Inequity

不平等
  • 文章类型: Journal Article
    西班牙裔社区代表了一个庞大的社区,在美国医疗保健系统中经历了不平等。随着系统向数字健康平台发展,评估对西班牙裔社区的潜在影响至关重要.
    这项研究旨在调查人口统计,社会经济,以及导致西班牙裔社区远程医疗使用率低的行为因素。
    我们使用回顾性观察研究设计来检查研究目标。COVID-19研究数据库联盟提供了AnalyticsIQPeopleCore消费者数据和OfficeAlley索赔数据。研究期为2020年3月至2021年4月。多元逻辑回归用于确定使用远程医疗服务的几率。
    我们检查了3,478,287名独特的西班牙裔患者,其中16.6%(577,396人)使用远程医疗。结果表明,年龄在18至44岁之间的患者比65岁以上的患者更有可能使用远程医疗(比值比[OR]1.07,95%CI1.05-1.1;P<.001)。在所有年龄组中,高收入患者使用远程医疗的可能性至少比低收入患者高20%(P<.001);有初级保健医生的患者(P=.01),表现出很高的医疗使用率(P<.001),或对运动感兴趣(P=.03)更有可能使用远程医疗;有不健康行为如吸烟和饮酒的患者使用远程医疗的可能性较小(P<.001)。在65岁及以上的患者中,男性患者使用远程医疗的可能性低于女性患者(OR0.94,95%CI0.93-0.95;P<.001),而年龄在18至44岁之间的男性患者更有可能使用远程医疗(OR1.05,95%CI1.03-1.07;P<.001)。在65岁以下的患者中,全职就业与远程医疗使用呈正相关(P<.001)。年龄在18至44岁之间且具有高中或以下文化程度的患者使用远程医疗的可能性较低2%(OR0.98,95%CI0.97-0.99;P=0.005)。结果还显示,在44岁以上的患者中,与使用WebMD(WebMDLLC)呈正相关(P<.001),而年龄在18至44岁之间(P=.009)和年龄在45至64岁之间(P=.004)的人与电子处方呈负相关。
    这项研究表明,西班牙裔社区的远程医疗使用取决于年龄等因素,性别,教育,社会经济地位,当前的医疗保健参与,和健康行为。为了应对这些挑战,我们提倡涉及医疗专业人员的跨学科方法,保险提供者,以社区为基础的服务积极与西班牙裔社区接触,并促进远程医疗的使用。我们提出以下建议:增加获得健康保险的机会,改善与初级保健提供者的接触,并分配财政和教育资源以支持远程医疗的使用。随着远程医疗越来越多地塑造医疗保健服务,对于专业人员来说,促进使用所有可用的途径来获得护理至关重要。
    UNASSIGNED: The Hispanic community represents a sizeable community that experiences inequities in the US health care system. As the system has moved toward digital health platforms, evaluating the potential impact on Hispanic communities is critical.
    UNASSIGNED: The study aimed to investigate demographic, socioeconomic, and behavioral factors contributing to low telehealth use in Hispanic communities.
    UNASSIGNED: We used a retrospective observation study design to examine the study objectives. The COVID-19 Research Database Consortium provided the Analytics IQ PeopleCore consumer data and Office Alley claims data. The study period was from March 2020 to April 2021. Multiple logistic regression was used to determine the odds of using telehealth services.
    UNASSIGNED: We examined 3,478,287 unique Hispanic patients, 16.6% (577,396) of whom used telehealth. Results suggested that patients aged between 18 and 44 years were more likely to use telehealth (odds ratio [OR] 1.07, 95% CI 1.05-1.1; P<.001) than patients aged older than 65 years. Across all age groups, patients with high incomes were at least 20% more likely to use telehealth than patients with lower incomes (P<.001); patients who had a primary care physician (P=.01), exhibited high medical usage (P<.001), or were interested in exercise (P=.03) were more likely to use telehealth; patients who had unhealthy behaviors such as smoking and alcohol consumption were less likely to use telehealth (P<.001). Male patients were less likely than female patients to use telehealth among patients aged 65 years and older (OR 0.94, 95% CI 0.93-0.95; P<.001), while male patients aged between 18 and 44 years were more likely to use telehealth (OR 1.05, 95% CI 1.03-1.07; P<.001). Among patients younger than 65 years, full-time employment was positively associated with telehealth use (P<.001). Patients aged between 18 and 44 years with high school or less education were 2% less likely to use telehealth (OR 0.98, 95% CI 0.97-0.99; P=.005). Results also revealed a positive association with using WebMD (WebMD LLC) among patients aged older than 44 years (P<.001), while there was a negative association with electronic prescriptions among those who were aged between 18 and 44 years (P=.009) and aged between 45 and 64 years (P=.004).
    UNASSIGNED: This study demonstrates that telehealth use among Hispanic communities is dependent upon factors such as age, gender, education, socioeconomic status, current health care engagement, and health behaviors. To address these challenges, we advocate for interdisciplinary approaches that involve medical professionals, insurance providers, and community-based services actively engaging with Hispanic communities and promoting telehealth use. We propose the following recommendations: enhance access to health insurance, improve access to primary care providers, and allocate fiscal and educational resources to support telehealth use. As telehealth increasingly shapes health care delivery, it is vital for professionals to facilitate the use of all available avenues for accessing care.
