PDF(Pubmed)
Abstract：
UNASSIGNED: Cervical cancer is one of the most preventable cancers yet remains a disease of inequity for people with intellectual disability, in part due to low screening rates. The ScreenEQUAL project will use an integrated knowledge translation (iKT) model to co-produce and evaluate accessible cervical screening resources with and for this group.
UNASSIGNED: Stage 1 will qualitatively explore facilitators and barriers to screening participation for people with intellectual disability, families and support people, healthcare providers and disability sector stakeholders (n ≈ 20 in each group). An accessible multimodal screening resource, accompanying supporting materials for families and support people, and trauma-informed healthcare provider training materials will then be co-produced through a series of workshops. Stage 2 will recruit people with intellectual disability aged 25 to 74 who are due or overdue for screening into a single-arm trial (n = 48). Trained support people will provide them with the co-produced resource in accessible workshops (intervention) and support them in completing pre-post questions to assess informed decision-making. A subset will participate in qualitative post-intervention interviews including optional body-mapping (n ≈ 20). Screening uptake in the 9-months following the intervention will be measured through data linkage. Family members and support people (n = 48) and healthcare providers (n = 433) will be recruited into single-arm sub-studies. Over a 4-month period they will, respectively, receive the accompanying supporting materials, and the trauma-informed training materials. Both groups will complete pre-post online surveys. A subset of each group (n ≈ 20) will be invited to participate in post-intervention semi-structured interviews.
UNASSIGNED: Our primary outcome is a change in informed decision-making by people with intellectual disability across the domains of knowledge, attitudes, and screening intention. Secondary outcomes include: (i) uptake of screening in the 9-months following the intervention workshops, (ii) changes in health literacy, attitudes and self-efficacy of family members and support people, and (iii) changes in knowledge, attitudes, self-efficacy and preparedness of screening providers. Each participant group will evaluate acceptability, feasibility and usability of the resources.
UNASSIGNED: If found to be effective and acceptable, the co-produced cervical screening resources and training materials will be made freely available through the ScreenEQUAL website to support national, and potentially international, scale-up.
UNASSIGNED: Stage 1 will qualitatively explore facilitators and barriers to screening participation for people with intellectual disability, families and support people, healthcare providers and disability sector stakeholders (n ≈ 20 in each group). An accessible multimodal screening resource, accompanying supporting materials for families and support people, and trauma-informed healthcare provider training materials will then be co-produced through a series of workshops. Stage 2 will recruit people with intellectual disability aged 25 to 74 who are due or overdue for screening into a single-arm trial (n = 48). Trained support people will provide them with the co-produced resource in accessible workshops (intervention) and support them in completing pre-post questions to assess informed decision-making. A subset will participate in qualitative post-intervention interviews including optional body-mapping (n ≈ 20). Screening uptake in the 9-months following the intervention will be measured through data linkage. Family members and support people (n = 48) and healthcare providers (n = 433) will be recruited into single-arm sub-studies. Over a 4-month period they will, respectively, receive the accompanying supporting materials, and the trauma-informed training materials. Both groups will complete pre-post online surveys. A subset of each group (n ≈ 20) will be invited to participate in post-intervention semi-structured interviews.
UNASSIGNED: Our primary outcome is a change in informed decision-making by people with intellectual disability across the domains of knowledge, attitudes, and screening intention. Secondary outcomes include: (i) uptake of screening in the 9-months following the intervention workshops, (ii) changes in health literacy, attitudes and self-efficacy of family members and support people, and (iii) changes in knowledge, attitudes, self-efficacy and preparedness of screening providers. Each participant group will evaluate acceptability, feasibility and usability of the resources.
UNASSIGNED: If found to be effective and acceptable, the co-produced cervical screening resources and training materials will be made freely available through the ScreenEQUAL website to support national, and potentially international, scale-up.
摘要：
宫颈癌是最可预防的癌症之一，但仍然是智障人士不平等的疾病，部分原因是筛查率低。ScreenEQUAL项目将使用集成的知识翻译（iKT）模型与该组共同制作和评估可访问的子宫颈筛查资源。
■第一阶段将定性地探讨智障人士参与筛查的促进者和障碍，家庭和支持的人，医疗保健提供者和残疾部门利益相关者(每组n≈20)。可访问的多模式筛选资源，为家庭和支持人提供支持材料，然后，将通过一系列研讨会共同制作创伤知情的医疗保健提供者培训材料。第2阶段将招募年龄在25至74岁之间的智障人士，他们将因筛查或过期而进入单臂试验（n=48）。经过培训的支助人员将在无障碍讲习班（干预）中为他们提供共同制作的资源，并支持他们完成事后问题，以评估知情决策。一个子集将参加定性干预后访谈，包括可选的身体映射（n≈20）。干预后9个月的筛查摄取将通过数据链接进行测量。家庭成员和支持人员（n=48）和医疗保健提供者（n=433）将被招募到单臂子研究中。在4个月的时间里，他们会，分别,收到随附的辅助材料，和创伤信息培训材料。两组都将完成pre-post在线调查。每组的一个子集（n≈20）将被邀请参加干预后的半结构化访谈。
■我们的主要结果是知识领域的智障人士在知情决策方面的变化，态度，和筛选意图。次要结果包括：（i）在干预研讨会后的9个月内接受筛查，(ii)健康素养的变化，家庭成员和支持者的态度和自我效能感，和（iii）知识的变化，态度，筛查提供者的自我效能和准备。每个参与者小组将评估可接受性，资源的可行性和可用性。
■如果发现有效且可接受，共同制作的子宫颈筛查资源和培训材料将通过ScreenEQUAL网站免费提供，以支持国家，潜在的国际性，放大。
■第一阶段将定性地探讨智障人士参与筛查的促进者和障碍，家庭和支持的人，医疗保健提供者和残疾部门利益相关者(每组n≈20)。可访问的多模式筛选资源，为家庭和支持人提供支持材料，然后，将通过一系列研讨会共同制作创伤知情的医疗保健提供者培训材料。第2阶段将招募年龄在25至74岁之间的智障人士，他们将因筛查或过期而进入单臂试验（n=48）。经过培训的支助人员将在无障碍讲习班（干预）中为他们提供共同制作的资源，并支持他们完成事后问题，以评估知情决策。一个子集将参加定性干预后访谈，包括可选的身体映射（n≈20）。干预后9个月的筛查摄取将通过数据链接进行测量。家庭成员和支持人员（n=48）和医疗保健提供者（n=433）将被招募到单臂子研究中。在4个月的时间里，他们会，分别,收到随附的辅助材料，和创伤信息培训材料。两组都将完成pre-post在线调查。每组的一个子集（n≈20）将被邀请参加干预后的半结构化访谈。
■我们的主要结果是知识领域的智障人士在知情决策方面的变化，态度，和筛选意图。次要结果包括：（i）在干预研讨会后的9个月内接受筛查，(ii)健康素养的变化，家庭成员和支持者的态度和自我效能感，和（iii）知识的变化，态度，筛查提供者的自我效能和准备。每个参与者小组将评估可接受性，资源的可行性和可用性。
■如果发现有效且可接受，共同制作的子宫颈筛查资源和培训材料将通过ScreenEQUAL网站免费提供，以支持国家，潜在的国际性，放大。
