PDF(Pubmed)
Abstract：
BACKGROUND: Kidney living donation carries risks, yet standardized information provision regarding nephrectomy risks and psychological impacts for candidates remains lacking.
OBJECTIVE: This study assesses the benefit of interactive health technology in improving the informed consent process for kidney living donation.
METHODS: The Kidney Hub institutional open portal offers comprehensive information on kidney disease and donation. Individuals willing to start the kidney living donation process at Helsinki University Hospital (January 2019-January 2022) were invited to use the patient-tailored digital care path (Living Donor Digital Care Path) included in the Kidney Hub. This platform provides detailed donation process information and facilitates communication between health care professionals and patients. eHealth literacy was evaluated via the eHealth Literacy Scale (eHEALS), usability with the System Usability Scale (SUS), and system utility through Likert-scale surveys with scores of 1-5. Qualitative content analysis addressed an open-ended question.
RESULTS: The Kidney Hub portal received over 8000 monthly visits, including to its sections on donation benefits (n=1629 views) and impact on donors\' lives (n=4850 views). Of 127 living kidney donation candidates, 7 did not use Living Donor Digital Care Path. Users\' ages ranged from 20 to 79 years, and they exchanged over 3500 messages. A total of 74 living donor candidates participated in the survey. Female candidates more commonly searched the internet about kidney donation (n=79 female candidates vs n=48 male candidates; P=.04). The mean eHEALS score correlated with internet use for health decisions (r=0.45; P<.001) and its importance (r=0.40; P=.01). Participants found that the Living Donor Digital Care Path was technically satisfactory (mean SUS score 4.4, SD 0.54) and useful but not pivotal in donation decision-making. Concerns focused on postsurgery coping for donors and recipients.
CONCLUSIONS: Telemedicine effectively educates living kidney donor candidates on the donation process. The Living Donor Digital Care Path serves as a valuable eHealth tool, aiding clinicians in standardizing steps toward informed consent.
BACKGROUND: ClinicalTrials.gov NCT04791670; https://clinicaltrials.gov/study/NCT04791670.
UNASSIGNED: RR2-10.1136/bmjopen-2021-051166.
OBJECTIVE: This study assesses the benefit of interactive health technology in improving the informed consent process for kidney living donation.
METHODS: The Kidney Hub institutional open portal offers comprehensive information on kidney disease and donation. Individuals willing to start the kidney living donation process at Helsinki University Hospital (January 2019-January 2022) were invited to use the patient-tailored digital care path (Living Donor Digital Care Path) included in the Kidney Hub. This platform provides detailed donation process information and facilitates communication between health care professionals and patients. eHealth literacy was evaluated via the eHealth Literacy Scale (eHEALS), usability with the System Usability Scale (SUS), and system utility through Likert-scale surveys with scores of 1-5. Qualitative content analysis addressed an open-ended question.
RESULTS: The Kidney Hub portal received over 8000 monthly visits, including to its sections on donation benefits (n=1629 views) and impact on donors\' lives (n=4850 views). Of 127 living kidney donation candidates, 7 did not use Living Donor Digital Care Path. Users\' ages ranged from 20 to 79 years, and they exchanged over 3500 messages. A total of 74 living donor candidates participated in the survey. Female candidates more commonly searched the internet about kidney donation (n=79 female candidates vs n=48 male candidates; P=.04). The mean eHEALS score correlated with internet use for health decisions (r=0.45; P<.001) and its importance (r=0.40; P=.01). Participants found that the Living Donor Digital Care Path was technically satisfactory (mean SUS score 4.4, SD 0.54) and useful but not pivotal in donation decision-making. Concerns focused on postsurgery coping for donors and recipients.
CONCLUSIONS: Telemedicine effectively educates living kidney donor candidates on the donation process. The Living Donor Digital Care Path serves as a valuable eHealth tool, aiding clinicians in standardizing steps toward informed consent.
BACKGROUND: ClinicalTrials.gov NCT04791670; https://clinicaltrials.gov/study/NCT04791670.
