Abstract：
Patients with cerebral palsy (CP) face lifelong consequences of their condition, and their healthcare needs evolve as they age. Transitional care for these patients is not universally available and various models have been described. In this article, the authors review the current literature surrounding transitional care for patients with CP, focusing predominantly on the neurosurgical aspects of transitional care, and they describe current approaches adopted by programs in North America. They further describe their own experience developing a transitional care clinic for patients with CP, as well as the integration of this program with a multidisciplinary clinic to address the specific challenges that growing patients face in our region.
The authors performed a literature review to identify models, barriers, and assessments of effective transitional care for CP patients. They also reviewed the recommendations of various professional societies regarding transitional care practices. They performed qualitative analysis of the relevant literature.
Transitional care has been broadly categorized into transitional care clinics with multidisciplinary teams and facilitator-led transitional care. CP patients have to overcome a variety of barriers, including those from within the healthcare system as well as environmental and personal, during the period of their transition. These challenges are all interconnected, and navigation requires healthcare professionals to work closely with patients and their caregivers. Multiple instruments are described to measure successful transition, which is likely a reflection of the unique needs that a patient may require. Current guidelines recommend that neurosurgeons select a suitable model of care based on their own local practice and available services, develop a well-defined transition plan, and identify a primary transition facilitator or care coordinator.
Providing effective transitional care to CP patients remains challenging given the different models of care and the barriers faced by them during the period of transition. In developing a transitional care program for these patients, attention must be given to the resources that are available regionally, with an effort to incorporate the best practices from successful transitional care programs.
The authors performed a literature review to identify models, barriers, and assessments of effective transitional care for CP patients. They also reviewed the recommendations of various professional societies regarding transitional care practices. They performed qualitative analysis of the relevant literature.
Transitional care has been broadly categorized into transitional care clinics with multidisciplinary teams and facilitator-led transitional care. CP patients have to overcome a variety of barriers, including those from within the healthcare system as well as environmental and personal, during the period of their transition. These challenges are all interconnected, and navigation requires healthcare professionals to work closely with patients and their caregivers. Multiple instruments are described to measure successful transition, which is likely a reflection of the unique needs that a patient may require. Current guidelines recommend that neurosurgeons select a suitable model of care based on their own local practice and available services, develop a well-defined transition plan, and identify a primary transition facilitator or care coordinator.
Providing effective transitional care to CP patients remains challenging given the different models of care and the barriers faced by them during the period of transition. In developing a transitional care program for these patients, attention must be given to the resources that are available regionally, with an effort to incorporate the best practices from successful transitional care programs.
摘要：
脑瘫（CP）患者面临其病情的终身后果，他们的医疗保健需求随着年龄的增长而变化。这些患者的过渡性护理尚未普遍可用，并且已经描述了各种模型。在这篇文章中,作者回顾了目前围绕CP患者的过渡期护理的文献，主要关注过渡护理的神经外科方面，他们描述了北美项目目前采用的方法。他们进一步描述了自己为CP患者开发过渡性护理诊所的经验，以及该计划与多学科诊所的整合，以解决我们地区不断增长的患者面临的具体挑战。
作者进行了文献综述，以确定模型，障碍,并评估CP患者的有效过渡护理。他们还审查了各专业协会关于过渡护理做法的建议。他们对相关文献进行了定性分析。
过渡性护理大致分为过渡性护理诊所，由多学科团队和主持人主导的过渡性护理。CP患者必须克服各种障碍，包括来自医疗保健系统以及环境和个人的那些，在他们的过渡时期。这些挑战都是相互关联的，和导航要求医疗保健专业人员与患者及其护理人员密切合作。描述了多种仪器来衡量成功的过渡，这可能反映了患者可能需要的独特需求。现行指引建议神经外科医生根据自己当地的实践和现有服务,选择合适的护理模式,制定一个明确的过渡计划，并确定主要的过渡促进者或护理协调员。
考虑到不同的护理模式和过渡期内他们所面临的障碍，为CP患者提供有效的过渡期护理仍然具有挑战性。在为这些患者制定过渡性护理计划时，必须注意区域可用的资源，努力纳入成功的过渡性护理计划的最佳实践。
作者进行了文献综述，以确定模型，障碍,并评估CP患者的有效过渡护理。他们还审查了各专业协会关于过渡护理做法的建议。他们对相关文献进行了定性分析。
过渡性护理大致分为过渡性护理诊所，由多学科团队和主持人主导的过渡性护理。CP患者必须克服各种障碍，包括来自医疗保健系统以及环境和个人的那些，在他们的过渡时期。这些挑战都是相互关联的，和导航要求医疗保健专业人员与患者及其护理人员密切合作。描述了多种仪器来衡量成功的过渡，这可能反映了患者可能需要的独特需求。现行指引建议神经外科医生根据自己当地的实践和现有服务,选择合适的护理模式,制定一个明确的过渡计划，并确定主要的过渡促进者或护理协调员。
考虑到不同的护理模式和过渡期内他们所面临的障碍，为CP患者提供有效的过渡期护理仍然具有挑战性。在为这些患者制定过渡性护理计划时，必须注意区域可用的资源，努力纳入成功的过渡性护理计划的最佳实践。
