PDF(Pubmed)
Abstract：
Asthma morbidity and mortality are disproportionately high in the Black population, especially among Black emerging adults (BEAs) (age 18-30 years). Few studies have been done to identify unique challenges to asthma care in BEAs.
To assess the challenges and barriers to asthma care BEAs experience.
We conducted virtual focus groups consisting of BEAs (n = 16) with a physician diagnosis of asthma. Discussion questions regarding asthma triggers, management, and challenges were used. Focus group discussions were recorded and transcribed verbatim. The transcripts were then coded by 3 coders using a thematic saturation approach.
Seven major domains were identified: heightened anxiety around asthma management; asthma symptoms interfering with school and/or work; asthma in social group setting; transitioning to adulthood leading to increased autonomy and financial independence; use of technology in asthma management; concerns regarding coronavirus disease 2019; and perceived discrimination and biases. These domains create complex barriers to optimal asthma management and overlapping elements were identified. Technology was described as a potential method to address these challenges.
BEAs with asthma have unique challenges due to age and race. Physicians should address these challenges through innovative means such as technology-based interventions.
To assess the challenges and barriers to asthma care BEAs experience.
We conducted virtual focus groups consisting of BEAs (n = 16) with a physician diagnosis of asthma. Discussion questions regarding asthma triggers, management, and challenges were used. Focus group discussions were recorded and transcribed verbatim. The transcripts were then coded by 3 coders using a thematic saturation approach.
Seven major domains were identified: heightened anxiety around asthma management; asthma symptoms interfering with school and/or work; asthma in social group setting; transitioning to adulthood leading to increased autonomy and financial independence; use of technology in asthma management; concerns regarding coronavirus disease 2019; and perceived discrimination and biases. These domains create complex barriers to optimal asthma management and overlapping elements were identified. Technology was described as a potential method to address these challenges.
BEAs with asthma have unique challenges due to age and race. Physicians should address these challenges through innovative means such as technology-based interventions.
摘要：
背景：黑人人群的哮喘发病率和死亡率过高，特别是在黑人新兴成年人(BEA)(年龄18-30岁)中。很少有研究来确定BEA中哮喘护理的独特挑战。
目的：评估哮喘治疗的挑战和障碍。
方法：我们进行了由BEA（n=16）组成的虚拟焦点小组，医生诊断为哮喘。关于哮喘诱因的讨论问题，管理,挑战被利用。焦点小组讨论进行了记录和逐字抄录。然后使用主题饱和方法由3位编码器对转录本进行编码。
结果：确定了七个主要领域：围绕哮喘管理的焦虑加剧；哮喘症状干扰学校和/或工作；社会群体环境中的哮喘；过渡到成年，导致自主性和财务独立性增加；在哮喘管理中使用技术；对2019年冠状病毒疾病的担忧；以及感知的歧视和偏见。这些领域为优化哮喘管理创造了复杂的障碍，并确定了重叠的元素。技术被描述为解决这些挑战的潜在方法。
结论：哮喘患者因年龄和种族而面临独特的挑战。医生应该通过创新手段解决这些挑战，如基于技术的干预措施。
目的：评估哮喘治疗的挑战和障碍。
方法：我们进行了由BEA（n=16）组成的虚拟焦点小组，医生诊断为哮喘。关于哮喘诱因的讨论问题，管理,挑战被利用。焦点小组讨论进行了记录和逐字抄录。然后使用主题饱和方法由3位编码器对转录本进行编码。
结果：确定了七个主要领域：围绕哮喘管理的焦虑加剧；哮喘症状干扰学校和/或工作；社会群体环境中的哮喘；过渡到成年，导致自主性和财务独立性增加；在哮喘管理中使用技术；对2019年冠状病毒疾病的担忧；以及感知的歧视和偏见。这些领域为优化哮喘管理创造了复杂的障碍，并确定了重叠的元素。技术被描述为解决这些挑战的潜在方法。
结论：哮喘患者因年龄和种族而面临独特的挑战。医生应该通过创新手段解决这些挑战，如基于技术的干预措施。
