确定弱势成人哮喘患者在缓解与症状控制不良相关的社会和环境因素方面面临的挑战。
使用社区参与的方法,我们和纽黑文的一个社区卫生中心合作,CT对症状控制不佳的哮喘成人进行面对面访谈和书面调查。使用常数比较法,我们分析了参与者访谈,以确定新出现的主题,并确定改善结果的共同障碍.通过一项利用临床验证问题的书面调查,我们评估了获得医疗服务的信息,哮喘控制,以及选定的社会和环境风险因素。
21名患者(平均年龄47岁,62%为女性,71%黑色,95%由医疗补助保险)参加。平均哮喘控制测试(ACT)评分为11.6。76%的参与者目前被雇用,其中,75%的人报告了与工作相关的症状。在目前住房的参与者中,59%的人报告暴露于家庭小鼠,47%报告暴露于霉菌。我们确定了三个主题,总结了研究参与者面临的挑战:1)缺乏有关家庭和工作场所哮喘诱因的知识;2)缺乏对缓解家庭或工作环境中不利条件的合法权利或资源的认识;3)害怕房东或雇主的报复,包括驱逐威胁,性侵犯,和失业。
在东北不利的城市社区中,哮喘控制不佳的患者在家庭和工作环境中发现了阻碍症状控制的共同障碍。这些挑战最好通过对风险最大的人进行法律宣传来解决。
To identify challenges that disadvantaged adults with asthma face in mitigating social and environmental factors associated with poor symptom control.
Using a community-engaged approach, we partnered with a community health center in New Haven, CT to conduct in-person interviews and a written survey of asthmatic adults with poor symptom control. Using the constant comparative method, we analyzed participant interviews to establish emerging themes and identify common barriers to improved outcomes. Through a written survey utilizing clinically validated questions, we assessed information on access to medical care, asthma control, and selected social and environmental risk factors.
Twenty-one patients (mean age 47, 62% female, 71% Black, 95% insured by Medicaid) participated. The average Asthma Control Test (ACT) score was 11.6. Seventy-six percent of participants were currently employed and of those, 75% reported work-related symptoms. Among participants currently in housing, 59% reported exposure to domiciliary mice and 47% to mold. We identified three themes that summarize the challenges the
study participants face: 1) Lack of knowledge about home and workplace asthma triggers; 2) Lack of awareness of legal rights or resources available to mitigate adverse conditions in the home or work environment; and 3) Fear of retaliation from landlords or employers, including threats of eviction, sexual assault, and job loss.
Patients with poorly controlled asthma in a disadvantaged urban northeast community identified common barriers in both the domestic and work environments that impeded attainment of symptom control. These challenges may be best addressed through legal advocacy for those most at risk.