Experience

经验
  • 文章类型: Journal Article
    这项研究为癌症患者使用的隐喻提供了持续的讨论。其目的是探索有乳腺癌病史的女性如何使用隐喻来表达和解释癌症缓解的经历。数据是在访谈中收集的,旨在捕捉参与者对乳腺癌经历的丰富和隐喻性描述,以及这些经历对他们意味着什么。招募了10名参与者。对参与者的叙事进行的解释性现象学分析强调了一个中心隐喻:生命中的癌症痕迹。参与者必须适应四种特定的癌症痕迹:(1)身份痕迹,(2)存在的痕迹,(3)身体痕迹,和(4)叙事痕迹。我们讨论了癌症如何挑战一个人的传记连续性感,并开始寻找一种新的存在方式。我们还讨论了痕迹的隐喻与没有任何癌症痕迹的癌症英雄的隐喻有何不同。
    This study feeds into ongoing discussions on the metaphors used by cancer patients. Its aim is to explore how women living with a history of breast cancer use metaphors to express and interpret the experience of cancer remission. Data were collected in interviews designed to capture a rich and metaphorical description of participants\' experiences with breast cancer and what these experiences mean to them. Ten participants were recruited. An interpretative phenomenological analysis of the participants\' narratives highlighted a central metaphor: the cancer trace in one\'s life. The participants had to adapt to four specific traces of cancer: (1) the identity trace, (2) the existential trace, (3) the bodily trace, and (4) the narrative trace. We discuss how cancer challenges one\'s sense of biographical continuity and initiates a search for a new way of being. We also discuss how the metaphor of the trace differs from the metaphor of the cancer hero living without any trace of cancer.
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  • 文章类型: Journal Article
    背景:手术试验的数量正在增加,但此类试验的实施可能很复杂,并提出了具体的挑战。一个多中心,第三阶段,比较颈椎后路椎间孔切开术与颈椎前路椎间盘切除术和融合术治疗颈臂痛(FORVAD试验)的RCT无法招募目标。在试验结束期间进行了快速定性研究,以了解参与FORVAD试验的医疗保健专业人员的经验。目的是为该领域未来的研究提供信息。
    方法:对参与FORVAD试验的18名医疗保健专业人员进行了半结构化访谈。访谈探讨了FORVAD试验参与者的经验。进行了快速定性分析,由规范化过程理论提供信息。
    结果:数据分析中产生了四个主要主题:(1)个人与社区平衡;(2)试验设置和交付;(3)识别和接近患者;和(4)随机分组的时间安排。FORVAD试验的目标对参与者来说是有意义的,他们支持关于两种FORVAD干预措施存在临床或集体平衡的观点;然而,许多外科医生有治疗偏好,缺乏个体平衡。招募最成功的网站采用了更结构化的程序来识别和招募患者,而其他采用更多“临时”筛查策略的网站则难以识别患者。手术当天的随机化在某些地点引起了医学法律和实际问题。
    结论:神经外科手术试验的组织和实施是复杂的,并提出了许多挑战。站点经常报告招聘人数很少,并讨论了进行复杂的外科手术RCT的后勤问题。未来的神经外科试验可能需要在设置过程中提供更多的灵活性和时间,以最大限度地增加招聘人数的机会。规范化过程理论提供的快速定性分析能够快速确定试验实施的关键问题,因此快速定性分析可能是团队在试验中进行定性研究的有用方法。
    背景:ISRCTN,ISRCTN参考:10,133,661。2018年11月23日注册。
    BACKGROUND: The number of surgical trials is increasing but such trials can be complex to deliver and pose specific challenges. A multi-centre, Phase III, RCT comparing Posterior Cervical Foraminotomy versus Anterior Cervical Discectomy and Fusion in the Treatment of Cervical Brachialgia (FORVAD Trial) was unable to recruit to target. A rapid qualitative study was conducted during trial closedown to understand the experiences of healthcare professionals who participated in the FORVAD Trial, with the aim of informing future research in this area.
    METHODS: Semi-structured interviews were conducted with 18 healthcare professionals who had participated in the FORVAD Trial. Interviews explored participants\' experiences of the FORVAD trial. A rapid qualitative analysis was conducted, informed by Normalisation Process Theory.
