理的慢性和急性问题。糖尿病P/EoL护理特有的唯一问题,是不稳定的血糖。确定了50多种患者常用和/或服务提供的中医干预措施,其中,许多可能同时解决多个问题,并在系统审查中评估了18个。最常评估身体和心理症状缓解;然而,这些只是“好死”的一个方面。“其他重要的结果是护理的质量和位置,个人机构,关系,为染色过程做准备,灵性,对整个人的肯定。其他重要的修改因素包括机会成本,负担能力,可用性,preferences,文化适宜性,与关于疾病和死亡含义的信念保持一致。结论:中医在糖尿病患者的多学科整体P/EoL护理中具有重要作用。由于缺乏特定于该人群的证据,其中一些结果的概括性更广,更新的CPG还需要考虑其他患者组的间接证据.除了有关中医使用适应症的建议外,CGP应该就停止不必要的干预提供指导,需要减少多重用药和管理不稳定的血糖。在停止中医之前,建议进行更广泛的风险收益分析,与许多传统疗法不同,可能有多种好处可以保证它的延续。
    Objectives: This study was conducted before an evidence review on Traditional and Complementary Medicine (TCM) to update the clinical practice guidelines (CPGs): \"Deciding palliative and end-of-life (P/EoL) care for people with diabetes.\" The aim was to frame the PICO (population/problems, interventions/comparisons, and outcomes), ascertain their importance, and identify other modifying factors for grading recommendations. Design: A systematic scoping review mapped information about diabetes P/EoL problems and outcomes, TCM use, provision, benefits and risks, and stakeholder preferences and values. Thirteen electronic databases were searched in 2017/18 until no new information was identified. Relevant data were extracted, rated for quality, directness, and relevance, and synthesized using triangulation methods. Excluded was diabetes prevention or treatment, as this is not an important P/EoL problem. Results: Of the 228 included articles, except for diabetes P/EoL problems, insufficient direct evidence led to data being extrapolated from either adults with diabetes or any P/EoL diagnosis. The findings affirmed that caring for people with diabetes in need of P/EoL care is complex due to multiple fluctuating needs that are influenced by the P/EoL trajectories (stable, unstable, deteriorating, terminal, or bereaved), multimorbidity, and difficult-to-manage chronic and acute problems. The only problem specific to diabetes P/EoL care, was unstable glycemia. Over 50 TCM interventions commonly used by patients and/or provided by services were identified, of which, many might simultaneously address multiple problems and 18 had been appraised in systematic reviews. Physical and psychologic symptom reliefs were most often evaluated; however, these were only one aspect of a \"good death.\" Other important outcomes were the quality and location of care, personal agency, relationships, preparations for the dying process, spirituality, and affirmation of the whole person. Other important modifying factors included opportunity costs, affordability, availability, preferences, cultural appropriateness, and alignment with beliefs about the meaning of illness and death. Conclusions: There is a role for TCM in the multidisciplinary holistic P/EoL care of people with diabetes. Due to the paucity of evidence specific to this population, the generalizability of some of these results is broader and the updated CPG will also need to consider indirect evidence from other patient groups. Along with recommendations about indications for TCM use, the CGP should provide guidance on ceasing unnecessary interventions, reducing polypharmacy and managing unstable glycemia is required. Before ceasing a TCM, a broader risk-benefit analysis is recommended, as unlike many conventional therapies, there may be multiple benefits warranting its continuation.
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