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  • 文章类型: Journal Article
    背景:医疗保健利用的不平等是指在对医疗保健需求进行调整后仍存在的群体之间的差异。据我们所知,以前没有研究旨在评估一般人群中脊椎按摩疗法使用的社会不平等。因此,本研究的目的是评估根据健康状况调整后的丹麦普通人群在脊椎按摩疗法使用方面的社会不公平.
    方法:根据2010年和2017年的丹麦国家健康调查,采用了基于人群的重复横断面研究设计。总的来说,我们纳入了2010年或2017年28,099名30岁或以上的个体.对于每个人来说,有关脊椎指压疗法使用的信息,社会经济地位,使用唯一的个人标识号从全国范围的登记册中检索健康状况,以代表脊椎按摩治疗的需求。健康状况的衡量标准包括人口统计,自我评估的身体健康状况不佳,活动限制,肌肉骨骼疼痛,肌肉骨骼疾病的数量,以及慢性病的数量。我们调查了脊椎按摩疗法利用方面的社会不平等(是的,否)使用针对健康状况进行调整的逻辑回归,按性别和年份分层。社会经济地位的三个特征(教育水平,就业状况和收入)进行了调查。为了进一步量化脊骨疗法利用中的社会不平等程度,我们估计了社会经济地位的三个特征中的每一个的不公平的集中指数。
    结果:我们发现,与受过初等教育的人相比,受过短期或中期/长期教育的人使用脊骨疗法的几率明显更高,在就业人员中,与失业人员相比,领取残疾抚恤金或退休。此外,使用脊椎指压疗法的几率随着收入的增加而增加。集中度指数表明,脊椎按摩疗法的使用对社会经济地位较高的个人有利,收入和就业状况对不平等的影响大于教育水平。
    结论:该研究表明,丹麦脊椎按摩疗法利用的社会不平等,超出了健康状况的差异,作为普通人群脊椎按摩疗法需求的代表。结果表明,如果以平等对待平等需求为目标,则需要新的策略。
    BACKGROUND: Inequity in healthcare utilisation refers to differences between groups that remain after adjustment for need for health care. To our knowledge, no previous studies have aimed to assess social inequity in chiropractic utilisation in a general population. Therefore, the objective of this study was to evaluate social inequity in chiropractic utilisation in the general Danish population adjusted for health status as a proxy of need for chiropractic care.
    METHODS: A population-based repeated cross-sectional study design was used based on the Danish National Health Survey in 2010 and 2017. Overall, we included 288,099 individuals aged 30 years or older in 2010 or 2017. For each individual, information on chiropractic utilisation, socioeconomic status, and health status as a proxy of need for chiropractic care was retrieved from nationwide registers using the unique personal identification number. Measures of health status included demographics, poor self-rated physical health, activity limitations, musculoskeletal pain, number of musculoskeletal conditions, and number of chronic diseases. We investigated social inequity in chiropractic utilisation (yes, no) using logistic regression adjusted for health status, stratified by sex and year. Three characteristics of socioeconomic status (educational level, employment status and income) were investigated. To further quantify the degree of social inequity in chiropractic utilisation, we estimated the concentration index of inequity for each of the three characteristics of socioeconomic status.
    RESULTS: We found significantly higher odds of chiropractic utilisation among individuals with short or medium/long education compared with individuals with elementary education, and among employed individuals compared with individuals who were unemployed, receiving disability pension or retired. Furthermore, the odds of chiropractic utilisation increased with higher income. The concentration index indicated social inequity in chiropractic utilisation in favour of individuals with higher socioeconomic status, with income and employment status contributing more to inequity than educational level.
    CONCLUSIONS: The study demonstrated social inequity in chiropractic utilisation in Denmark beyond differences in health status as a proxy of need for chiropractic care in the general population. The results suggest that new strategies are required if equal treatment for equal need is the goal.