    RESULTS: Four main themes were generated in the data analysis: (1) individual vs. community equipoise; (2) trial set-up and delivery; (3) identifying and approaching patients; and (4) timing of randomisation. The objectives of the FORVAD trial made sense to participants and they supported the idea that there was clinical or collective equipoise regarding the two FORVAD interventions; however, many surgeons had treatment preferences and lacked individual equipoise. The site which had most recruitment success had adopted a more structured process for identification and recruitment of patients, whereas other sites that adopted more \"ad hoc\" screening strategies struggled to identify patients. Randomisation on the day of surgery caused both medico-legal and practical concerns at some sites.
    CONCLUSIONS: Organisation and implementation of a surgical trial in neurosurgery is complex and presents many challenges. Sites often reported low recruitment and discussed the logistical issues of conducting a complex surgical RCT. Future trials in neurosurgery may need to offer more flexibility and time during set-up to maximise opportunities for larger recruitment numbers. Rapid qualitative analysis informed by Normalisation Process Theory was able to quickly identify key issues with trial implementation so rapid qualitative analysis may be a useful approach for teams conducting qualitative research in trials.
    BACKGROUND: ISRCTN, ISRCTN reference: 10,133,661. Registered 23rd November 2018.
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  • 文章类型: Journal Article
    目的:本研究旨在确定爱尔兰精英盖尔女运动运动员尿失禁(UI)的患病率和经验。
    方法:一项横断面研究,包括对盖尔精英运动(卡莫吉和盖尔女子足球)运动员的匿名在线调查。玩家被问及他们的背景信息,盆底知识和盆底肌肉训练(PFMT)的做法,以及他们的UI体验。使用国际失禁咨询问卷-UI简表(ICIQ-UI-SF)问卷评估UI的患病率和严重程度。采用Logistic回归分析评价危险因素。
    结果:共有185名球员做出了回应(25±5年),其中95.3%(n=176)是未产的。在过去的4周内,有41%(n=75)的玩家了解了PFMT,而13%(n=24)的玩家已经执行了PFMT。ICIQ-UI-SF由159名玩家完成,UI报告为61.6%(n=98),其中52%(n=51)经历了压力性尿失禁(SUI)。UI与更长的每周体育活动时间之间存在显着关联(OR1.05,95%CI1.002至1.008)。Parous玩家更有可能体验UI(p=0.025)。跳跃和冲刺活动是最常见的触发因素,具有预排空和磨损保护(衬垫,垫)最常用的UI管理策略。只有十名玩家报告接受UI治疗。
    结论:尿失禁在这一精英女性盖尔运动运动员队列中普遍存在。许多玩家使用策略来管理他们的UI,而很少有人为可治疗的疾病寻求帮助。研究结果表明,需要对运动员进行有关骨盆底健康和可用治疗方案的教育。
    OBJECTIVE: This study was aimed at identifying the prevalence and experience of urinary incontinence (UI) among elite female Gaelic sports athletes in Ireland.
    METHODS: A cross-sectional study comprising an anonymous online survey of elite Gaelic sports (Camogie and Ladies Gaelic Football) players. Players were asked about their background information, knowledge of the pelvic floor and practice of pelvic floor muscle training (PFMT), as well as their experiences of UI. The prevalence and severity of UI was assessed using the International Consultation on Incontinence Questionnaire-UI Short Form (ICIQ-UI-SF) questionnaire. Logistic regression was used to evaluate risk factors.
    RESULTS: A total of 185 players responded (25 ± 5 years) and 95.3% (n = 176) were nulliparous. Forty-one percent (n = 75) of players had learned about PFMT and 13% (n = 24) had performed PFMT within the last 4 weeks. The ICIQ-UI-SF was completed by 159 players, with UI reported by 61.6% (n = 98), 52% (n = 51) of whom experienced stress urinary incontinence (SUI). A significant association was found between UI and longer weekly sporting activity time (OR 1.05, 95% CI 1.002 to 1.008). Parous players were more likely to experience UI (p = 0.025). Jumping and sprinting activities were the most commonly reported triggers, with pre-voiding and wearing protection (liners, pads) the most commonly adopted UI management strategies. Only ten players reported receiving treatment for UI.
