METHODS: The consensus was derived using the Delphi methodology. Fifty-three statements were developed by a Steering Group (the authors of this paper) covering seven topics: Define the goals of transition, Preparing the patient, carers/parents and the adult centre, The transition process at the paediatric centre, The multidisciplinary transition summary - Principles, The multidisciplinary transition summary - Content, First visit in the adult centre, Evaluation of transition. The statements were shared with paediatric and adult neurologists across Central Eastern Europe (CEE) as a survey requesting their level of agreement with each statement.
RESULTS: Data from 60 responders (54 full responses and six partial responses) were included in the data set analysis. A consensus was agreed across 100% of the statements.
CONCLUSIONS: It is hoped that the findings of this survey which sets out agreed best practice statements, and the transfer template documents developed, will be widely used and so facilitate an effective transition from paediatric to adult care for adolescents with DMD.
方法:使用德尔菲法得出共识。指导小组(本文的作者)制定了53个声明,涵盖七个主题:定义过渡目标,准备病人,照顾者/父母和成人中心,儿科中心的过渡过程,多学科过渡摘要-原则,多学科过渡摘要-内容,首次访问成人中心,对转型的评价。这些声明与中东欧(CEE)的儿科和成人神经科医生分享,作为一项调查,要求他们对每个声明的同意程度。
结果:来自60名应答者(54名完全应答和6名部分应答)的数据包括在数据集分析中。在100%的声明中达成了共识。
结论:希望本次调查的结果列出了商定的最佳实践声明,和开发的转移模板文件,将被广泛使用,从而促进DMD青少年从儿科护理到成人护理的有效过渡。