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  • 文章类型: Journal Article
    背景:尽管服务不足的人群——包括来自少数民族社区和生活贫困的人群——健康状况较差,医疗保健经验较差,大多数初级保健研究不能公平地反映这些群体。患者和公众参与(PPI)通常嵌入在英国(UK)的研究中。但往往不能代表服务不足的人群。这项研究与患者和公共贡献者以及当地社区领导人合作,位于社会经济贫困和种族多样化的城市地区,探索初级卫生保健研究中代表性不足的问题。
    方法:我们进行了一个焦点小组,其中包括6名患者和公众参与小组(PPIG)的成员,采访了4位社区领袖(代表布莱克,南亚,罗姆人和社会经济贫困社区)。使用基于模板分析的迭代分析过程。焦点组1进行了快速分析,和创建的模板。研究结果在焦点小组2中提出,模板进一步发展。文化创伤概念被应用于模板,以提供更广泛的理论视角。然后根据模板对焦点小组和访谈进行深入分析。
    结果:更广泛的社会和历史影响降低了服务不足人群对学术和医疗机构的信任。随着更实际的考虑,信任是参与研究的个人动机的基础。研究人员需要投入时间和资源,与对他们的研究具有重要意义的社区进行互利接触,包括分享对研究重点的权力和影响力。研究人员对差异权力和文化能力的反思至关重要。利用包括联合制作在内的参与式方法表明了对包容性研究设计的承诺。
    结论:迫切需要重新构建循证医学,使其对健康负担最高的服务不足人群更有用和更相关。初级医疗保健研究中缺乏代表性反映了更广泛的社会不平等,文化创伤提供了一个有用的镜头。然而,研究人员可以采取一些行动来扩大代表性。这最终将有助于通过加强科学严谨性和研究的普遍性来实现增加健康公平性的目标。
    目标:生活在贫困中的人们,来自少数民族社区的人可能被称为“服务不足”。服务不足的社区从卫生服务中受益较少,以及其他因素,这导致健康不平等。初级保健研究没有包括来自这些社区的足够多的人。这使得健康不平等更加严重。
    这项研究着眼于为什么服务不足社区的人不包括在研究中。它还研究了可能有帮助的东西。我们与患者和公众参与小组(PPIG)的成员进行了焦点小组讨论。这些人没有研究专长,而是利用他们作为病人的生活经历来影响研究过程。这个群体成立于2017年,来自更多的人生活在社会劣势的地区。我们还采访了当地社区领导人。访谈和焦点小组提出开放性问题,所以是探索人们对问题的看法的好方法。我们发现了一个关于文化史如何影响人们可以做什么的有用理论。我们利用这一点来帮助我们了解我们的发现如何改善和扩大服务不足社区的研究参与。
    我们发现信任非常重要。人与组织之间需要信任。还有一些实际原因,来自服务不足社区的人们可能无法参与研究。研究人员需要意识到这些事情,并在研究的所有阶段与这些社区的人合作。长期关系需要在机构和从事研究的人之间发展。了解彼此的文化和历史使我们更容易合作。
    BACKGROUND: Although underserved populations- including those from ethnic minority communities and those living in poverty-have worse health and poorer healthcare experiences, most primary care research does not fairly reflect these groups. Patient and public involvement (PPI) is usually embedded within research studies in the United Kingdom (UK), but often fails to represent underserved populations. This study worked with patient and public contributors and local community leaders, situated in a socio-economically deprived and ethnically diverse urban area, to explore under-representation in primary healthcare research.
    METHODS: We undertook a focus group with a purposive sample of 6 members of a Patient and Public Involvement Group (PPIG), and interviews with 4 community leaders (representing Black, South Asian, Roma and socio-economically deprived communities). An iterative analysis process based on template analysis was used. Focus group 1 was rapidly analysed, and a template created. Findings were presented in focus group 2, and the template further developed. The Cultural Trauma concept was than applied to the template to give a wider theoretical lens. In-depth analysis of focus groups and interviews was then performed based on the template.
    RESULTS: Wider societal and historical influences have degraded trust in academic and healthcare institutions within underserved populations. Along with more practical considerations, trust underpins personal motivations to engage with research. Researchers need to invest time and resources in prolonged, mutually beneficial engagement with communities of importance to their research, including sharing power and influence over research priorities. Researcher reflexivity regarding differential power and cultural competencies are crucial. Utilising participatory methodologies including co-production demonstrates a commitment to inclusive study design.
    CONCLUSIONS: Re-framing evidence-based medicine to be more useful and relevant to underserved populations with the highest burden of ill health is urgently needed. Lack of representation in primary healthcare research reflects wider societal inequalities, to which Cultural Trauma provides a useful lens. However, there are actions that researchers can take to widen representation. This will ultimately help achieve the goal of increased health equity by enhancing scientific rigour and research generalizability.
    OBJECTIVE: People living in poverty, and people from ethnic minority communities may be referred to as ‘underserved’. Underserved communities benefit less from health services, and along with other factors, this leads to health inequalities. Primary care research does not include enough people from these communities. This makes the health inequalities  worse.
    UNASSIGNED: This study looks at why people from underserved communities are not included in research. It also looks at what might help. We had focus group discussions with members of a Patient and Public Involvement Group (PPIG). These are individuals who do not have research expertise, but use their lived experience as patients to influence the research process. This group was formed in 2017, from areas where more people live with social disadvantage. We also interviewed local community leaders. Interviews and focus groups ask open questions, so are a good way to explore what people think about an issue. We found a useful theory about how cultural history affects what people can do. We used this to help us to understand how our findings could improve and widen participation in research within underserved communities.
    UNASSIGNED: We found that trust is very important. There needs to be trust between people and organisations. There are also practical reasons people from underserved communities might not be able to get involved in research. Researchers need to be aware of these things, and work with people from these communities throughout all stages of research. Long term relationships need to develop between institutions and people doing research. Understanding each other’s culture and history makes it easier to work together.