UNASSIGNED: RR2-10.1136/bmjopen-2021-051166.
摘要：
背景：肾脏活体捐赠存在风险，然而,关于肾切除术风险和对候选人的心理影响的标准化信息提供仍然缺乏.
目的：本研究评估了交互式健康技术在改善肾脏活体捐赠知情同意过程中的益处。
方法：肾脏中心机构开放门户提供关于肾脏疾病和捐献的全面信息。愿意在赫尔辛基大学医院（2019年1月至2022年1月）开始肾脏活体捐赠过程的个人被邀请使用肾脏中心中包含的患者量身定制的数字护理路径（活体捐赠者数字护理路径）。该平台提供详细的捐赠过程信息，并促进医疗保健专业人员和患者之间的沟通。通过电子健康素养量表(eHEALS)评估电子健康素养，系统可用性量表(SUS)的可用性，和系统效用通过李克特量表调查，得分为1-5分。定性内容分析解决了一个开放式问题。
结果：肾脏中心门户每月接受8000多次访问，包括其关于捐赠福利(n=1629次)和对捐赠者生活的影响(n=4850次)的部分。在127名活体肾脏捐赠候选人中，7没有使用活人数字护理路径。用户年龄从20岁到79岁不等，他们交换了3500多条信息。共有74名活体捐献者参加了调查。女性候选人更经常在互联网上搜索有关肾脏捐赠的信息（n=79女性候选人，n=48男性候选人；P=.04）。平均eHEALS评分与互联网使用健康决策相关(r=0.45;P<.001)及其重要性(r=0.40;P=.01)。参与者发现，活体捐赠者数字护理路径在技术上令人满意（平均SUS得分为4.4，SD0.54），并且有用，但在捐赠决策中并不重要。关注集中在手术后应对捐助者和接受者。
结论：远程医疗有效地教育活体肾脏捐献者的捐献过程。活体捐献者数字护理路径是一种有价值的电子健康工具，帮助临床医生规范知情同意的步骤。
背景：ClinicalTrials.govNCT04791670;https://clinicaltrials.gov/study/NCT04791670。
■RR2-10.1136/bmjopen-2021-051166。
目的：本研究评估了交互式健康技术在改善肾脏活体捐赠知情同意过程中的益处。
方法：肾脏中心机构开放门户提供关于肾脏疾病和捐献的全面信息。愿意在赫尔辛基大学医院（2019年1月至2022年1月）开始肾脏活体捐赠过程的个人被邀请使用肾脏中心中包含的患者量身定制的数字护理路径（活体捐赠者数字护理路径）。该平台提供详细的捐赠过程信息，并促进医疗保健专业人员和患者之间的沟通。通过电子健康素养量表(eHEALS)评估电子健康素养，系统可用性量表(SUS)的可用性，和系统效用通过李克特量表调查，得分为1-5分。定性内容分析解决了一个开放式问题。
结果：肾脏中心门户每月接受8000多次访问，包括其关于捐赠福利(n=1629次)和对捐赠者生活的影响(n=4850次)的部分。在127名活体肾脏捐赠候选人中，7没有使用活人数字护理路径。用户年龄从20岁到79岁不等，他们交换了3500多条信息。共有74名活体捐献者参加了调查。女性候选人更经常在互联网上搜索有关肾脏捐赠的信息（n=79女性候选人，n=48男性候选人；P=.04）。平均eHEALS评分与互联网使用健康决策相关(r=0.45;P<.001)及其重要性(r=0.40;P=.01)。参与者发现，活体捐赠者数字护理路径在技术上令人满意（平均SUS得分为4.4，SD0.54），并且有用，但在捐赠决策中并不重要。关注集中在手术后应对捐助者和接受者。
结论：远程医疗有效地教育活体肾脏捐献者的捐献过程。活体捐献者数字护理路径是一种有价值的电子健康工具，帮助临床医生规范知情同意的步骤。
背景：ClinicalTrials.govNCT04791670;https://clinicaltrials.gov/study/NCT04791670。
■RR2-10.1136/bmjopen-2021-051166。