    CONCLUSIONS: Urinary incontinence is prevalent among this cohort of elite female Gaelic sports athletes. Many players used strategies to manage their UI whereas few sought help for what is a treatable condition. Findings suggest the need for education of players regarding pelvic floor health and treatment options available.
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  • 文章类型: Journal Article
    儿童心理健康问题涉及全世界大量儿童,是一项重大的公共卫生挑战。父母和照顾者缺乏这方面的知识阻碍了有效的管理。赋予家庭权力可以增强他们解决子女困难的能力,提高健康素养,促进积极的变化。然而,由于恐惧,寻求可靠的心理健康信息仍然具有挑战性,污名,以及对信息来源的不信任。
    这项研究评估了网站的接受度,CléPsy,旨在为关注儿童心理健康和育儿的家庭提供可靠的信息和实用工具。
    这项研究检查了用户特征并评估了易用性,有用性,可信度,以及使用网站的态度。平台用户可以通过邮件列表访问自我管理的问卷,社交网络,和2022年5月至7月之间的海报。
    研究结果表明,317名响应者中的大多数同意或有些同意,该网站使与专业人士(n=264,83.3%)或其亲属(n=260,82.1%)的有关心理健康的讨论更容易。根据方差分析,受教育程度和感知信任(F6=3.03;P=.007)以及使用频率和感知有用性(F2=4.85;P=.008)之间存在显著影响。
    该研究强调了用户体验和设计在基于Web的健康信息传播中的重要性,并强调了对可访问和基于证据的信息的需求。虽然这项研究有局限性,它为网站的可接受性和实用性提供了初步支持。未来的努力应侧重于与用户的包容性共建,并解决来自不同文化和教育背景的家庭的信息需求。
    UNASSIGNED: Childhood mental health issues concern a large amount of children worldwide and represent a major public health challenge. The lack of knowledge among parents and caregivers in this area hinders effective management. Empowering families enhances their ability to address their children\'s difficulties, boosts health literacy, and promotes positive changes. However, seeking reliable mental health information remains challenging due to fear, stigma, and mistrust of the sources of information.
    UNASSIGNED: This study evaluates the acceptance of a website, CléPsy, designed to provide reliable information and practical tools for families concerned about child mental health and parenting.
    UNASSIGNED: This study examines user characteristics and assesses ease of use, usefulness, trustworthiness, and attitude toward using the website. Platform users were given access to a self-administered questionnaire by means of mailing lists, social networks, and posters between May and July 2022.
    UNASSIGNED: Findings indicate that the wide majority of the 317 responders agreed or somewhat agreed that the website made discussions about mental health easier with professionals (n=264, 83.3%) or with their relatives (n=260, 82.1%). According to the ANOVA, there was a significant effect between educational level and perceived trust (F6=3.03; P=.007) and between frequency of use and perceived usefulness (F2=4.85; P=.008).
    UNASSIGNED: The study underlines the importance of user experience and design in web-based health information dissemination and emphasizes the need for accessible and evidence-based information. Although the study has limitations, it provides preliminary support for the acceptability and usefulness of the website. Future efforts should focus on inclusive co-construction with users and addressing the information needs of families from diverse cultural and educational backgrounds.
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  • 文章类型: Journal Article
    目标:在COVID-19大流行期间,助产士在前线提供护理时面临情绪和身体风险。
    背景:为了保持健康的助产劳动力,有必要了解助产士的大流行挑战和成功,包括他们个人和职业如何面对护理服务的变化。
    目的:这项综合研究的目的是了解在COVID-19大流行期间助产士的工作经验。
    方法:NabletandHare\(1988)的方法综合了定性研究。使用PRISMA指南确定了15份定性研究报告,提供了来自12个国家的588名助产士的样本。
    结果:综合显示了三个总体主题:(1)动荡和混乱:由于不断变化的协议而产生的一系列情绪,(2)新冠肺炎剥夺了助产护理中的“与之在一起”,和(3)找到我们的方式:助产的韧性和增长。一起分析,这三个主题有助于了解助产士在COVID-19大流行期间的工作经验。
    结论:助产士经历了恐惧,压力,和焦虑。他们觉得在大流行期间,他们不能和女性在一起。他们感到沮丧的是,他们被排除在影响他们所服务的女性的COVID-19协议的机构决策之外。作为助产士的职业成长,个人的韧性最终得以实现。
    结论:COVID-19大流行破坏了助产士在所有环境中提供护理的常规方式。了解助产士在大流行期间的完整经验,可以使助产组织了解其成员的需求,以及机构确保在未来大流行的情况下为助产士提供支持。
    OBJECTIVE: During the COVID-19 pandemic, midwives faced emotional and physical risks while on the frontlines providing care.