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  • 文章类型: Journal Article
    宫颈癌是最可预防的癌症之一,但仍然是智障人士不平等的疾病,部分原因是筛查率低。ScreenEQUAL项目将使用集成的知识翻译(iKT)模型与该组共同制作和评估可访问的子宫颈筛查资源。
    第一阶段将定性地探讨智障人士参与筛查的促进者和障碍,家庭和支持的人,医疗保健提供者和残疾部门利益相关者(每组n≈20)。可访问的多模式筛选资源,为家庭和支持人提供支持材料,然后,将通过一系列研讨会共同制作创伤知情的医疗保健提供者培训材料。第2阶段将招募年龄在25至74岁之间的智障人士,他们将因筛查或过期而进入单臂试验(n=48)。经过培训的支助人员将在无障碍讲习班(干预)中为他们提供共同制作的资源,并支持他们完成事后问题,以评估知情决策。一个子集将参加定性干预后访谈,包括可选的身体映射(n≈20)。干预后9个月的筛查摄取将通过数据链接进行测量。家庭成员和支持人员(n=48)和医疗保健提供者(n=433)将被招募到单臂子研究中。在4个月的时间里,他们会,分别,收到随附的辅助材料,和创伤信息培训材料。两组都将完成pre-post在线调查。每组的一个子集(n≈20)将被邀请参加干预后的半结构化访谈。
    我们的主要结果是知识领域的智障人士在知情决策方面的变化,态度,和筛选意图。次要结果包括:(i)在干预研讨会后的9个月内接受筛查,(ii)健康素养的变化,家庭成员和支持者的态度和自我效能感,和(iii)知识的变化,态度,筛查提供者的自我效能和准备。每个参与者小组将评估可接受性,资源的可行性和可用性。
    如果发现有效且可接受,共同制作的子宫颈筛查资源和培训材料将通过ScreenEQUAL网站免费提供,以支持国家,潜在的国际性,放大。
    UNASSIGNED: Cervical cancer is one of the most preventable cancers yet remains a disease of inequity for people with intellectual disability, in part due to low screening rates. The ScreenEQUAL project will use an integrated knowledge translation (iKT) model to co-produce and evaluate accessible cervical screening resources with and for this group.
    UNASSIGNED: Stage 1 will qualitatively explore facilitators and barriers to screening participation for people with intellectual disability, families and support people, healthcare providers and disability sector stakeholders (n ≈ 20 in each group). An accessible multimodal screening resource, accompanying supporting materials for families and support people, and trauma-informed healthcare provider training materials will then be co-produced through a series of workshops. Stage 2 will recruit people with intellectual disability aged 25 to 74 who are due or overdue for screening into a single-arm trial (n = 48). Trained support people will provide them with the co-produced resource in accessible workshops (intervention) and support them in completing pre-post questions to assess informed decision-making. A subset will participate in qualitative post-intervention interviews including optional body-mapping (n ≈ 20). Screening uptake in the 9-months following the intervention will be measured through data linkage. Family members and support people (n = 48) and healthcare providers (n = 433) will be recruited into single-arm sub-studies. Over a 4-month period they will, respectively, receive the accompanying supporting materials, and the trauma-informed training materials. Both groups will complete pre-post online surveys. A subset of each group (n ≈ 20) will be invited to participate in post-intervention semi-structured interviews.
    UNASSIGNED: Our primary outcome is a change in informed decision-making by people with intellectual disability across the domains of knowledge, attitudes, and screening intention. Secondary outcomes include: (i) uptake of screening in the 9-months following the intervention workshops, (ii) changes in health literacy, attitudes and self-efficacy of family members and support people, and (iii) changes in knowledge, attitudes, self-efficacy and preparedness of screening providers. Each participant group will evaluate acceptability, feasibility and usability of the resources.
    UNASSIGNED: If found to be effective and acceptable, the co-produced cervical screening resources and training materials will be made freely available through the ScreenEQUAL website to support national, and potentially international, scale-up.
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  • 文章类型: Journal Article
    背景:非传染性疾病(NCDs)在喀拉拉邦政府的优先事项清单上很高,并探索跨性别和性别多样化(TGD)社区成员在多大程度上受益于国家非传染性疾病方案的服务,可以为提高卫生系统在实现全民健康覆盖方面的包容性提供有价值的见解。本研究旨在探讨喀拉拉邦TGD人群中NCD危险因素的患病率以及NCD管理的促进因素和障碍。
    方法:多方法研究,包括对120名自我识别的TGD人的横断面调查,其中包括对WHOSTEPS问卷的调整,以及对13个人的深入采访,在喀拉拉邦的三个地区进行,以探索非传染性疾病预防和管理的障碍和促进者。
    结果:使用Diederichsen框架中出现的关键维度来呈现结果。喀拉拉邦的TGD人面临的一系列歧视使他们陷入教育成果低下的境地,从而在寻找生计时在就业市场上处于不利地位。这导致我们的样本中有很大一部分生活在远离家庭的地方(69%),发现自己从事不稳定的工作,包括性工作(只有33%有固定工作),所有上述因素汇聚在一起,使他们的社会地位边缘化。这种社会地位导致不同的风险暴露,例如增加暴露于可改变的风险因素,如酒精(40%是目前的酒精使用者)和烟草使用(40.8%目前使用烟草),以及最终的代谢风险因素(30%和18%分别是高血压和糖尿病)。由于他们的差异脆弱性,例如TGD人受到的歧视(41.7%的人在过去一年中在医疗保健中心面临歧视),那些暴露于风险因素较高的人通常很难进行行为改变,并且通常无法获得所需的服务。
    结论:TGD人群的不利社会地位和相关的结构性问题导致加剧的生物风险,包括非传染性疾病。在设计健康计划时忽略这些社会决定因素可能会导致次优结果。
    BACKGROUND: Non-communicable diseases (NCDs) are high on the priority list of the Kerala government, and exploring the extent to which transgender and gender diverse (TGD) community members benefit from the services of national programmes for NCDs can provide valuable insights on improving the inclusivity of the health system as it moves towards Universal Health Coverage. This study was conducted to explore the prevalence of NCD risk factors as well as facilitators and barriers to NCD management among the TGD population in Kerala.
