PDF(Pubmed)
Abstract：
BACKGROUND: The stay of a critically ill child in a pediatric intensive care unit (PICU) is a significant experience for the family. Thus far, little is known regarding the impact of this stay on parents and their healthy children for whom no continuous aftercare services are offered. This study aimed to capture the post-stay experience and needs of parents after this traumatic event so that they could return to family and everyday life.
METHODS: This qualitative descriptive study was conducted in collaboration with four pediatric intensive care units in Switzerland. It included parents whose children had fully recovered after a stay and who did not require continuous medical follow-up. All children were hospitalized in the PICU for at least 48 h. Data were collected through narrative pairs (n = 6) and individual interviews (n = 8). Interviews were audio recorded, transcribed, coded inductively according to Saldaña, and analyzed.
RESULTS: The results showed three related phases that influence each other to restore normality in daily life: Trust and inclusion in the treatment process during the stay (1), processing after the stay (2), and returning to everyday life (3).
CONCLUSIONS: Follow-up meetings should be available to all parents whose children have been hospitalized in the PICU. In particular, it should also be available to parents whose children have fully recovered and no longer have any medical disabilities.
METHODS: This qualitative descriptive study was conducted in collaboration with four pediatric intensive care units in Switzerland. It included parents whose children had fully recovered after a stay and who did not require continuous medical follow-up. All children were hospitalized in the PICU for at least 48 h. Data were collected through narrative pairs (n = 6) and individual interviews (n = 8). Interviews were audio recorded, transcribed, coded inductively according to Saldaña, and analyzed.
RESULTS: The results showed three related phases that influence each other to restore normality in daily life: Trust and inclusion in the treatment process during the stay (1), processing after the stay (2), and returning to everyday life (3).
CONCLUSIONS: Follow-up meetings should be available to all parents whose children have been hospitalized in the PICU. In particular, it should also be available to parents whose children have fully recovered and no longer have any medical disabilities.
摘要：
背景：重症患儿在儿科重症监护病房（PICU）的住院对家庭来说是重要的经历。到目前为止,对于这种逗留对父母及其健康子女的影响知之甚少，他们没有提供持续的善后服务。这项研究旨在捕捉父母在这次创伤事件后的入住经历和需求，以便他们能够回到家庭和日常生活中。
方法：这项定性描述性研究是与瑞士的四个儿科重症监护病房合作进行的。其中包括父母，他们的孩子在住院后完全康复，不需要持续的医疗随访。所有儿童在PICU住院至少48小时。通过叙述对（n=6）和个体访谈（n=8）收集数据。采访是录音，转录，根据Saldaña感应编码，并分析。
结果：结果显示三个相关阶段，相互影响以恢复正常日常生活：住院期间信任和纳入治疗过程（1），停留后的处理（2），回到日常生活中（3）。
结论：所有儿童在PICU住院的父母都应参加随访会议。特别是,它也应该提供给孩子已经完全康复并且不再有任何医疗残疾的父母。
方法：这项定性描述性研究是与瑞士的四个儿科重症监护病房合作进行的。其中包括父母，他们的孩子在住院后完全康复，不需要持续的医疗随访。所有儿童在PICU住院至少48小时。通过叙述对（n=6）和个体访谈（n=8）收集数据。采访是录音，转录，根据Saldaña感应编码，并分析。
结果：结果显示三个相关阶段，相互影响以恢复正常日常生活：住院期间信任和纳入治疗过程（1），停留后的处理（2），回到日常生活中（3）。
结论：所有儿童在PICU住院的父母都应参加随访会议。特别是,它也应该提供给孩子已经完全康复并且不再有任何医疗残疾的父母。