    BACKGROUND: To maintain a healthy midwifery workforce, it is necessary to understand midwives\' pandemic challenges and successes, including how they personally and professionally faced changes to care provision.
    OBJECTIVE: The aim of this meta-synthesis was to understand the experiences of midwives working during the COVID-19 pandemic.
    METHODS: Noblit and Hare\'s (1988) approach to synthesising qualitative research studies was followed. Fifteen qualitative research reports were identified using PRISMA guidelines, producing a sample of 588 midwives from 12 countries.
    RESULTS: The synthesis revealed three overarching themes: (1) Turmoil and confusion: a spectrum of emotions due to ever-changing protocols, (2) COVID-19 stripped the \"being with\" out of midwifery care, and (3) Finding our way: midwifery resilience and growth. Analysed together, these three themes contribute to understanding the experiences of midwives working during the COVID-19 pandemic.
    CONCLUSIONS: Midwives experienced fear, stress, and anxiety. They felt they couldn\'t physically be with women during the pandemic. They were frustrated by being left out of institutional decision-making regarding COVID-19 protocols that impacted the women they served. Professional growth as a midwife, and personal resilience were ultimately realised.
    CONCLUSIONS: The COVID-19 pandemic disrupted the routine ways in which midwives provide care in all settings. Understanding the complete experience of midwives during the pandemic allows for midwifery organizations to be aware of their members\' needs, as well as for institutions to ensure supports are in place for midwives in the event of future pandemics.
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  • 文章类型: Journal Article
    当涉及到健康相关的信息寻求行为时,在线社区对一些群体起着关键作用,如父母。以松散组织的疫苗接种系统中的在线社区为例,奥地利的,我们研究父母如何利用一个著名的在线论坛(父母。at)在其疫苗接种轨迹中,并将此分析置于其社会政治背景中。基于相关线索的归纳定性分析(n=27),我们发现父母通过三种方式使用论坛:第一,该论坛是一个平台,父母可以通过该平台在组织松散和分散的疫苗接种系统中寻求指导。第二,论坛提供了分享的空间,收集,评估不同形式的专业知识。在这样做的时候,父母们开辟了一个空间,让他们可以舒适地将专业知识和有资质的专业知识放在一起,特别是在他们给同龄人的建议中。第三,在此基础上,父母使用该论坛审议未来或过去与疫苗接种相关的决定。在这样做的时候,他们经常借鉴个人风险和收益的特殊概念。这三种做法使父母能够积累和分享我们标记的导航资本。我们得出的结论是,父母出于主观需要而诉诸网络空间,对一些人来说,由于国家儿童疫苗接种计划的功能障碍,该计划为父母提供了很少的指导。
    When it comes to health-related information-seeking behavior, online communities play a key role for some groups, such as parents. With a case study of online communities in a loosely organized vaccination system, that of Austria, we study how parents make use of a prominent online forum (parents.at) in their vaccination trajectories and situate this analysis in its socio-political context. Based on inductive qualitative analysis of relevant threads (n = 27), we find that parents use forums in three ways: First, the forum serves as a platform through which parents seek orientation in a loosely organized and fragmented vaccination system. Second, the forum offers space for sharing, collecting, and evaluating different forms of expertise. In doing so, parents carve out a space in which they can comfortably put lay expertise and credentialed expertise on a par, particularly in their advice to peers. Third, and on that basis, parents use the forum for deliberating on future or past vaccination-related decisions. In doing so, they frequently draw on idiosyncratic notions of individual risks and benefits. These three practices enable parents to accumulate and share what we label navigational capital. We conclude that parents resort to online spaces both out of a subjective need and, for some, as a result of a dysfunction of the national childhood vaccination program which offers little orientation for parents.