    METHODS: A multiple methods study, including a cross-sectional survey of 120 self-identifying TGD people that included an adaptation of the WHO STEPS questionnaire, as well as in-depth interviews with thirteen individuals, was conducted in three districts of Kerala to explore the barriers and facilitators to NCD prevention and management.
    RESULTS: The results are presented using the key dimensions emerging out of the Diederichsen framework. A range of discrimination faced by TGD people in Kerala traps them in situations of low educational outcomes with consequent disadvantages in the job market when they search for livelihoods. This results in a large proportion of our sample living away from families (69 percent), and finding themselves in precarious jobs including sex work (only 33 percent had a regular job), with all these aforementioned factors converging to marginalise their social position. This social position leads to differential risk exposures such as increased exposure to modifiable risk factors like alcohol (40 percent were current alcohol users) and tobacco use (40.8 percent currently used tobacco) and ultimately metabolic risk factors too (30 and 18 percent were hypertensive and diabetic respectively). Due to their differential vulnerabilities such as the discrimination that TGD people are subjected to (41.7 percent had faced discrimination at a healthcare centre in the past one year), those with higher exposure to risk factors often find it hard to bring about behavioural modifications and are often not able to access the services they require.
    CONCLUSIONS: The disadvantaged social position of TGD people and associated structural issues result in exacerbated biological risks, including those for NCDs. Ignoring these social determinants while designing health programmes is likely to lead to sub-optimal outcomes.
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  • 文章类型: Journal Article
    背景:虽然医疗保健政策促进了实施策略,以改善服务不足的群体的包容性和获得临床护理的机会,系统和结构因素仍然不成比例地阻止服务用户获得嵌入在临床环境中的研究机会。这有助于扩大健康不平等,由于缺乏代表性阻碍了循证干预在服务不足的临床人群中的适用性和有效性。本研究旨在识别个体(微观),共患酒精使用障碍和酒精相关性肝病患者临床研究的组织(中观)和结构(宏观)障碍。
    方法:采用集中的人种学方法来探索患者在临床环境中获取和实施研究过程所面临的挑战。数据是通过迭代归纳法收集的,使用现场笔记和患者访谈记录。框架方法用于数据分析,主题在微观上确定,中观和宏观层面。
    结果:在微观层面,酒精相关障碍包括脑病和急性戒断症状.与酒精无关的障碍也影响了服务用户在研究中的参与度。在中观层面,员工和资源压力,以及对临床和研究设施的熟悉程度被认为会影响干预实施和研究保留.在更广泛的地方,宏观层面,包括“生活成本危机”和医疗保健环境中的国家工业行动在内的情况对研究过程产生了影响。这些发现强调了所有层面的“多米诺骨牌效应”,展示了个体之间的相互作用,影响临床研究的组织和结构因素。
    结论:个体的组合,组织和结构障碍,COVID-19大流行加剧了,以及进行研究的社会经济格局进一步导致服务不足的群体参与临床研究的机会不平等。对于患有酒精使用障碍和酒精相关性肝病的患者,有限的研究机会进一步加剧了有效循证治疗的差距,加剧了这一临床人群的健康不平等。
    BACKGROUND: While healthcare policy has fostered implementation strategies to improve inclusion and access of under-served groups to clinical care, systemic and structural elements still disproportionately prevent service users from accessing research opportunities embedded within clinical settings. This contributes to the widening of health inequalities, as the absence of representativeness prevents the applicability and effectiveness of evidence-based interventions in under-served clinical populations. The present study aims to identify the individual (micro), organisational (meso) and structural (macro) barriers to clinical research access in patients with comorbid alcohol use disorder and alcohol-related liver disease.
    METHODS: A focused ethnography approach was employed to explore the challenges experienced by patients in the access to and implementation of research processes within clinical settings. Data were collected through an iterative-inductive approach, using field notes and patient interview transcripts. The framework method was utilised for data analysis, and themes were identified at the micro, meso and macro levels.
    RESULTS: At the micro-level, alcohol-related barriers included encephalopathy and acute withdrawal symptoms. Alcohol-unrelated barriers also shaped the engagement of service users in research. At the meso-level, staff and resource pressures, as well as familiarity with clinical and research facilities were noted as influencing intervention delivery and study retention. At the wider, macro-level, circumstances including the \'cost of living crisis\' and national industrial action within healthcare settings had an impact on research processes. The findings emphasise a \'domino effect\' across all levels, demonstrating an interplay between individual, organisational and structural elements influencing access to clinical research.
    CONCLUSIONS: A combination of individual, organisational and structural barriers, exacerbated by the COVID-19 pandemic, and the socioeconomic landscape in which the study was conducted further contributed to the unequal access of under-served groups to clinical research participation. For patients with comorbid alcohol use disorder and alcohol-related liver disease, limited access to research further contributes towards a gap in effective evidence-based treatment, exacerbating health inequalities in this clinical population.
