PDF(Pubmed)
Abstract：
As the number of people living with cancer increases, it is important to understand how people can live well with and after cancer. First Nations people diagnosed with cancer in Australia experience survival disparities relating to health service accessibility and a lack of understanding of cultural needs and lived experiences. This study aimed to amplify the voices of First Nations individuals impacted by cancer and advance the development of a culturally informed care pathway. Indigenist research methodology guided the relational and transformative approach of this study. Participants included varied cancer experts, including First Nations people living well with and after cancer, health professionals, researchers, and policy makers. Data were collected through online Yarning circles and analysed according to an inductive thematic approach. The experience of First Nations people living well with and after cancer is inextricably connected with family. The overall themes encompass hope, family, and culture and the four priority areas included the following: strength-based understanding of cancer, cancer information, access to healthcare and support, and holistic cancer services. Respect for culture is interwoven throughout. Models of survivorship care need to integrate family-centred cancer care to holistically support First Nations people throughout and beyond their cancer journey.
摘要：
随着癌症患者数量的增加，重要的是要了解人们如何在癌症和癌症之后生活得很好。在澳大利亚，被诊断患有癌症的原住民在医疗服务可及性方面存在生存差异，并且缺乏对文化需求和生活经验的了解。这项研究旨在扩大受癌症影响的原住民的声音，并促进文化知情护理途径的发展。本性主义的研究方法指导了本研究的关系和变革方法。参与者包括不同的癌症专家，包括患有癌症和癌症后生活良好的原住民，卫生专业人员,研究人员,和政策制定者。通过在线Yarning圈子收集数据，并根据归纳主题方法进行分析。原住民在癌症和癌症之后生活得很好的经历与家庭密不可分。整个主题包括希望，家庭,文化和四个优先领域包括:对癌症的基于力量的理解，癌症信息,获得医疗保健和支持，和整体癌症服务。对文化的尊重贯穿始终。生存护理模式需要整合以家庭为中心的癌症护理，以全面支持原住民的整个癌症之旅。