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  • 文章类型: Journal Article
    背景:OpenAI的ChatGPT是高级在线健康信息(OHI)的来源,可以集成到个人寻求健康信息的例程中。然而,人们对其事实准确性和对健康结果的影响表示担忧。预测对医疗实践和公共卫生的影响,需要更多关于谁使用该工具的信息,多久,为了什么。
    目的:本研究旨在描述ChatGPTOHI使用的原因和类型,并描述最有可能使用该平台的用户。
    方法:在这项横断面调查中,患者通过ResearchMatch平台收到了参与邀请,美国国立卫生研究院的非营利组织。一项基于网络的调查测量了人口特征,使用ChatGPT和其他来源的OHI,经验表征,以及由此产生的健康行为。使用描述性统计来总结数据。使用双尾t检验和Pearson卡方检验将ChatGPTOHI的用户与非用户进行比较。
    结果:在2406名受访者中,21.5%(n=517)的受访者报告使用ChatGPT进行OHI。ChatGPT用户比非用户年轻(32.8岁vs39.1岁,P<.001)具有较低的高级程度(BA或更高;49.9%vs67%,P<.001)和更多使用临时医疗保健(ED和紧急护理;P<.001)。ChatGPT用户是一般非ChatGPTOHI的更狂热的消费者(过去6个月内每周或更多OHI寻求频率的百分比,28.2%vs22.8%,P<.001)。约39.3%(n=206)的受访者认可每周使用OHI2-3次或更多的平台,大多数人寻求工具来确定是否需要咨询(47.4%,n=245)或探索替代治疗(46.2%,n=239)。使用表征是有利的,因为许多人认为ChatGPT与其他OHI一样或更有用(87.7%,n=429)和他们的医生(81%,n=407)。约三分之一的受访者要求转介(35.6%,n=184)或更换药物(31%,n=160)基于从ChatGPT接收的信息。由于许多用户对ChatGPT的输出表示怀疑(67.9%,n=336),大多数人求助于他们的医生(67.5%,n=349)。
    结论:这项研究强调了AI产生的OHI在塑造寻求健康行为和患者-提供者相互作用的潜在演变中的重要作用。鉴于这些用户倾向于根据人工智能生成的内容制定健康行为改变,医生有机会指导ChatGPTOHI用户对该技术的知情和检查使用。
    BACKGROUND: OpenAI\'s ChatGPT is a source of advanced online health information (OHI) that may be integrated into individuals\' health information-seeking routines. However, concerns have been raised about its factual accuracy and impact on health outcomes. To forecast implications for medical practice and public health, more information is needed on who uses the tool, how often, and for what.
    OBJECTIVE: This study aims to characterize the reasons for and types of ChatGPT OHI use and describe the users most likely to engage with the platform.
    METHODS: In this cross-sectional survey, patients received invitations to participate via the ResearchMatch platform, a nonprofit affiliate of the National Institutes of Health. A web-based survey measured demographic characteristics, use of ChatGPT and other sources of OHI, experience characterization, and resultant health behaviors. Descriptive statistics were used to summarize the data. Both 2-tailed t tests and Pearson chi-square tests were used to compare users of ChatGPT OHI to nonusers.
    RESULTS: Of 2406 respondents, 21.5% (n=517) respondents reported using ChatGPT for OHI. ChatGPT users were younger than nonusers (32.8 vs 39.1 years, P<.001) with lower advanced degree attainment (BA or higher; 49.9% vs 67%, P<.001) and greater use of transient health care (ED and urgent care; P<.001). ChatGPT users were more avid consumers of general non-ChatGPT OHI (percentage of weekly or greater OHI seeking frequency in past 6 months, 28.2% vs 22.8%, P<.001). Around 39.3% (n=206) respondents endorsed using the platform for OHI 2-3 times weekly or more, and most sought the tool to determine if a consultation was required (47.4%, n=245) or to explore alternative treatment (46.2%, n=239). Use characterization was favorable as many believed ChatGPT to be just as or more useful than other OHIs (87.7%, n=429) and their doctor (81%, n=407). About one-third of respondents requested a referral (35.6%, n=184) or changed medications (31%, n=160) based on the information received from ChatGPT. As many users reported skepticism regarding the ChatGPT output (67.9%, n=336), most turned to their physicians (67.5%, n=349).