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  • 文章类型: Journal Article
    背景:埃塞俄比亚儿童保健服务利用的差异高得令人无法接受。然而,对获得儿童保健服务的潜在障碍知之甚少,特别是在低社会经济群体和偏远地区。这项研究旨在确定埃塞俄比亚儿童保健服务使用中的公平障碍。
    方法:数据来自与母亲和护理人员进行的20次关键线人访谈(KII)和6次焦点小组讨论(FGD)。这项研究是在奥罗米亚地区进行的,Arsi区,ZuwayDugda区,2023年6月1日至30日。这项研究的参与者是有目的地选择的。在进行了16次连续访谈后,根据饱和原则收集了信息。KII和FGD都是音频记录的,并进行补充记录以记录对参与者的评论及其互动的观察。每次采访和FGD数据都以当地的AfaanOromo和Amaharic语言逐字转录,然后翻译成英语。最后,使用NVivo14软件对数据进行主题分析,并以儿童卫生服务利用的关联模式进行叙述.
    结果:这项研究确定了六个主要主题,这些主题成为照顾者及其五岁以下儿童医疗保健利用公平的障碍。与需求意识水平低的公平相关的障碍,社会经济地位低下,地理上的不可及性,与医疗系统不足有关的障碍,社区感知和文化限制,以及与政治不稳定和冲突有关的公平障碍。社区一级最普遍公认的公平障碍是政治不稳定,冲突,离医疗机构很远。交通挑战,功能服务差,在工作时间关闭卫生机构,并在组织或政策层面确定了公平的障碍。
    结论:这项研究表明,儿童医疗保健利用的不平等是埃塞俄比亚面临的重要挑战。为了实现公平,政策制定者和规划者需要改变卫生政策和结构,以有利于穷人。还必须改善医疗保健系统,以增加贫困妇女的服务利用率和可及性,受教育程度较低的人,和偏远农村地区的居民。此外,需要有关文化障碍和政治生态的特定环境信息。
    BACKGROUND: Disparities in child healthcare service utilization are unacceptably high in Ethiopia. Nevertheless, little is known about underlying barriers to accessing child health services, especially among low socioeconomic subgroups and in remote areas. This study aims to identify barriers to equity in the use of child healthcare services in Ethiopia.
    METHODS: Data were obtained from 20 key- informant interviews (KII) and 6 focus group discussions (FGD) with mothers and care givers. This study was conducted in Oromia Region, Arsi Zone, Zuway Dugda District from June 1-30, 2023. The study participants for this research were selected purposively. The information was collected based on the principle of saturation after sixteen consecutives interview were conducted. Both KII and FGD were audio-recorded and complementary notes were taken to record observations about the participants\' comments and their interactions. Each interview and FGD data were transcribed word-for-word in the local Afaan Oromo and Amaharic languages and then translated to English language. Finally, the data were analyzed thematically using NVivo 14 software and narrated in the linked pattern of child health service utilization.
    RESULTS: This study identified six major themes which emerged as barriers to healthcare utilization equity for caregivers and their -under-five children. Barriers related to equity in low level of awareness regarding need, low socioeconomic status, geographical inaccessibility, barriers related to deficient healthcare system, community perception and cultural restrictions, and barriers of equity related to political instability and conflict. The most commonly recognized barriers of equity at the community level were political instability, conflict, and a tremendous distance to a health facility. Transportation challenges, poor functional services, closure of the health facility in working hours, and lack of proper planning to address the marginalized populations were identified barriers of equity at organizational or policy level.
    CONCLUSIONS: This study showed that inequity in child healthcare utilization is an important challenge confronting Ethiopia. To achieve equity, policy makers and planners need to change health policy and structure to be pro-poor. It is also necessary to improve the healthcare system to increase service utilization and access for impoverished women, individuals with lower levels of education, and residents of isolated rural areas. Furthermore, context specific information pertaining to cultural barriers and political ecology are required.
