■了解短肠综合征(SBS)患者及其护理人员的生活质量及其影响因素对于提高其幸福感至关重要。因此,本研究旨在全面了解SBS对患者及其护理人员的影响。以及其相关因素,通过综合现有证据。
■使用PubMed对文献进行了系统回顾,Embase数据库,CNKI,和ISPOR会议文件。手动搜索纳入的文章以识别任何其他相关研究。使用适当的JoannaBriggs研究所关键评估工具评估质量。
■本综述包括16项研究,包括15项观察性研究和1项随机对照试验。研究结果表明,在身体功能和心理领域方面,SBS患者的QoL低于普通人群。同时,护理人员在维持QoL方面遇到了挑战。发现SBS患者的QoL受多种因素的影响,例如治疗,年龄,性别,造口,和小肠长度。其中,治疗是通过外部干预可以有效改善的最值得注意的因素。
虽然许多研究提供了对SBS患者及其护理人员所经历的QoL受损的见解,研究QoL决定因素的大样本定量调查仍然很少。关于照顾者的现有文献也明显不足。
UNASSIGNED: Understanding the quality of life and the factors that influence it for patients with short bowel syndrome (SBS) and their caregivers is of utmost importance in order to enhance their well-being. Therefore, This study aimed to provide a comprehensive understanding of the impact of SBS on patients and their caregivers, as well as its associated factors, by synthesizing the available evidence.
UNASSIGNED: A systematic review of the literature was done using PubMed, Embase databases, CNKI, and ISPOR conference papers. Included articles were manually searched to identify any other relevant studies. Quality was assessed using appropriate Joanna Briggs Institute critical appraisal tools.
UNASSIGNED: This review included 16 studies, comprising 15 observational studies and 1 randomized controlled trial. The findings revealed that the QoL of patients with SBS was lower than that of the general population regarding physical functioning and psychological domain. Meanwhile, caregivers experienced challenges in maintaining their QoL. The QoL of SBS patients was found to be influenced by various factors such as treatment, age, sex, stoma, and small intestine length. Among them, the treatment is the most noteworthy factor that can be effectively improved through external interventions.
UNASSIGNED: While numerous studies have provided insights into the compromised QoL experienced by individuals with SBS and their caregivers, there remains a scarcity of large-sample quantitative investigations examining the determinants of QoL. The existing body of literature on caregivers is also notably deficient.