    CONCLUSIONS: This study underscores the significant role of AI-generated OHI in shaping health-seeking behaviors and the potential evolution of patient-provider interactions. Given the proclivity of these users to enact health behavior changes based on AI-generated content, there is an opportunity for physicians to guide ChatGPT OHI users on an informed and examined use of the technology.
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  • 文章类型: Journal Article
    目的:这项研究的目的是回顾患者在社会生育保护(sFP)方面的经历,与医学生育保存(mFP)相比,在sFP得到全额报销的情况下。
    方法:我们进行了一项回顾性队列研究,涉及在大型ART单中心于2017年至2023年期间接受mFP卵母细胞冷冻保存和2022年至2023年接受sFP冷冻保存的患者。此外,我们调查了接受sFP和mFP的患者,关于他们的经历,意图,意识,和财务考虑。
    结果:共对75例妇女进行了97次sFP卵母细胞提取,在mFP中进行了155例(127例女性)。sFP的中位年龄为36.4岁,mFP的中位年龄为28.9岁。每个阶段检索的中位卵母细胞对于sFP为10,对于mFP为8。97%的mFP参与者由医疗保健专业人员告知,而一半的sFP参与者是通过个人熟人学习的。sFP的主要动机是单身时怀孕的愿望。两组中的大多数受访者都知道成功分娩通常需要15-20个卵母细胞。没有人知道\"DuoStim\"选项,但是大多数女性表达了兴趣。令人惊讶的是,尽管法国全额偿还了SFP,78%的人表示愿意在必要时付款。
    结论:由于担心生育率下降,许多女性选择sFP,经常被非医疗来源告知。免费获得sFP可以通过允许女性预测与年龄相关的生育率下降,帮助缓解全球出生下降。其他国家应该考虑这项研究,因为它们将来可能会越来越多地涵盖sFP成本。
    OBJECTIVE: The purpose of this study is to review patient experience with social fertility preservation (sFP), as compared to medical fertility preservation (mFP), in a context where sFP is fully reimbursed.
    METHODS: We conducted a retrospective cohort study involving patients who underwent oocyte cryopreservation for mFP between 2017 and 2023 and sFP between 2022 and 2023 at a large ART single center. Additionally, we surveyed patients undergoing sFP and mFP, regarding their experiences, intentions, awareness, and financial consideration.
    RESULTS: A total of 97 oocyte retrievals were performed for sFP in 75 women, and 155 were performed in mFP (127 women). Median ages were 36.4 years for sFP and 28.9 years for mFP. Median oocytes retrieved per session were 10 for sFP and 8 for mFP. Ninety-seven percent of of mFP participants were informed by healthcare professionals, while half of sFP participants learned through personal acquaintances. The primary motivation for sFP was a desire for pregnancy while being single. Most respondents in both groups knew that 15-20 oocytes are typically needed for a successful birth. None were aware of the \"DuoStim\" option, but interest was expressed by most women. Surprisingly, despite full reimbursement for sFP in France, 78% expressed willingness to pay if necessary.
    CONCLUSIONS: Many women choose sFP due to concerns about declining fertility, often informed by non-medical sources. Free access to sFP can help mitigate the global decline in natality by allowing women to anticipate age-related fertility decline. This study should be considered by other countries as they may increasingly cover sFP costs in the future.