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  • 文章类型: Journal Article
    复发性/难治性弥漫性大B细胞淋巴瘤(RRDLBCL)患者的标准治疗包括挽救性化疗,然后进行自体造血干细胞移植。然而,低收入/中等收入国家(LMICs)没有关于接受抢救治疗的患者数量和相关因素的信息.2016年至2021年在我们中心接受RRDLBCL治疗的所有患者均纳入研究。进行了单变量和多变量分析,以发现与缺乏抢救化疗相关的因素。85名患者被纳入研究。大多数患者患有原发性难治性疾病(69.4%)。只有26名患者接受了标准抢救治疗,而其他人(N=59)则接受了节律性/姑息性口服治疗。在单变量分析中,年收入低于印度人均国民总收入的患者(p=0.014),十二级以下的教育水平(p=0.025),III/IV期疾病复发(p=0.018)和CNS复发(p=0.027)更有可能接受姑息治疗。相反,晚期复发的患者更有可能接受抢救治疗(p=0.001).在多变量分析中,III/IV期复发(p=0.030)和教育水平低于XII级(p=0.012)的患者更有可能接受姑息治疗,而晚期复发的患者(p=0.001)更有可能接受抢救治疗。接受抢救治疗的患者的中位OS比接受姑息治疗的患者长(p<0.001)。复发的时机,复发阶段和患者的教育状况是影响LMICs患者获得有效治疗的重要因素。
    Standard therapy for patients with Relapsed/Refractory Diffuse Large B-Cell Lymphoma (RR DLBCL) involves salvage chemotherapy followed by autologous hematopoietic stem cell transplant. However, information regarding the number of patients receiving salvage therapy and associated factors is not available from low/middle income countries (LMICs). All patients treated at our center with RR DLBCL from 2016 to 2021 were included in the study. Univariate and multivariate analyses was performed to find factors associated with the lack of receipt of salvage chemotherapy. Eighty-five patients were included in the study. Most patients had primary refractory disease (69.4%). Only 26 patients received standard salvage therapy, while the others (N = 59) received metronomic/palliative oral therapy. On univariate analysis, patients with an annual income below India\'s Gross National Income per capita (p = 0.014), an education level below Class XII (p = 0.025), Stage III/IV disease at relapse (p = 0.018) and CNS relapse (p = 0.027) were more likely to receive palliative therapy. Conversely, patients with a late relapse were more likely to receive salvage therapy (p = 0.001). On multivariate analysis, patients with Stage III/IV relapse (p = 0.030) and an education level less than Class XII (p = 0.012) were more likely to receive palliative therapy, while patients with a late relapse (p = 0.001) were more likely to receive salvage therapy. Patients who received salvage therapy had a longer Median OS than those who received palliative therapy (p < 0.001). Timing of relapse, stage at relapse and educational status of the patient are significant factors affecting access to effective therapy for patients with RR DLBCL in LMICs.
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  • 文章类型: Journal Article
    背景:随着全球危机升级,对创新解决方案的需求日益增加,以增强人道主义成果。在这个景观中,数字健康工具已经成为应对某些健康挑战的有希望的解决方案。数字医疗工具在国际人道主义系统中的整合提供了一个机会来反思系统的家长式倾向,主要由全球北方组织推动,使全球南方现有的不平等现象长期存在,大多数危机发生的地方。参与革命,本地化议程的基本支柱,寻求通过倡导受危机影响的人们更多地参与应对努力来解决这些不平等。尽管被广泛接受为最佳做法;参与人道主义应急工作的言辞和做法之间仍然存在差距。本研究探讨了当代人道主义数字健康项目中参与行动的程度和性质,强调参与障碍和紧张局势,并提供潜在的解决方案来弥合参与差距,以加强人道主义应急工作中的变革。
    方法:对人道主义卫生从业人员和专家进行了16次定性访谈,以回顾性探索其数字卫生项目中的参与性做法。访谈是根据本地化绩效衡量框架的参与指标和主题进行结构化和分析的,遵循框架方法。该研究以COREQ清单为指导,以进行质量报告。
    结果:各种参与式格式,包括焦点小组和访谈,在参与指标方面取得了适度进展。然而,受危机影响的人们在参与期间所拥有的影响力和权力在广度和深度方面仍然有限。参与障碍在四个关键主题下出现:项目进程、健康证据,技术基础设施和危机背景。利用参与性数字卫生人道主义干预措施的经验教训正在进行全面的项目前评估,并在人道主义行动期间和之后与受危机影响的人群保持接触。
    结论:新出现的障碍有助于塑造有限的参与现实,并产生影响:未能参与受危机影响的人有可能使不平等现象长期存在并造成伤害。推进人道主义数字卫生应对工作的参与革命,应解决主要的参与障碍,以提高人道主义效率和数字卫生效力,并维护受危机影响者的权利。
    BACKGROUND: As crises escalate worldwide, there is an increasing demand for innovative solutions to enhance humanitarian outcomes. Within this landscape, digital health tools have emerged as promising solutions to tackle certain health challenges. The integration of digital health tools within the international humanitarian system provides an opportunity to reflect upon the system\'s paternalistic tendencies, driven largely by Global North organisations, that perpetuate existing inequities in the Global South, where the majority of crises occur. The Participation Revolution, a fundamental pillar of the Localisation Agenda, seeks to address these inequities by advocating for greater participation from crisis-affected people in response efforts. Despite being widely accepted as a best practice; a gap remains between the rhetoric and practice of participation in humanitarian response efforts. This study explores the extent and nature of participatory action within contemporary humanitarian digital health projects, highlighting participatory barriers and tensions and offering potential solutions to bridge the participation gap to enhance transformative change in humanitarian response efforts.
    METHODS: Sixteen qualitative interviews were conducted with humanitarian health practitioners and experts to retrospectively explored participatory practices within their digital health projects. The interviews were structured and analysed according to the Localisation Performance Measurement Framework\'s participation indicators and thematically, following the Framework Method. The study was guided by the COREQ checklist for quality reporting.
    RESULTS: Varied participatory formats, including focus groups and interviews, demonstrated modest progress towards participation indicators. However, the extent of influence and power held by crisis-affected people during participation remained limited in terms of breadth and depth. Participatory barriers emerged under four key themes: project processes, health evidence, technology infrastructure and the crisis context. Lessons for leveraging participatory digital health humanitarian interventions were conducting thorough pre-project assessments and maintaining engagement with crisis-affected populations throughout and after humanitarian action.
