目的:评估遗传咨询师在考虑对遗传性遗传病进行基因检测时,决策辅助手段的有效性,以改善他们在决策和心理健康方面的冲突。以及他们对这些测试的了解和他们的遗传风险。
方法:系统评价。
方法:六个电子数据库(PubMed,MEDLINE,OVID护理,APAPsycINFO,EMBASE和CINAHL)从开始到2022年5月进行了搜索。
方法:仅随机对照试验,这些试验检查了决策辅助工具对信息提供的影响,将基因检测集中在结果上,包括决策冲突,明智的选择,关于遗传风险或基因测试的知识,纳入接受遗传咨询的参与者的心理结局.他们的偏倚风险使用Cochrane偏倚风险工具的第2版进行随机试验评估。结果以叙述方式呈现。审查是根据PRISMA核对表进行的。
结果:纳入的八项研究检查了基于小册子的效果,基于计算机,基于电影或基于网络的决策有助于考虑进行基因检测以增加癌症风险的个人。尽管不同研究的结果形成对比,他们表明,决策辅助工具使遗传顾问在基因测试的决策中更加知情,尽管大多数对决策冲突没有影响。使用决策辅助工具后,遗传咨询师对遗传风险和遗传测试的了解有所增加。大多数研究表明,对评估的任何心理结果都没有显着影响。
结论:审查结果证实了使用决策辅助手段来提高遗传咨询的有效性,使遗传咨询师能够获得更多的遗传测试知识,并在做出决定进行这些测试时感到更加知情。
结论:决策辅助工具可用于支持护士主导的遗传咨询,以更好地获取咨询人员的知识和决策。
■患者或公众贡献不适用,因为这是系统评价。
OBJECTIVE: To assess the effectiveness of decision aids for genetic counsellees to improve their conflicts in decision-making and psychological well-being when considering genetic tests for inherited genetic diseases, and their knowledge about these tests and their genetic risks.
METHODS: Systematic
review.
METHODS: Six electronic databases (PubMed, MEDLINE, OVID Nursing, APA PsycINFO, EMBASE and CINAHL) were searched from inception to May 2022.
METHODS: Only randomised controlled trials that examined the effect of decision aids for information provision centring genetic testing on outcomes including decisional conflicts, informed choice making, knowledge on genetic risks or genetic tests, and psychological outcomes among participants who had undergone genetic counselling were included. Their risk of bias was assessed using the Version 2 of the Cochrane risk of bias tool for randomised trials. Results were presented narratively. The
review was conducted according to the PRISMA checklist.
RESULTS: Eight included studies examined the effect of booklet-based, computer-based, film-based or web-based decision aids on individuals considering genetic testing for their increased cancer risks. Despite contrasting findings across studies, they showed that decision aids enable genetic counsellees to feel more informed in decision-making on genetic tests, although most showed no effect on decisional conflict. Knowledge of genetic counsellees on genetic risks and genetic tests were increased after the use of decision aids. Most studies showed no significant effect on any psychological outcomes assessed.
CONCLUSIONS: Review findings corroborate the use of decision aids to enhance the effective delivery of genetic counselling, enabling genetic counsellees to gain more knowledge of genetic tests and feel more informed in making decisions to have these tests.
CONCLUSIONS: Decision aids can be used to support nurse-led genetic counselling for better knowledge acquisition and decision-making among counsellees.
UNASSIGNED: Patient or public contribution is not applicable as this is a systematic
review.