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  • 文章类型: Journal Article
    不良儿童经历(ACE)的人口健康负担反映了对循证提供者培训的迫切需要。农村儿童也比城市儿童更有可能患有任何ACE。很大比例的提供者不知道ACE的有害影响。有大量记录需要培训提供者关于ACE和创伤知情护理,除了对培训的需求。
    目标是开发,工具,并评估为密苏里州提供商量身定制的在线ACE培训课程,特别是那些在农村地区,考虑到ACE的患病率较高。
    从2021年7月到2022年6月,我们对培训视频进行了文献综述和环境扫描,伙伴组织,临床实践指南,以及基于社区的资源,为课程策划适当和量身定制的内容。在教学设计师和媒体设计师的帮助下,我们在Canvas学习平台(Instructure)中开发了ACE培训课程。该课程获得了继续医学教育的认证,以及持牌专业辅导员的继续教育,心理学家,和社会工作者。通过关键利益相关者电子邮件邀请和滚雪球招聘进行招聘。
    总的来说,密苏里州的135个提供商要求注册,72.6%(n=98)注册和接受培训。在后者中,49%(n=48)完成课程要求,100%的受访者同意内容与他们的工作相关,生活,或实践;他们打算将内容应用于他们的工作,生活,或练习;他们有信心这样做;他们会向其他人推荐这门课程。定性回答支持将知识转化为实践的积极意图。
    这项研究证明了其可行性,可接受性,以及跨专业劳动力ACE培训的有效性。全州范围内的强烈兴趣反映了对主题重要性和将知识转化为实践的意图的认识。
    UNASSIGNED: The population health burden of adverse childhood experiences (ACEs) reflects a critical need for evidence-based provider training. Rural children are also more likely than urban children to have any ACEs. A large proportion of providers are unaware of the detrimental effects of ACEs. There is a significant documented need for training providers about ACEs and trauma-informed care, in addition to a demand for that training.
    UNASSIGNED: The objective was to develop, implement, and evaluate an online ACEs training curriculum tailored to Missouri providers, particularly those in rural areas given the higher prevalence of ACEs.
    UNASSIGNED: From July 2021 to June 2022, we conducted literature reviews and environmental scans of training videos, partner organizations, clinical practice guidelines, and community-based resources to curate appropriate and tailored content for the course. We developed the ACEs training course in the Canvas learning platform (Instructure) with the assistance of an instructional designer and media designer. The course was certified for continuing medical education, as well as continuing education for licensed professional counselors, psychologists, and social workers. Recruitment occurred via key stakeholder email invitations and snowball recruitment.
    UNASSIGNED: Overall, 135 providers across Missouri requested enrollment, with 72.6% (n=98) enrolling and accessing the training. Of the latter, 49% (n=48) completed course requirements, with 100% of respondents agreeing that the content was relevant to their work, life, or practice; they intend to apply the content to their work, life, or practice; they feel confident to do so; and they would recommend the course to others. Qualitative responses supported active intent to translate knowledge into practice.
    UNASSIGNED: This study demonstrated the feasibility, acceptability, and effectiveness of interprofessional workforce ACEs training. Robust interest statewide reflects recognition of the topic\'s importance and intention to translate knowledge into practice.
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  • 文章类型: Journal Article
    缺乏对不同性别人群的子宫内膜异位症经验的研究。我们使用现象学探索了11名变性者和非二元性人患有子宫内膜异位症的经验。我们通过多次访谈和日记收集数据,并使用诠释学分析构建了两个主题:(1)子宫内膜异位症的生活和性别多样化,和(2)作为一个性别多样化的个体,我们讨论了与医学现象学有关的问题。离家出走是一种与我们的身体脱节的体验,也是一种生活在慢性疾病中的结果。我们展示了不同性别的子宫内膜异位症患者可能会由于进一步的诊断延迟而产生额外的异乡性。可能引发性别不安的子宫内膜异位症症状和不包括性别认同的治疗经验。我们主张为不同性别的子宫内膜异位症患者提供额外的支持和认识。
    There is a lack of research on gender diverse people\'s experiences with endometriosis. We explored the experience of 11 transgender and non-binary people with endometriosis using phenomenology. We collected data through multiple interviews and diaries and constructed two themes using hermeneutic analysis: (1) Unhomelikeness of Living with Endometriosis and being Gender Diverse, and (2) Towards a Homelikeness of Living with Endometriosis as a Gender Diverse Individual, which we discussed in relation to Svenaeus Phenomenology of Medicine. Unhomelikeness is an experience of disconnection with our bodies and being-in-the-world as a result of living with a chronic disease. We show how gender diverse people with endometriosis may have additional layers of unhomelikeness due to further diagnostic delays, endometriosis symptoms that may trigger gender dysphoria and experiences with treatment that are not inclusive of their gender identity. We advocate for additional support and awareness for gender diverse people with endometriosis.
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