    CONCLUSIONS: The emerging barriers were instrumental in shaping the limited participatory reality and have implications: Failing to engage crisis-affected people risks perpetuating inequalities and causing harm. To advance the Participation Revolution for humanitarian digital health response efforts, the major participatory barriers should be addressed to improve humanitarian efficiency and digital health efficacy and uphold the rights of crisis-affected people.
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  • 文章类型: Journal Article
    背景:COVID-19大流行增加了几十年的证据,表明公共卫生机构经常超出其能力范围。社区卫生工作者(CHW)可以成为解决卫生不平等问题的公共卫生资源的重要扩展。但是记录CHW工作的系统通常是分散的,容易出现不必要的冗余,错误,效率低下。
    目的:我们寻求开发一种更有效的数据收集系统,以记录CHW进行的基于社区的广泛工作。
    方法:促进公平的社区组织(COPE)项目是一项旨在解决堪萨斯州健康差异的举措,在某种程度上,通过部署CHW。我们的团队反复设计和完善了CHW的新型数据收集系统的功能。使用CHW进行了几个月的试点测试,以确保该功能支持其日常使用。在数据库实现之后,程序被设置为维持CHW的反馈收集,社区合作伙伴,和具有类似系统的组织不断修改数据库以满足用户的需求。每月进行一次持续质量改进过程,以评估CHW绩效;在团队和个人层面交换有关持续质量改进结果和改进机会的反馈。Further,向所有33个COPECHWs和主管分发了15项反馈调查,以评估数据库功能的可行性,可访问性,和总体满意度。
    结果:启动时,该数据库在20个县有60个活跃用户。记录的客户互动始于需求评估(亚利桑那州自给自足矩阵和PRAPARE的修改版本[响应和评估患者资产的协议,风险,和经验]),并继续纵向跟踪实现目标的进展。基于用户特定的自动警报的仪表板显示需要跟进和即将发生的事件的客户端。该数据库包含超过5079个客户端的超过55,000个记录的相遇。已记录了来自2500多个社区组织的可用资源。调查数据表明,84%(27/32)的受访者认为数据库的整体导航非常容易。大多数受访者表示他们对数据库总体非常满意(14/32,44%)或满意(15/32,48%)。开放式响应表明了数据库的功能,社区组织的文档和同意书的视觉确认和数据存储在健康保险可移植性和责任法案兼容的记录系统,提高客户参与度,注册过程,和资源的识别。
    结论:我们的数据库超越了传统的电子病历,为不断变化的需求提供了灵活性。COPE数据库提供了有关CHW成就的实际数据,从而提高数据收集的一致性,以加强监测和评估。该数据库可以用作基于社区的文档系统的模型,并适用于其他社区环境。
    BACKGROUND: The COVID-19 pandemic added to the decades of evidence that public health institutions are routinely stretched beyond their capacity. Community health workers (CHWs) can be a crucial extension of public health resources to address health inequities, but systems to document CHW efforts are often fragmented and prone to unneeded redundancy, errors, and inefficiency.
    OBJECTIVE: We sought to develop a more efficient data collection system for recording the wide range of community-based efforts performed by CHWs.
    METHODS: The Communities Organizing to Promote Equity (COPE) project is an initiative to address health disparities across Kansas, in part, through the deployment of CHWs. Our team iteratively designed and refined the features of a novel data collection system for CHWs. Pilot tests with CHWs occurred over several months to ensure that the functionality supported their daily use. Following implementation of the database, procedures were set to sustain the collection of feedback from CHWs, community partners, and organizations with similar systems to continually modify the database to meet the needs of users. A continuous quality improvement process was conducted monthly to evaluate CHW performance; feedback was exchanged at team and individual levels regarding the continuous quality improvement results and opportunities for improvement. Further, a 15-item feedback survey was distributed to all 33 COPE CHWs and supervisors for assessing the feasibility of database features, accessibility, and overall satisfaction.
    RESULTS: At launch, the database had 60 active users in 20 counties. Documented client interactions begin with needs assessments (modified versions of the Arizona Self-sufficiency Matrix and PRAPARE [Protocol for Responding to and Assessing Patient Assets, Risks, and Experiences]) and continue with the longitudinal tracking of progress toward goals. A user-specific automated alerts-based dashboard displays clients needing follow-up and upcoming events. The database contains over 55,000 documented encounters across more than 5079 clients. Available resources from over 2500 community organizations have been documented. Survey data indicated that 84% (27/32) of the respondents considered the overall navigation of the database as very easy. The majority of the respondents indicated they were overall very satisfied (14/32, 44%) or satisfied (15/32, 48%) with the database. Open-ended responses indicated the database features, documentation of community organizations and visual confirmation of consent form and data storage on a Health Insurance Portability and Accountability Act-compliant record system, improved client engagement, enrollment processes, and identification of resources.
    CONCLUSIONS: Our database extends beyond conventional electronic medical records and provides flexibility for ever-changing needs. The COPE database provides real-world data on CHW accomplishments, thereby improving the uniformity of data collection to enhance monitoring and evaluation. This database can serve as a model for community-based documentation systems and be adapted for use in other community settings.
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